Re: HI EVERYONE

[Guest guest]

It helps to control our pain. I take 3000 mgs of Nerontin a day and it really

helps.

Kathy Goldenkranz

Aptos, CA 95003

[Guest guest]

Hi Tonia:

Can you tell me why they give Neurontin for this stuff? I still

don't have a clue on that one. My Mother-in-Law is a nurse and all

she tells me is that they use it for seizures. Makes no sense to me

what seizures and RSD have in common.

Thanks

Selene

[Guest guest]

Neurontin specifically addresses the nerve-ending pain and tingly knife-like

pain that comes with RSD. For example, when mine is acting up a lot, my

fingers and hand feel like someone's putting needles all through them. The

Neurontin helps with this. I'd highly recommend that you ask your doctor

about it. I take it with Percocet and get decent, although by no means

complete, pain relief.

HTH

Anita

Re: Hi everyone

Hi Tonia:

Can you tell me why they give Neurontin for this stuff? I still

don't have a clue on that one. My Mother-in-Law is a nurse and all

she tells me is that they use it for seizures. Makes no sense to me

what seizures and RSD have in common.

Thanks

Selene

[Guest guest]

Hi Trudy,

I know how you feel about losing your pets, I had to send my dog to my sisters because my apt. complex found out I had her and they dont allow pets, I have had her here for a year since she was six weeks old amd she was my constant companion, I miss her and only get to see her on the weekends, my sister said she looks for me and wont let them pet her or play with her she just sulks and hides, my nephew finallly got her to sleep with him at night and she will allow him to pet her but no one else, it makes me very sad and I miss her lot's. At least I still get to see her, and she diddnt suffer a horrible death but I just wanted you to know I understand your loss.

Take care

Carla

[Guest guest]

Hi, Kimi. So glad to hear from you at last. I'm sorry you are having a bad

flare right

now, but as we all know, this too shall pass...eventually...maybe? Normi

came to see

me last weekend, and we tore up the place! She is so funny. We laughed so

much, I'm

suprised you couldn't hear us clear over in Florida. You take care, honey,

and keep

us up to date on how you are doing. Loving hugs, MM

[Guest guest]

Hi, Kimi. So glad to hear from you at last. I'm sorry you are having a bad

flare right

now, but as we all know, this too shall pass...eventually...maybe? Normi

came to see

me last weekend, and we tore up the place! She is so funny. We laughed so

much, I'm

suprised you couldn't hear us clear over in Florida. You take care, honey,

and keep

us up to date on how you are doing. Loving hugs, MM

[Guest guest]

Come on aboard, Cassy! You belong here! love,

n, 69, wMS

HI EVERYONE

HI,MY NAME IS CASSY,AND I AM 25 YRS. OLD.I HAVE BEEN SICK FOR 3YRS.,BUT THIS PAST YEAR I HAVE BECOME DISABLED.I MAY HAVE MS,IHAVE HAD 2 BRAIN MRI'S THAT WERE NORMAL,SO NOW THEY ARE GOING TOLOOK AT MY SPINE.I AM VERY SICK,AND WOULD LOVE TOO TALK TO ANYONE WHO WOULD LIKE TOO SHARE INFO..

[Guest guest]

Come on aboard, Cassy! You belong here! love,

n, 69, wMS

HI EVERYONE

HI,MY NAME IS CASSY,AND I AM 25 YRS. OLD.I HAVE BEEN SICK FOR 3YRS.,BUT THIS PAST YEAR I HAVE BECOME DISABLED.I MAY HAVE MS,IHAVE HAD 2 BRAIN MRI'S THAT WERE NORMAL,SO NOW THEY ARE GOING TOLOOK AT MY SPINE.I AM VERY SICK,AND WOULD LOVE TOO TALK TO ANYONE WHO WOULD LIKE TOO SHARE INFO..

[Guest guest]

Hi Cassie:

We can definitely relate and we understand. When were the brain MRIs done? Have you had blood work to rule out other possible diseases/disorders? I'll post in another email about some of the other things that mimic MS. Are the MRIs scheduled for the spine yet?

What medications are you taking? You can take meds to help with the spasms, etc. Do you have balance problems too? Do you use a cane?

Hang in there~

hugs)))

Sharon

Sharon (MSersLife Group Owner/Creator)

