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Leanne, glad to hear it! Spinal surgery sounds really scary, I am glad that

you came through OK!

One of my colleagues had that spinal headache thing with her epidural, it

sounds really awful.

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Leanne, glad to hear it! Spinal surgery sounds really scary, I am glad that

you came through OK!

One of my colleagues had that spinal headache thing with her epidural, it

sounds really awful.

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  • 6 years later...

Welcome back . Computers are a great thing I use mine everyday and

when they go bad and put a curve in my daily use I sometimes want to

take a hammer to it.

My kids are back in school now since last Tuesday so I get my quite days

back.

Bill

Damron wrote:

>

> Hello everyone. I don't know if anyone missed me, but i've been MIA

> for a while. We just moved into our new house, and we've had such a

> hard time getting our internet up and running. I had only planned on

> being off a few days and it turned out to be for almost 2

> months....I was going to read up on a few posts, but I had almost

> one thousand messages in my inbox, so I just deleted them all and

> sent an email to all of my friends and family and explained to them

> everything, and so i consider the memebers of this group as definite

> friends, i wanted to let every one know and hope someone will take

> pity on me and send me a quick update on what the current topics

> have been, and how everyone is doing. I've been especially thinking

> about Shirtly, and the nice lady whose husband just had major

> surgery. I'm terrible with names, but I had replied to several of

> her emails previously, and hope you and your family are mending. How

> are you Shirley? I went MIA right at the end of your hospital stay.

> I definitly thought about you tonight and how easy it would be for

> that to happen, becaue I haven't been to sleep yet and probably

> won't until my kids are off to school....(yawn) but I really just

> wanted to be able to sleep, but i had a serious energy surge, and I

> know I will pay dearly for it this week. I have stopped taking my

> Avonex. Partlly because of the cost, but there are other reasons

> that I will mention later. I feel like my husband was against me

> taking it for whatever reason. Cost? The fact that he had to pull

> double duty on the day follwing the injection b/c i was basicall bed

> ridden? I don't know....but I also got a dumb streak and have

> stopped taking my daily barage of bladder meds, baclofen, stomach

> meds, etc. The only thing I am taking currently and regularly is my

> Lexapro and xanax as needed....and a percocet or Lortab

> occasionally....I don't know what's gotten into me. I just thought

> that if I let myself get a UTI kidney infection bad enough that I

> have to be hospitalized that certain people will realize that I

> really am " sick " or whatever you call this. It's definitly working,

> i've been running a fever, having severe back pain and burning. But

> I don't think it's bad enough yet. It's killing me

> though...ugh...how twisted and sick is my mind right now? Sory for

> babbling.....someone please fill me in. Peaceful and blessed day to

> you all....

> ~....back in action :-)

>

>

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Welcome back . I'm so glad to have you back with us. There has been a lot of things happen on the group over the past two months and I just don't know where to start. We've had new members join and some have just disappeared. But that happens on a group.

I am concerned about you stopping your meds. Did you know that stopping meds is fairly common in MS? I don't know why that is. I've done it several times myself. I stopped my Avonex in 2003 because of the cost and because I felt so darned good I really didn't need it. lol Now my MRIs done in June show marked progression in my brain. So I need to do something else. I can go back on Avonex or I may try LDN. My neuro is actually considering LDN.

At least go back on your bladder meds. Call your doc though and confess that you've stopped your meds and that you feel ill. Okay?

hugs)))

Sharon (MSersLife Group Owner/Creator)

It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant

I'm back!

Hello everyone. I don't know if anyone missed me, but i've been MIA for a while. We just moved into our new house, and we've had such a hard time getting our internet up and running. I had only planned on being off a few days and it turned out to be for almost 2 months....I was going to read up on a few posts, but I had almost one thousand messages in my inbox, so I just deleted them all and sent an email to all of my friends and family and explained to them everything, and so i consider the memebers of this group as definite friends, i wanted to let every one know and hope someone will take pity on me and send me a quick update on what the current topics have been, and how everyone is doing. I've been especially thinking about Shirtly, and the nice lady whose husband just had major surgery. I'm terrible with names, but I had replied to several of her emails previously, and hope you and your family are mending. How

