Guest guest Posted March 31, 2008 Report Share Posted March 31, 2008 The following website is for the average " Joe / Joan " patient to share their treatment stories. This would be a good place to share - warn others of this potential problem. http://www.revolutionhealth.com/drugs-treatments I recorded my experience of the Rebif (Elixir of Satanhydrate) reducing my ability to walk on this website. I did a walking test while on the Rebif and then after a one week " vacation " from the Rebif. My walking was dramatically better when I did not take the Rebif. There is a MSN group, " patients like me " , or something to that effect that seems somewhat helpful. I told my neurologist this story. His reply was " I've never heard of that before, keep taking the Rebif " . I reduced the Rebif dose to half doses, then I skipped doses, and then said $(%# this stuff and quit all together. Apologies for the Rebif " vent " . I'll resume my quest for a positive treatment for my sickness. > > Hello, > ......What they fail to tell you is that 20% of people who take interferons, their eyes will be affected. Guess what? I'm one of the 20%. I have microaneuryisms(?) in my eyes..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2008 Report Share Posted March 31, 2008 Copaxone Rebif Avonex Betaseron C. R. A. B. Pete, most of the members of this group have chosen an alternative route. We don't recommend the CRAB drugs. > Quote Link to comment Share on other sites More sharing options...
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