Re: Numb face and sore throat (was: Re: Fatigue and Hot Flashes)

[Guest guest]

Hi , I don't havethe sore throat, but I do have the numb face. Lips, cheeks, forehead, eyelids (and sometimes that's just downright creepy lol), gums, tongue and all. The left of my face just before my ear is a big problem and it's where some of that intense itching hits. It wasn't long ago when I bit into something too hot and burned my gums, leaving a blister. I had no idea it happened until I felt the area later. Usually, even with numbing, it's not so intense I feel nothing at all. At least, I don't think it is. LOL Challis Deao wrote: Hi Sharon,Thanks for the word of encouragement. I can't believe that I haven't posted in months and so many of you remember me. You are all really, really wonderful! Blessings to all of you.Does the neurontin help with the numbness? I know I am on a pretty low dose especially compared to my son. I am taking 300mg a day and he's taking 3300mg. a day. I just got back into my jammies (it's 2pm here) because my legs are weak and shaky. My fingertips have gone numb. With my face - my ears and jaw don't hurt. But my lips, cheeks, and tongue are numb. I have also gotten lately what feels like a sore throat but when I go to the doctor it's fine looking but I can't touch my throat. So my general physician thinks its a nerve

problem related to my MS.You know I've had MS for 15 years it has gotten worse over the past year and I just feel like I need help figuring out how to deal with this again.Thanks for the reply it meant a lot to me! It's good to be back :0)>> I am having a really bad time with the fatigue right now. So, are you affected all the time or does it just come at times during the day? When it hits it is so overwhelming and it's impossible for me to stay awake. I don't take anything for it because my fatigue comes in spells and doesn't affect me year around. > > Hot flashes? Yes. But then I am 55 and the right age for it I guess. When I get hot it feels like I'm going to ignite! > > I do have facial numbness including my entire head

and neck at times but it isn't complete numbing like the dentist. I also have Trigeminal Neuralgia. Do you have pain in your jaw or ear area? How much Neurontin are you taking? Maybe you aren't taking enough. > > I'm glad you wrote, . I've been wondering about you. > > hugs)))> > > Sharon (MSersLife Group Owner/Creator) > It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant> > > > Fatigue and Hot Flashes> > Hi Everyone,> I haven't posted in a long time. I hope everyone is doing well. I > was wondering if anyone struggles with incredible fatigue?

I am on > Dexedrine to help with it - which is initially does in the morning > but I just feel like I can't function.> The other question I have is - does anyone struggle with always > being HOT or having HoT Flashes? I asked my Ob/Gyn if I was perhaps > perimenoupausal and he said no. I have struggled with this for the > last couple of years and I am 35. Just wondering if it something > w/MS or MS meds - I am on Betaseron, Dexedrine, Darvocet, Neurontin > and a couple of other things. Unfortunately- the meds have > increased again lately. Sorry, I just need to check in with people > who understand what I am talking about.> I also have lost complete feeling in my finger tips and toes. Last > summer I lost feeling in my face and tongue. It got a little better > but now it feels like when you go to the dentist for work and your > face is numb. Anyone else have this

too?> > THanks a bunch for any feed back,> >

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[Guest guest]

Hi , I don't havethe sore throat, but I do have the numb face. Lips, cheeks, forehead, eyelids (and sometimes that's just downright creepy lol), gums, tongue and all. The left of my face just before my ear is a big problem and it's where some of that intense itching hits. It wasn't long ago when I bit into something too hot and burned my gums, leaving a blister. I had no idea it happened until I felt the area later. Usually, even with numbing, it's not so intense I feel nothing at all. At least, I don't think it is. LOL Challis Deao wrote: Hi Sharon,Thanks for the word of encouragement. I can't believe that I haven't posted in months and so many of you remember me. You are all really, really wonderful! Blessings to all of you.Does the neurontin help with the numbness? I know I am on a pretty low dose especially compared to my son. I am taking 300mg a day and he's taking 3300mg. a day. I just got back into my jammies (it's 2pm here) because my legs are weak and shaky. My fingertips have gone numb. With my face - my ears and jaw don't hurt. But my lips, cheeks, and tongue are numb. I have also gotten lately what feels like a sore throat but when I go to the doctor it's fine looking but I can't touch my throat. So my general physician thinks its a nerve

problem related to my MS.You know I've had MS for 15 years it has gotten worse over the past year and I just feel like I need help figuring out how to deal with this again.Thanks for the reply it meant a lot to me! It's good to be back :0)>> I am having a really bad time with the fatigue right now. So, are you affected all the time or does it just come at times during the day? When it hits it is so overwhelming and it's impossible for me to stay awake. I don't take anything for it because my fatigue comes in spells and doesn't affect me year around. > > Hot flashes? Yes. But then I am 55 and the right age for it I guess. When I get hot it feels like I'm going to ignite! > > I do have facial numbness including my entire head

and neck at times but it isn't complete numbing like the dentist. I also have Trigeminal Neuralgia. Do you have pain in your jaw or ear area? How much Neurontin are you taking? Maybe you aren't taking enough. > > I'm glad you wrote, . I've been wondering about you. > > hugs)))> > > Sharon (MSersLife Group Owner/Creator) > It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant> > > > Fatigue and Hot Flashes> > Hi Everyone,> I haven't posted in a long time. I hope everyone is doing well. I > was wondering if anyone struggles with incredible fatigue?