Kind words may be short... but their echoes are endless.... Mother Theresa

HI EVERYONE

HI,MY NAME IS CASSY,I AM 25 YRS. OLD,AND I LIVE IN SACRAMENTOCA.,WITH MY FIANCE,AND 2 DAUGHTER'S.I HAVE BEEN SICK FOR 3 YRS.,BUT THIS PAST YR. I HAVE BECOMEDISABLED.I HAVE HAD 2 BRAIN MRI'S THAT WERE NORMAL,THEY SAY I MAYSTILL HAVE MS,AND THEY ARE GOING TO CHECK MY SPINE.I SUFFER ON A DAILY BASIS FROM PAIN IN MY LEG'S,ARM'S, AND BACK,I HAVE SEVERE WEAKNESS THAT EFFECT'S MY WHOLE BODY,AND I HAVESPASM'S,AND TWITCHING,AND ALOT OF NUMBNESS,ALOT MORE BUT THOSETHING'S ARE MY MAIN SYMPTOM'S,AND THEY NEVER GO AWAY.I AM REALLY SCARED BECAUSE THE WEAKNESS HAD FIRST ONLY STARTED IN MYLEG'S AND NOW IT IS IN MY HAND'S,ARM'S, AND EVEN MY FEET,I AM REALLYSTRUGGLING,AND I WOULD LOVE TO TALK TOO OTHER'S THAT CAN RELATE.

[Guest guest]

Hi Cassie:

We can definitely relate and we understand. When were the brain MRIs done? Have you had blood work to rule out other possible diseases/disorders? I'll post in another email about some of the other things that mimic MS. Are the MRIs scheduled for the spine yet?

What medications are you taking? You can take meds to help with the spasms, etc. Do you have balance problems too? Do you use a cane?

Hang in there~

hugs)))

Sharon

Sharon (MSersLife Group Owner/Creator)

Kind words may be short... but their echoes are endless.... Mother Theresa

HI EVERYONE

HI,MY NAME IS CASSY,I AM 25 YRS. OLD,AND I LIVE IN SACRAMENTOCA.,WITH MY FIANCE,AND 2 DAUGHTER'S.I HAVE BEEN SICK FOR 3 YRS.,BUT THIS PAST YR. I HAVE BECOMEDISABLED.I HAVE HAD 2 BRAIN MRI'S THAT WERE NORMAL,THEY SAY I MAYSTILL HAVE MS,AND THEY ARE GOING TO CHECK MY SPINE.I SUFFER ON A DAILY BASIS FROM PAIN IN MY LEG'S,ARM'S, AND BACK,I HAVE SEVERE WEAKNESS THAT EFFECT'S MY WHOLE BODY,AND I HAVESPASM'S,AND TWITCHING,AND ALOT OF NUMBNESS,ALOT MORE BUT THOSETHING'S ARE MY MAIN SYMPTOM'S,AND THEY NEVER GO AWAY.I AM REALLY SCARED BECAUSE THE WEAKNESS HAD FIRST ONLY STARTED IN MYLEG'S AND NOW IT IS IN MY HAND'S,ARM'S, AND EVEN MY FEET,I AM REALLYSTRUGGLING,AND I WOULD LOVE TO TALK TOO OTHER'S THAT CAN RELATE.

[Guest guest]

Hi Cassy. I'm Trista. I am 35, married to Steve, and have 4 boys. (13, 9, 2 1/2, and 1 next Sat.) I have been working in healthcare, all my adult life, with nursing being my last job. I am unable to work now. I do not have an MS dx, but really believe in my heart that I will someday. It just "fits", kwim? I've been having sx's that caused me to seek a dx, for the last 6 years. I've been pretty much "disabled" for the last 3. But, I can remember possible sx's popping up here and there for a lot longer. My Brain MRI was normal, my neuro tests were not all normal, but the Dr. basically blew me off. I'm discouraged, so I'm not going to go back to the neuro again. I hope you find the answers you need and quickly.

I can totally relate, when you say you are very sick. I never know what I'll feel like from day to day. It makes it hard to plan anything, or get involved in anything outside me home. I spend a lot of time resting or sleeping lately, and all my energy is spent on my family. So, I don't have any real friends any more. It can be very isolating, when you can't get out much. This is a great place to help keep connected with the outside world. And, these people understand and are among the most caring people I've ever known. You are in good company. I look forward to learning more about you. Take care, Trista

HI EVERYONE

HI,MY NAME IS CASSY,AND I AM 25 YRS. OLD.I HAVE BEEN SICK FOR 3YRS.,BUT THIS PAST YEAR I HAVE BECOME DISABLED.I MAY HAVE MS,IHAVE HAD 2 BRAIN MRI'S THAT WERE NORMAL,SO NOW THEY ARE GOING TOLOOK AT MY SPINE.I AM VERY SICK,AND WOULD LOVE TOO TALK TO ANYONE WHO WOULD LIKE TOO SHARE INFO..

[Guest guest]

Hi Cassy. I'm Trista. I am 35, married to Steve, and have 4 boys. (13, 9, 2 1/2, and 1 next Sat.) I have been working in healthcare, all my adult life, with nursing being my last job. I am unable to work now. I do not have an MS dx, but really believe in my heart that I will someday. It just "fits", kwim? I've been having sx's that caused me to seek a dx, for the last 6 years. I've been pretty much "disabled" for the last 3. But, I can remember possible sx's popping up here and there for a lot longer. My Brain MRI was normal, my neuro tests were not all normal, but the Dr. basically blew me off. I'm discouraged, so I'm not going to go back to the neuro again. I hope you find the answers you need and quickly.

