SchaferAutismReport: Ultrasounds May Harm Brain

[Guest guest]

SAR " Healing Autism:

Schafer Autism Report No Finer a Cause on the Planet "

________________________________________________________________

Tuesday, August 8, 2006 Vol. 10 No. 139

PUBLISHING NOTE: Publication this week of the

Schafer Autism Report may be spotty. I will be attending

the USAAA conference in Utah from Wednesday to Sunday. Any

" breaking news " of significance will be reported nonetheless.

Otherwise, all important information regarding autism will

be reprinted here eventually. Come visit me at the SAR booth

and the A-CHAMP booth. (There was no Monday edition.)

- Lenny Schafer.

RESEARCH

* Ultrasounds May Harm Brain

* Families Needed for CAN Research Studies

CARE

* Bridging the Gap Between Dads And Their Kids With Autism

* 'Well Child' Visits Revisited

* Missing Southern CA Autistic Child Sparks Multiagency Search

ADVOCACY

* A-CHAMP Call To Political Action For August

* Court warning for Red Arrows

MEDIA

* " Autism Every Day " To Be Featured on ABC's " Good Morning America "

* Request for Parent and Professional Reviewers

COMMENTARY

* Brit Researchers: No Male Children For Families With Autism History

LETTERS

>> PROMOTE YOUR FALL EVENTS NOW - FREE <<

Conferences * Presentations * Parent Meetings

DEADLINE FOR SEPTEMBER SAR AUTISM CALENDAR IS

AUGUST 25!

Submit listing here:

http://www.sarnet.org/frm/cal-frm.htm

RESEARCH

Ultrasounds May Harm Brain

A new study reports scans reduce fetal nerve cell development, may cause

some disorders.

By Randolph E. Schmid for Associated Press http://tinyurl.com/lzo9l

Exposure to ultrasound can affect fetal brain development, a study

suggests. But researchers say the findings, in mice, should not discourage

pregnant women from having ultrasound scans for medical reasons.

When pregnant mice were exposed to ultrasound, a small number of nerve

cells in the developing brains of their fetuses failed to extend correctly

in the cerebral cortex.

" Our study in mice does not mean that use of ultrasound on human

fetuses for appropriate diagnostic and medical purposes should be

abandoned, " said lead researcher Pasko Rakic, chairman of the neurobiology

department at Yale University School of Medicine.

However, he added in a phone interview, women should avoid unnecessary

ultrasound scans until more research has been done.

Dr. Copel, president-elect of the American Institute of

Ultrasound Medicine, said his organization tries to discourage

" entertainment " ultrasound, but considers sonograms important when there is

a medical benefit.

" Anytime we're doing an ultrasound we have to think of risk versus

benefit. What clinical question are we trying to answer? " Copel said in an

interview. " It may be very important to know the exact dating of pregnancy,

it's certainly helpful to know the anatomy of the fetus, but we shouldn't be

holding a transducer on mom's abdomen for hours and hours and hours. "

Rakic's paper said that while the effects of ultrasound in human brain

development are not yet known, there are disorders thought to be the result

of misplacement of brain cells during their development.

" These disorders range from mental retardation and childhood epilepsy

to developmental dyslexia, autism spectrum disorders and schizophrenia, " the

researchers said.

Their report is in today's edition of Proceedings of the National

Academy of Sciences.

The paper noted that the developmental period of brain cells is much

longer in humans than in mice, so that exposure would be a smaller

percentage of their developmental period.

However, it also pointed out that brain cell development in people is

more complex and there are more cells developing, which could increase the

chances of some going astray.

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.. . .

Families Needed for CAN Research Studies

You Can Participate!

By nne Toedtman R.N., M.N., Cure Autism Now, National Resource

Manager

Families Move Autism Research Forward

Without research, new knowledge and advanced treatments are not

possible. However, without family participation, autism research would

progress at a much slower pace. Families are a vital link to accelerating

the pace of autism research.

For years, Cure Autism Now has been a leader in family recruitment

through its Autism Genetic Resource Exchange (AGRE). While CAN has excelled

at AGRE's recruitment - families with two or more children diagnosed with

Autism Spectrum Disorder - many other families have had limited information

about the latest research studies and how to participate.

Recognizing this need for family information, CAN has developed a

Clinical Trial/Research Studies Web Listing service. Central to this effort

is providing information to help families with autism learn about the latest

studies and make informed decisions about participating in autism research.

