FW: The Crappy Life of the Autism Mom

[Guest guest]

FW: The Crappy Life of the Autism Mom

ô¿>

>The Crappy Life of the Autism Mom

>

>By Kim Stagliano on the Huffington Post web blog.

>http://tinyurl.com/ykdzxx

>

>Well, that title should set off alarm bells in the Neurodiverse (ND)

>autism world.

>

>Autism is like a box of Bertie Bott's Every Flavor Beans (from the

>Harry Potter books.) Some autistics got the raspberry cream or root

>beer flavor. They can speak eloquently, write blogs, move out on

>their own, marry, have children and manage their autistic traits.

>

>Others with autism, like my three girls, got the ear wax/vomit/dog

>poop flavor. They need help 24/7 to navigate the world. When I talk

>about autism, I mean the version that my three girls got. I'm not

>talking about the sort of autism that encompasses quirky kids with

>some social deficits who are otherwise brilliant.

>

>The ND community tells me and tens of thousands of other parents that

>we are disrespecting our kids by trying to help them. The ND blogs

>berate us as wanting to change our kids because we don't accept them.

>Here's a " taste " of what autism looks like in the Stagliano household.

>Would you want something better for your kids?

>

>Twice last month, we had a " crapisode. " What is a crapisode? (This is

>where you might want to stop eating and put down your beverage.) My 10

>year old (#2, appropriately for the purposes of this entry) pooped in

>the toilet. That is reason to cheer, believe me. Toilet training is a

>major issue in my section of the autism community. Our kids can wear

>diapers into their teens and beyond. So Miss G pooped. Hooray! But

>Miss G forgets to flush. And she rarely closes the lid. Not hooray.

>

>Miss Peanut, my 6 year old, seems to believe that being a Virgo means

>she simply MUST swim in any puddle larger than spit. The toilet is

>like an Olympic sized pool to her. So Peanut goes into the toilet

>after Miss G has had her, ah, success. Peanut flings kaka everywhere

>and gets it all over herself, the floor, the walls, the tub, the

>baseboards and the window. Wes Craven could not film anything scarier

>than what I saw that school morning, 35 minutes before the bus was due

>to arrive. That's a " crapisode. " It happens in the blink of an eye

>while I'm washing dishes or doing laundry. I'm alerted by a splashing

>sound that drops a brick into my stomach. Miss G

>doesn't understand to flush and close the lid. Miss Peanut doesn't

>realize that a face full of feces is rarely considered a way to amuse

>oneself outside of the fetish community.

>

>I will never stop trying to help my girls recover from their autism.

>I can not tell you what recovery means. It varies by kid and

>according to God's grace. If recovery means only that Peanut

>understands she should sit on the toilet, not play in the toilet,

>I'll take it.

>

>Recovering your kids doesn't mean denying their value as people. To

>the contrary, it means we are willing to devote our lives, our

>savings, our sanity to their improved health, development and well

>being.

>

>Maybe we need an expanded vocabulary. The ND's can keep the word

>autism and my kids get a new label. Fine by me. Just don't tell me to

>give up on my girls and accept their version of autism (remember the

>Bertie Bott's beans) as simply a different type of personality.

>Because THAT'S a load of crap.

>

>

>

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>

>

[Guest guest]

Good thing I had some holiday cheer to spare this year...

So....uhhhh....the moral of the story is.....sh*t happens? I could NOT resist the pun....thank God the potty training years are sooooo over.

Traci

[Guest guest]

This is our household crap tale, LOL Over the Christmas Holidays we started toilet training for my 3 1/2 year old for the 4th time, and I thought that this time we would not fail but he took off his own diaper pooped all over the rug in the back bedroom and tracked it all the way into the entry way, stopping sometimes to admire and stomp These things happen in an instant and they don't understand that the appeal is lost on all but them LOL It's easier for me to admit failure THIS time because I can see that he doesn't get it yet. I bet we all have stories like this and these things will happen. I just wish I had six eyes so I could keep two on him at all times, and I bet you wish you had eight ;D Had to go out at

