I have a question re: Lyme Disease

[Guest guest]

Hi Everyone,

As a result of reading the posts for the last few days, I remembered that I had

2 tick bites while I was pregnant with my youngest child. I had no reactions

that I was aware of at the time. I was living in Santa Cruz, CA and got the

ticks in the mountains near there while camping.

I read about Lyme disease. I read about the symptoms, and the diagnostic

procedures. My question is this: Does Lyme Disease cause lesions on the brain? I

saw nothing that talked about the brain, lesions, etc. To me that is what

confirmed my diagnosis. They found more than 20 spots on my brain. But - if Lyme

does that, too, then what?

Anyhow, any info on this would be greatly appreciated.

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[Guest guest]

My Lyme disease curve is just beginning. It's a complex disease

called " the great imitator " . Allegedly, there are a number of people

that have originally been diagnosed with MS, ALS, alzheimers, etc that

actually have Lyme.

It's a complex little organism that has a complex life cycle. To add

some spice to the disease, the diagnosis is largely clinical

(physician interviews, takes history, lays hands on, etc.)

For example, I had two Lyme tests performed with blood from the same

butterfly needle. The tests are from IgeneX and Fry Laboratories.

Both tests were semi-non-conclusive. My opinion, there is not a magic

test that yields a magic result that gives an exact answer or treatment.

Based on a clinical diagnosis, my Lyme doc has prescribed 3 months of

100 mg doxycycline tablets. In three months we'll have a follow up to

see what is happening.

Copies of my blood tests are in my MySpace profile " Pics " section.

Look for the blue circles that are from the Fry Laboratories test. My

stool tests are also there. Look for the picture of me throwing a

toilet (it was a trip to the landfill).

http://www.myspace.com/alrightguy123

To learn about the lifecycle of this bacteria go to:

http://www.canlyme.com/tom.html

This is Tom Grier's, The Complexities of Lyme.

also you can go to

www.lifelyme.org, and click on educational basics.

Hopefully you're not any more confused than I am.

>

I read about Lyme disease. I read about the symptoms, and the

diagnostic procedures. My question is this: Does Lyme Disease cause

lesions on the brain?.......

>

>

>

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____

> Never miss a thing. Make Yahoo your home page.

> http://www.yahoo.com/r/hs

>

>

[Guest guest]

Hey , thank you for posting that canlyme.com site below. One of the best

I've ever read. ..RP

alrightguy123 wrote: My Lyme disease curve is

just beginning. It's a complex disease

called " the great imitator " . Allegedly, there are a number of people

that have originally been diagnosed with MS, ALS, alzheimers, etc that

actually have Lyme.

It's a complex little organism that has a complex life cycle. To add

some spice to the disease, the diagnosis is largely clinical

(physician interviews, takes history, lays hands on, etc.)

For example, I had two Lyme tests performed with blood from the same

butterfly needle. The tests are from IgeneX and Fry Laboratories.

Both tests were semi-non-conclusive. My opinion, there is not a magic

test that yields a magic result that gives an exact answer or treatment.

Based on a clinical diagnosis, my Lyme doc has prescribed 3 months of

100 mg doxycycline tablets. In three months we'll have a follow up to

see what is happening.

Copies of my blood tests are in my MySpace profile " Pics " section.

Look for the blue circles that are from the Fry Laboratories test. My

stool tests are also there. Look for the picture of me throwing a

toilet (it was a trip to the landfill).

http://www.myspace.com/alrightguy123

To learn about the lifecycle of this bacteria go to:

http://www.canlyme.com/tom.html

This is Tom Grier's, The Complexities of Lyme.

also you can go to

www.lifelyme.org, and click on educational basics.

Hopefully you're not any more confused than I am.

>

I read about Lyme disease. I read about the symptoms, and the

diagnostic procedures. My question is this: Does Lyme Disease cause

lesions on the brain?.......

>

>

>

__________________________________________________________

> Never miss a thing. Make Yahoo your home page.

> http://www.yahoo.com/r/hs

>

>

[Guest guest]

Hmmm. I have a lot of those symptoms too. I've always thought I fit

more to MS then Lyme, but who knows.

On their symptom list, regarding bladder, they only mention " irritable

bladder. " They don't mention frequency, urgency, incontinence etc. Can

those be Lyme too?