are you Shirley? I went MIA right at the end of your hospital stay. I definitly thought about you tonight and how easy it would be for that to happen, becaue I haven't been to sleep yet and probably won't until my kids are off to school....(yawn) but I really just wanted to be able to sleep, but i had a serious energy surge, and I know I will pay dearly for it this week. I have stopped taking my Avonex. Partlly because of the cost, but there are other reasons that I will mention later. I feel like my husband was against me taking it for whatever reason. Cost? The fact that he had to pull double duty on the day follwing the injection b/c i was basicall bed ridden? I don't know....but I also got a dumb streak and have stopped taking my daily barage of bladder meds, baclofen, stomach meds, etc. The only thing I am taking currently and regularly is my Lexapro and xanax as needed....and a percocet or Lortab

occasionally. ...I don't know what's gotten into me. I just thought that if I let myself get a UTI kidney infection bad enough that I have to be hospitalized that certain people will realize that I really am "sick" or whatever you call this. It's definitly working, i've been running a fever, having severe back pain and burning. But I don't think it's bad enough yet. It's killing me though...ugh. ..how twisted and sick is my mind right now? Sory for babbling.... .someone please fill me in. Peaceful and blessed day to you all....~....back in action :-)

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well, to be quite honest, I really didn't want to stop my meds, I just felt quietly pressured to....it's hard to explain, but the cost was eating away at our budget, especially since we just moved into our new house and need so much....I don't even have porches yet, we climbed into the house with a step ladder for the first two weeks.....not easy to do when you have a bad knee and vertigo from hell......*sigh* My long term disability insurance through my place of employment kicked in, and that cut my pay in more than half of what I was bringing home while working, and I went a month (August) without pay at all because of the lapse in time it took to go from short term to long term...well I got $116.....but that was gone in a jiffy.....

~

I'm back!

Hello everyone. I don't know if anyone missed me, but i've been MIA for a while. We just moved into our new house, and we've had such a hard time getting our internet up and running. I had only planned on being off a few days and it turned out to be for almost 2 months....I was going to read up on a few posts, but I had almost one thousand messages in my inbox, so I just deleted them all and sent an email to all of my friends and family and explained to them everything, and so i consider the memebers of this group as definite friends, i wanted to let every one know and hope someone will take pity on me and send me a quick update on what the current topics have been, and how everyone is doing. I've been especially thinking about Shirtly, and the nice lady whose husband just had major surgery. I'm terrible with names, but I had replied to several of her emails previously, and hope you and your family are mending. How are you Shirley? I went MIA right at the end of your hospital stay. I definitly thought about you tonight and how easy it would be for that to happen, becaue I haven't been to sleep yet and probably won't until my kids are off to school....(yawn) but I really just wanted to be able to sleep, but i had a serious energy surge, and I know I will pay dearly for it this week. I have stopped taking my Avonex. Partlly because of the cost, but there are other reasons that I will mention later. I feel like my husband was against me taking it for whatever reason. Cost? The fact that he had to pull double duty on the day follwing the injection b/c i was basicall bed ridden? I don't know....but I also got a dumb streak and have stopped taking my daily barage of bladder meds, baclofen, stomach meds, etc. The only thing I am taking currently and regularly is my Lexapro and xanax as needed....and a percocet or Lortab occasionally. ...I don't know what's gotten into me. I just thought that if I let myself get a UTI kidney infection bad enough that I have to be hospitalized that certain people will realize that I really am "sick" or whatever you call this. It's definitly working, i've been running a fever, having severe back pain and burning. But I don't think it's bad enough yet. It's killing me though...ugh. ..how twisted and sick is my mind right now? Sory for babbling.... .someone please fill me in. Peaceful and blessed day to you all....~....back in action :-)

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well, to be quite honest, I really didn't want to stop my meds, I just felt quietly pressured to....it's hard to explain, but the cost was eating away at our budget, especially since we just moved into our new house and need so much....I don't even have porches yet, we climbed into the house with a step ladder for the first two weeks.....not easy to do when you have a bad knee and vertigo from hell......*sigh* My long term disability insurance through my place of employment kicked in, and that cut my pay in more than half of what I was bringing home while working, and I went a month (August) without pay at all because of the lapse in time it took to go from short term to long term...well I got $116.....but that was gone in a jiffy.....

~

I'm back!

