Re: Hi Sandy and Info about web site

[Guest guest]

,

This sounds GREAT! I can provide an organized summary of all of the profiles

I have received thus far.

Poly & Terri:

I still do not have yours. Sorry, I must not have saved them!!

Celeste

[Guest guest]

Brilliant .

Also, welcome from me to all new members.

Jane

Hi Sandy and Info about web site

Hi Everyone,

First, Sandy, I wanted to say hello and welcome to the group. I also

developed ashermans after a d & c from a m/c after my first pg, so I know how

awful that feeling is (both going through a m/c and then thinking you may

never have children of your own). Anyhow, I just wanted to say hello and

hang in there. Like Celeste and several of the others have said, there

really is hope. We are in our 3rd month of ttc after my surgery in late

Jan.

For everyone,

I've volunteered to build us a website. First, I have to find the

space/location - hopefully onelist will provide some space. Although, I was

thinking it would be nice to register the name www.ashermans.com, if it

isn't gone already. In any case, here are some ideas I had for the site,

but I would love any input possible - thanks!

1. Home Page - Statement of Purpose (something like 'to provide support and

information for sufferers of Ashermans Syndrome...'

What is Ashermans? (brief explanation)

Our Favorite Links (inciid, medscape, others?)

Buttons that link to the following pages:

2. About Ashermans - more detailed medical articles, links to medical

information

3. About Us - Group Statistics, individual information or compiled

information, stories, links to our own web sites

4. Discussion Groups - Message Boards (Newly Diagnosed, TTC after

Ashermans, Surrogacy, Adoption, Q & A, others?)

5. Links to Dr.s/REs - Those of us that have had good experiences with

certain REs can post recommendations

6. Chat Room

Each page would also have a small link at the bottom to an e-mail account

for questions/comments about the website. There would also be a search

mechansim.

Any other ideas? I would like to start with just the Home Page, then build

it from there - this could take some time ) But I could get the Home Page

up by the end of June, hopefully. I also need to find out how to 'register'

our site so that people doing keyword searches on various search engines can

find it easily. Some of the keywords I thought we shoud use are Ashermans,

Ashermans Syndrome, menstrual disorders, infertility, interuterine scarring,

uterine scarring, interuterine adhesions, uterine adhesions, bleeding

disorders.

Okay - so any suggestions are greatly appreciated. Thanks and I hope

everyone has a great week,

________________________________________________________________________

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[Guest guest]

Dear Celeste,

Let's see--I do hesitate to put my age, blow everybody's mind and might

lead

to all kinds of questions, maybe we can get away without that part! Number of

children is 6 (will undoubtedly blow some minds also), cause of Asherman's was

most likely placenta previa, with some scar tissue at the bottom of the uterus

where the previa site was (had c-section, but that alone probably did not cause

it, just that it was done because of the placenta previa, and that was more of a

factor in developing scar tissue). This developed after birth of last baby in

August 1998, diagnosed in January 2000 after I started ovulating again but no

periods followed the ovulations, just some pain. Diagnosed with saline u/s,

corrected with operative hysteroscopy followed by estrogen and Provera hormone

treatment for one month, which was followed by a period. Have had periods

since. The Asherman's was considered to be mild, did not involve the uterine

lining, just the very bottom of uterus/top of cervix area. Did try to conceive

one cycle since then (last month) and this was unsuccessful, lining only got to

7. Will try again soon probably.

Hope this is okay. Let me know if you need more info. Thanks for taking

so

much time putting all this together.

Terri

celjim@... wrote:

> ,

>

> This sounds GREAT! I can provide an organized summary of all of the profiles

> I have received thus far.

>

> Poly & Terri:

>

> I still do not have yours. Sorry, I must not have saved them!!

>

> Celeste

>

> ------------------------------------------------------------------------

> Best friends, most artistic, class clown Find 'em here:

> http://click./1/4054/4/_/673741/_/959005740/

> ------------------------------------------------------------------------

>

>

[Guest guest]

,

I think you have just about covered everything in your email. It sounds

absolutely great. One other keyword I thought would be amenorhea (hope the

spellings right), and absent periods.

I don't think anyone would have taken up the name www.ashermans.com because most

places writing ashermans says no matches found!! So hopefully this will be our

name.

Keep up the good work!

And if I think of anything else, will gladly send to you. I love you lot, we

seem to be a great team!

Poly

Hi Sandy and Info about web site

Hi Everyone,

First, Sandy, I wanted to say hello and welcome to the group. I also

developed ashermans after a d & c from a m/c after my first pg, so I know how

awful that feeling is (both going through a m/c and then thinking you may

never have children of your own). Anyhow, I just wanted to say hello and

hang in there. Like Celeste and several of the others have said, there

really is hope. We are in our 3rd month of ttc after my surgery in late

Jan.

