Guest guest Posted November 13, 2001 Report Share Posted November 13, 2001 Do you mind telling me your daughters age? My son regressed a little when we stopped for a month. Are you dosing every four hour? Is your child under a doctor's care? Are you doing other therapies prior or (and) during chelation? Sorry about all these questions but I am concerned too. Thanks. Vicky > Hi all, > I have posted previously on how well Reagan was doing with chelation with > DMSA/ALA. We have been chelating since February and had only taken one > short (couple weeks) break so we decided to take a long break about a > month ago. Reagan was off of chelation for an entire month and to our > dismay we saw a fairly noticeable regression. Because Reagan is in > swimming we can usually assess her state of functioning through her > performance, allowing for the normal ups and downs of any skill > acquisition, we still saw a decline in her stroke proficiency as well as > her stamina. She had one great swim meet just following our last round of > chelation before the break and then two weeks later had meets on subsequent > weekends - both of these meets showed a significant decline in skill - the > last meet the worse of the two. In addition we have less tuned in behavior, > she had been so " normal " for several months. Her handwriting has gone > downhill at school and she brought home her worst weekly report since > school started last week. Now she is not sleeping well anymore either. Last > night I noticed it took her a lot longer to fall asleep and then she woke > up around four and came to sleep with us. She had not come into our room in > months - We chelated last Friday through Sunday and I think we are now > seeing more regression not unlike when we first began. We aren't seeing > oppositional behavior again though I am expecting it now! > Has anyone else seen regression on a long break from chelation? Part of me > thinks this is to be expected to some degree, and I fully expect to see > improvement again with continued chelation. But how long will we have to > depend on chelating to see the behavior we want? > I'm trying hard not to be too depressed about this! > Lynette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2001 Report Share Posted November 13, 2001 We saw regression while taking breaks from chelation and it turned out to be a yeast issue. (Sorry to always talk about yeast on this list) Have you had her checked for yeast? It ALWAYS disrupts my son's sleep at night and stimmy, bad behaviors also occur. ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/web/. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2001 Report Share Posted November 13, 2001 Have you changed anything else???Stopped the GFCF diet etc ??? Very disconcerning, sorry to hear this. COuld she have yeast or mineral imbalances? [ ] Re: regression on break? Do you mind telling me your daughters age? My son regressed a little when we stopped for a month. Are you dosing every four hour? Is your child under a doctor's care? Are you doing other therapies prior or (and) during chelation? Sorry about all these questions but I am concerned too. Thanks. Vicky > Hi all, > I have posted previously on how well Reagan was doing with chelation with > DMSA/ALA. We have been chelating since February and had only taken one > short (couple weeks) break so we decided to take a long break about a > month ago. Reagan was off of chelation for an entire month and to our > dismay we saw a fairly noticeable regression. Because Reagan is in > swimming we can usually assess her state of functioning through her > performance, allowing for the normal ups and downs of any skill > acquisition, we still saw a decline in her stroke proficiency as well as > her stamina. She had one great swim meet just following our last round of > chelation before the break and then two weeks later had meets on subsequent > weekends - both of these meets showed a significant decline in skill - the > last meet the worse of the two. In addition we have less tuned in behavior, > she had been so " normal " for several months. Her handwriting has gone > downhill at school and she brought home her worst weekly report since > school started last week. Now she is not sleeping well anymore either. Last > night I noticed it took her a lot longer to fall asleep and then she woke > up around four and came to sleep with us. She had not come into our room in > months - We chelated last Friday through Sunday and I think we are now > seeing more regression not unlike when we first began. We aren't seeing > oppositional behavior again though I am expecting it now! > Has anyone else seen regression on a long break from chelation? Part of me > thinks this is to be expected to some degree, and I fully expect to see > improvement again with continued chelation. But how long will we have to > depend on chelating to see the behavior we want? > I'm trying hard not to be too depressed about this! > Lynette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2001 Report Share Posted November 13, 2001 Hi Maybe there is another unknown ongoing source of metal toxicity that is re affecting her? ( Just a suggestion. Jacqui [ ] regression on break? Hi all, I have posted previously on how well Reagan was doing with chelation with DMSA/ALA. We have been chelating since February and had only taken one short (couple weeks) break so we decided to take a long break about a month ago. Reagan was off of chelation for an entire month and to our dismay we saw a fairly noticeable regression. Because Reagan is in swimming we can usually assess her state of functioning through her performance, allowing for the normal ups and downs of any skill acquisition, we still saw a decline in her stroke proficiency as well as her stamina. She had one great swim meet just following our last round of chelation before the break and then two weeks later had meets on subsequent