Hello everyone. I don't know if anyone missed me, but i've been MIA for a while. We just moved into our new house, and we've had such a hard time getting our internet up and running. I had only planned on being off a few days and it turned out to be for almost 2 months....I was going to read up on a few posts, but I had almost one thousand messages in my inbox, so I just deleted them all and sent an email to all of my friends and family and explained to them everything, and so i consider the memebers of this group as definite friends, i wanted to let every one know and hope someone will take pity on me and send me a quick update on what the current topics have been, and how everyone is doing. I've been especially thinking about Shirtly, and the nice lady whose husband just had major surgery. I'm terrible with names, but I had replied to several of her emails previously, and hope you and your family are mending. How are you Shirley? I went MIA right at the end of your hospital stay. I definitly thought about you tonight and how easy it would be for that to happen, becaue I haven't been to sleep yet and probably won't until my kids are off to school....(yawn) but I really just wanted to be able to sleep, but i had a serious energy surge, and I know I will pay dearly for it this week. I have stopped taking my Avonex. Partlly because of the cost, but there are other reasons that I will mention later. I feel like my husband was against me taking it for whatever reason. Cost? The fact that he had to pull double duty on the day follwing the injection b/c i was basicall bed ridden? I don't know....but I also got a dumb streak and have stopped taking my daily barage of bladder meds, baclofen, stomach meds, etc. The only thing I am taking currently and regularly is my Lexapro and xanax as needed....and a percocet or Lortab occasionally. ...I don't know what's gotten into me. I just thought that if I let myself get a UTI kidney infection bad enough that I have to be hospitalized that certain people will realize that I really am "sick" or whatever you call this. It's definitly working, i've been running a fever, having severe back pain and burning. But I don't think it's bad enough yet. It's killing me though...ugh. ..how twisted and sick is my mind right now? Sory for babbling.... .someone please fill me in. Peaceful and blessed day to you all....~....back in action :-)

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Yes, I noticed you were gone and missed you! I posted a while back looking for you, but never heard anything. So, I figured you were just being really rude. (That's a complete lie). LOL As to your meds and stopping all... Mother? Is that you? hehe If the cost of the Avonex is what keeps you from using it, would you qualify for their free-med help?? Stop being goofy, get back on the meds you need, and see a doc for the pain and fever you're having. <g> How's the house-setting-up going?? Hugs, Challis Damron wrote: Hello everyone. I don't know if anyone missed me, but i've been MIA for a while. We just moved into our new house, and we've had such a hard time getting our internet up and running. I had only planned on being off a few days and it turned out to be for almost 2 months....I was going to read up on a few posts, but I had almost one thousand messages in my inbox, so I just deleted them all and sent an email to all of my friends and family and explained to them everything, and so i consider the memebers of this group as definite friends, i wanted to let every one know and hope someone will take pity on me and send me a quick update on what the current topics have been, and how

everyone is doing. I've been especially thinking about Shirtly, and the nice lady whose husband just had major surgery. I'm terrible with names, but I had replied to several of her emails previously, and hope you and your family are mending. How are you Shirley? I went MIA right at the end of your hospital stay. I definitly thought about you tonight and how easy it would be for that to happen, becaue I haven't been to sleep yet and probably won't until my kids are off to school....(yawn) but I really just wanted to be able to sleep, but i had a serious energy surge, and I know I will pay dearly for it this week. I have stopped taking my Avonex. Partlly because of the cost, but there are other reasons that I will mention later. I feel like my husband was against me taking it for whatever reason. Cost? The fact that he had to pull double duty on the day follwing the injection b/c i was basicall bed ridden? I don't

know....but I also got a dumb streak and have stopped taking my daily barage of bladder meds, baclofen, stomach meds, etc. The only thing I am taking currently and regularly is my Lexapro and xanax as needed....and a percocet or Lortab occasionally....I don't know what's gotten into me. I just thought that if I let myself get a UTI kidney infection bad enough that I have to be hospitalized that certain people will realize that I really am "sick" or whatever you call this. It's definitly working, i've been running a fever, having severe back pain and burning. But I don't think it's bad enough yet. It's killing me though...ugh...how twisted and sick is my mind right now? Sory for babbling.....someone please fill me in. Peaceful and blessed day to you all....~....back in action :-)

