Re: Son on DMSA&ALA Autistic behavior has become worse

[Guest guest]

In a message dated 10/17/01 11:38:43 AM Eastern Daylight Time,

robcorcis@... writes:

> I am to give

> him 25mgDMSA and 25mg ALA every 3 hours day and 4 night. Correct?

> Will this help his behavior? I need help! Please write me,Thank

> you.

>

I give my 34 pound son whose 4 yrs. old 25 mg. DMSA and 12.5 mg. of ALA every

3 hours around the clock for 3 days on and 4 days off. We have had no bad

side effects accept a little more hyper in the beginning. I would definitely

switch him to this schedule and start at a low dose and work up. I'm going to

stick with this dosage for my son since we're seeing improvements but very

few side effects. Let us know if this scheduling works better for him.

Jo (South Carolina)

[Guest guest]

My daughter is also six years old, and about 55 pounds. I give her 100 mg

DMSA, 3 days on and 4 days off for 3 weeks, then 3 days on 11 days off for

one week, per Dr. Amy. We haven't gotten to stage 2 yet. It seems like her

behaviors and stims yo-yo, she'll be great for a few days and then her stims

and behaviors worsen. It doesn't seem to be consistent with the timing of the

chelation, so I don't know what's up. Since we're not doing ALA yet, it can't

be the mercury, right? It's very difficult, because when they're doing well

you think they're finally on the road to recovery, and feel elated, then they

regress and you get depressed and feel that nothing will ever work. I guess

we have to hang in there and keep trying.

[Guest guest]

>My son is 6 yrs old weighing 50 lbs. Per the DAN protocol he was

>given DMSA 200mg and ALA 25 mg 3xday 3 days on 11 off. Although his

>fine motor skills improved and a few more words in his speech his

>stimming and autistic behavior has worsened tremendously. It is also

>difficult to get him to eat. He's been on this for 4 months. Going

>through all Andy's archives I've been O.D.ing my son. I am to give

>him 25mgDMSA and 25mg ALA every 3 hours day and 4 night. Correct?

>Will this help his behavior? I need help! Please write me,Thank

>you.

>

>Kate

Dear Kate,

Yep, you got Andy's dose and schedule absolutely right.

My flip-sounding-but-don't-mean-to-be answer to " will this help "

is: you try it, then tell us if it did.

What I really mean is that trying it is about the only useful

thing I would know to suggest, so, get on with it and see.

It seems likely that it will help.

I take his worsening symptoms as an indication that mercury

(or other metals affected by DMSA/ALA) ARE IN FACT INVOLVED--

sort of a confirmation that you are on the right path (even

if you are on a side street).

best wishes, good luck, and I shall hope for updates,

Moria

[Guest guest]

---My son(10) went through some increase in stimming

(auditorially and visually) after about 4 months of

chelation...although with my dad being ill for so long, did not

chelate exactly correctly, I suppose. I noticed the biggest increase

in stimming after running out of Transfer Factor, while in FL

visiting dad.

I am using a " combination " of DAN and Andy's protocol...

