Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 Is your daughter under the care of a neurologist or a psychiatrist? Myra Sherman Question re meds Spectrum Therapy <spectrumtherapyservices> wrote: Dear List, My daughter is 14 years old and has been on Zoloft and Abilify for a long while, she began a few weeks ago biting her lip. So we took her off of the abilify and moved her to Geodon. Then she began to have trouble sleeping. So we switched to Seroquel. Before the switch she ended up with hives and we are not sure where they came from. So my question is does anyone have any expereince like the hives or sleeplessness with the Geodon? Secondly, she still is very anxious on the seroquel, but has not been on long enough for the effects of the medication to work. Any feedback regarding any of these medications would be extremely helpful to us. Also does anyone know of a place around the country that deals with medication administration, we are getting kind of concerned that these two medications are not working anymore. Thanks for your help!! Fred Hausman Expecting? Get great news right away with email Auto-Check.Try the Yahoo! Mail Beta. Never Miss an EmailStay connected with Yahoo! Mail on your mobile. Get started! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 She is under the care of a psychiatrist. Fred Hausman --- sList wrote: > Is your daughter under the care of a neurologist or a psychiatrist? > > Myra Sherman > > > Question re meds > > > > > Spectrum Therapy <spectrumtherapyservices@...<mailto:spectrumtherap > yservices@...>> wrote: > > Dear List, > My daughter is 14 years old and has been on Zoloft and Abilify for a lo > ng while, she began a few weeks ago biting her lip. So we took her off of > the abilify and moved her to Geodon. Then she began to have trouble sleepi > ng. So we switched to Seroquel. Before the switch she ended up with hives > and we are not sure where they came from. So my question is does anyone h > ave any expereince like the hives or sleeplessness with the Geodon? > > Secondly, she still is very anxious on the seroquel, but has not been o > n long enough for the effects of the medication to work. > > Any feedback regarding any of these medications would be extremely help > ful to us. > > Also does anyone know of a place around the country that deals with med > ication administration, we are getting kind of concerned that these two med > ications are not working anymore. > > Thanks for your help!! > > Fred Hausman > > > --------------------------------------------------------------------------- > - > Expecting? Get great news right away with email Auto-Check.<http://us.r > d.yahoo.com/evt=49982/*http://advision.webevents.yahoo.com/mailbeta/newma > il_tools.html> > Try the Yahoo! Mail Beta.<http://us.rd.yahoo.com/evt=49982/*http://ad > vision.webevents.yahoo.com/mailbeta/newmail_tools.html> > > > > > --------------------------------------------------------------------------- > --- > Never Miss an Email > Stay connected with Yahoo! Mail on your mobile. Get started!<http://us.rd > ..yahoo.com/evt=43909/*http://mobile.yahoo.com/services?promote=mail> > > ________________________________________________________________________________\ ____ Need Mail bonding? Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users. http://answers.yahoo.com/dir/?link=list & sid=396546091 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 Hello, I can only vouch for my 8 year old daughters case that risepral and prozac are an excellent combination. I found that abilify can't withstand any changes in a persons development. I use Opal Hamilton who is a nurse practitioner for Tushman and Dan marino Center and have been for 6 years and they are EXTREMELY careful with mediation and proper dosages. Hope this helps. Karp wrote: Spectrum Therapy <spectrumtherapyservices> wrote: Dear List, My daughter is 14 years old and has been on Zoloft and Abilify for a long while, she began a few weeks ago biting her lip. So we took her off of the abilify and moved her to Geodon. Then she began to have trouble sleeping. So we switched to Seroquel. Before the switch she ended up with hives and we are not sure where they came from. So my question is does anyone have any expereince like the hives or sleeplessness with the Geodon? Secondly, she still is very anxious on the seroquel, but has not been on long enough for the effects of the medication to work. Any feedback regarding any of these medications would be extremely helpful to us. Also does anyone know of a place around the country that deals with medication administration, we are getting kind of concerned that these two medications are not working anymore. Thanks for your help!! Fred Hausman Expecting? Get great news right away with email Auto-Check.Try the Yahoo! Mail Beta. Never Miss an EmailStay connected with Yahoo! Mail on your mobile. Get started! Any questions? Get answers on any topic at Yahoo! Answers. