......RE: seeking dx, family situations

[Guest guest]

My son loves these shoes,

and my daughter just bought a couple pairs too. They don’t look very

comfy to me, but she said everyone at her Day Care wears them, and they are

very comfortable. She said because of the holes on top, her feet don’t

get hot anymore.

Are you anywhere near ville? I have a

childhood friend who lives there.

Smiles, Jackie J

From: MSersLife [mailto:MSersLife ] On Behalf Of melissa e

Sent: Thursday, August 10, 2006 9:51 AM

To: MSersLife

Subject: Re: seeking

dx, family situations

I live in

hippie central (Colorado)

& my favorites are

Crocs! I could walk forever in those.

E.

Colorado

--- Trista <tabeloecharter (DOT) net>

wrote:

> Challis, are you a Birky wearin' hippie mama? lol.

> I figured Akiba, but not you! Just kidding.

> Nothing wrong with any or all of my description with

> my " therapist " . She just so happened to be a FLAKE

> too. lol. Sometimes, pain is REAL!!! I've never

> worn Birkenstocks, but they look comfy. Hugs hippie

> mama! trista

> (was) Cassy (now) seeking

> dx, family situations

>

>

> Trista:

> Can you go to a different neuro? You have so

> many classic symptoms of MS. Did you have a first

> BIG attack? Or has it been gradual? When did all

> this start for you?

> I was always the 'strong' one in my family,

> too. I was the one who took charge in any situation.

> I'm the one who took charge of my ill Grandmother,

> my ill Father, and my ill Mother. I took care of

> them, saw that they got to the doctor, saw they got

> to the hospital when needed... etc. I took care of

> Dad and Grandmother until their deaths. & ! nbsp; Then

> took care of my mother until she got so ill she

> needed full time nursing care and then got her into

> a good nursing home. I have two older brothers.

> Neither of them has truly helped with any of this.

> I'm the one who sat in the hospital waiting to hear

> if my elders were going to live or not each time

> they were in the hospital. One brother lived out of

> state but the other one lived next door to me and he

> would say " I don't like hospitals " so he wouldn't

> come. The only time he came was when death was

> imminent. I was stoic, strong and didn't cry until

> I got home. Beyond that kind of thing I was a

> single parent and truly raised my fine children by

> myself. I took them camping by myself (when women

> didn't do that sort of thing). Now here I have to

> ask for rides to the doctor, to the store, etc. I

> can't drive anymore because I'm such a bad driver

> now (rolled my van 8 or 9 times end to end and over

> and over, they say). My cognitive function is

> screwy and I hit a guy (backed into his truck) one

> time and never had any memory of it. So I don't

> drive. My neuro says I shouldn't and the accident

> investigator said he wouldn't ticket me for the

> rollover if I voluntarily quit driving. So I don't

> drive. Here I am the strong one---not strong

> anymore. Okay...sorry folks. I'm getting maudlin

> here.... and soon the violins will start playing....

> (smiling)

> You mentioned your 13 y/o with Aspergers.

> Aspies are very special kids. My 10 y/o

> granddaughter with Aspergers lives with me (and her

> family--we share a house). If I'm in my room

> resting, or on the phone, or reading.... she pops in

> over and over and says she just wanted to check to

> see if I'm okay. If I'm shopping she will ask her

> dad to call me on my cell phone to find out if I'm

> okay. She worries and frets about me. She helps me

> with all kinds of chores and, in fact, takes over

> the chores I need to do. She's the " strong one in

> the making " maybe? Her 11 y/o brother will come

> over to me and rub my back when he knows I'm hurting

> a

=== message truncated ===

" Insanity runs in my family. It practically gallops. "

Cary Grant

__________________________________________________

[Guest guest]

No I live in Colorado Springs which is about an hour

south of Denver.

E.

--- Jackie Hanan wrote:

> My son loves these shoes, and my daughter just

> bought a couple pairs too.

> They don’t look very comfy to me, but she said

> everyone at her Day Care

> wears them, and they are very comfortable. She said

> because of the holes on

> top, her feet don’t get hot anymore.

> Are you anywhere near ville? I have a childhood

> friend who lives there.

>

> Smiles, Jackie :-)

>

> _____

>

> From: MSersLife

> [mailto:MSersLife ] On Behalf

> Of melissa e

> Sent: Thursday, August 10, 2006 9:51 AM

> To: MSersLife

> Subject: Re: seeking dx, family

> situations

>

> I live in hippie central (Colorado) & my favorites

> are

> Crocs! I could walk forever in those.

> E.

> Colorado

>

> --- Trista <tabeloecharter (DOT)

> <mailto:tabeloe%40charter.net> net> wrote:

>

> > Challis, are you a Birky wearin' hippie mama? lol.

>

> > I figured Akiba, but not you! Just kidding.

> > Nothing wrong with any or all of my description

> with

> > my " therapist " . She just so happened to be a FLAKE

> > too. lol. Sometimes, pain is REAL!!! I've never

> > worn Birkenstocks, but they look comfy. Hugs

> hippie

> > mama! trista

> > Re: seeking dx, family

> > situations

> >

> >

> >

> > {{{{{{{{Trista}}}}}}}}

> >

> > The Neuro I saw asked me about my Mother's

> > symptoms. Something told me he was asking if I was

> > " imagining " the same for me.