weighs 125# I give him 200mg DMSA and 50mg ALA every 4 hours

plus all of the support supplements and more...EFA's, etc. Lindy

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

~~~In @y..., Moria Merriweather <moriam@e...> wrote:

> >My son is 6 yrs old weighing 50 lbs. Per the DAN protocol he was

> >given DMSA 200mg and ALA 25 mg 3xday 3 days on 11 off. Although

his

> >fine motor skills improved and a few more words in his speech his

> >stimming and autistic behavior has worsened tremendously. It is

also

> >difficult to get him to eat. He's been on this for 4 months.

Going

> >through all Andy's archives I've been O.D.ing my son. I am to give

> >him 25mgDMSA and 25mg ALA every 3 hours day and 4 night.

Correct?

> >Will this help his behavior? I need help! Please write me,Thank

> >you.

> >

> >Kate

>

> Dear Kate,

>

> Yep, you got Andy's dose and schedule absolutely right.

> My flip-sounding-but-don't-mean-to-be answer to " will this help "

> is: you try it, then tell us if it did.

> What I really mean is that trying it is about the only useful

> thing I would know to suggest, so, get on with it and see.

> It seems likely that it will help.

> I take his worsening symptoms as an indication that mercury

> (or other metals affected by DMSA/ALA) ARE IN FACT INVOLVED--

> sort of a confirmation that you are on the right path (even

> if you are on a side street).

>

> best wishes, good luck, and I shall hope for updates,

> Moria

[Guest guest]

>My daughter is also six years old, and about 55 pounds. I give her 100 mg

>DMSA, 3 days on and 4 days off for 3 weeks, then 3 days on 11 days off for

>one week, per Dr. Amy. We haven't gotten to stage 2 yet. It seems like her

>behaviors and stims yo-yo, she'll be great for a few days and then her stims

>and behaviors worsen. It doesn't seem to be consistent with the timing of

the

>chelation, so I don't know what's up. Since we're not doing ALA yet, it

can't

>be the mercury, right?

No. That's not right. DMSA removes mercury FROM THE BODY. ALA removes

it from brain/CNS + body. The " unique " feature of ALA is the " brain "

portion. The reason Dr. Amy has you using the DMSA first is to clear

all the merc out of the body before using ALA. To say it more

properly, ALA crosses the blood=brain-barrier, so it can EITHER

bring mercury INTO the brain, or take mercury OUT of the brain.

You want the latter Read more about this. Threre's got to

be at least some writing on this in the ANDY_INDEX (look at the

ones about BBB and ALA).

/files/ANDY_INDEX

(By the way, if someone were to take ALA and happened to have

brain & blood levels such that merc was brought INTO the brain,

my understanding is that if the person continued chelation the

merc would later all be removed. It is a " temporary " effect as

long as you keep chelating. The ALA will lower the overall

[body+brain] levels of merc till the point when merc is then

REMOVED from the brain.)

It's very difficult, because when they're doing well

>you think they're finally on the road to recovery, and feel elated, then

they

>regress and you get depressed and feel that nothing will ever work. I guess

>we have to hang in there and keep trying.

You might also want to read Andy's opinions on 4 vs 8 hour dosing,

if you haven't already heard it all in minute detail.

Moria

[Guest guest]

Is this what most people are seeing with chelation?

We are expecting to begin chelation within the next few weeks with

our 7 year old son. He has a hernia and will have surgery on 11/5 so

we need to wait until after the surgery to begin.

Our DAN doctor expressed to us last night that whatever behaviors he

now has that are troublesome, will no doubt become worse before they

get better. My son's worst behaviors are horrific stims.

Is this what most of you are seeing with your children on chelation?

Thanks.

Cheryl

>

> >My daughter is also six years old, and about 55 pounds. I give her

100 mg

> >DMSA, 3 days on and 4 days off for 3 weeks, then 3 days on 11 days

off for

> >one week, per Dr. Amy. We haven't gotten to stage 2 yet. It seems

like her

> >behaviors and stims yo-yo, she'll be great for a few days and then

her stims

> >and behaviors worsen. It doesn't seem to be consistent with the

timing of

> the

> >chelation, so I don't know what's up. Since we're not doing ALA

yet, it

> can't

> >be the mercury, right?

>

> No. That's not right. DMSA removes mercury FROM THE BODY. ALA

removes

> it from brain/CNS + body. The " unique " feature of ALA is

the " brain "

> portion. The reason Dr. Amy has you using the DMSA first is to clear

