Guest guest Posted January 1, 2002 Report Share Posted January 1, 2002 That makes WAY TOO MUCH sense. Boy I feel dumb. Well then let me ask another intelligent question. If this is accurate... " Local recurrence is associated with an increase in mortality. It occurs in about 5-15% of patients and is associated with an approximately 40% mortality. " Does this mean if you have a recurrence in the lymph nodes in your neck (you would have to first have a clean scan and an undetectable TG in order for it to be classified as a recurrence.?) the mortality goes from 5-7% to 40%? Then if this is accurate, in reference to lung mets... " In patients with a negative CXR, but positive I-131 scans, there was a 10 year survival rate of 96% and a complete disease remission rate of 80% following I-131 therapy. " Does this mean you are better off to have mets to your lungs rather than a recurrence in the neck? I don't understand what the implications are of my positive I-131 post ablative scan with the chest(?) lighting up. I feel like an illiterate person trying to decipher what I am reading. Can someone who speaks English tell me some stats I can understand? What would be the best thing I could find out now? Bergeron(age 24,Tampa FL) elizabetholson0@... that last 0 is a zero pap. thyca 11/00 (both lobes and lymph nodes) tt 12/00, RAI 175mCi 1/01 one year later TSH 73 TG was 38.2 48 hr scan came back clean 72 hr clean as well 204 mCi on Dec 17, 2001 scan 9 days later showed activity in the chest awaiting more scans to find out specifically where it is -- On Wed, 02 Jan 2002 02:34:45 aaron_random wrote: >Boy am I unqualified, but I'm on when you are. > >I'm pretty sure it's *chest X-ray* > >Happy New Year, >/ > > >> I don't understand this... >> Regarding lung mets in differentiated thyroid cancer: The >early (pre-radiographic) scintigraphic diagnosis and I-131 therapy of >lung mets appears to be the most important element in obtaining both >a significant improvement in survival rate and a prolonged disease >free time interval in these patients. In patients with a negative >CXR, but positive I-131 scans, there was a 10 year survival rate of >96% and a complete disease remission rate of 80% following I-131 >therapy. In patients with both a positive CXR and a positive I-131 >scan, the 10 year survival rate was significantly lower (40%) and >complete remission was rarely achieved (4%). Patients with a positive >CXR, but a negative I-131 scan had the worst prognosis with a 10 year >survival rate of only 10% and no complete remissions. It should be >pointed out that the micronodular pattern (miliary) of lung mets was >invariably related to good I-131 uptake and a better prognosis, while >macronodular (over 0.5 cm) mets frequently sh >> owed poor uptake and had an associated worse prognosis. (Fatal >outcome was almost always observed in patients with macronodular mets >and no I-131 accumulation). In summary: The presence of iodine >concentrating pulmonary mets with a negative CXR appears not to >influence mortality, however, non-concentrating micro- or >macronodular mets do increase mortality risk. Overall, men have a >higher incidence of pulmonary mets. >> >> What does this mean? Can someone decipher this for me? I don't >understand so much of this. >> >> Bergeron(age 24,Tampa FL) >> elizabetholson0@m... >> that last 0 is a zero >> >> pap. thyca 11/00 (both lobes and lymph nodes) >> tt 12/00, RAI 175mCi 1/01 >> one year later TSH 73 >> TG was 38.2 >> 48 hr scan came back clean >> 72 hr clean as well >> 204 mCi on Dec 17, 2001 >> scan 9 days later showed activity in the chest >> awaiting more scans to find out specifically where it is >> -- -- Click here for your very own create-a-date adventure from MatchMaker Go to http://ecard.matchmaker.com/dating.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2002 Report Share Posted January 1, 2002 , I speak english and I think you should not try and put yourself into that information. You are NOT dumb....just worried. This is such an indiviualized disease that trying to pull answers out relative to your situation seems like a further way to worry yourself. Many of us, including myself, have had neck dissection AND lung mets and are still here to talk about it. What mortality rate? RelaX! Gail dx: 1968, TT, pap. & foll. well differentiated, RAI, rad.neck dissection,lung surgery, hashimoto, high antibody count, iodine resistant,existing thyca nodules in lungs. Last surgery 1972 > >> I don't understand this... > >> Regarding lung mets in differentiated thyroid cancer: The > >early (pre-radiographic) scintigraphic diagnosis and I-131 therapy of > >lung mets appears to be the most important element in obtaining both > >a significant improvement in survival rate and a prolonged disease > >free time interval in these patients. In patients with a negative > >CXR, but positive I-131 scans, there was a 10 year survival rate of > >96% and a complete disease remission rate of 80% following I-131 > >therapy. In patients with both a positive CXR and a positive I-131 > >scan, the 10 year survival rate was significantly lower (40%) and > >complete remission was rarely achieved (4%). Patients with a positive > >CXR, but a negative I-131 scan