I am on > Dexedrine to help with it - which is initially does in the morning > but I just feel like I can't function.> The other question I have is - does anyone struggle with always > being HOT or having HoT Flashes? I asked my Ob/Gyn if I was perhaps > perimenoupausal and he said no. I have struggled with this for the > last couple of years and I am 35. Just wondering if it something > w/MS or MS meds - I am on Betaseron, Dexedrine, Darvocet, Neurontin > and a couple of other things. Unfortunately- the meds have > increased again lately. Sorry, I just need to check in with people > who understand what I am talking about.> I also have lost complete feeling in my finger tips and toes. Last > summer I lost feeling in my face and tongue. It got a little better > but now it feels like when you go to the dentist for work and your > face is numb. Anyone else have this

too?> > THanks a bunch for any feed back,> >

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[Guest guest]

Isn't it bizarre? My husband, who is always very sensitive to my pains, didn't really appreciate how bad it was for me until he went to the dentist and got the numbing shots and didn't feel his face for half the night. One of the scary parts of this disease is that our entire body is full of nerves and it can strike anywhere anytime and it might never come back. How long have you had MS? Was it worse in the beginning or lately? I've had it for 15 years and in the last year it has gotten so much more aggressive. Love and blessings,Smyelin groovy wrote: Hi , I don't havethe sore throat, but I do have the numb face. Lips, cheeks, forehead, eyelids (and sometimes that's just downright creepy lol), gums, tongue and all. The left of my face just before my ear is a big problem and it's where some of that intense itching hits. It wasn't long ago when I bit into something too hot and burned my gums, leaving a blister. I had no idea it happened until I felt the area later. Usually, even with numbing, it's not so intense I feel nothing at all. At least, I don't think it is. LOL Challis Deao <f8thfulmom> wrote: Hi Sharon,Thanks for the word of encouragement. I can't believe that I haven't posted in months and so many of you remember me. You are all really, really wonderful! Blessings to all of you.Does the neurontin help with the numbness? I know I am on a pretty low dose especially compared to my son. I am taking 300mg a day and he's taking 3300mg. a day. I just got back into my jammies (it's 2pm here) because my legs are weak and shaky. My fingertips have gone numb. With my face - my ears and jaw don't hurt. But my lips, cheeks, and tongue are numb. I have also gotten lately what feels like a sore throat but when I go to the doctor it's fine looking but I can't touch my throat. So my general physician thinks its a nerve problem related to my MS.You know I've had MS for 15 years it has gotten worse over the past

year and I just feel like I need help figuring out how to deal with this again.Thanks for the reply it meant a lot to me! It's good to be back :0)>> I am having a really bad time with the fatigue right now. So, are you affected all the time or does it just come at times during the day? When it hits it is so overwhelming and it's impossible for me to stay awake. I don't take anything for it because my fatigue comes in spells and doesn't affect me year around. > > Hot flashes? Yes. But then I am 55 and the right age for it I guess. When I get hot it feels like I'm going to ignite! > > I do have facial numbness including my entire head and neck at times but it isn't complete numbing like the dentist. I also have Trigeminal

Neuralgia. Do you have pain in your jaw or ear area? How much Neurontin are you taking? Maybe you aren't taking enough. > > I'm glad you wrote, . I've been wondering about you. > > hugs)))> > > Sharon (MSersLife Group Owner/Creator) > It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant> > > > Fatigue and Hot Flashes> > Hi Everyone,> I haven't posted in a long time. I hope everyone is doing well. I > was wondering if anyone struggles with incredible fatigue? I am on > Dexedrine to help with it - which is initially does in the morning > but

I just feel like I can't function.> The other question I have is - does anyone struggle with always > being HOT or having HoT Flashes? I asked my Ob/Gyn if I was perhaps > perimenoupausal and he said no. I have struggled with this for the > last couple of years and I am 35. Just wondering if it something > w/MS or MS meds - I am on Betaseron, Dexedrine, Darvocet, Neurontin > and a couple of other things. Unfortunately- the meds have > increased again lately. Sorry, I just need to check in with people > who understand what I am talking about.> I also have lost complete feeling in my finger tips and toes. Last > summer I lost feeling in my face and tongue. It got a little better > but now it feels like when you go to the dentist for work and your > face is numb. Anyone else have this too?> > THanks a bunch for any feed back,>

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