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{{{{{{{{}}}}}}}} How about a good open sit-down? Find out if your hubby really feels that way, or really knows he's projecting it? Let him hear just how you're feeling, too. You also already know there is a chance some of your own feelings of guilt and worry are probably being tossed in the mix. Then there's also the cost of declining health, doctor visits, hospital stays, funerals, is there good life insurance, day care costs, etc. <weg> LOL HUGS, Challis Damron wrote: well, to be quite honest, I really didn't want to stop my meds, I just felt quietly pressured to....it's hard to explain, but the cost was eating away at our budget, especially since we just moved into our new house and need so much....I don't even have porches yet, we climbed into the house with a step ladder for the first two weeks.....not easy to do when you have a bad knee and vertigo from hell......*sigh* My long term disability insurance through my place of employment kicked in, and that cut my pay in more than half of what I was bringing home while working, and I went a month (August) without pay at all because of the lapse in time it took to go from short term to long term...well I got

$116.....but that was gone in a jiffy..... ~ I'm back! Hello everyone. I don't know if anyone missed me, but i've been MIA for a while. We just moved into our new

house, and we've had such a hard time getting our internet up and running. I had only planned on being off a few days and it turned out to be for almost 2 months....I was going to read up on a few posts, but I had almost one thousand messages in my inbox, so I just deleted them all and sent an email to all of my friends and family and explained to them everything, and so i consider the memebers of this group as definite friends, i wanted to let every one know and hope someone will take pity on me and send me a quick update on what the current topics have been, and how everyone is doing. I've been especially thinking about Shirtly, and the nice lady whose husband just had major surgery. I'm terrible with names, but I had replied to several of her emails previously, and hope you and your family are mending. How are you Shirley? I went MIA right at the end of your hospital stay. I definitly thought about you tonight and

how easy it would be for that to happen, becaue I haven't been to sleep yet and probably won't until my kids are off to school....(yawn) but I really just wanted to be able to sleep, but i had a serious energy surge, and I know I will pay dearly for it this week. I have stopped taking my Avonex. Partlly because of the cost, but there are other reasons that I will mention later. I feel like my husband was against me taking it for whatever reason. Cost? The fact that he had to pull double duty on the day follwing the injection b/c i was basicall bed ridden? I don't know....but I also got a dumb streak and have stopped taking my daily barage of bladder meds, baclofen, stomach meds, etc. The only thing I am taking currently and regularly is my Lexapro and xanax as needed....and a percocet or Lortab occasionally. ...I don't know what's gotten into me. I just thought that if I let myself get a UTI kidney infection bad

enough that I have to be hospitalized that certain people will realize that I really am "sick" or whatever you call this. It's definitly working, i've been running a fever, having severe back pain and burning. But I don't think it's bad enough yet. It's killing me though...ugh. ..how twisted and sick is my mind right now? Sory for babbling.... .someone please fill me in. Peaceful and blessed day to you all....~....back in action :-)

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I was taking urecholine 3x per day and cipro 2x per day for my bladder. I was taking baclofen for muscle spasms and I stopped all three of those along with the avonex. I was paying $35 co-pay for each rx each month, and $200 co-pay for the avonex each month. Now I'm only taking my lexapro on a regular basis.....I honestly haven't applied for any rx assistance b/c I have insurance thru my husband and didn't think I would qualify b/c of that....

~

Re: I'm back!

Yes, I noticed you were gone and missed you! I posted a while back looking for you, but never heard anything. So, I figured you were just being really rude. (That's a complete lie). LOL

As to your meds and stopping all... Mother? Is that you? hehe

If the cost of the Avonex is what keeps you from using it, would you qualify for their free-med help??

Stop being goofy, get back on the meds you need, and see a doc for the pain and fever you're having. <g>

How's the house-setting- up going??

Hugs,

Challis

Damron wrote:

Hello everyone. I don't know if anyone missed me, but i've been MIA for a while. We just moved into our new house, and we've had such a hard time getting our internet up and running. I had only planned on being off a few days and it turned out to be for almost 2 months....I was going to read up on a few posts, but I had almost one thousand messages in my inbox, so I just deleted them all and sent an email to all of my friends and family and explained to them everything, and so i consider the memebers of this group as definite friends, i wanted to let every one know and hope someone will take pity on me and send me a quick update on what the current topics have been, and how everyone is doing. I've been especially thinking about Shirtly, and the nice lady whose husband just had major surgery. I'm terrible with names, but I had replied to several of her emails previously, and hope you and your family are mending. How are you Shirley? I went MIA right at the end of your hospital stay. I definitly thought about you tonight and how easy it would be for that to happen, becaue I haven't been to sleep yet and probably won't until my kids are off to school....(yawn) but I really just wanted to be able to sleep, but i had a serious energy surge, and I know I will pay dearly for it this week. I have stopped taking my Avonex. Partlly because of the cost, but there are other reasons that I will mention later. I feel like my husband was against me taking it for whatever reason. Cost? The fact that he had to pull double duty on the day follwing the injection b/c i was basicall bed ridden? I don't know....but I also got a dumb streak and have stopped taking my daily barage of bladder meds, baclofen, stomach meds, etc. The only thing I am taking currently and regularly is my Lexapro and xanax as needed....and a percocet or Lortab occasionally. ...I don't know what's gotten into me. I just thought that if I let myself get a UTI kidney infection bad enough that I have to be hospitalized that certain people will realize that I really am "sick" or whatever you call this. It's definitly working, i've been running a fever, having severe back pain and burning. But I don't think it's bad enough yet. It's killing me though...ugh. ..how twisted and sick is my mind right now? Sory for babbling.... .someone please fill me in. Peaceful and blessed day to you all....~....back in action :-)

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I finally broke down & called Copaxone (Shared Solutions)

& told them my situation about me having insurance but a crappy

one. They want me to pay $750 a month for the shots. Shared Solutions

said they work with the National Organization of Rare Diseases. They're

sending me the application for assistance. They had no idea what they

could do for me if anything so I guess I'll find out. I had called

other CRAB drug companies & they couldn't really help me. I hate

the daily shots so I was thinking maybe something else would be better.

So I'm right back where I started.

E.

Colorado

"Insanity runs in my family. It practically gallops."

Cary Grant

Re: I'm back!

I was taking urecholine 3x per day and cipro 2x per day for my bladder. I was taking baclofen for muscle spasms and I stopped all three of those along with the avonex. I was paying $35 co-pay for each rx each month, and $200 co-pay for the avonex each month. Now I'm only taking my lexapro on a regular basis.....I honestly haven't applied for any rx assistance b/c I have insurance thru my husband and didn't think I would qualify b/c of that....

~

Re: I'm back!

Yes, I noticed you were gone and missed you! I posted a while back looking for you, but never heard anything. So, I figured you were just being really rude. (That's a complete lie). LOL

As to your meds and stopping all... Mother? Is that you? hehe

If the cost of the Avonex is what keeps you from using it, would you qualify for their free-med help??

Stop being goofy, get back on the meds you need, and see a doc for the pain and fever you're having. <g>

How's the house-setting- up going??

Hugs,

Challis

Damron wrote:

Hello everyone. I don't know if anyone missed me, but i've been MIA

for a while. We just moved into our new house, and we've had such a

hard time getting our internet up and running. I had only planned on

being off a few days and it turned out to be for almost 2

months....I was going to read up on a few posts, but I had almost

one thousand messages in my inbox, so I just deleted them all and

sent an email to all of my friends and family and explained to them

everything, and so i consider the memebers of this group as definite

friends, i wanted to let every one know and hope someone will take

pity on me and send me a quick update on what the current topics

have been, and how everyone is doing. I've been especially thinking

about Shirtly, and the nice lady whose husband just had major

surgery. I'm terrible with names, but I had replied to several of

her emails previously, and hope you and your family are mending. How

are you Shirley? I went MIA right at the end of your hospital stay.

I definitly thought about you tonight and how easy it would be for

that to happen, becaue I haven't been to sleep yet and probably

won't until my kids are off to school....(yawn) but I really just

wanted to be able to sleep, but i had a serious energy surge, and I

know I will pay dearly for it this week. I have stopped taking my

Avonex. Partlly because of the cost, but there are other reasons

that I will mention later. I feel like my husband was against me

taking it for whatever reason. Cost? The fact that he had to pull

double duty on the day follwing the injection b/c i was basicall bed

ridden? I don't know....but I also got a dumb streak and have

stopped taking my daily barage of bladder meds, baclofen, stomach

meds, etc. The only thing I am taking currently and regularly is my

Lexapro and xanax as needed....and a percocet or Lortab

occasionally. ...I don't know what's gotten into me. I just thought

that if I let myself get a UTI kidney infection bad enough that I

have to be hospitalized that certain people will realize that I

really am "sick" or whatever you call this. It's definitly working,

i've been running a fever, having severe back pain and burning. But

I don't think it's bad enough yet. It's killing me

though...ugh. ..how twisted and sick is my mind right now? Sory for

babbling.... .someone please fill me in. Peaceful and blessed day to

you all....