This service lists new and on-going clinical trials/research studies

throughout the world. Each listing provides key information about the study

including a description of the study, criteria for participation and direct

contact information with the study's coordinator and principal

investigators. Importantly, we have tried to make the research descriptions

detailed enough that you will understand the scientific rationale behind the

study and be able to ask the coordinators informed questions.

Cure Autism Now Web Based Clinical Trial/Research Studies Listing This

is an opportunity for families to make a significant contribution to

scientific research. By participating in research, you help to expand the

knowledge base of autism and other neurodevelopmental disorders. This

information helps researchers to understand causes, develop better

treatments and ultimately, identify a cure. At the same time, it will allow

us to help our affected family members sooner.

We invite you to regularly visit

www.cureautismnow.org/familyparticipation for updates and information about

new research in your area.

Note: Numerous other autism-related research studies looking for

participants can also be found in the Readers' Posts section of the SAR

Calendar of Events:

http://www.sarnet.org/events/index.htm#RP -ed.

.. . .

CARE

Bridging the Gap Between Dads And Their Kids With Autism

http://www.wndu.com/news/mommo/082006/mommo_51916.php

One and a half million people, both children and adults, are living

with autism; often times, care and education become the mother's

responsibility, however, some doctors think dads may hold the key to helping

these kids One and a half million people, both children and adults, are

living with autism; often times, care and education become the mother's

responsibility, however, some doctors think dads may hold the key to helping

these kids

One and a half million people, both children and adults, are living

with autism.

Often times, care and education become the mother's responsibility.

However, some doctors think dads may hold the key to helping these

kids.

was diagnosed with autism when he was three and his dad found it

very frustrating.

Dads like to be in control and it doesn't work with these special

children.

" There is a tendency to really direct the children, but what we found

is that doesn't work very well in autism. It's much better to follow the

child's lead, " explains Elder, M.D. of the University of Florida.

Doctor Elder says to teach your children how to take turns. That's

critical for language development.

But don't focus on the disorder. Autistic children need to play with

you like any other kid.

Her research shows a dad's involvement improved communication and

increased the number of understandable words by 50 percent.

.. . .

'Well Child' Visits Revisited

Pediatricians are busy. Parents are, too. So fitting one more thing

into a " well child " visit - in addition to the weighing, measuring, poking

and prodding - is tough.

www.usatoday.com/news/health/yourhealth/2006-08-06-your-health_x.htm

But when that one thing is assessing an infant's or toddler's

development - all the outward signs that his brain, mind and body are

working together as they should - it's worthwhile. That's because catching

the early signs of problems ranging from mild speech delays to mental

retardation can make a huge difference in the lives of children and

families.

" We just know that if we get kids in early, they do so much better, "

says Frances Glascoe, an adjunct professor of pediatrics at Vanderbilt

University in Nashville.

The problem: making routine developmental screening happen in a world

where a well-child visit lasts less than 15 minutes and insurers don't pay

doctors to indulge in long chats with worried parents.

The American Academy of Pediatrics published its latest policy in

July. It calls for pediatricians to:

.Ask parents questions about their children's development and look for

signs of trouble at every well-child visit up to age 3.

.Use formal, proven developmental screening tests at 9 months, 18

months and again at either 24 or 30 months (the group favors the later check

but says children aren't always seen at that age).

.Screen every child for autism at 18 months (a first-time call for

formal autism screening).

.Offer additional, formal screening any time a parent or doctor

becomes concerned about a child.

.Refer children who fail screening tests to public early-intervention

programs and to specialists who can evaluate the child fully, both for

developmental disorders and related medical problems.

The mix of periodic formal screening, less formal checks in between

and prompt responses to parents' concerns should work for time-pressed

doctors but minimize chances that children in trouble will go months or

years without help, says Lipkin, director of the Center for Development

and Learning at the Kennedy Krieger Institute in Baltimore and head of the

panel that wrote the policy. " Once a parent expresses a concern around a

child's development, that in and of itself is significant, " he says. " We'd

like to get 'wait and see' taken out of the vocabulary of the well-child

visit. "

Wiseman of Merrimac, Mass., would like that, too. Doctors told

her to " wait and see " when she first expressed concerns about her toddler

daughter's poor language, communication and play skills - warning signs of

an autism-related disorder that was diagnosed months later. Today, her

daughter is 10 and doing well, but Wiseman says too many doctors still fail

to respond when a child falls behind.

" I'd like to see screening at every visit, " says Wiseman, founder of

First Signs, which promotes early diagnosis and treatment of developmental

disorders and author of Could It Be Autism? A Parent's Guide to the First

Signs and Next Steps. (Full disclosure: I was a paid contributor to that

book.)