I can totally relate, when you say you are very sick. I never know what I'll feel like from day to day. It makes it hard to plan anything, or get involved in anything outside me home. I spend a lot of time resting or sleeping lately, and all my energy is spent on my family. So, I don't have any real friends any more. It can be very isolating, when you can't get out much. This is a great place to help keep connected with the outside world. And, these people understand and are among the most caring people I've ever known. You are in good company. I look forward to learning more about you. Take care, Trista

HI EVERYONE

HI,MY NAME IS CASSY,AND I AM 25 YRS. OLD.I HAVE BEEN SICK FOR 3YRS.,BUT THIS PAST YEAR I HAVE BECOME DISABLED.I MAY HAVE MS,IHAVE HAD 2 BRAIN MRI'S THAT WERE NORMAL,SO NOW THEY ARE GOING TOLOOK AT MY SPINE.I AM VERY SICK,AND WOULD LOVE TOO TALK TO ANYONE WHO WOULD LIKE TOO SHARE INFO..

[Guest guest]

HI MARION,NICE TO MEET YOU.DO YOU HAVE MS/??I THINK I MIGHT.I WILL BE RELIEVED TO GET A DX,I THINK ONCE I KNOW WHAT IM DEALING WITH,I CAN START TO LIVE MY LIFE AGAIN,I LOOK FORWARD TOO CHATTING--TAKE CARE CASSYn Rojas wrote: Come on aboard, Cassy! You belong here! love, n, 69, wMS

HI EVERYONE HI,MY NAME IS CASSY,AND I AM 25 YRS. OLD.I HAVE BEEN SICK FOR 3YRS.,BUT THIS PAST YEAR I HAVE BECOME DISABLED.I MAY HAVE MS,IHAVE HAD 2 BRAIN MRI'S THAT WERE NORMAL,SO NOW THEY ARE GOING TOLOOK AT MY SPINE.I AM VERY SICK,AND WOULD LOVE TOO TALK TO ANYONE WHO WOULD LIKE TOO SHARE INFO.. __________________________________________________

[Guest guest]

HI MARION,NICE TO MEET YOU.DO YOU HAVE MS/??I THINK I MIGHT.I WILL BE RELIEVED TO GET A DX,I THINK ONCE I KNOW WHAT IM DEALING WITH,I CAN START TO LIVE MY LIFE AGAIN,I LOOK FORWARD TOO CHATTING--TAKE CARE CASSYn Rojas wrote: Come on aboard, Cassy! You belong here! love, n, 69, wMS

HI EVERYONE HI,MY NAME IS CASSY,AND I AM 25 YRS. OLD.I HAVE BEEN SICK FOR 3YRS.,BUT THIS PAST YEAR I HAVE BECOME DISABLED.I MAY HAVE MS,IHAVE HAD 2 BRAIN MRI'S THAT WERE NORMAL,SO NOW THEY ARE GOING TOLOOK AT MY SPINE.I AM VERY SICK,AND WOULD LOVE TOO TALK TO ANYONE WHO WOULD LIKE TOO SHARE INFO.. __________________________________________________

[Guest guest]

HI,TRISTTA,IT'S VERY NICE TO MEET YOU.I HAVE 2 GIRLS--THEY ARE 8 AND ALMOST 3.I USE TO WORK IN THE MEDICAL FIELD AS A LAB ASSISTANT,I AM TO SICK TO GO BACK TO WORK. DON'T GET DISCOURAGED.IT TOOK ME 2 YRS. TO GET THE DOCS TO HEAR ME,AND IN THE MEANTIME THEY DX'D ME WITH ARTHRITIS(AND FED ME SOME OF THOSE MEDS THAT ARE NOW OFF THE MARKET),AND THEN THEY SAID I HAD FIBROMYALGIA INSTEAD OF ARTHRITIS..EVERYTIME I WENT TO THE DOC HE ALWAY'S SAID IT'S THATT FIBROMYALGIA.THEY HATED ME,SOMETIME'S I WAS THERE 3 DAY'S OUT OF A WEEK,SO GET THIS ,THEY STARTED TREATING ME LIKE I WAS CRRAZY AND ONE OF THEM EVEN SSAID IT WAS IN MY HEAD.AT THAT POINT I WAS TO SICK TO ACCEPT THAT IT WAS IN MY HEAD,AND I SWITCHED MY