~....back in action :-)

Get your email and more, right on the new Yahoo.com

Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free.

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There are two programs that will help with co-pays for MSers. Unfortunately they are both out of funds right now. I'll get the info and post it for everyone later today (if I can remember...:)

Sharon (MSersLife Group Owner/Creator)

It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant

Re: I'm back!

Yes, I noticed you were gone and missed you! I posted a while back looking for you, but never heard anything. So, I figured you were just being really rude. (That's a complete lie). LOL

As to your meds and stopping all... Mother? Is that you? hehe

If the cost of the Avonex is what keeps you from using it, would you qualify for their free-med help??

Stop being goofy, get back on the meds you need, and see a doc for the pain and fever you're having. <g>

How's the house-setting- up going??

Hugs,

Challis

Damron wrote:

Hello everyone. I don't know if anyone missed me, but i've been MIA for a while. We just moved into our new house, and we've had such a hard time getting our internet up and running. I had only planned on being off a few days and it turned out to be for almost 2 months....I was going to read up on a few posts, but I had almost one thousand messages in my inbox, so I just deleted them all and sent an email to all of my friends and family and explained to them everything, and so i consider the memebers of this group as definite friends, i wanted to let every one know and hope someone will take pity on me and send me a quick update on what the current topics have been, and how everyone is doing. I've been especially thinking about Shirtly, and the nice lady whose husband just had major surgery. I'm terrible with names, but I had replied to several of her emails previously, and hope you and your family are mending. How

are you Shirley? I went MIA right at the end of your hospital stay. I definitly thought about you tonight and how easy it would be for that to happen, becaue I haven't been to sleep yet and probably won't until my kids are off to school....(yawn) but I really just wanted to be able to sleep, but i had a serious energy surge, and I know I will pay dearly for it this week. I have stopped taking my Avonex. Partlly because of the cost, but there are other reasons that I will mention later. I feel like my husband was against me taking it for whatever reason. Cost? The fact that he had to pull double duty on the day follwing the injection b/c i was basicall bed ridden? I don't know....but I also got a dumb streak and have stopped taking my daily barage of bladder meds, baclofen, stomach meds, etc. The only thing I am taking currently and regularly is my Lexapro and xanax as needed....and a percocet or Lortab

occasionally. ...I don't know what's gotten into me. I just thought that if I let myself get a UTI kidney infection bad enough that I have to be hospitalized that certain people will realize that I really am "sick" or whatever you call this. It's definitly working, i've been running a fever, having severe back pain and burning. But I don't think it's bad enough yet. It's killing me though...ugh. ..how twisted and sick is my mind right now? Sory for babbling.... .someone please fill me in. Peaceful and blessed day to you all....~....back in action :-)

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Oh, , I'm so sorry to hear this. I hope it will change very soon and everything will be okay again. {{{{{{{{}}}}}}}} Challis Damron wrote: I need to do that, I know. I called one of my really close friends to come over for a visit, and she actually noticed a tension between us. I know we're having problems, and I suppose a lot of it

could be my own personal feelings of guilt, but I feel like there is just something that is not right between us, and my health is never mentioned anymore. he never asks me how I'm feeling, if I need help, anything....and if it had always been like that and if that's just the way he was before then I wouldn't mind as much, but he went from being a doting helpful caring partner, to totally dissing me......sorry for the slang, but it fits so well here!! HAHA.....I don't know, I'm so stubborn that I won't mention anything anymore because he does not like to "talk about our feelings"......I'm worried though..... ~ I'm back! Hello everyone. I don't know if anyone missed me, but i've been MIA for a

while. We just moved into our new house, and we've had such a hard time getting our internet up and running. I had only planned on being off a few days and it turned out to be for almost 2 months....I was going to read up on a few posts, but I had almost one thousand messages in my inbox, so I just deleted them all and sent an email to all of my friends and family and explained to them everything, and so i consider the memebers of this group as definite friends, i wanted to let every one know and hope someone will take pity on me and send me a quick update on what the current topics have been, and how everyone is doing. I've been especially thinking about Shirtly, and the nice lady whose husband just had major surgery. I'm terrible with names, but I had replied to several of her emails previously, and hope you and your family are mending. How are you Shirley? I went MIA right at the end of your hospital stay. I