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2007 Report Share Posted January 15, 2007 The meds you mention all affect how her Serotonin is being used in the brain. Because Serotonin is conencted to so many brain functions, you cannot affect one without affecting the other. Ask your psychiatrist if she/he knows how each of these drugs affect brain function, and ask to know what the side effects will be. Then go for the combination that fits your family the best. Remember, drugs are a useful temporary crutch while you are looking for the long-term solution. Drugs don't repair brain function, they only compensate. Since the brain thinks it is doing the job it is supposed to, when drugs are introduced to change that, the brain will over-compensate to progressively return to what it thinks is the way things should be done. This is why drugs lose their effectiveness. The only way out is to show your daughter's brain things that will make her want to change in order to have more fun with life. Find out what she likes today and use that to make her brain change through pleasure, without re-inforcing innapropriate responses. If she likes deep pressure, which is inappropriate, don't do it because it gives her pleasure and therefore will make her brain change. Instead find ways to re-establish appropriate tactile responses, such as pleasure through gentle touch. There are five types of receptors in the skin and the brain will only produce more Serotonin through the pleasurable stimulation of the one for texture, through gentle touch. Hope this helps a little. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2007 Report Share Posted January 15, 2007 Kim, This advise is all well and good but if you are looking for a quality of life sometimes the meds enable our children to be who they are without the stresses of autism. It is very difficult for these kids to handle life even with an abundance of therapy!!! I am one who knows full well."Kim P. Pomares" wrote: The meds you mention all affect how her Serotonin is being used in the brain. Because Serotonin is conencted to so many brain functions, you cannot affect one without affecting the other. Ask your psychiatrist if she/he knows how each of these drugs affect brain function, and ask to know what the side effects will be. Then go for the combination that fits your family the best. Remember, drugs are a useful temporary crutch while you are looking for the long-term solution. Drugs don't repair brain function, they only compensate. Since the brain thinks it is doing the job it is supposed to, when drugs are introduced to change that, the brain will over-compensate to progressively return to what it thinks is the way things should be done. This is why drugs lose their effectiveness.The only way out is to show your daughter's brain things that will make her want to change in order to have more fun with life. Find out what she likes today and use that to make her brain change through pleasure, without re-inforcing innapropriate responses. If she likes deep pressure, which is inappropriate, don't do it because it gives her pleasure and therefore will make her brain change. Instead find ways to re-establish appropriate tactile responses, such as pleasure through gentle touch. There are five types of receptors in the skin and the brain will only produce more Serotonin through the pleasurable stimulation of the one for texture, through gentle touch.Hope this helps a little. Expecting? Get great news right away with email Auto-Check.Try the Yahoo! Mail Beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2007 Report Share Posted January 16, 2007 > > Kim, > > This advise is all well and good but if you are looking for a quality of life sometimes the meds enable our children to be who they are without the stresses of autism. It is very difficult for these kids to handle life even with an abundance of therapy!!! I am one who knows full well. I can only imagine what it must be like. I have 4 children and they are all as healthy as one could hope. I count my blessings every day. I didn't mean to sound harsh, I'm sorry. I just thought that doctors don't always explain everything and that it might be valuable in the context of this public forum to mention what I think is the worst thing about drugs, not that they have side effects, but that their effectiveness wears off and one day there will be no drug left to try. I completely agree with the need for drugs to assist parents in daily living. That's exactly the purpose I see them having. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2007 Report Share Posted January 16, 2007 completely agree with the need for drugs to assist parents in daily living. That's exactly the purpose I see them having. I'm glad you see this. I didn't want to "jump" on the original post because I feel so passionately about it. If it's snake oil, we've done it. If it's a therapy, we've done it. In fact, I've never met a parent who willingly chose drugs first. The decision to pursue them is enormously painful, and no responsible family that I've ever known goes the "drug route" without carefully and thoroughly exploring alternatives. Working carefully with a qualified pediatric neurologist/eleptologist team has *greatly* increased my son's window of learning opportunity. The medication doses are minimal and he is, for the first time in his life, out of pain. At the age of twelve, he's finally in school all day and learning better than he's ever learned. So far, he's never built up a tolerance. It did, however, take us months of moving very slowly to find the right meds at the minimum effective doses. Just another side. I wish we'd gone this route years earlier, but I let others make me feel like I was a bad parent if I chose meds. No parent should feel guilty for doing what's right for their child. At least we know and can verify exactly what is in prescription medications. There is no way to verify the contents of supplements sold in the US. Not to slam supplements...we use a few ourselves. I know they';ve helped a great meany kids. They just weren't