> >

> > At the follow-up, I gave him a longer list of

> > symptoms. He said they weren't MS symptoms. He's

> > stupid. rofl I admitted to having those depressed

> > days. Not easy for me, because I don't want to be

> > tagged with " depression " for anything other than

> > depression. He told me what I was experiencing

> goes

> > along with depression... that the symptoms I

> claimed

> > can be connected to / from depression. I told him

> > the symptoms I have aren't FROM depression, the

> > depression is FROM those symptoms. I have

> something

> > wrong, don't know what it is, was afraid at times

> of

> > what the future may hold, and it gets to be a

> > downright bummer. And, uhm, hey doc... isn't

> > " depression " part of what so many MSers deal wit!

> h?

> >

> > I really laughed over the descriptions of the

> > Psych you saw! ROFL I once saw a T (Therapist) who

> > was much like that. Thankfully, she never regarded

> > me the way the Psych did you. Good for you,

> calling

> > right there from your car. I'd have been angry,

> > too. And hurt.

> >

> > I love my Birkies. ROFL

> >

> > Challis

> >

> >

> >

> > Trista <tabeloecharter (DOT)

> <mailto:tabeloe%40charter.net> net> wrote:

> > Sharon,

> >

> > I'm so disgusted with the whole thing. It was

> > my OB/GYN that suggested it could be MS, when I

> was

> > pg with . No one ever seemed concerned before

> > that, even though I told the Drs. about my sx's. I

> > went in about 8-10 yrs ago complaining of numbness

> > and tingling in my arms and hands, and the NP blew

> > me off, saying it was probably my weight and poor

> > circulation. I lost 110 lbs, and the sx's were

> worse

> > and I had more of them. I complained of fatigue,

> > and was told that I probably had Mono, but was

> never

> > tested. The sx's hit me hard in 2003, so I went

> > back to the Dr., who dx'd me with pre-diabetes,

> and

> > said my sx's were probably due to that and stress

> or

> > depression. He sent me to psych, and referred me

> to

> > a Rheumy to check for Lupus. All tests were

> negati!

> > ve, but my sed rate was high, but he didn't seem

> to

> > care about that and my liver enzymes were off.

> > (probably due to taking huge amounts of Tylenol,

> > trying to make the pain go away.) The psych seemed

> > to believe me, that my pain was REAL and had a

> > physical cause, not psychogenic. She gave me

> > relaxation CD's, and a booklet on dealing with

> > chronic pain. I thought FINALLY someone believed

> > me! I walked to the car, reading the booklet. I

> got

> > to the car and the story was about a woman who had

> > been injured and had severe pain. She had to have

> > meds to control pain, and PT, until she got

> better.

> > Then one day, her pain returned, and she couldn't

> > focus on anything but the pain. No matter what the

> > Dr. did, she didn't get better. Turns out, it was

> > psychogenic in nature and not " real " after all. I

> > was so pissed at this point, that I cancelled my

> > next appt. from the parking lot with my cell phone

> > and never went back. She was an old hippie type

> > with beads, long gauze skirts, Birkenstocks,

> > chanting CD's playing. Not, that I think that

> > there's anything wrong with anyone who is similar

> to

> > her, but " thinking that the pain is gone " , didn't

> > make it go away. I just get so frustrated with

> > people who only see things one way. Like, if you

> > are overweight, it MUST be your weight. Or if you

> > are moody and irritable because of real pain and a

> > female, it MUST be hormones. Good grief. I never

> > brought up that I was a nurse. I did tell them,

> yes

> > I take meds for depression/anxiety, that is well

> > controlled. So, as soon as they hear that, It must

> > be " in my head " . Grrrrr. When my bladder was

> > spasming during pregnancy, it MUST be pg. Even

> > though, it's happening now, and I'm not pg. When I

> > revealed that I was a nurse with a background in

> > psych, then I

> > was someone who knew what sx's to ha! ve to get

> > attention. I fired that Dr. I am limited to who I

> > can see as far as specialists. There are 2 cities,

> > north and south of us for me to go too. The city

> > north, is not taking any more referrals now. So, I

> > went south, and he pretty much blew me off. What I

> > just don't understand is how everyone here can

> tell

> > me that my sx's are like those with MS, yet the

> > neuro scratches his head and says he's confused if

> I

> > hand him a list of more than 3 sx's. (rolling my

> > eyes) Could it be, that you don't necessarily have

> > to see lesions, to indeed have MS? Could I be one

> > of many that have told me, they did not have

> lesions

> > showing, when they were in the early stages? Could

> > there be another undiscovered cousin to MS, that

> is

> > causing all my problems? It just seems that I've

> > heard of so many people with the same sx's, who do

> > not have a dx, due to no lesions on the MRI. How

> > can they say there is no definitive test to dx,

> yet

> > MUST see lesions on an MRI?

> >

> > To answer your question, I started out with

> > numbness/tingling and fatigue that just never went

> > away, and as time has gone by, I've developed more

> > sx's. They all come and go, but are never gone

> > completely. Pregnancy seems to make my pain go

> > away. I did have an increased burning skin

> > sensation start while pg though. The severity of

> > sx's changes. I can be better for a day, a week,

> > then be so ill, I can't make it down the isles to

> go

> > grocery shopping. I am only 35. My family

> remembers

> > me, as the one they couldn't keep up with.

> > Now, I walk like an old lady, and need frequent

> > naps to get through the day. More than you wanted

> > to know I'm sure. LOL. I gotta go, my nap is

> > calling. ! lol. Bye for now. Trista

>

=== message truncated ===

" Insanity runs in my family. It practically gallops. "

Cary Grant

__________________________________________________