Guest guest Posted April 4, 2000 Report Share Posted April 4, 2000 Christy, I feel so badly for you. Just so you know, I've spent the last few days in pain, trying so hard to figure out this VV thing. I have the same VV as you. I was initially diagnosed with IC and the VV flare seems to have taken over. I started PT last week and have since experienced some new symptoms. The word is still out about whether this is good or not, or even related. I have a visit in a couple of days. with pain meds, I think I''ll make it. I've heard of other people having dizzy effects from the Neurontin...but you really should double check with your doc what is a normal side effect. I feel your frustration...about how long this can go on....how one doc may say...do the oxalate diet and another say that food shouldn't affect it...that it might be muscular, or it might be nerve related, but perhaps you can numb your skin with lidocaine so you'll have relief enough to have sex for ten minutes. I really hope that things improve for us. I wish I had something more productive to say. Your note just struck a chord with me....like someone else has gone through what I have lately. Makes me feel badly, that there are others, but then I'm glad that I'm not alone. Take care- Keep in touch - Quote Link to comment Share on other sites More sharing options...
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