HEALTH INSURANCE PLAN. BY THE TIME I WENT TO MY NEW DOC----IT WAS AWESOME BECAUSE THEY BARELY HAD TO EVEN ASK ME QUESTION'S,THEY SEEN MY DISABILITY'S RIGHT AWAY,AND BOOM!!! I STAARTED ALL THIS TESTING,AND SEEING ALL THESE SPECIALIST'S,AND NOW I BELIEVE I WILL FINALLY GET A DX FINALLY AFTER 3 YRS. OF FIGHTING. WHATEVER YOU DO DONT GIVE UP,NOBODY SHOULD HAVE TO LIVE THIS WAY.YOU WILL EVENTUALLY FIND A GOOD DOC.WHAT KIND OF SYMPTOM'S DO YOU HAVE?HAVE THEY CHECKED YOURR SPINE?Trista wrote: Hi Cassy. I'm Trista. I am 35, married to Steve, and have 4 boys. (13, 9, 2 1/2, and 1 next Sat.) I have been working in healthcare, all my adult life, with nursing being my last job. I am unable to work now. I do not have an MS dx, but really believe in my heart that I will someday. It just "fits", kwim? I've been having sx's that caused me to seek a dx, for the last 6 years. I've been pretty much "disabled" for the last 3. But, I can remember possible sx's popping up here and there for a lot longer. My Brain MRI was normal, my neuro tests were not all normal, but the Dr. basically blew me off. I'm discouraged, so I'm not going to go back to the neuro again. I hope you find the answers you need and quickly. I can totally relate, when you say you are very sick. I never know what I'll feel like from day to day. It makes it hard to plan anything, or get involved in anything outside me home. I spend a lot of time resting or sleeping lately, and all my energy is spent on my family. So, I don't have any real friends any more. It can be very isolating, when you can't get out much. This is a great place to help keep connected with the outside world. And, these people understand and are among the most caring people I've ever known. You are in good company. I look forward to learning more about you. Take care, Trista HI EVERYONE HI,MY NAME IS CASSY,AND I AM 25 YRS. OLD.I HAVE BEEN SICK FOR 3YRS.,BUT THIS PAST YEAR I HAVE BECOME DISABLED.I MAY HAVE MS,IHAVE HAD 2 BRAIN MRI'S THAT WERE NORMAL,SO NOW THEY ARE GOING TOLOOK AT MY SPINE.I AM VERY SICK,AND WOULD LOVE TOO TALK TO ANYONE WHO WOULD LIKE TOO SHARE INFO.. __________________________________________________

[Guest guest]

HI VELENE,NICE TO MEET YOU.I CANNOT BELIEVE ALL OF THE WARM WELCOMING'S I HAVE RECIEVED FROM THIS GROUP.I AM SO GRATEFUL TO HAVE FOUND YOU ALL .I AM VERY SICK,AND SCARED,AND I FEEL SO MUCH BETTER HAVING YOU ALL TOO TALK TO. WHAT OTHER PROBLEM DO YOU SUSPECT MAY BE CONTRIBUTING TO YOUR MS?I LOOK TO THE BRIGHTER THING'S IN LIFE ALWAY'S,BUT IF I HAVE MS,IT IS THE MOST HORRIBLE THING..IN MY EXPERIENCE,ANYWAY,JUST BECAAUSE EVERDAY IS SO CHALLENGING,I SWEAR THING'S THAT ARE SUPPOSE TO BE EASY,WALKING DRESSING,SHOOWERING,I ALWAY'S THOUGHT I WOULD HAVE MY HEALTH.LOL----NOO BUT REALLY I DIDValene wrote:

{{{Cassy}}} Welcome to the group! My name is Valene. I'm 46, a mother to 4 and a grandmother to 81/2. I've had MS for a little over 20yrs. It started out as RRMS, but at this time, I believe it has progressed to PRMS. I am treating it at this time with Rebif. That may turn to be temporary, as I'm thinking about trying to treat it naturally. I am sorry you have been sick for so long. I know a little of how that

feels. I too have been pretty sick for the last 5 years or so. I know most of it is due to the MS, but I suspect there may be another problem as well. If at anytime you'd like to talk, there are plenty of people here who are very good people to talk to. The combined knowledge and education that these people have is awesome. We are one big family who tend to be a little protective of each other. I think you're gonna like it here. And I know that we'll like you too. Blessed be... http://mscopgirl.blogspot.com http://360.yahoo.com/vallee45

-- HI EVERYONE HI,MY NAME IS CASSY,AND I AM 25 YRS. OLD.I HAVE BEEN SICK FOR 3 YRS.,BUT THIS PAST YEAR I HAVE BECOME DISABLED.I MAY HAVE MS,I

HAVE HAD 2 BRAIN MRI'S THAT WERE NORMAL,SO NOW THEY ARE GOING TO LOOK AT MY SPINE.I AM VERY SICK,AND WOULD LOVE TOO TALK TO ANYONE WHO WOULD LIKE TOO SHARE INFO..

[Guest guest]

I read both of your posts and first of all: your not crazy, it's not all in your head, and did you know that 5% of MS'ers have neg MRI'S(that's what they have documented) and 10% have neg LP. Keep on keeping on because all we can do is take one day at a time. ' In Texaspayngabby72 wrote: HI,MY NAME IS CASSY,AND I AM 25 YRS. OLD.I HAVE BEEN SICK FOR 3YRS.,BUT THIS PAST YEAR I HAVE BECOME DISABLED.I MAY HAVE

MS,IHAVE HAD 2 BRAIN MRI'S THAT WERE NORMAL,SO NOW THEY ARE GOING TOLOOK AT MY SPINE.I AM VERY SICK,AND WOULD LOVE TOO TALK TO ANYONE WHO WOULD LIKE TOO SHARE INFO..