definitly thought about you tonight and how easy it would be for that to happen, becaue I haven't been to sleep yet and probably won't until my kids are off to school....(yawn) but I really just wanted to be able to sleep, but i had a serious energy surge, and I know I will pay dearly for it this week. I have stopped taking my Avonex. Partlly because of the cost, but there are other reasons that I will mention later. I feel like my husband was against me taking it for whatever reason. Cost? The fact that he had to pull double duty on the day follwing the injection b/c i was basicall bed ridden? I don't know....but I also got a dumb streak and have stopped taking my daily barage of bladder meds, baclofen, stomach meds, etc. The only thing I am taking currently and regularly is my Lexapro and xanax as needed....and a percocet or Lortab occasionally. ...I don't know what's gotten into me. I just thought that if I let

myself get a UTI kidney infection bad enough that I have to be hospitalized that certain people will realize that I really am "sick" or whatever you call this. It's definitly working, i've been running a fever, having severe back pain and burning. But I don't think it's bad enough yet. It's killing me though...ugh. ..how twisted and sick is my mind right now? Sory for babbling.... .someone please fill me in. Peaceful and blessed day to you all....~....back in action :-) Yahoo! Messenger with Voice. Make PC-to-Phone

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Dear ,

Just a thought. I was feeling the same way as never asking about how I was; but then one day I said "my legs are really hurting today" said "I know. I can tell when you are hurting even when you don't admit it"

HAPPYINESS and BUTTERFLIES

Lynn I'm back!> > > Hello everyone. I don't know if > anyone missed me, but i've been MIA > for a while. We just moved into > our new house, and we've had such a > hard time getting our internet up > and running. I had only planned on > being off a few days and it > turned out to be for almost 2 > months....I was going to read up > on a few posts, but I had almost > one thousand messages in my > inbox, so I just deleted them all and > sent an email to all of my > friends and family and explained to them > everything, and so i consider the > memebers of this group as definite > friends, i wanted to let every > one know and hope someone will take > pity on me and send me a quick > update on what the current topics > have been, and how everyone is > doing. I've been especially thinking > about Shirtly, and the nice lady > whose husband just had major > surgery. I'm terrible with names, > but I had replied to several of > her emails previously, and hope > you and your family are mending. How > are you Shirley? I went MIA right > at the end of your hospital stay. > I definitly thought about you > tonight and how easy it would be for > that to happen, becaue I haven't > been to sleep yet and probably > won't until my kids are off to > school....(yawn) but I really just > wanted to be able to sleep, but i > had a serious energy surge, and I > know I will pay dearly for it > this week. I have stopped taking my > Avonex. Partlly because of the > cost, but there are other reasons > that I will mention later. I feel > like my husband was against me > taking it for whatever reason. > Cost? The fact that he had to pull > double duty on the day follwing > the injection b/c i was basicall bed > ridden? I don't know....but I > also got a dumb streak and have > stopped taking my daily barage of > bladder meds, baclofen, stomach > meds, etc. The only thing I am > taking currently and regularly is my > Lexapro and xanax as > needed....and a percocet or Lortab > occasionally. ...I don't know > what's gotten into me. I just thought > that if I let myself get a UTI > kidney infection bad enough that I > have to be hospitalized that > certain people will realize that I > really am "sick" or whatever you > call this. It's definitly working, > i've been running a fever, having > severe back pain and burning. But > I don't think it's bad enough > yet. It's killing me > though...ugh. ..how twisted and > sick is my mind right now? Sory for > babbling.... .someone please fill > me in. Peaceful and blessed day to > you all....> ~....back in action :-)> > > > > > > > > -----------------------------------------------------------------> -------------> Yahoo! Messenger with Voice. Make PC-to-Phone > Calls<http://us.rd.yahoo.com/mail_us/taglines/postman1/*http://us.rd.yahoo.com/evt=39663/*http://voice.yahoo.com> to the US (and 30+ countries) for 2¢/min or less. > > May you always find

HAPPINESS and BUTTERFLIES

Lynn

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