Re: ReYesterday's Doctor Appt.

[Guest guest]

Hi Tracey,

I am sorry that you did not get any help from your doctor. What is he doing

perscribing steroids????? Are your knees swollen? As far as getting pain

medicine, can you go back to the doctor that diagnosed your RSD? or you could

try calling your insurance co. to see if they will pay out of network. I had

to do this myself, I needed to go to a better facility then what was offered

to me in Florida. I had some family in Baltimore, so my ins. co. approved me

for ANYTHING out of network. Now I spend alot of time in Baltimore and can

go to the top notch facilities for treatment. My doctors are great and I

have never had any problems with getting meds and have been seeing the same

pain doc for a year now. It saddens me to see you and others in such

needless distress and in so much pain. It could be so easily eliminated .

Who do these doctors think they are telling you that your pain is

insignificant? If you get out of state approval and could get to Baltimore,

I could give you the names of my docs and maybe you could get some real

treatment. Just ask and I would be happy to help. Wish I could do more for

you. You are in my prayers,

Love Jai

[Guest guest]

,

I don't understand why the doctors in your area are so incompetent. They

don't seem willing to listen to you. Have you tried the pain association to

see if they have a compassionate doctor in your area? They might know of a

pain doctor that the RSDSA doesn't know about. This is where I got Dr.

from and he has been a life saver.

I honestly don't know what else I would do if I where in your shoes.

As to the steroids they are very good at getting rid of some pain. I wish

desperately that I could go back on my steroids but I can't because of the

fusion.

I now it is hard but try and hang in there. Somehow we'll find you a decent

pain doctor.

Felice

[Guest guest]

Hi Jai and everyone,

Thought I'd update you all on my situation. As I

emailed before, the doctor prescribed me steroids

after seeing him on tuesday. On Wed. I called the

office cause I was still in sever pain. After

numerous calls the secretary called me back to tell me

the doctor said he couldn't do anything until he saw

me. I JUST SAW HIM THE DAY BEFORE!!!! I told her I

wanted to speak with Dr. Kovi. She's the woman I saw

there originally a couple of weeks before. I finally

got a call back from her today. She wants me to try

the Chlonodine patch again. She said I need to dress

warmer....I told her how clothes hurt. She said to

drink plenty of fluids and of course, quit smoking.

She wants to do the SCS. She said I would have to be

off pain meds for 4 weeks before they do the SCS.

I've been off them over 2 weeks now but she wants to

wait till they open their new office in March. Now, I

know she has to get insurance approval for this...I

have CDPHP through Medicaid. Why doesn't she write

for approval now? I don't see her again till March

15th. I don't know when she plans on doing this SCS.

She told me in the meantime to go ahead and take my

pain medication but only one twice a day if I have to.

Also, I saw my GP on Wed. and I have a sinus

infection and bronchitis on top of everything else. I

feel like I've been hit by a truck.

So, I put the chlonodine patch back on and I took

one of my pain meds. Time will tell.

Hugs, Tracey

--- jaismonkey@... wrote:

> Hi Tracey,

> I am sorry that you did not get any help from your

> doctor. What is he doing

> perscribing steroids????? Are your knees swollen?

> As far as getting pain

> medicine, can you go back to the doctor that

> diagnosed your RSD? or you could

> try calling your insurance co. to see if they will

> pay out of network. I had

> to do this myself, I needed to go to a better

> facility then what was offered

> to me in Florida. I had some family in Baltimore,

> so my ins. co. approved me

> for ANYTHING out of network. Now I spend alot of

> time in Baltimore and can

> go to the top notch facilities for treatment. My

> doctors are great and I

> have never had any problems with getting meds and

> have been seeing the same

> pain doc for a year now. It saddens me to see you

> and others in such

> needless distress and in so much pain. It could be

> so easily eliminated .

> Who do these doctors think they are telling you that

> your pain is

> insignificant? If you get out of state approval and

> could get to Baltimore,

> I could give you the names of my docs and maybe you

> could get some real

> treatment. Just ask and I would be happy to help.

> Wish I could do more for

> you. You are in my prayers,

> Love Jai

>

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[Guest guest]

Felice,

I spoke to my new pain doctor yesterday. She

called me back, finally. She is planning on doing the

SCS I guess from what she said. But she doesn't want

to do anything until she opens her new office in

March. She did say I could take my pain pills but

just one twice a day although she won't give me a

script for anymore. Told me to ask my GP. I did call

her secretary back and told her to tell the doctor if

she plans on doing the SCS I would appreciate it if

she could get the paperwork going now rather than

waiting till my appt. on March 15th. Cause I can't go

on like this. Hopefully the secretary will get back

to me on Monday and let me know what the doctor said.

In the meantime,I guess I just suffer through.

She did say I'd have to be off pain meds for 4

weeks before the SCS. Now, I just weaned off my pain

meds and have been without for 2 weeks and now I guess

I have to go back on just 2 a day until she schedules

the SCS. I'm not sure about the SCS but at this point

I'll do anything to get some pain releif.

Hugs, Tracey

> I don't understand why the doctors in your area are

> so incompetent. They

> don't seem willing to listen to you> I honestly

don't know what else I would do if I

> where in your shoes.

> it is hard but try and hang in there. Somehow

> we'll find you a decent

> pain doctor.

> Felice

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

To Tracey

thats a bunch of crap i was taking pain meds the morning of my scs unit and

right after sugery and still take them on a daily bases with my scs unit.

Bruce

[Guest guest]

To Tracey

My trial was 4 to 6 days . I think you try a scs unit they do help alot of us

to the point of any thing helping us. But not with this doctor, find a doc

first that isnt insaine then try it . if you keep it in your back with a

open wound for six weeks the risk of enfection is to great of risk and as ive

read in other postings you should be on antibiotics all the way threw this.

Bruce

[Guest guest]

Same here Bruce and Tracey. This is why I am so angry. Bruce I hope this

finds you in a low pain day. your friend cookie

Re: ReYesterday's Doctor Appt.

>To Tracey

>

>thats a bunch of crap i was taking pain meds the morning of my scs unit and

>right after sugery and still take them on a daily bases with my scs unit.

>

>Bruce

>

>

>

[Guest guest]

Bruce,

I sure wish I could find another doctor. That's

been a big problem for me. I've been without one

since last June. The few I've seen have said they

can't help me. Two months ago I went to see a

Neurologist and he said he didn't think there was much

he could do. He prescribed me Zanaflex and Tegratol.

I'm supposed to see him on the 19th. Don't know what

he'll do now that I'm seeing a pain doctor. But he

himself was questioning my RSD as it was. Maybe he

has another " explanation " as to why I'm in pain and my

legs are cold and purple!!!!

Hugs, Tracey

--- rsdpray4cure@... wrote:

> To Tracey

>

> My trial was 4 to 6 days . I think you try a scs

> unit they do help alot of us

> to the point of any thing helping us. But not with

> this doctor, find a doc

> first that isnt insaine then try it . if you keep

> it in your back with a

> open wound for six weeks the risk of enfection is to

> great of risk and as ive

> read in other postings you should be on antibiotics

> all the way threw this.

>

> Bruce

>

>

> [Non-text portions of this message have been

> removed]

>

>

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