weekends - both of these meets showed a significant decline in skill - the last meet the worse of the two. In addition we have less tuned in behavior, she had been so " normal " for several months. Her handwriting has gone downhill at school and she brought home her worst weekly report since school started last week. Now she is not sleeping well anymore either. Last night I noticed it took her a lot longer to fall asleep and then she woke up around four and came to sleep with us. She had not come into our room in months - We chelated last Friday through Sunday and I think we are now seeing more regression not unlike when we first began. We aren't seeing oppositional behavior again though I am expecting it now! Has anyone else seen regression on a long break from chelation? Part of me thinks this is to be expected to some degree, and I fully expect to see improvement again with continued chelation. But how long will we have to depend on chelating to see the behavior we want? I'm trying hard not to be too depressed about this! Lynette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2001 Report Share Posted November 14, 2001 At 10:17 PM 11/13/2001 +0000, you wrote: >Do you mind telling me your daughters age? My son regressed a little >when we stopped for a month. Are you dosing every four hour? Is your >child under a doctor's care? Are you doing other therapies prior or >(and) during chelation? Sorry about all these questions but I am >concerned too. Thanks. > Vicky, Reagan is eight. We dose every three hours now that we've added ala. We let it go four at night. We see Dr. Holmes and also consult with Andy from time to time. We did an intensive aba program for 3 1/2 years. We have also done auditory training, some sensory integration, the FastForWord program and the Interactive Metronome, as well as supplementing with vitamins and digestive enzymes. Had I known about chelation and mercury poisoning earlier I suspect we would not have had the need for anything besides chelation and aba. Just for the record, Reagan has bounced back. Monday was a bit rough as it was her first day after chelation but by Tuesday she was back to the normal we were experiencing before the regression. In fact she seems quite well now - in the car on the way to swim practice she amused herself copying pictures from a book. She was quite concerned with doing a good job, erasing and making corrections - Reagan rarely does anything in the car except listen to music and sometimes read. This was really cool because we'll be making the ten hour trek to Gramma's house next week! Lynette > > > Hi all, > > I have posted previously on how well Reagan was doing with chelation >with > > DMSA/ALA. We have been chelating since February and had only taken >one > > short (couple weeks) break so we decided to take a long break about >a > > month ago. Reagan was off of chelation for an entire month and to >our > > dismay we saw a fairly noticeable regression. Because Reagan is in > > swimming we can usually assess her state of functioning through her > > performance, allowing for the normal ups and downs of any skill > > acquisition, we still saw a decline in her stroke proficiency as >well as > > her stamina. She had one great swim meet just following our last >round of > > chelation before the break and then two weeks later had meets on >subsequent > > weekends - both of these meets showed a significant decline in skill >- the > > last meet the worse of the two. In addition we have less tuned in >behavior, > > she had been so " normal " for several months. Her handwriting has >gone > > downhill at school and she brought home her worst weekly report >since > > school started last week. Now she is not sleeping well anymore >either. Last > > night I noticed it took her a lot longer to fall asleep and then she >woke > > up around four and came to sleep with us. She had not come into our >room in > > months - We chelated last Friday through Sunday and I think we are >now > > seeing more regression not unlike when we first began. We aren't >seeing > > oppositional behavior again though I am expecting it now! > > Has anyone else seen regression on a long break from chelation? >Part of me > > thinks this is to be expected to some degree, and I fully expect to >see > > improvement again with continued chelation. But how long will we >have to > > depend on chelating to see the behavior we want? > > I'm trying hard not to be too depressed about this! > > Lynette > > > >======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2001 Report Share Posted November 14, 2001 Lynette, I am very happy for you! We all celebrate when our children do well. I am still curious as to what caused her regression, what do you think? Do you think you will be able to stop chelation? My son is four years old. We are currently doing Discreet Trals(20 hrs a week), chelation and Homeopathy. I stopped chelation for about a month (we have been chelating for about 6 months) and I noticed a regression in language. He was using wrong words and not forming proper sentences. When we started chelation again, it went away and he improved after two rounds with ALA and DMSA. Just for the record, I am not seeing a doctor for chelation. I was fortunate to find this group and I read ALL the posts for about eight months prior to chelation. I did Homeopathy to help heal and detox him (which helped). Just want you to know that I am not judging you, I was just curious. Your sharing helps me a lot so thank you very much. I pray that one day we will be able to stop chelating and our children can have " normal " lives. Vicky:) --- Lynette Rorer <LRR11555@...