night and rent a machine and clean, clean, clean. Good thing I had some holiday cheer to spare this year... Karp wrote: FW: The Crappy Life of the Autism Momô¿>>The Crappy Life of the Autism Mom>>By Kim Stagliano on the Huffington Post web blog.>http://tinyurl.com/ykdzxx>>Well, that title should set off alarm bells in the Neurodiverse (ND)>autism world.>>Autism is like a box of Bertie Bott's Every Flavor Beans (from the>Harry Potter books.) Some autistics got the raspberry cream or root>beer flavor. They can speak

eloquently, write blogs, move out on>their own, marry, have children and manage their autistic traits.>>Others with autism, like my three girls, got the ear wax/vomit/dog>poop flavor. They need help 24/7 to navigate the world. When I talk>about autism, I mean the version that my three girls got. I'm not>talking about the sort of autism that encompasses quirky kids with>some social deficits who are otherwise brilliant.>>The ND community tells me and tens of thousands of other parents that>we are disrespecting our kids by trying to help them. The ND blogs>berate us as wanting to change our kids because we don't accept them.>Here's a "taste" of what autism looks like in the Stagliano household.>Would you want something better for your kids?>>Twice last month, we had a "crapisode." What is a crapisode? (This is>where you might want to stop eating and put down your

beverage.) My 10>year old (#2, appropriately for the purposes of this entry) pooped in>the toilet. That is reason to cheer, believe me. Toilet training is a>major issue in my section of the autism community. Our kids can wear>diapers into their teens and beyond. So Miss G pooped. Hooray! But>Miss G forgets to flush. And she rarely closes the lid. Not hooray.>>Miss Peanut, my 6 year old, seems to believe that being a Virgo means>she simply MUST swim in any puddle larger than spit. The toilet is>like an Olympic sized pool to her. So Peanut goes into the toilet>after Miss G has had her, ah, success. Peanut flings kaka everywhere>and gets it all over herself, the floor, the walls, the tub, the>baseboards and the window. Wes Craven could not film anything scarier>than what I saw that school morning, 35 minutes before the bus was due>to arrive. That's a "crapisode." It happens in

the blink of an eye>while I'm washing dishes or doing laundry. I'm alerted by a splashing>sound that drops a brick into my stomach. Miss G>doesn't understand to flush and close the lid. Miss Peanut doesn't>realize that a face full of feces is rarely considered a way to amuse>oneself outside of the fetish community.>>I will never stop trying to help my girls recover from their autism.>I can not tell you what recovery means. It varies by kid and>according to God's grace. If recovery means only that Peanut>understands she should sit on the toilet, not play in the toilet,>I'll take it.>>Recovering your kids doesn't mean denying their value as people. To>the contrary, it means we are willing to devote our lives, our>savings, our sanity to their improved health, development and well>being.>>Maybe we need an expanded vocabulary. The ND's can keep the

word>autism and my kids get a new label. Fine by me. Just don't tell me to>give up on my girls and accept their version of autism (remember the>Bertie Bott's beans) as simply a different type of personality.>Because THAT'S a load of crap.

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[Guest guest]

Don't despair. I didn't even bother trying until my son was 4. Once he learned,

he never had accidents.l

Good luck!

--

Hilda

--------- FW: The Crappy Life of the Autism Momô¿>>The Crappy Life of the Autism Mom>>By Kim Stagliano on the Huffington Post web blog.>http://tinyurl.com/ykdzxx>>Well, that title should set off alarm bells in the Neurodiverse (ND)>autism world.>>Autism is like a box of Bertie Bott's Every Flavor Beans (from the>Harry Potter books.) Some autistics got the raspberry cream or root>beer flavor. They can speak

eloquently, write blogs, move out on>their own, marry, have children and manage their autistic traits.>>Others with autism, like my three girls, got the ear wax/vomit/dog>poop flavor. They need help 24/7 to navigate the world. When I talk>about autism, I mean the version that my three girls got. I'm not>talking about the sort of autism that encompasses quirky kids with>some social deficits who are otherwise brilliant.>>The ND community tells me and tens of thousands of other parents that>we are disrespecting our kids by trying to help them. The ND blogs>berate us as wanting to change our kids because we don't accept them.>Here's a "taste" of what autism looks like in the Stagliano household.>Would you want something better for your kids?>>Twice last month, we had a "crapisode." What is a crapisode? (This is>where you might want to stop eating and put down your

