Guest guest Posted September 23, 2001 Report Share Posted September 23, 2001 Dear Vicki, Out of all the people who have written in on this subject I think there was only one who said they got a bit better as they got older. Everyone else has reported further deterioration. I am on that list as well. Some have reported that they feel their hypermobility has decreased somewhat but their problems have increased. 'Normal' hypermobility, the flexible baby kind, decreases as the child grows. This is one of the things that helps contortionists, they start training while the child still has their baby flexibility and constantly train from there on out. I have read that if they stop for any period of time they lose some of this flexibility (not sure how true that is or if it is the same for all). Once I started having major problems it seemed to progress like a virus. It started with one knee and had progressed to include the other knee, both elbows, both wrists, various fingers, right shoulder, left jaw and both hips within 5 or 6 years. Ten years have now passed and now included as well is my left shoulder, neck, left ankle and back. Basically I'm fully affected. I keep waiting for my problems to peak and settle but it hasn't happened and I'm beginning to believe it never will. Sorry I can't give you a hopeful answer but remember, everyone is different. That's some hope at least :-) Hugs, HEDS, New Jersey, USA Quote Link to comment Share on other sites More sharing options...
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