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Re: I'm home!

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The radiation precautions I was given this week after a mere _scanning

dose_ were to avoid close contact for *5 days* with pregnant or

nursing women and small children. I think the precautions for the

therapy dose are at least 8 days.

So please, please, please don't hug any babies! or spend too much time

next to anybody who even *might* be pregnant. (I even wore rubber

gloves to wrap presents that had to be done then because they had to

be mailed this week and are going to families with babies -- and I

don't want to take *any* risks about contaminating what they may put

in their mouths.)

I'm sorry if you think I'm trying to spoil your wedding fun. But would

you want to be next to you if you were pregnant??? and what if it were

your child you were risking? Were the radiologists focussing more on

what was ok for you to do, or did they at all take into account the

risks to others at a wedding type gathering? Patting your dog (who may

not even live long enough to have thyroid problems show up) is not the

same as hugging a baby!

I'm glad you're home, feeling better, and having fun. I hope your scan

looks good.

bj

I'm Home!

> .... I'm in a wedding on Sunday and the radioligists(I spoke to two

of them) said there is no problem with my going ahead with all I

have planned for this weekend. I can even pet my dog,LOL(which I did

as soon as I got home,LOL). I'll keep you all posted!

>

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Bj, first off, thank you for hoping I feel better. You don't need

to worry, I am not a complete idiot. I know better than to stay next

to anyone who's pregnant or trying to get pregnant. I asked two

radiologists about this, and they said there shouldn't be a problem.

Now who would know better than the radiologists?

Adrienne

tt 11/9/01

hurthle cell carcinoma

RAI 12/12/01

Scan to be done in 10 days.

>

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Re: I'm Home!

> I asked two radiologists about this, and they said there shouldn't

be a problem.

> Now who would know better than the radiologists?

>

Depends on the radiologists and their training and experience, as well

as how careful they think patients should be after discharge (risk

tolerance outlook, although its not " their " risk). My directions come

from doctors with additional training and fellowships in Nuclear

Medicine, in a department that also includes a radiation physicist and

is headed by a doctor who is board certified in Nuclear Medicine.

bj

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I asked two

> radiologists about this, and they said there shouldn't be a problem.

> Now who would know better than the radiologists?

>

> Adrienne

>

Hi Adrienne,

This issue regarding the range of varying RAI precautions given to

discharged patients has come up before.

I think this issue started off as a economic one, then became an

accepted medical one. That is, radiologists couldn't immediately

release patients with over 30mci of RAI at one point in time,

therefore a lot of us had under 29.9 RAI so that the hospitals

wouldn't have to keep us overnight (costs were more important than

appropriate treatment). Now they've changed that rule some (most?)

places in the U.S. it seems, and anyone with any dose is " set free "

after their RAI. At least now people seem to be getting more

appropriate ablative doses (ie. higher doses). Now, it seems because

patients are treated as outpatients, that the radiologists assume this

decision was made because it's become safe to be an outpatient. Bad

logic I think.

At the hospital here in Toronto (Canada) where I have been

treated, we are still put in isolation for 2-3 days, then tested with

a gieger counter before we can be discharged (we have to measure under

30 in order to be released). No one, not even the nurses come into

the isolation room. It is a special room at the end of the hall with

a lead shield in the wall adjoining the next room. The linens and

towels and garbage is put into isolation for a few weeks

after we leave (elsewhere in the hospital) to " decay " -- meaning, a

process like off-gasing. Then we are given a list of instructions

about continuing our isolation at home for another week.

I had a family gathering to go to one week after my last 220mci dose.

I dared not go although I was feeling up to it.

Rita (Toronto)

tt Feb '99

RAI 150mci Apr. '99

RAI 220mci May '00

6 CT chest scans

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  • 2 years later...
Guest guest

Welcome home!

Levona

I'm home!

Okay, I just picked up my kiddo, and grabbed a tape measurer. I'm off to measure the place fridge that I have to buy today. YUCK! I have to be at work 2-11 (even more yuck since they called me yesterday- why did I give them my cell number again?!) Anyhow- it was a great time. I met so many of you- but I can't even remember now- Janet will have to help- or pictures. Melody you are so sweet! And had a great time talking Friday evening! Elaine, you have a GORGEOUS voice! Everyone was right! It was a pleasure to meet you too! And - thanks for taking all those pictures of our chapter for us. It was nice meeting you too! I'm off to get back to real life now. I'm dissecting my computer today. Since my phone here will be gone in the morning. I'm hoping to be fully moved out of my apt tomorrow. An ddo nothing but clean it tomorrow night an dTuesday morning. Maybe I'll finish tomorrow night, and I can actually unpack! Talk with everyone soon!

Try not to let your mind wander... It is too small and fragile to be out by itself.

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