beverage.) My 10>year old (#2, appropriately for the purposes of this entry) pooped in>the toilet. That is reason to cheer, believe me. Toilet training is a>major issue in my section of the autism community. Our kids can wear>diapers into their teens and beyond. So Miss G pooped. Hooray! But>Miss G forgets to flush. And she rarely closes the lid. Not hooray.>>Miss Peanut, my 6 year old, seems to believe that being a Virgo means>she simply MUST swim in any puddle larger than spit. The toilet is>like an Olympic sized pool to her. So Peanut goes into the toilet>after Miss G has had her, ah, success. Peanut flings kaka everywhere>and gets it all over herself, the floor, the walls, the tub, the>baseboards and the window. Wes Craven could not film anything scarier>than what I saw that school morning, 35 minutes before the bus was due>to arrive. That's a "crapisode." It happens in

the blink of an eye>while I'm washing dishes or doing laundry. I'm alerted by a splashing>sound that drops a brick into my stomach. Miss G>doesn't understand to flush and close the lid. Miss Peanut doesn't>realize that a face full of feces is rarely considered a way to amuse>oneself outside of the fetish community.>>I will never stop trying to help my girls recover from their autism.>I can not tell you what recovery means. It varies by kid and>according to God's grace. If recovery means only that Peanut>understands she should sit on the toilet, not play in the toilet,>I'll take it.>>Recovering your kids doesn't mean denying their value as people. To>the contrary, it means we are willing to devote our lives, our>savings, our sanity to their improved health, development and well>being.>>Maybe we need an expanded vocabulary. The ND's can keep the

word>autism and my kids get a new label. Fine by me. Just don't tell me to>give up on my girls and accept their version of autism (remember the>Bertie Bott's beans) as simply a different type of personality.>Because THAT'S a load of crap.

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[Guest guest]

Hi,

I don't want to sound like the voice of despair, but some kids can learn to potty train and others can't or just don't want to. My nephew is 12 years old and has violent outbursts of banging his forehead ( he has cracked it open many times ), biting himself and you ( breaks the skin most of the time ) and pinching when he is taken to the bathroom, sometimes. He has absolutely no interest in using the toilet. He has never made a poo on the potty, and sometimes makes a pee, if you just happen to catch him at the right time. He just has extremely bad, aggressive behavior problems ( he has been having extensive behavior therapy since he was about 5 years old ) and his case of autism, is very severe. I am only responding to say, don't think that you are a failure if your child does not potty train. There are many autistic adults that wear diapers all the time, and it is not because they had bad parents that didn't care or try.

Laureen

[Guest guest]

We had a very crappy life too, turn your back for a second and uh-oh.

Three weeks after starting the GFCF diet our son just went into the

bathroom himself, hasn't had a problem since.

Good luck, and you might enjoy this version of poop, the sunny fundays,

click the Chelation Kid archive and read the poopy adventures of the

author.

http://www.sunnyfundays.com/

Steve Moyer

[Guest guest]

What was the consequence for your son playing with the feces?

[Guest guest]

none, he didn't know what he was doing was wrong, it was the first time, and he came to me for help I think; not sure how different spots got ground in, maybe he stopped to look? we always made a big deal of his movements because like alot of kids he had a hard time with the whole eating/digestive system/eliminating thing... until this happened we made a big deal over every regular movement LOL and when we tried the 3 previous times to potty train (2 before diagnosis) you know how much we celebrated each and every little glimmer of understanding... I think it's a sensory thing, that he can't 'feel' how to go on command yet.but I am getting a sense that we are getting rhrough in some way. I think within a year or two? until now we made NO progress at all with no indications at all and right now they are working with him at baudhuin, he has an elmo potty book that he plays with, and a potty in the bathroom and we

ask him about it alot...megan@... wrote: What was the consequence for your son playing with the feces?

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