[Guest guest]

Hi Cassy,

There is a lot that you can do to help yourself. Go to www.copingandprevailing.com If you cannot afford to pay for the book send me your mailing address and I'll send it to you.

Regards,

Tom

HI EVERYONE

HI,MY NAME IS CASSY,AND I AM 25 YRS. OLD.I HAVE BEEN SICK FOR 3YRS.,BUT THIS PAST YEAR I HAVE BECOME DISABLED.I MAY HAVE MS,IHAVE HAD 2 BRAIN MRI'S THAT WERE NORMAL,SO NOW THEY ARE GOING TOLOOK AT MY SPINE.I AM VERY SICK,AND WOULD LOVE TOO TALK TO ANYONE WHO WOULD LIKE TOO SHARE INFO..

__________________________________________________

[Guest guest]

HI BILL,NICE TO MEET YOU.I HAVE READ ABOUT MS AND DIABETES TOGETHER,TAKE IT EASY.I AM ABOUT TO GET A WALKER---ONE OF THOSE WITH THE SEAT.I GET REALLY WEAK,AND HAVE TO STOP AND REST,OR STOP AND GO HOME.LOL.I HAVE KEPT MY SENSE OF HUMOR,IT IS ONE OF THE MAIN THING'S THAT KEEP ME STRONG,AND FROM BREAKING DOWN.IF MY HUMOR IS NOT HUMOROUS,YOU ALL LET ME KNOW,I DON'T WANT TOO AFFEND ANYONE AT ALL.IM GLAD I DONT HAVE STEP'S IN MY HOUSE BECAUSE I DONT THINK I WOULD EVER MAKE IT UPSTTAIR'S.LOL I LOOK FORWARD TOO GETTING TOO KNOOW YOU ALL,YOU ALL HAVE BEEN AWESOME--PS BILL YOOU HAVE A LOVELY LOOKING FAMIILY.YOU

KNOW SHARON,I REALLY DONT UNDERTAND WHY TTHEY CAN GIVE ME VICODIN AND NO SPASM MEDS.IT MAAKE'S ME MAD.I GO TOO SEE MY NEURO ON WED. AND IM PPUTTING MY FOOT DOWN!!!!THANKS TOO ALL OF YOU I THINK I WILL BE OK IN MY JOURNEY TOO MY DX.TAKE CARE AND W/B SOON YOUR NEW FRIEND,CASSYMS-Bill wrote: Hi Cassy sorry you had to get MS to meet us here. I have had my MS now since Aug of 99 and it all hit me within a months time. I also have type 1 diabetes now since April of 93 and the neurologist my primary doc sent me to thought my sugar levels were out of

control and was causing my walking troubles. It only took a month from me walking normal to having to use a walker since Aug of 99. I had lost all of my balance. When I told my Neurologist I was having trouble remembering recent events he had me have an MRI and it didn't look good for me. I also had the spinal tap done as well. My doc did a perfect job on my spinal tap and had no trouble because of it. Thank goodness. I had no idea what MS was so all of this was new to me.I was able to get my first walker at Walmart they were selling mine to get rid of what they sold and I got mine for about $30. We have a 2 story house and I still get up the stairs but I sit on the steps and go up them sitting down. Going up and down the stairs like that is great exercise for me especially for my diabetes. I also have a walker I use upstairs.My first year with my MS was the toughest for me. I had the feeling of pins and needle