The warning signs of many disorders, including autism, can be seen in

the first two years of life. Yet the federal Centers for Disease Control and

Prevention says children with autism are diagnosed at an average age of 5.

Meanwhile, about 2% of children under 3 are enrolled in federally mandated

early-intervention programs for children with developmental delays, Glascoe

says. But, she says, 8% likely qualify.

Got a health or medical question? E-mail kpainter@.... Please

include your name, city and daytime phone number. Selected questions will be

answered in the paper.

.. . .

Missing Southern CA Autistic Child Sparks Multiagency Search

By Hand for The Valley Chronicle

http://www.thevalleychronicle.com/articles/2006/08/04/news/05nautistic.txt

A 12-year-old boy with autism was missing in San Jacinto for several

hours Tuesday after walking away from his Pansy Way home early in the

morning.

He was reported missing at 6:37 a.m. by his mother, who found his bed

empty at 5:15 a.m., but tried to find him on her own before calling police.

The young man was found by a pair of fire investigators from the

Riverside County Fire Department at approximately 10:15 a.m. He was riding

his scooter westbound on Ramona Expressway west of on Avenue.

Sgt. Rick Zerkel of the San Jacinto Police Department said the search

became a multiagency effort because there was no way of knowing where the

youngster had gone nor how he planned to get there.

Besides, the development in which he lives is so new it appeared on no

maps.

" We knew the Fire Department would have a tract map, " Zerkel said, " so

we called them. "

Officers set up a command post outside the boy's house and also called

in the helicopter, a K-9, and citizen volunteers.

" We called in the helicopter to check back yards and other places we

could not see from the ground, " Zerkel said.

The boy's mother said she had last seen her son sleeping in his bed at

approximately 4:45 a.m. and discovered him missing half an hour later.

Since the family had moved to the house only a week earlier, the boy

did not know the neighborhood, Zerkel said, but his mother reported that he

may have left on the scooter.

" He got it in his head that he wanted to ride his scooter, " Zerkel

said. " I think he thought he was going to Grandma's. "

The fire investigators held the boy until officers could get to the

scene, where his identity was verified.

" He was a little scared, I think, " Zerkel said, " but the first officer

on the scene had a piece of candy and that took care of it. "

The boy was unharmed.

Zerkel said the incident highlights the need for reporting persons

missing as soon as possible, particularly those who suffer from mental

difficulties.

The sooner a report is received the sooner a search can start, he

said.

.. . .

ADVOCACY

A-CHAMP Call To Political Action For August

Advancing For Our " We Are Everywhere... " Campaign

From an A-CHAMP announcement.

In this election year we have an opportunity to be to make our

Representatives listen to us regarding the needs of our children.

Congress is in recess for the month of August. Members of Congress

usually meet with their constituents in their home District. Now is the time

to schedule appointments with your representatives and when you meet, if

possible, bring your child and other family members with you.

Make the call now. You may need to fax a request. The more

parents/grandparents scheduling appointments the better. Ten appointments

with constituents who discuss their child's mercury-induced autism will make

an impression. If your Representative is unavailable to meet with you ask

to meet with the Chief of Staff, District Director or senior advisor. Get an

email address for person with whom you will continue to communicate. To

obtain contact information for your Congressional representatives go here:

http://capwiz.com/a-champ/dbq/officials/

If your Representative cannot meet in August, ask for the first

available date to meet at a later time. Request your representative's

schedule or attend a publlic event when your Representative is speaking and

approach your Congressman there.

For general guidelines for communicating with your representatives

and staff read the one page 'Tips for Talking with Legislators " prepared by

professional lobbyist and A-CHAMP State Coordinator Cellini. You can

download this document from our We Are Everywhere Political Action Campaign

Web Pages by clicking HERE or pasting this url http://tinyurl.com/zwvza into

your browser.

What to bring to your meeting with your Congressional Representative:

*MAKE your meeting PERSONAL, PROFESSIONAL AND PRACTICAL

*Prepare a packet of information for your representative to review.

Make sure your contact information is inside the fold of the packet binder.