>

> I had/have 20 of those symptoms and I was diagnosed with Lyme disease

by my homeopathic doctor several years ago. It may be time to switch

horses! I see a new doctor next week and I'm going to have a

definitive test with Igenex Labs. I hate the thought of antibiotics,

but I hate the thought of never walking again more.

[Guest guest]

Originally written for Ms. Pugh regarding switching horses. Read at

your own risk:

My opinion, if your are serious about pursuing Lyme: 1) hire a doc

that truly understands the complex disease labeled " Lyme Disease " . 2)

There is not a definitive test for Lyme. Likely even less definitive

if we've been sick for a long time.

It would truly be wonderful if we could have some portion of our body

tested with a magic spectro-gizzo that would yield some sort of

definite disease result. The magic spectro-gizzo might exist on the

TV show CSI Miami. I have not found one yet. If your hired-gun

(physician) wants test results from ACME Lyme Testing Assoc, a

division of Road Runner Industries, then so be it.

See my Lyme results in the " Pics " section. These two tests utilize

blood from the same butterfly needle stick (IV starter). Look for the

blue circles.

www.myspace.com/alrightguy123

My experience - my opinion: I am truly sick and tired of being sick

and tired. I use one cane to walk around the house and two canes if I

go out of the house. I have utilized many different treatments with

both physicians and on my own. Regardless of what I have done, I have

had a steady slide into the toilet. If I do nothing, my slide into

the toilet will continue. So maybe it's time for me to investigate a

different disease?? I have no results from my Lyme experiment yet.

I've had many many problems with extremely urgent emergency #2 trips

to the bathroom. Many times I don't quite make the trip. For random

unknown reasons I began taking Solaray olive leaf extract. After

about a month on the stuff, the emergency trips weren't quite as

urgent. That might be a coincidence?.? (oleuropein does have some

antibiotic properties)

The message database for LymeAid was mined for data.

http://health.groups.yahoo.com/group/Lyme-Aid/

One lady wrote in and claimed she had no results from 3-months of

doxycycline. Another lady responded claiming she had been originally

diagnosed with MS and that it took 6-months for small advances and

8-months for more significant advances. For me, after starting the

doxycycline my #2 trips have gone from about once per 24 hours to once

every other day. There has also been more than ample warning to get

to a toilet. Not being tethered to a toilet has been a pleasant

change that's strange to comprehend.

None of my experiences amount to a hill of beans. Go get your own.

There is quite a range of competence in docs that claim to treat Lyme.

Personally, I felt IV antibiotics were a very bad idea. Choosing a

doc that avoided those was high on my list. I also looked for a doc

that ALL they did was treat Lyme-type things. It seems some docs just

tack " Lyme " to their sign.

If this is a path anyone is interested in pursuing, then study the

disease (it helps in the hiring process):

www.canlyme.com

http://www.lifelyme.org/ and click on educational basics (left side in

blue menu bar)

Tom Grier's The Complexities of Lyme at

http://www.canlyme.com/tom.html

>

> I had/have 20 of those symptoms and I was diagnosed with Lyme

disease by my homeopathic doctor several years ago. It may be time to

switch horses! I see a new doctor next week and I'm going to have a

definitive test with Igenex Labs. I hate the thought of antibiotics,

but I hate the thought of never walking again more.

[Guest guest]

Mr. Real, in the past, I tried Samento (cat's claw), NDF (nano colloidal detox

factor), grapefruit seed extract and something else that I don't recall at the

moment, for treatng Lyme. I was sure that I had improved whatever it is that I

have. The move from Texas to New Mexico stressed me both mentally and

physically and some of those symptoms returned for a week or so. I had Bell's

Palsy again and to my knowledge, that is associated with Lyme, not necessarily

MS. I may have to dig those " magic " elixers out of the box again. I'm better

again now, but I don't walk yet. A doctor/nutritionist is going to work with me

to get my diet where it will be better for me. I'm not sure that I'm far off

track with that. He treats people with MS, but I don't know of his experiences

with Lyme. He lives in NY and this will be done by phone. I may even resort to

using one of those ACME type tools at some point! Maybe a zapper! I know that

IV antibiotics don't work. I have a friend

whose daughter has Lyme disease. She used the antibiotics and is doing well,

but not as well as they had hoped. Ms.Pugh

alrightguy123 wrote:

Originally written for Ms. Pugh regarding switching horses. Read at

your own risk:

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[Guest guest]

Hi alrightguy123,

These are some options in treating your Lyme disease that you may want to

consider.