> wrote: > At 10:17 PM 11/13/2001 +0000, you wrote: > >Do you mind telling me your daughters age? My son > regressed a little > >when we stopped for a month. Are you dosing every > four hour? Is your > >child under a doctor's care? Are you doing other > therapies prior or > >(and) during chelation? Sorry about all these > questions but I am > >concerned too. Thanks. > > > > Vicky, > > Reagan is eight. We dose every three hours now that > we've added ala. We > let it go four at night. > We see Dr. Holmes and also consult with Andy from > time to time. > We did an intensive aba program for 3 1/2 years. We > have also done auditory > training, some sensory integration, the FastForWord > program and the > Interactive Metronome, as well as supplementing with > vitamins and digestive > enzymes. Had I known about chelation and mercury > poisoning earlier I > suspect we would not have had the need for anything > besides chelation and aba. > Just for the record, Reagan has bounced back. > Monday was a bit rough as it > was her first day after chelation but by Tuesday she > was back to the normal > we were experiencing before the regression. In fact > she seems quite well > now - in the car on the way to swim practice she > amused herself copying > pictures from a book. She was quite concerned with > doing a good job, > erasing and making corrections - Reagan rarely does > anything in the car > except listen to music and sometimes read. This was > really cool because > we'll be making the ten hour trek to Gramma's house > next week! > Lynette > > > > > > > > > > > > > Hi all, > > > I have posted previously on how well Reagan was > doing with chelation > >with > > > DMSA/ALA. We have been chelating since February > and had only taken > >one > > > short (couple weeks) break so we decided to > take a long break about > >a > > > month ago. Reagan was off of chelation for an > entire month and to > >our > > > dismay we saw a fairly noticeable regression. > Because Reagan is in > > > swimming we can usually assess her state of > functioning through her > > > performance, allowing for the normal ups and > downs of any skill > > > acquisition, we still saw a decline in her > stroke proficiency as > >well as > > > her stamina. She had one great swim meet just > following our last > >round of > > > chelation before the break and then two weeks > later had meets on > >subsequent > > > weekends - both of these meets showed a > significant decline in skill > >- the > > > last meet the worse of the two. In addition we > have less tuned in > >behavior, > > > she had been so " normal " for several months. Her > handwriting has > >gone > > > downhill at school and she brought home her > worst weekly report > >since > > > school started last week. Now she is not > sleeping well anymore > >either. Last > > > night I noticed it took her a lot longer to fall > asleep and then she > >woke > > > up around four and came to sleep with us. She > had not come into our > >room in > > > months - We chelated last Friday through Sunday > and I think we are > >now > > > seeing more regression not unlike when we first > began. We aren't > >seeing > > > oppositional behavior again though I am > expecting it now! > > > Has anyone else seen regression on a long break > from chelation? > >Part of me > > > thinks this is to be expected to some degree, > and I fully expect to > >see > > > improvement again with continued chelation. But > how long will we > >have to > > > depend on chelating to see the behavior we want? > > > I'm trying hard not to be too depressed about > this! > > > Lynette > > > > > > > >======================================================= > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2001 Report Share Posted November 15, 2001 At 05:24 PM 11/14/2001 -0800, you wrote: >. I am still curious as to >what caused her regression, what do you think? Do you >think you will be able to stop chelation? Hi Vicky, I don't know what caused the regression. I can only assume, especially based on what others have told me about their own kids, that the regression happens during long breaks and is due probably to redistribution? Or maybe the body is dumping mercury on it's own and there is no chelator to pull it out? It is all too scientific for me. What I am hoping is that eventually we will be able to stop chelating but since Reagan is eight it will not be soon. We really haven't been at it that long - considering we had the set back with the suspension dmsa. In the beginning we were using the liquid suspension at night and the capsules during the day. The liquid loses potency over a short time and we had the same bottle for over a month. So I really consider a few months back in the beginning to be wasted time. If you look at it that way we have only been chelating for about five months. I can say that we have seen tremendous improvement and that the recent regression seems to be over. The addition of ala has brought about some really exciting things too. Last year I homeschooled Reagan and toward the end of the year I tried to introduce cursive writing. It was a disaster! She just totally lacked the visual motor perception necessary to be successful. So I gave up thinking if she ever did learn it would be a long time down the road. Well, this year Reagan is teaching herself to write in cursive. They have not yet started it in school (she is repeating second grade) but she kept bringing home papers with cursive writing - not always done properly but pretty good considering. Her kind teacher wrote on one of her papers that if she wanted to try cursive to connect her o's at the top ! We got out a practice book at home and for two days she diligently practiced. Now she can write in cursive probably as well as her third grade peers. This blows me away! She has also been writing stories this year in her spare time at school. I am amazed by this change in her. I am not too worried about the regression - but I would like to hear from someone knowledgeable, Andy? on this subject. And I will from now on plan chelation breaks during vacation times when possible! Lynette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2001 Report Share Posted November 