> all the merc out of the body before using ALA. To say it more

> properly, ALA crosses the blood=brain-barrier, so it can EITHER

> bring mercury INTO the brain, or take mercury OUT of the brain.

> You want the latter Read more about this. Threre's got to

> be at least some writing on this in the ANDY_INDEX (look at the

> ones about BBB and ALA).

> /files/ANDY_INDEX

>

> (By the way, if someone were to take ALA and happened to have

> brain & blood levels such that merc was brought INTO the brain,

> my understanding is that if the person continued chelation the

> merc would later all be removed. It is a " temporary " effect as

> long as you keep chelating. The ALA will lower the overall

> [body+brain] levels of merc till the point when merc is then

> REMOVED from the brain.)

>

> It's very difficult, because when they're doing well

> >you think they're finally on the road to recovery, and feel

elated, then

> they

> >regress and you get depressed and feel that nothing will ever

work. I guess

> >we have to hang in there and keep trying.

>

> You might also want to read Andy's opinions on 4 vs 8 hour dosing,

> if you haven't already heard it all in minute detail.

>

> Moria

[Guest guest]

> >

> > >My daughter is also six years old, and about 55 pounds. I give

her

> 100 mg

> > >DMSA, 3 days on and 4 days off for 3 weeks, then 3 days on 11

days

> off for

> > >one week, per Dr. Amy. We haven't gotten to stage 2 yet. It

seems

> like her

> > >behaviors and stims yo-yo, she'll be great for a few days and

then

> her stims

> > >and behaviors worsen. It doesn't seem to be consistent with the

> timing of

> > the

> > >chelation, so I don't know what's up. Since we're not doing ALA

> yet, it

> > can't

> > >be the mercury, right?

> >

> > No. That's not right. DMSA removes mercury FROM THE BODY. ALA

> removes

> > it from brain/CNS + body. The " unique " feature of ALA is

> the " brain "

> > portion. The reason Dr. Amy has you using the DMSA first is to

clear

> > all the merc out of the body before using ALA. To say it more

> > properly, ALA crosses the blood=brain-barrier, so it can EITHER

> > bring mercury INTO the brain, or take mercury OUT of the brain.

> > You want the latter Read more about this. Threre's got to

> > be at least some writing on this in the ANDY_INDEX (look at the

> > ones about BBB and ALA).

> > /files/ANDY_INDEX

> >

> > (By the way, if someone were to take ALA and happened to have

> > brain & blood levels such that merc was brought INTO the brain,

> > my understanding is that if the person continued chelation the

> > merc would later all be removed. It is a " temporary " effect as

> > long as you keep chelating. The ALA will lower the overall

> > [body+brain] levels of merc till the point when merc is then

> > REMOVED from the brain.)

> >

> > It's very difficult, because when they're doing well

> > >you think they're finally on the road to recovery, and feel

> elated, then

> > they

> > >regress and you get depressed and feel that nothing will ever

> work. I guess

> > >we have to hang in there and keep trying.

> >

> > You might also want to read Andy's opinions on 4 vs 8 hour dosing,

> > if you haven't already heard it all in minute detail.

> >

> > Moria

[Guest guest]

In a message dated 10/18/2001 9:11:07 AM Pacific Daylight Time,

lmart96834@... writes:

> Our DAN doctor expressed to us last night that whatever behaviors he

> now has that are troublesome, will no doubt become worse before they

> get better. My son's worst behaviors are horrific stims.

We're about to begin our 4th round on our twins with DMSA, they are 40-45

pounds and we're giving them about 20 mg every 4 hours. We've seen no bad

side effects with the medication. We have had some problems crop up but it's

all in how you interpret them in our case. Before, our son would just scream

bloody murder for something he wanted, now he speaks coherent words with an

attitude. It's like the terrible two's have just arrive for our 5 year olds.

It's been something 'new' to deal with but it's much better than his

screaming and my guessing! His autistic behaviors and stims seem to be

better but we're still very new to the game. I think most folks here would

say - the higher the dosage, the more side effects. Donna

[Guest guest]

That's not necassirly true. My son't behavior did not

get worse with chelation so far. We have done a total

of twelve rounds with six rounds of ALA. Vicky

--- lmart96834@... wrote:

> Is this what most people are seeing with chelation?

>

>