In my opinion, taking Low Dose Naltrexone (LDN) for Lyme makes good sense, as it

acts to boost the immune system. Theoretically, that boost should help your body

fight off the infection. For more information about LDN, visit

http://tinyurl.com/2boot2

If I were you, I would include colloidal silver (CS) in your treatment regimen.

Here is a Lyme/CS testimonial:

http://tinyurl.com/2l9pbh

For more information about CS, visit

http://tinyurl.com/2fd7xs

If you haven't already done so, you might read, " The Top Ten Lyme Disease

Treatments, " a book available from Amazon.com through this link:

http://tinyurl.com/2y4n3w

Finally, you may pick up some good advice for treating Lyme disease at

http://www.webspawner.com/users/ecslymediseasetx/i ndex.html

With best wishes,

Dudley Delany

http://profiles.yahoo.com/dudley_delany

[Guest guest]

Many thank yous for all of the information and links to explore. This

afternoon I'll give them a read.

I did take low dose naltrexone (LDN - 3mg - microcrystaline cellulose

filler) for 8 or 9 months. During that time I had another

exacerbation - attack and lost some more use of my right leg. That

experience ended up being another data point along my trip to explore

Lyme. This trip might be another wild-goose chase. Whatever the

results are, they will be shared.

>

> Hi alrightguy123,

>

> These are some options in treating your Lyme disease that you may

want to consider.

>

> In my opinion, taking Low Dose Naltrexone (LDN) for Lyme makes good

sense, as it acts to boost the immune system. Theoretically, that

boost should help your body fight off the infection. For more

information about LDN, visit

>

> http://tinyurl.com/2boot2

>

> If I were you, I would include colloidal silver (CS) in your

treatment regimen. Here is a Lyme/CS testimonial:

>

> http://tinyurl.com/2l9pbh

>

> For more information about CS, visit

>

> http://tinyurl.com/2fd7xs

>

> If you haven't already done so, you might read, " The Top Ten Lyme

Disease Treatments, " a book available from Amazon.com through this link:

>

> http://tinyurl.com/2y4n3w

>

> Finally, you may pick up some good advice for treating Lyme disease at

>

> http://www.webspawner.com/users/ecslymediseasetx/i ndex.html

>

> With best wishes,

>

> Dudley Delany

>

> http://profiles.yahoo.com/dudley_delany

>

[Guest guest]

I suppose it's possible. Disease presents itself differently in different

people. It's only a list of symptoms and many " so called " diseases share

symptoms.

trekkie323 wrote: Hmmm. I have a lot of those symptoms

too. I've always thought I fit

more to MS then Lyme, but who knows.

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[Guest guest]

I've been following forums on Lyme, MS, ALS, autism, etc. for about 10 years and

have never heard of anyone with chronic lyme disease that was cured using

antibiotics.   But it might slow down the progress for awhile.

Bernie

[Guest guest]

Excellent point. The Lyme folks talk about " remission " . My neighbor

two doors down, approx mid-40s, has rheumatoid arthritis quite badly.

She is taking antibiotics (abx) for her arthritis. The abx made her

significantly better, for a couple of years. Just a month ago she had

a new hip joint installed. Her hands are all knotted up something fierce.

Just my mindset, when I get going on something, I really just " hunker

down " and keep pressing on disregarding extraneous things. Now I'll

incorporate long term treatment into my plans.

Thank your for sharing that observation.

> I've been following forums on Lyme, MS, ALS, autism, etc. for about

10 years and have never heard of anyone with chronic lyme disease that

was cured using antibiotics.  But it might slow down the progress

for awhile.

>

> Bernie

[Guest guest]

NO!!!! I know better than that! I just want to get this out of my system and

it's frustrating. I'm not sure that I what I'll do, I don't even know that the

test will actually change my protocol or if I should really have the test at

this point. I never had it before, but all this talk has raised some doubt in

me lately. I may just ride the tide for awhile. Moving exacerbated my symptoms

for a week and that has never happened before. I had a moment of fear, but that

has been resolved. My exacerbated symptoms are gone and I'm back on my routine.

arlizotte@... wrote:

You aren't thinking about taking antibiotics if the test is positive are you?

Arlene

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