Guest guest Posted January 24, 2000 Report Share Posted January 24, 2000 --- You wrote: Hello everyone! this is so new to me first a computer and now people to talk to that understand what I`m feeling.Do any of your children have problems with ear wax? is always having problems he even at one point had to go in the hospital to have it removed.We tried all the over the counter meds. but it does not help.Also, for those of you with mainsteamed children what helps them read so well I`.ve been reading about them being above grade level. is having a hard time in reading so the pulled him from class and put him in a resource room foe more help but, there are 3 different classes going on at once there and I don`t think it`s a good place for him so I`m talking with the school. If anyone can help please let me know. Thanks --- end of quote --- Hi - neither of my kids has really had problems with ear wax, so I can't help you there. Regarding the reading - is in first grade, right? You might want to see if he can qualify for " Reading Recovery " - it's a federal program and gives your child a lot of one on one time with a reading specialist. (I believe Reading Recovery is also called Title I or Title something - it's early and I can't remember the number!). Does wear hearing aids and does he have an IEP? Does he have an FM? I would make sure that he gets plenty of one on one time away from other kids, etc. where it's quiet. Or if that's not possible, make sure that if he does have an FM, he wears it to reading - Tommy does. For the first two years of school - k/1 - when he worked with his special education coordinator, they pretty much exclusively worked on reading. Has anyone ever inserviced your son's team about how hearing aids work, the fact that they amplify everything, etc.? When Tommy first started kindergarten, one of the audiologists who works with him did and it was really helpful for his team. One thing that helped Tom a lot too was first learning the sign alphabet when he ws learning his abc's. Just some thoughts.... Take care Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2000 Report Share Posted January 24, 2000 --- You wrote: My name is a and I am a brand new member of this list. I am very excited to have found you all and hope that we will get to know one another. I am an oral, hearing impaired mother of two children, one hearing, one hearing impaired. I have had a progressive hearing loss since the age of 3 (I'm now 33) and now have a profound loss in both ears. --- end of quote --- HI a - welcome! We will have much to learn from you - glad you're here.... Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 , You may absolutely share my thoughts, and my name, with your committee. I strongly support the newborn screening, and think it can definitely be handled sensitively and effectively, for both parents and baby. I would be interested to hear of your progress, as it goes. Stefanie > > >Dear , > >I read your comments to a with interest. > >As I serve on a Newborn Hearing Screening Implementation Committee, I was >curious if you would allow me to share your thoughts with the committee? > >What you share about the impact of learning your baby has a hearing loss is >very profound. Those thoughts and opinions should be shared with those making >plans for Newborn Hearing procedures. > >I would love to share your thoughts, but would like to know if this is alright >with you. I could do it with your name or without your name as you prefer. > >The hope would be that as procedures are implemented, there will be >sensitivity to how a mother and the family feels and how to best address those >feelings in ways that make the experience more positive. > >Thank you very much. > > Keedy >Portland, OR > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 , Thank you so much, and I certainly will keep you posted as to the progress of the plans. I appreciate your willingness to let your story be told so that the overall system can improve for many. Your story, coming from the heart, is the kind of input that changes policies and keeps the focus where it should be - on the baby and family. Thank you again! :-) Keedy Portland, OR > > > , > You may absolutely share my thoughts, and my name, with your committee. I > strongly support the newborn screening, and think it can definitely be > handled sensitively and effectively, for both parents and baby. > > I would be interested to hear of your progress, as it goes. > > Stefanie Quote Link to comment Share on other sites More sharing options...
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