Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 Hi , I know what you mean about being scared to death. I certainly felt the same way. I was dx 6-6-00, so I've had along time to deal with it. Getting hypo for my scan was really hard. My TSH got almost to 200, and I got pretty much like a zombie. This was the worse time of my life. I was very anxious, upset, so many emotions, very emotional. Now, I have to tell you that all my tests so far have turned out good, each time making me feel more like I can beat this. It took awhile to get my levels suppressed, and to get back to feeling like myself, now I feel great again. I had my first post RAI scan in May and it was clean! My TG levels have been <1 which is great. Now, my doctor says I can see her every 6 months. You have found a wonderful support group. You will learn the ropes of thyca. This is a good time to start really taking good care of yourself. Walks really helps with stress and helps with the sleepless nights. You are going to be OK. Beleive that, and try to go on with your life as always. If you'd like to chat further feel free to e-mail me privately. Patty lin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 I sent to 's list of resources...just so nobody duplicates that... Debbi Real peace will arise spontaneously When your mind becomes free Of attachments, When you know that the objects of the world Can never give you what you really want. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 hi susan my name is tammy and i was diagnosed with follicular cancer april of 1997. they found my cancer while i was pregnant with my son, nicholas. I hd my first surgery april 23 and i was 4 months pregnant and the doctor called me a week later and he said what it was and that they had to do another surgery in a couple weeks and not to buy anything for the baby he didn't think he would survive so i ended up having another surgery may 20th 1997 and they had to leave some of my cancer in because it was wrapped around the nerves in my neck and if they would have scraped any more would be paralyzed from the waist down. i was the hospitalized for radiation nov 3rd 1997 3 months after my son was born. radiation is really nothing compared to the surgery you just had believe me it's actually in away kinda humorous when you get there everything in the room that you touch will be wrapped with plastic wrap, i mean everything and nothing leaves that room including your meals not til you check out sure people can come visit but not long and they can only go as far as the lead door. i felt like i had a deadly disease just by the way everything was wrapped but you have to think and know it could be worse, you could have kemo and be sick like a dog. now i take a pill for the rest of my life and i'm only 24 and i get blood work on a regular bases and body scans every year. as for my son he was born healthy as can be, even was a week late but if it weren't for being pregnant with my son i would have never found it and i wouldn't be here today either by what the doctor's said. they told me i wasn't to get pregnant for at least 5 years well you know what i just hd my daughter december 31st 2000 and at first she had a rocky start because she was allergy to her milk bu now she is health as can be but i can't say that for myself because just when i thought i was in the clear with cancer there is a chance that it is back all because i got pregnant so i travel 100 somthing miles to pittsburgh to see my doctor an people who know and care for their patiences a lot better then here in erie,pa. so it's scary but i keep thinking i've beaten it before and you will too. look at the postive expect worse and everything will be fine trust me and if you're ever in need of a friend you know whee to find me. what is important in your life? me, my kids and my new husband ( father to my kids)as of feb.14th 2000 they are worth fighting for and so am i. > > > Hi, > > My name is and I was just diagnosed with thyroid Cancer...I > found out it was cancer when they removed my thyroid on August 27th > 2001..It wasn't up until then that anyone had even really mentioned > it...just to say oh, there is only small chance don't worry...Yeah, > well, I knew before the operation that it cancer. I'm not sure how > but I did... > > Everyone keeps telling me I should get mad..Yell, scream...but, why? > I am going to put my strength and energy into getting over this and > getting on with my life whatever I have to do.... > > Yes, I am scared to death..My family is being very supportive..but, I > can't talk to them they are scared too..We are looking for answers > together and will fight this together but, right now....I am scared > and don't know what to do next.....I have all my appointments set up > the first appointment since surgery with the Endocrinologist on the > 18th..blood work on the 10-11-01 then into the hospital on the 10- 15- > 01 for the RAI..but, I don't know what to expect or where to go after > that....or what to do to keep it from coming back.... > > Sorry about going on the way I did... > > Toler... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 Hi ; and welcome, you've come to a great place for information and support. Being mad? i spent only about 12 hours being mad, about 24 being scared and all the rest since my diagnosis in july of 99 being ready to fight, fight hard, fight informed and to get on with my life - so I don't know that you need to get mad, seems to me you've got a good attitude going. In terms of where to turn next, right now there are no turns... meet with your endo - get your bloodwork, have RAI and do the low iodine diet for two weeks before the RAI to be sure you give yourself every good chance of having it work well and ablate any remaining thryoid tissue. in terms of keeping the thyca from coming back - be vigilant, get a scan in 6 mos to a year to see if the RAI worked - if its clean, get another scan in a year, if its not clean, get RAI again.. and get TG bloodwork done (if you don't have antibodies) to monitor for recurrence. being vigilant, keeping up on your tests and scans are the best way of catching any thyca that recurrs. Its hard to prevent, but a good RAI and clean scan, or repeat RAI's to make sure you have gotten rid of every thyroid cell is a good way to improve your chances. And ask questions, ask for support, and know that we are all in it with you barb Dx pap thyca 7/99, TT 8/13/99, RAI april 00, clean scan 12/15/00 hailing from Plaistow NH (north of boston mass) > > > Hi, > > My name is and I was just diagnosed with thyroid Cancer...I > found out it was cancer when they removed my thyroid on August 27th > 2001..It wasn't up until then that anyone had even really mentioned > it...just to say oh, there is only small chance don't worry...Yeah, > well, I knew before the operation that it cancer. I'm not sure how > but I did... > > Everyone keeps telling me I should get mad..Yell, scream...but, why? > I am going to put my strength and energy into getting over this and > getting on with my life whatever I have to do.... > > Yes, I am scared to death..My family is being very supportive..but, I > can't talk to them they are scared too..We are looking for answers > together and will fight this together but, right now....I am scared > and don't know what to do next.....I have all my appointments set up > the first appointment since surgery with the Endocrinologist on the > 18th..blood work on the 10-11-01 then into the hospital on the 10- 15- > 01 for the RAI..but, I don't know what to expect or where to go after > that....or what to do to keep it from coming back.... > > Sorry about going on the way I did... > > Toler... Quote Link to comment Share on other sites More sharing options...
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