mine. Traci Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 > At least we know and can verify exactly what is in prescription medications. Couldn't agree more. I am glad you raised this point. People forget too often how hard scientists have worked to make their compounds as safe as possible, going through years and years of the stringent FDA approval process. The idea of " natural " alternatives satisfies my ecologist of a conscience, but we have treated many children who were having seizures as they followed their naturopath's advice and who didn't know it. Again, with my four children, I count my blessings every day. My wife is perfect too. :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 what the hell are you talking about b/c we are giving my son supplements? sorry, that was my first reaction as it totally freaked me out. can you be more specific as to what supplements are causing seizures in these children? > > > Date: 2007/01/17 Wed AM 09:22:25 EST > To: sList > Subject: Re: Question re meds > > > > At least we know and can verify exactly what is in prescription medications. > > Couldn't agree more. I am glad you raised this point. People forget too often how hard > scientists have worked to make their compounds as safe as possible, going through years > and years of the stringent FDA approval process. > > The idea of " natural " alternatives satisfies my ecologist of a conscience, but we have treated > many children who were having seizures as they followed their naturopath's advice and who > didn't know it. > > Again, with my four children, I count my blessings every day. My wife is perfect too. :-) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2007 Report Share Posted January 18, 2007 can you be more specific as to what supplements are causing seizures in these children? The unlimitedbrain.com url listed on the email address of the person who posted this concern might provide some more insight into the poster's opinions, if you've never been to one of their presentations. If you have concerns regarding supplements or allopathic medications, discuss it with your child's pediatrician or DAN doctor. Some supplements do lower the seizure threshold in seizure prone children, as do some allopathic meds. Even table salt and florescent lights can lower the seizure threshold. Pokemon games can even lower the seizure threshold. Try not to panic, just discuss your concerns with your child's healthcare provider. Traci Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2007 Report Share Posted January 18, 2007 Also, please try to remember that different children react differently to the same things. Don't put the cart before the horse. Talk to someone who is knowledgeable academically about your concerns. Just because one child seized using a certain treatment doesn't mean that the same thing will happen to your child. Myra Re: Re: Question re meds In a message dated 1/18/2007 3:49:52 P.M. Eastern Standard Time, austintandtbellsouth (DOT) net writes: can you be more specific as to what supplements are causing seizures in these children? The unlimitedbrain.com url listed on the email address of the person who posted this concern might provide some more insight into the poster's opinions, if you've never been to one of their presentations. If you have concerns regarding supplements or allopathic medications, discuss it with your child's pediatrician or DAN doctor. Some supplements do lower the seizure threshold in seizure prone children, as do some allopathic meds. Even table salt and florescent lights can lower the seizure threshold. Pokemon games can even lower the seizure threshold. Try not to panic, just discuss your concerns with your child's healthcare provider. Traci Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2007 Report Share Posted January 20, 2007 > > what the hell are you talking about b/c we are giving my son supplements? > > sorry, that was my first reaction as it totally freaked me out. can you be more specific as to what supplements are causing seizures in these children? I was referring to compounds that some therapists make themselves. These compounds can be just as powerful as FDA approved drugs but have not always gone through the strict FDA process. I was not referring to supplements or vitamins. I assume that anything you find on the shelve of a pharmacist falls into the FDA approved category and as single products have been tested over and over to limit potential harmful side effects. Even there, one must be careful about how multiple products are mixed in the same treatment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2007 Report Share Posted January 20, 2007 > > Also, please try to remember that different children react differently to the same things. Don't put the cart before the horse. Talk to someone who is knowledgeable academically about your concerns. Just because one child seized using a certain treatment doesn't mean that the same thing will happen to your child. Yes, I agree with Traci and Myra. Postings on these web sites are only more or less informed opinions, pieces of advice from more or less experienced individuals who care enough to give enough of a broad picture to help you, BUT, ultimately, YOU are in charge and you should always make sure that whatever you do is supervised by " someone who is knowledgeable academically about your concerns " , as Myra put it. Quote Link to comment Share on other sites More sharing options...
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