15, 2001 >Has anyone else seen regression on a long break from chelation? Part of me >thinks this is to be expected to some degree, and I fully expect to see >improvement again with continued chelation. But how long will we have to >depend on chelating to see the behavior we want? >I'm trying hard not to be too depressed about this! >Lynette I have wondered at times if some of the changes I see with use of ALA could be from the ALA itself rather than from detox. I realize this is not the most " fun " idea to consider, but I have wondered at times. I guess I think only time will tell for sure for some things---- I think it is mostly detox effect since many of the positive effects continue when I'm " off " for 1 1/2 weeks. Still, I am taking pretty large quantity of ALA when I'm " on " , so I do think the ALA itself can have effects. Since it is taken many times a day, the amount is quite a lot I think. Again, I realize this is not the most fun thing to speculate about, and I DO think there is lots of (anedotal) evidence that chelation causes permanent improvements. Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2001 Report Share Posted November 15, 2001 At 09:44 PM 11/13/2001 -0600, you wrote: >We saw regression while taking breaks from chelation and it turned out to >be a yeast issue. (Sorry to always talk about yeast on this list) Have >you had her checked for yeast? It ALWAYS disrupts my son's sleep at night >and stimmy, bad behaviors also occur. >, Reagan's initial test results showed mild yeast and no parasites or bacteria. She has been on Nystatin since February and to be honest I'm not sure if it is doing anything at all. We never saw any die-off reaction when we started it and no improvements that could be attributed to it. We started the Nystatin before we started chelation so we had a couple weeks for differences to show up. She takes two pro-bio gold and one culturelle every day. About two months ago we started her on yeast control from Kirkman's. I am thinking of having testing done for yeast again before we see Dr. Holmes in January. Can you tell me what is the best test for yeast? Is it the urine organic acids or a stool culture? Thanks, Lynette >________________________________________________________________ >GET INTERNET ACCESS FROM JUNO! >Juno offers FREE or PREMIUM Internet access for less! >Join Juno today! For your FREE software, visit: >http://dl.www.juno.com/get/web/. > >======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2001 Report Share Posted November 15, 2001 Lynette, thanks for answering my questions. I appreciate it. I think that my son's regression was mercury redistrbution (otherwise why would they benefit from chelation). Good luck to you. Vicky --- Lynette Rorer <LRR11555@...> wrote: > At 05:24 PM 11/14/2001 -0800, you wrote: > >. I am still curious as to > >what caused her regression, what do you think? Do > you > >think you will be able to stop chelation? > > Hi Vicky, > I don't know what caused the regression. I can only > assume, especially > based on what others have told me about their own > kids, that the regression > happens during long breaks and is due probably to > redistribution? Or maybe > the body is dumping mercury on it's own and there is > no chelator to pull it > out? > It is all too scientific for me. > What I am hoping is that eventually we will be able > to stop chelating but > since Reagan is eight it will not be soon. We really > haven't been at it > that long - considering we had the set back with the > suspension dmsa. In > the beginning we were using the liquid suspension at > night and the capsules > during the day. The liquid loses potency over a > short time and we had the > same bottle for over a month. > So I really consider a few months back in the > beginning to be wasted time. > If you look at it that way we have only been > chelating for about five months. > I can say that we have seen tremendous improvement > and that the recent > regression seems to be over. The addition of ala has > brought about some > really exciting things too. Last year I > homeschooled Reagan and toward the > end of the year I tried to introduce cursive > writing. It was a disaster! > She just totally lacked the visual motor perception > necessary to be > successful. So I gave up thinking if she ever did > learn it would be a long > time down the road. Well, this year Reagan is > teaching herself to write in > cursive. They have not yet started it in school (she > is repeating second > grade) but she kept bringing home papers with > cursive writing - not always > done properly but pretty good considering. Her kind > teacher wrote on one of > her papers that if she wanted to try cursive to > connect her o's at the top > ! We got out a practice book at home and for two > days she diligently > practiced. Now she can write in cursive probably as > well as her third grade > peers. This blows me away! She has also been writing > stories this year in > her spare time at school. I am amazed by this > change in her. > I am not too worried about the regression - but I > would like to hear from > someone knowledgeable, Andy? on this subject. And I > will from now on plan > chelation breaks during vacation times when > possible! > Lynette > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2001 Report Share Posted November 15, 2001 I'm not sure which test is best to do for this, but, from past experience, my son regressed terribly when he was on Nystatin, as it turned out he didn't have yeast but bacteria and we only aggrevated the bacteria while trying to treat the yeast. I would take her off the Nystatin and do a test soon to be sure. After we found out about the bacteria problem we used Biocidin with success. ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/web/. Quote Link to comment Share on other sites More sharing options...
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