had the worst prognosis with a 10 year > >survival rate of only 10% and no complete remissions. It should be > >pointed out that the micronodular pattern (miliary) of lung mets was > >invariably related to good I-131 uptake and a better prognosis, while > >macronodular (over 0.5 cm) mets frequently sh > >> owed poor uptake and had an associated worse prognosis. (Fatal > >outcome was almost always observed in patients with macronodular mets > >and no I-131 accumulation). In summary: The presence of iodine > >concentrating pulmonary mets with a negative CXR appears not to > >influence mortality, however, non-concentrating micro- or > >macronodular mets do increase mortality risk. Overall, men have a > >higher incidence of pulmonary mets. > >> > >> What does this mean? Can someone decipher this for me? I don't > >understand so much of this. > >> > >> Bergeron(age 24,Tampa FL) > >> elizabetholson0@m... > >> that last 0 is a zero > >> > >> pap. thyca 11/00 (both lobes and lymph nodes) > >> tt 12/00, RAI 175mCi 1/01 > >> one year later TSH 73 > >> TG was 38.2 > >> 48 hr scan came back clean > >> 72 hr clean as well > >> 204 mCi on Dec 17, 2001 > >> scan 9 days later showed activity in the chest > >> awaiting more scans to find out specifically where it is > >> > > -- > > > > > -- > Click here for your very own create-a-date adventure from MatchMaker > Go to http://ecard.matchmaker.com/dating.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2002 Report Share Posted January 1, 2002 Gail, I appreciate that your intentions are to calm my nerves. I take comfort in knowledge and right now I don't feel like I have a lot of knowledge. I am not all that worried. But I do realize in 30 years I will only be 54 years old. That's still SO young. I just want to make sure the right things are being done. I want to feel prepared for whatever my Dr. has to tell me over the next few weeks. And part of that is understanding what has a better prognosis. For me to know that I have to understand what factors change the mortality rates. We all have been the exception so comfort is no longer found in statistics for me. In the same way statistics don't frighten me. I find my comfort in feeling like I know as much as I can about what is going on in my body. If I can't control it (which obviously we can't) the least we can do is try to understand what is going on. I seek information and in that I find comfort one way or another. I don't want to sound ungrateful but I do hope you rea lize I'm not over here worrying over something that is going to be a part of my life for many years to come. Enough about me. What are they doing for you? What are they planning? You still have nodules in your lungs? Have they not responded well to I-131? What's up? Bergeron(age 24,Tampa FL) elizabetholson0@... that last 0 is a zero pap. thyca 11/00 (both lobes and lymph nodes) tt 12/00, RAI 175mCi 1/01 one year later TSH 73 TG was 38.2 48 hr scan came back clean 72 hr clean as well 204 mCi on Dec 17, 2001 scan 9 days later showed activity in the chest awaiting more scans to find out specifically where it is -- On Wed, 02 Jan 2002 03:35:15 fotoladyx2 wrote: >, > >I speak english and I think you should not try and put yourself into >that information. You are NOT dumb....just worried. >This is such an indiviualized disease that trying to pull answers out >relative to your situation seems like a further way to worry yourself. >Many of us, including myself, have had neck dissection AND lung mets >and are still here to talk about it. What mortality rate? > >RelaX! > >Gail >dx: 1968, TT, pap. & foll. well differentiated, RAI, >rad.neck dissection,lung surgery, hashimoto, high antibody >count, iodine resistant,existing thyca nodules in lungs. >Last surgery 1972 > > > > >> >> I don't understand this... >> >> Regarding lung mets in differentiated thyroid cancer: The >> >early (pre-radiographic) scintigraphic diagnosis and I-131 therapy of >> >lung mets appears to be the most important element in obtaining both >> >a significant improvement in survival rate and a prolonged disease >> >free time interval in these patients. In patients with a negative >> >CXR, but positive I-131 scans, there was a 10 year survival rate of >> >96% and a complete disease remission rate of 80% following I-131 >> >therapy. In patients with both a positive CXR and a positive I-131 >> >scan, the 10 year survival rate was significantly lower (40%) and >> >complete remission was rarely achieved (4%). Patients with a positive >> >CXR, but a negative I-131 scan had the worst prognosis with a 10 year >> >survival rate of only 10% and no complete remissions. It should be >> >pointed out that the micronodular pattern (miliary) of lung mets was >> >invariably related to good I-131 uptake and a better prognosis, while >> >macronodular (over 0.5 cm) mets frequently sh >> >> owed poor uptake and had an associated worse prognosis. (Fatal >> >outcome was almost always observed in patients with macronodular mets >> >and no I-131 accumulation). In summary: The presence of iodine >> >concentrating pulmonary mets with a negative CXR appears not to >> >influence mortality, however, non-concentrating micro- or >> >macronodular mets do increase