*Include the following (most of the referenced documents are available

through links on the A-CHAMP web site HERE or at

www.a-champ.org/weareeverywheredocuments.html):

.Photograph of your child. Include your child's name and date of

birth; .Your child's Mercury Chart (urine toxicology report showing how much

mercury your child has excreted upon chelation challenge); .CDC/AAP Autism

A.L.A.R.M. -Download from HERE or

www.a-champ.org/weareeverywheredocuments.html;

.Your state's autism (IDEA) statistics available by

Download HERE or

http://www.fightingautism.org/idea/autism-prevalence-report.php (Thank

You " Fighting Autism " - Pittsburgh, Pa.);

.Local news articles if you have them;

.Printout of slides showing Lifetime Costs of Caring for a Disabled

Child Download from HERE or

www.a-champ.org/weareeverywheredocuments.html;

.HR 5887 - " The Vaccine Safety Confidence Assurance Act of 2006 "

Download from HERE or www.a-champ.org/weareeverywheredocuments.html;

.H.R. 5940 - " The Comprehensive Comparative Study of Vaccinated and

Unvaccinated Populations Act of 2006 " - Download from HERE or

www.a-champ.org/weareeverywheredocuments.html;

.H.R. 881/S. 1422 The Mercury-Free Vaccines Act Download

from HERE or www.a-champ.org/weareeverywheredocuments.html;

.Full page newspaper ads by Generation Rescue Download from HERE or

http://www.generationrescue.org/ (Thank you

Generation Rescue)

Talking Points:

.You are the best advocate for your child. Briefly tell your

representative how autism has affected your child, your family and your

life. Don't spend a lot of time doing this, about 5 minutes, because your

time is limited. There are limitations to what your representative can do to

help you personally and you want to focus on what you want your

representative to do and what he/she is capable of doing to help you and

your child.

.Ask your representative if they think they have done all that they

could do to help autistic children and their families.

.Then tell your Congressman/Senator what you want him/her to do for

your child and our community.

.These are the 'asks'. Tell your representative you want them to sign

on as co-sponsor to:

.Support HR 5887 - The Vaccine Safety Confidence Assurance Act of 2006

Sponsors: Weldon/Maloney

.Support HR 5940 - The Comprehensive Comparative Study of Vaccinated

and Unvaccinated Populations Act of 2006 Sponsors: Maloney/Osborne

.Support HR 881 / S. 1422 The Mercury-Free Vaccines Act

.Try to get your representative to commit their support for these

bills.

If your representative has already signed on to The Mercury-Free Act,

they are likely to support the other bills. To see if your representative is

a co-sponsor on HR. 881 go HERE or

http://thomas.loc.gov/cgi-bin/bdquery/z?d109:HR00881:@@@P

.Currently there are no co-sponsors in the Senate for S. 1422

.If your representative is not listed as a supporter of HR. 881 (House

bill) or S. 1422 (Senate bill) you can ask why they are not supporting this

bill...we know they have been asked in the past.

.Ask your representative if he or she thinks vaccines should be as

safe as possible? If so, the Representative should support H.R. 5887.

.Ask your representative if he or she thinks it is important to

determine the truth about the role vaccines may or may not contribute to the

increased rates of autism? If so, the Representative should be a cosponsor

of H.R. 5940.

.Ask your representative if he or she thinks children should be given

mercury-containing vaccines? If not, they should be a co-sponsor of H.R. 881

or S. 1422. (You can remind them that both President Bush and Sen.

Kerry supported the removal of mercury from vaccines in 2004)

.Always be polite, passionate and respectful. Resist anger even if you

feel it. It is unlikely you will get help from your representative if he/she

feels they can't win your vote and you are against him/her from the get-go.

.Finally, remind your representative that our community represents a

big special interest voting block that often crosses party lines to support

candidates who support our children. 1 in 175 children have been diagnosed

with autism, 1 in 6 children with a learning and/or behavioral disorder is a

national emergency. We want their support and our issues to be a priority.

.For every child with mercury-induced autism there are parents,

grandparents, aunts & uncles, cousins, friends, neighbors, teachers, bus

drivers and baby sitters. Potentially dozens of votes for each child and

millions of votes for members who show their support and interest in our

children.

.In conjunction with meeting or contacting your Representative on

behalf of A-CHAMP we encourage you to participate as well in the National

Autism Association's Putting a Facing on Autism Campaign. Please participate

in NAA's web site at which NAA is asking you to post photos and comments

about your meeting. You can go there by clicking HERE or at

www.putafaceonautism.com. A-CHAMP and NAA stand for consistent substantive

positions on most issues, with specific respect to the legislation outlined

in this action alert message. A-CHAMP supports a united " autism " community

for the benefit of our vaccine-injured children.

After your meeting Let us Know How You Did by Sending an email

message to info@.... You can continue to work with A-CHAMP as an

A-CHAMP Advocate, a District Leader or as a State Coordinator. If you are

interested contact Gilmore at yogilmore@...