pain up and down my legs. That did end after about 7 or 8 months thank goodness. I had a feeling of swelling and numbness in my legs during that time. I used to always ask my wife if my legs looked swollen and she always said no. I take Copaxone and do well on it.My wife Judy is a Social Worker and begins a new job in 10 day's and I am hoping her insurance will work good with my medical troubles. I think her insurance has a 90 day delay time for her to be able to use it. She is hoping her insurance she has now will let her keep using it until her new one kicks in. I have plenty of my diabetic supplies but my Copaxone I have to get each month. .Here is my wifes new companies web page. Just click on the logo to get to the web page.Welcome to the group and I hope you make some new friends. my web page MSDiabetes Sharon Marsden wrote:> Did they do the MRI with and without contrast? It's important to do > it both ways from what I understand. Although the first time I had > MRIs they didn't do it with contrast. > > Have you tried a walker? If your insurance won't cover it then you > can get one cheap at a thrift store. Tell your doctor you are so weak > you keep falling. (If you don't actually fall you can always fib and > say so). The thing is you COULD fall and you could break a bone or > something. Tell them you need a wheelchair. If your hands are too > weak then ask for a power chair or scooter. > > Maybe you need a different doctor? Have you considered that? You > should be able to be treated with meds for the spasms in my opinion.> > Sharon (MSersLife Group Owner/Creator)> Kind words may be short... but their echoes are endless.... Mother > Theresa>>> HI EVERYONE>> HI,MY NAME IS CASSY,I AM 25 YRS. OLD,AND I LIVE IN SACRAMENTO> CA.,WITH MY FIANCE,AND 2 DAUGHTER'S.> I HAVE BEEN SICK FOR 3 YRS.,BUT THIS PAST YR. I HAVE BECOME> DISABLED.I HAVE HAD 2 BRAIN MRI'S THAT WERE NORMAL,THEY SAY I MAY> STILL HAVE MS,AND THEY ARE GOING TO CHECK MY SPINE.> I SUFFER ON A DAILY BASIS FROM PAIN IN MY LEG'S,ARM'S, AND BACK,I> HAVE SEVERE WEAKNESS THAT EFFECT'S MY WHOLE BODY,AND I HAVE> SPASM'S,AND TWITCHING,AND ALOT OF NUMBNESS,ALOT MORE BUT THOSE> THING'S ARE MY MAIN SYMPTOM'S,AND THEY NEVER GO AWAY.> I AM REALLY SCARED BECAUSE THE WEAKNESS HAD FIRST ONLY STARTED IN MY> LEG'S AND NOW IT IS IN MY HAND'S,ARM'S, AND EVEN MY FEET,I AM REALLY> STRUGGLING,AND I

WOULD LOVE TO TALK TOO OTHER'S THAT CAN RELATE.>>>> ------------------------------------------------------------------------> Do you Yahoo!?> Get on board. You're invited > > to try the new Yahoo! Mail Beta.>> __________________________________________________

[Guest guest]

Hello Cassy!

My name is Amy and I am 30, an elem. art teacher and have had MS for 5 yrs. This is a good group to be a part of; I've been in several Yahoo groups (MS and others) and I really like this one. Lots of support and lots of fun!

Amy

[Guest guest]

You may find out from relatives they may have equipment they think you

might want some daay. My grandmother died a few years ago and I was

given her walker that had both wheels and a seat. Hers never did me any

good with my having no balance the wheels are bad news. Even going up

ramps is very hard for me to do. I always feel top heavy and can topple

over anytime without my walker. I also got her reclining lift chair. It

sits in the corner and figure I may need it some day.

Bill

cassandra workmn wrote:

>

> HI BILL,NICE TO MEET YOU.I HAVE READ ABOUT MS AND DIABETES

> TOGETHER,TAKE IT EASY.I AM ABOUT TO GET A WALKER---ONE OF

> THOSE WITH THE SEAT.I GET REALLY WEAK,AND HAVE TO STOP AND

> REST,OR STOP AND GO HOME.LOL.I HAVE KEPT MY SENSE OF HUMOR,IT IS

> ONE OF THE MAIN THING'S THAT KEEP ME STRONG,AND FROM BREAKING

> DOWN.IF MY HUMOR IS NOT HUMOROUS,YOU ALL LET ME KNOW,I DON'T WANT

> TOO AFFEND ANYONE AT ALL.IM GLAD I DONT HAVE STEP'S IN MY HOUSE

> BECAUSE I DONT THINK I WOULD EVER MAKE IT UPSTTAIR'S.LOL

> I LOOK FORWARD TOO GETTING TOO KNOOW YOU ALL,YOU ALL HAVE BEEN

> AWESOME--PS BILL YOOU HAVE A LOVELY LOOKING FAMIILY.

>

> YOU KNOW SHARON,I REALLY DONT UNDERTAND WHY TTHEY CAN GIVE ME

> VICODIN AND NO SPASM MEDS.IT MAAKE'S ME MAD.I GO TOO SEE MY

> NEURO ON WED. AND IM PPUTTING MY FOOT DOWN!!!!THANKS TOO ALL

> OF YOU I THINK I WILL BE OK IN MY JOURNEY TOO MY DX.TAKE

> CARE AND W/B SOON

>

>

>

> YOUR NEW FRIEND,CASSY

>

> */MS-Bill /* wrote:

>

>

> Hi Cassy sorry you had to get MS to meet us here. I have had my MS

> now

> since Aug of 99 and it all hit me within a months time. I also

> have type

> 1 diabetes now since April of 93 and the neurologist my primary

> doc sent

> me to thought my sugar levels were out of control and was causing my

> walking troubles. It only took a month from me walking normal to

> having

> to use a walker since Aug of 99. I had lost all of my balance. When I

> told my Neurologist I was having trouble remembering recent events he

> had me have an MRI and it didn't look good for me. I also had the

> spinal

> tap done as well. My doc did a perfect job on my spinal tap and

> had no

> trouble because of it. Thank goodness. I had no idea what MS was

> so all

> of this was new to me.