mortality risk. Overall, men have a >> >higher incidence of pulmonary mets. >> >> >> >> What does this mean? Can someone decipher this for me? I don't >> >understand so much of this. >> >> >> >> Bergeron(age 24,Tampa FL) >> >> elizabetholson0@m... >> >> that last 0 is a zero >> >> >> >> pap. thyca 11/00 (both lobes and lymph nodes) >> >> tt 12/00, RAI 175mCi 1/01 >> >> one year later TSH 73 >> >> TG was 38.2 >> >> 48 hr scan came back clean >> >> 72 hr clean as well >> >> 204 mCi on Dec 17, 2001 >> >> scan 9 days later showed activity in the chest >> >> awaiting more scans to find out specifically where it is >> >> >> >> -- >> >> >> >> >> -- >> Click here for your very own create-a-date adventure from MatchMaker >> Go to http://ecard.matchmaker.com/dating.html > > > -- Click here for your very own create-a-date adventure from MatchMaker Go to http://ecard.matchmaker.com/dating.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2002 Report Share Posted January 1, 2002 , I know you are anxious for answers and I understand your feelings. Information is definitely a source of comfort, knowledge is power. I'm not trying to discount your thirst for answers, just trying to reflect a bit on what it can do to you until you have more medical input. I am followed on Ct for my lungs mets. No, they can do nothing as it is buck shot all over my lungs for the last 28 years. So, there you go, a statistic that just doesn't fit statistically. Gail dx: 1968, TT, pap. & foll. well differentiated, RAI, rad.neck dissection,lung surgery, hashimoto, high antibody count, iodine resistant,existing thyca nodules in lungs. Last surgery 1972 > Gail, > I appreciate that your intentions are to calm my nerves. I take comfort in knowledge and right now I don't feel like I have a lot of knowledge. I am not all that worried. But I do realize in 30 years I will only be 54 years old. That's still SO young. I just want to make sure the right things are being done. I want to feel prepared for whatever my Dr. has to tell me over the next few weeks. And part of that is understanding what has a better prognosis. For me to know that I have to understand what factors change the mortality rates. We all have been the exception so comfort is no longer found in statistics for me. In the same way statistics don't frighten me. I find my comfort in feeling like I know as much as I can about what is going on in my body. If I can't control it (which obviously we can't) the least we can do is try to understand what is going on. I seek information and in that I find comfort one way or another. I don't want to sound ungrateful but I do hope you rea > lize I'm not over here worrying over something that is going to be a part of my life for many years to come. > Enough about me. What are they doing for you? What are they planning? You still have nodules in your lungs? Have they not responded well to I-131? What's up? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2002 Report Share Posted January 1, 2002 Good Luck Gail and thanks for the feedback. Bergeron -- On Wed, 02 Jan 2002 04:21:58 fotoladyx2 wrote: >, >I know you are anxious for answers and I understand your feelings. >Information is definitely a source of comfort, knowledge is power. I'm >not trying to discount your thirst for answers, just trying to reflect >a bit on what it can do to you until you have more medical input. > >I am followed on Ct for my lungs mets. No, they can do nothing as it >is buck shot all over my lungs for the last 28 years. So, there you >go, a statistic that just doesn't fit statistically. > >Gail >dx: 1968, TT, pap. & foll. well differentiated, RAI, >rad.neck dissection,lung surgery, hashimoto, high antibody >count, iodine resistant,existing thyca nodules in lungs. >Last surgery 1972 > > > >> Gail, >> I appreciate that your intentions are to calm my nerves. I take comfort in knowledge and right now I don't feel like I have a lot of knowledge. I am not all that worried. But I do realize in 30 years I will only be 54 years old. That's still SO young. I just want to make sure the right things are being done. I want to feel prepared for whatever my Dr. has to tell me over the next few weeks. And part of that is understanding what has a better prognosis. For me to know that I have to understand what factors change the mortality rates. We all have been the exception so comfort is no longer found in statistics for me. In the same way statistics don't frighten me. I find my comfort in feeling like I know as much as I can about what is going on in my body. If I can't control it (which obviously we can't) the least we can do is try to understand what is going on. I seek information and in that I find comfort one way or another. I don't want to sound ungrateful but I do hope you rea >> lize I'm not over here worrying over something that is going to be a part of my life for many years to come. >> Enough about me. What are they doing for you? What are they planning? You still have nodules in your lungs? Have they not responded well to I-131? What's up? >> > > > -- Click here for your very own create-a-date adventure from MatchMaker Go to http://ecard.matchmaker.com/dating.html Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.