> We are expecting to begin chelation within the next

> few weeks with

> our 7 year old son. He has a hernia and will have

> surgery on 11/5 so

> we need to wait until after the surgery to begin.

>

> Our DAN doctor expressed to us last night that

> whatever behaviors he

> now has that are troublesome, will no doubt become

> worse before they

> get better. My son's worst behaviors are horrific

> stims.

>

> Is this what most of you are seeing with your

> children on chelation?

>

> Thanks.

>

> Cheryl

>

>

> >

> > >My daughter is also six years old, and about 55

> pounds. I give her

> 100 mg

> > >DMSA, 3 days on and 4 days off for 3 weeks, then

> 3 days on 11 days

> off for

> > >one week, per Dr. Amy. We haven't gotten to stage

> 2 yet. It seems

> like her

> > >behaviors and stims yo-yo, she'll be great for a

> few days and then

> her stims

> > >and behaviors worsen. It doesn't seem to be

> consistent with the

> timing of

> > the

> > >chelation, so I don't know what's up. Since we're

> not doing ALA

> yet, it

> > can't

> > >be the mercury, right?

> >

> > No. That's not right. DMSA removes mercury FROM

> THE BODY. ALA

> removes

> > it from brain/CNS + body. The " unique " feature of

> ALA is

> the " brain "

> > portion. The reason Dr. Amy has you using the DMSA

> first is to clear

> > all the merc out of the body before using ALA. To

> say it more

> > properly, ALA crosses the blood=brain-barrier, so

> it can EITHER

> > bring mercury INTO the brain, or take mercury OUT

> of the brain.

> > You want the latter Read more about this.

> Threre's got to

> > be at least some writing on this in the ANDY_INDEX

> (look at the

> > ones about BBB and ALA).

> >

>

/files/ANDY_INDEX

> >

> > (By the way, if someone were to take ALA and

> happened to have

> > brain & blood levels such that merc was brought

> INTO the brain,

> > my understanding is that if the person continued

> chelation the

> > merc would later all be removed. It is a

> " temporary " effect as

> > long as you keep chelating. The ALA will lower the

> overall

> > [body+brain] levels of merc till the point when

> merc is then

> > REMOVED from the brain.)

> >

> > It's very difficult, because when they're doing

> well

> > >you think they're finally on the road to

> recovery, and feel

> elated, then

> > they

> > >regress and you get depressed and feel that

> nothing will ever

> work. I guess

> > >we have to hang in there and keep trying.

> >

> > You might also want to read Andy's opinions on 4

> vs 8 hour dosing,

> > if you haven't already heard it all in minute

> detail.

> >

> > Moria

>

>

__________________________________________________

[Guest guest]

> That's not necassirly true. My son't behavior did not

> get worse with chelation so far. We have done a total

> of twelve rounds with six rounds of ALA. Vicky

on what administration schedule, and using what dose?

Andy

>

[Guest guest]

> My son is 6 yrs old weighing 50 lbs. Per the DAN protocol he was

> given DMSA 200mg and ALA 25 mg 3xday 3 days on 11 off. Although

his

> fine motor skills improved and a few more words in his speech his

> stimming and autistic behavior has worsened tremendously. It is

also

> difficult to get him to eat. He's been on this for 4 months.

Going

> through all Andy's archives I've been O.D.ing my son. I am to give

> him 25mgDMSA and 25mg ALA every 3 hours day and 4 night. Correct?

Yes.

> Will this help his behavior?

Nothing is certain, but I think this is highly likely.

> I need help! Please write me,Thank

> you.

>

> Kate

[Guest guest]

Andy, I follow your protocol. DMSA every four hour,

ALA every three hour, DMSA and ALA every three hour

during the day and every four at night and DMPS every

eight hour. He gets 25mg of (DMSA and ALA) every three

during the day and every four hour at night. Dosing

schedule is extremely important in my regiment and the

dosage also. I give him three extra dosages at the end

of the chelation cycle of just DMSA when I do both ALA

and DMSA. He does not have any regression periods

after chelation when I do this. I found that when I

don't he does have a slight regression for a couple of

days. He is four years old and weighs about 42 lbs..

Vicky

--- AndyCutler@... wrote:

>

> > That's not necassirly true. My son't behavior did

> not

> > get worse with chelation so far. We have done a

> total

> > of twelve rounds with six rounds of ALA. Vicky

>

> on what administration schedule, and using what

> dose?

>

> Andy

> >

>

>

__________________________________________________