For everyone,

I've volunteered to build us a website. First, I have to find the

space/location - hopefully onelist will provide some space. Although, I was

thinking it would be nice to register the name www.ashermans.com, if it

isn't gone already. In any case, here are some ideas I had for the site,

but I would love any input possible - thanks!

1. Home Page - Statement of Purpose (something like 'to provide support and

information for sufferers of Ashermans Syndrome...'

What is Ashermans? (brief explanation)

Our Favorite Links (inciid, medscape, others?)

Buttons that link to the following pages:

2. About Ashermans - more detailed medical articles, links to medical

information

3. About Us - Group Statistics, individual information or compiled

information, stories, links to our own web sites

4. Discussion Groups - Message Boards (Newly Diagnosed, TTC after

Ashermans, Surrogacy, Adoption, Q & A, others?)

5. Links to Dr.s/REs - Those of us that have had good experiences with

certain REs can post recommendations

6. Chat Room

Each page would also have a small link at the bottom to an e-mail account

for questions/comments about the website. There would also be a search

mechansim.

Any other ideas? I would like to start with just the Home Page, then build

it from there - this could take some time ) But I could get the Home Page

up by the end of June, hopefully. I also need to find out how to 'register'

our site so that people doing keyword searches on various search engines can

find it easily. Some of the keywords I thought we shoud use are Ashermans,

Ashermans Syndrome, menstrual disorders, infertility, interuterine scarring,

uterine scarring, interuterine adhesions, uterine adhesions, bleeding

disorders.

Okay - so any suggestions are greatly appreciated. Thanks and I hope

everyone has a great week,

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

------------------------------------------------------------------------------

------------------------------------------------------------------------------

[Guest guest]

Six?! Can you spare a few!! (Only kidding) You are so blessed.

Terri, did you say you were in pain? I believe Ashermans is painless. Am I

correct everyone?

Jane

Re: Hi Sandy and Info about web site

Dear Celeste,

Let's see--I do hesitate to put my age, blow everybody's mind and might

lead

to all kinds of questions, maybe we can get away without that part! Number of

children is 6 (will undoubtedly blow some minds also), cause of Asherman's was

most likely placenta previa, with some scar tissue at the bottom of the uterus

where the previa site was (had c-section, but that alone probably did not

cause

it, just that it was done because of the placenta previa, and that was more of

a

factor in developing scar tissue). This developed after birth of last baby in

August 1998, diagnosed in January 2000 after I started ovulating again but no

periods followed the ovulations, just some pain. Diagnosed with saline u/s,

corrected with operative hysteroscopy followed by estrogen and Provera hormone

treatment for one month, which was followed by a period. Have had periods

since. The Asherman's was considered to be mild, did not involve the uterine

lining, just the very bottom of uterus/top of cervix area. Did try to

conceive

one cycle since then (last month) and this was unsuccessful, lining only got

to

7. Will try again soon probably.

Hope this is okay. Let me know if you need more info. Thanks for taking

so

much time putting all this together.

Terri

celjim@... wrote:

> ,

>

> This sounds GREAT! I can provide an organized summary of all of the

profiles

> I have received thus far.

>

> Poly & Terri:

>

> I still do not have yours. Sorry, I must not have saved them!!

>

> Celeste

>

> ------------------------------------------------------------------------

> Best friends, most artistic, class clown Find 'em here:

> http://click./1/4054/4/_/673741/_/959005740/

> ------------------------------------------------------------------------

>

>

[Guest guest]

Jane,

For me, Ashermans is painful at the time of my cycle i should be getting my

period but don't . It is just the cramping I would be having if i were having a

period. But, ashermans must be known as painful to the medical field because

when I switched Drs both the nurse and the Dr asked how much pain I have with

it. Maybe when the adhesions have time to get tougher as time passes (mine are

quite fresh since my d and c in 11/99) they cause more discomfort. Just a

guess!

I am having a hard time keeping everyone straight with all of our members!

Maybe when all the profiles are submitted they could be posted to the group so

we could print them out and refer to them when reading emails!

Marcie

ashermans dx 4/00 due to retained placenta in 10/99, d and c 11/99

hysteroscopy sceduled for 6/9

--- Original Message -----

From: The Spetsas'

To: Ashermansegroups

Sent: Monday, May 22, 2000 4:05 PM

Subject: Re: Hi Sandy and Info about web site

Six?! Can you spare a few!! (Only kidding) You are so blessed.

Terri, did you say you were in pain? I believe Ashermans is painless. Am I

correct everyone?