> I was able to get my first walker at Walmart they were selling

> mine to

> get rid of what they sold and I got mine for about $30. We have a 2

> story house and I still get up the stairs but I sit on the steps

> and go

> up them sitting down. Going up and down the stairs like that is great

> exercise for me especially for my diabetes. I also have a walker I

> use

> upstairs.

> My first year with my MS was the toughest for me. I had the

> feeling of

> pins and needle pain up and down my legs. That did end after about

> 7 or

> 8 months thank goodness. I had a feeling of swelling and numbness

> in my

> legs during that time. I used to always ask my wife if my legs looked

> swollen and she always said no. I take Copaxone and do well on it.

> My wife Judy is a Social Worker and begins a new job in 10 day's

> and I

> am hoping her insurance will work good with my medical troubles. I

> think

> her insurance has a 90 day delay time for her to be able to use

> it. She

> is hoping her insurance she has now will let her keep using it

> until her

> new one kicks in. I have plenty of my diabetic supplies but my

> Copaxone

> I have to get each month. .

> Here is my wifes new companies web page. Just click on the logo to

> get

> to the web page.

> Welcome to the group and I hope you make some new friends. my web

> page

> MSDiabetes

>

>

>

>

> Sharon Marsden wrote:

> > Did they do the MRI with and without contrast? It's important to do

> > it both ways from what I understand. Although the first time I had

> > MRIs they didn't do it with contrast.

> >

> > Have you tried a walker? If your insurance won't cover it then you

> > can get one cheap at a thrift store. Tell your doctor you are so

> weak

> > you keep falling. (If you don't actually fall you can always fib

> and

> > say so). The thing is you COULD fall and you could break a bone or

> > something. Tell them you need a wheelchair. If your hands are too

> > weak then ask for a power chair or scooter.

> >

> > Maybe you need a different doctor? Have you considered that? You

> > should be able to be treated with meds for the spasms in my opinion.

> >

> > Sharon (MSersLife Group Owner/Creator)

> > Kind words may be short... but their echoes are endless.... Mother

> > Theresa

> >

> >

> > Re: HI EVERYONE

> >

> > HI SHARON,

> >

> > NICE TO MEET YOU.I JUST HAD MY LAST MRI A WEEK AGO,AND NO

> > LESION'S.I AM WAITING FOR MY INSURANCE TO AUTHORIZE MY SPINE MRI,SO

> > HOPEFULLY SOON.

> > I HAVE BEEN CHECKED FOR EVERYTHING.INCLUDIN G MY LUNG'S AND

> > HEART,BECAUSE I GET REALLY WEAK AND IT AFFECT'S MY

> > BREATHING.EVERYTHIN G THERE IS FINE,AND MY BRAIN.THEY WON'T GIVE ME

> > SPASM MED'S UNTIL THEY KNOW WHAT I HAVE.UGHHHH- ----BUT THEY DO

> > GIVE ME VICODIN FOR PAIN,AND I ALREADY TAKE THYROID MED.,AND PAXIL.

> > I DONT USE A CANE,I HAVE TRIED BUT MY BODY IS TO WEAK.I KINDA

> > JUST WALL WALK ACROSS MY HOUSE.LOL--- NICE TO BE IN THE GROUP.

> >

> > CASSY

> >

> > */Sharon Marsden /* wrote:

> >

> > WOULD LOVE TO TALK TOO OTHER'S THAT CAN RELATE.

> >

> >

> >

> >

> ------------------------------------------------------------------------

> > Do you Yahoo!?

> > Get on board. You're invited

> >

> > to try the new Yahoo! Mail Beta.

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Hi Cassy, Welcome To The Group!!! My name is Crystal and I have a 17 yr son and 14 yr twin girls. When I was diagnosed with Secondary Progressive MS and Transverse Myelitis on November 2004 they did several MRI's and none showed the MS so my Neurologist did a Lumbar Puncture and that came backpositive for MS. Hang In There!!! Always,Crystalcassandra workmn wrote: HI SHARON,NICE TO MEET YOU.I JUST HAD MY LAST MRI A WEEK AGO,AND NO LESION'S.I AM WAITING FOR MY INSURANCE TO AUTHORIZE MY SPINE MRI,SO HOPEFULLY SOON. I HAVE BEEN CHECKED FOR EVERYTHING.INCLUDING MY LUNG'S AND

HEART,BECAUSE I GET REALLY WEAK AND IT AFFECT'S MY BREATHING.EVERYTHING THERE IS FINE,AND MY BRAIN.THEY WON'T GIVE ME SPASM MED'S UNTIL THEY KNOW WHAT I HAVE.UGHHHH-----BUT THEY DO GIVE ME VICODIN FOR PAIN,AND I ALREADY TAKE THYROID MED.,AND PAXIL. I DONT USE A CANE,I HAVE TRIED BUT MY BODY IS TO WEAK.I KINDA JUST WALL WALK ACROSS MY HOUSE.LOL---NICE TO BE IN THE GROUP. CASSYSharon Marsden wrote: Hi Cassie: We can definitely relate and we understand. When were the

brain MRIs done? Have you had blood work to rule out other possible diseases/disorders? I'll post in another email about some of the other things that mimic MS. Are the MRIs scheduled for the spine yet? What medications are you taking? You can take meds to help with the spasms, etc. Do you have balance problems too? Do you use a cane? Hang in there~ hugs))) Sharon Sharon (MSersLife Group Owner/Creator) Kind words may be short... but

their echoes are endless.... Mother Theresa HI EVERYONE HI,MY NAME IS CASSY,I AM 25 YRS. OLD,AND I LIVE IN SACRAMENTOCA.,WITH MY FIANCE,AND 2 DAUGHTER'S.I HAVE BEEN SICK FOR 3 YRS.,BUT THIS PAST YR. I HAVE BECOMEDISABLED.I HAVE HAD 2 BRAIN MRI'S THAT WERE NORMAL,THEY SAY I MAYSTILL HAVE MS,AND THEY ARE GOING TO CHECK MY SPINE.I

SUFFER ON A DAILY BASIS FROM PAIN IN MY LEG'S,ARM'S, AND BACK,I HAVE SEVERE WEAKNESS THAT EFFECT'S MY WHOLE BODY,AND I HAVESPASM'S,AND TWITCHING,AND ALOT OF NUMBNESS,ALOT MORE BUT THOSETHING'S ARE MY MAIN SYMPTOM'S,AND THEY NEVER GO AWAY.I AM REALLY SCARED BECAUSE THE WEAKNESS HAD FIRST ONLY STARTED IN MYLEG'S AND NOW IT IS IN MY HAND'S,ARM'S, AND EVEN MY FEET,I AM REALLYSTRUGGLING,AND I WOULD LOVE TO TALK TOO OTHER'S THAT CAN RELATE. Do you Yahoo!? Get on board. You're invited to try the new Yahoo! Mail Beta. My MS,TM & LDN Websitewww.crystalangel.orgIf you would like to be added to my Monthly MS,TM and LDN Newsletter email me at crystalsmstmldn@.... Subscribe by Emailing me your First and Last Name and Email Address and I will send it to you the first of every month.Thanks For All Your Support!!!! __________________________________________________

[Guest guest]

Hi Cassy, Welcome to MSersLife! ) What you're going through is nothing I'd hope for you, but you've ocme to a wonderful support list. ) I'm Challis... daughter of Sharon / Wobbletowalk here onlist. She has MS and I have *something*. I don't have a dx yet, but I'm sure one is out there waiting for me. I had an MRI of my brain and it showed only brain. Someday I may try the full set of MRIs. Right now I admit I'm still recouping from the dismissal by the Neuro. lol My husband, , and I live in Arizona and have four children. is 19½, is nearing 16, Jenna is 6½ and Maya is 3 years old today. ) It's nice to meet you! Challis payngabby72 wrote:

HI,MY NAME IS CASSY,I AM 25 YRS. OLD,AND I LIVE IN SACRAMENTOCA.,WITH MY FIANCE,AND 2 DAUGHTER'S.I HAVE BEEN SICK FOR 3 YRS.,BUT THIS PAST YR. I HAVE BECOMEDISABLED.I HAVE HAD 2 BRAIN MRI'S THAT WERE NORMAL,THEY SAY I MAYSTILL HAVE MS,AND THEY ARE GOING TO CHECK MY SPINE.I SUFFER ON A DAILY BASIS FROM PAIN IN MY LEG'S,ARM'S,AND BACK,I HAVE SEVERE WEAKNESS THAT EFFECT'S MY WHOLE BODY,AND I HAVESPASM'S,AND TWITCHING,AND ALOT OF NUMBNESS,ALOT MORE BUT THOSETHING'S ARE MY MAIN SYMPTOM'S,AND THEY NEVER GO AWAY.I AM

REALLY SCARED BECAUSE THE WEAKNESS HAD FIRST ONLY STARTED IN MYLEG'S AND NOW IT IS IN MY HAND'S,ARM'S,AND EVEN MY FEET,I AM REALLYSTRUGGLING,AND I WOULD LOVE TO TALK TOO OTHER'S THAT CAN RELATE.

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[Guest guest]

Cassy, I want to write a proper reply, so just letting you know that I will later today. Trista

! HI EVERYONE

HI,MY NAME IS CASSY,AND I AM 25 YRS. OLD.I HAVE BEEN SICK FOR 3YRS.,BUT THIS PAST YEAR I HAVE BECOME DISABLED.I MAY HAVE MS,IHAVE HAD 2 BRAIN MRI'S THAT WERE NORMAL,SO NOW THEY ARE GOING TOLOOK AT MY SPINE.I AM VERY SICK,AND WOULD LOVE TOO TALK TO ANYONE WHO WOULD LIKE TOO SHARE INFO..

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