We Are Everywhere and we're not going away...

Message Brought To You By A-CHAMP Advocates for Children's Health

Affected by Mercury Poisoning

See Our Action Alerts. Click the TAKE ACTION! button

http://capwiz.com/a-champ/home/

www.a-champ.org/weareeverywhere.html

www.a-champ.org BE A-CHAMP FOR CHILDREN!

and check out www.caawatch.org (under construction) Combating Autism

Act Watch - the Community's Watchdog

.. . .

Court warning for Red Arrows

http://tinyurl.com/j8goq

An autistic boy in Cyprus has been awarded some 430,000 euros (US

$553,000) in damages after a court ruled that displays by the Red Arrows

aerobatics team had caused the child great distress.

In a ruling made public on Saturday, the court in Limassol (southern

Greece) agreed with testimony from experts that the boy had suffered actual

bodily harm because the Red Arrow jets regularly flew over his home.

The renowned formation team spends several weeks every year training

at the RAF base in Akrotiri.

The family of andros Costaki sued the Cypriot government for

" failure to protect its citizens " as under the law on the island, they could

not file a case against a foreign state.

The boy's lawyers argued that the sound of the jets was amplified for

the child as he has sensitive hearing.

.. . .

MEDIA

" Autism Every Day " To Be Featured on ABC's " Good Morning America "

Tune-In Alert: " Autism Every Day " To Be Featured on ABC's " Good

Morning

America " at 8am on Tuesday August 8

Autism Speaks Senior Vice President Alison Singer and film producer

Thierry are scheduled to appear on tommorrow's " Good Morning

America " on ABC to discuss the powerful documentary " Autism Every Day. " In

the film, a group of mothers -- including Singer -- frankly discuss the

incredible challenges, frustrations and rewards they experience while

raising a child with autism.

Check local listings to find out when " Good Morning America " airs in

your area.

EVIDENCE OF HARM DISCUSSION LIST HEATS UP

AS MERCURY LINK TO AUTISM QUESTION SPREADS

>> PAPERBACK BOOK NOW OUT - CHECK AMAZON.COM

An Evidence of Harm email discussion list has

been created in response to the growing interest

in the book and the issues it chronicles. Now almost

1,400 subscribers. Here is how to subscribe

(no cost): EOHarm-subscribe

.. . .

Request for Parent and Professional Reviewers

The Organization for Autism Research is nearing completion of A Guide

for Transition to Adulthood, the 4th volume in the Life Journey through

Autism series and we are seeking volunteer reviewers to assist us in the

process. to that end, we are looking for volunteers to read the draft

document and provide us feedback on accuracy, clarity, and readability of

the information presented.

Feedback is sought from parents, professionals, and individuals on the

spectrum alike. If you are interested in helping us in this important

project, please contact Gerhardt, OAR's President, at

pgerhardt@... for more details and to obtain a review copy

via email.

.. . .

COMMENTARY

British Researchers: No Male Children For Families With History of Autism

By White.

http://www.lifesite.net/ldn/2006/aug/06080407.html

Researchers at the University College Hospital London have applied for

permission to begin using pre-implantation diagnosis (PGD) to screen IVF

embryos for possible autism, even though there is no reliable test for the

condition.

Opting for what one commentator called a " close enough solution, " the

reasoning goes that since 90% of autism sufferers are males [sic], the

answer is to allow only embryonic girls to be implanted in families with a

medical history of autism. This, they say, will allow families with autistic

children " to have a daughter free from the condition. "

Simone Aspis of the British Council of Disabled People pointed to the

inherent eugenic principles behind the application. " Screening for autism

would create a society where only perfection is valued. " In the brave new

world of the researchers, it is reasonable to fear " that anyone who is

different in any way will not be accepted, " Aspis said.

Bioethicist Ben said, " If unborn children are being

eliminated for a genetic disposition to autism, no one is safe . . . Today

autism, tomorrow intelligence below 70 I.Q., the next day male pattern

baldness. When will this madness stop? "

US columnist Chuck Colson, writing in Townhall, and reported in the

SAR last week, about the British Researchers' application for the PGD

screening, quotes Business Week saying, " the social cost of accommodating

[their] birth is increasingly being seen as exceeding [their] worth. "

This rhetoric from Business Week of the " social costs " of allowing the

unfit to live and reproduce is identical to that of the early 20th century

eugenics movement, led by abortion and contraception zealots such as Planned

Parenthood founder Margaret Sanger.

Colson makes the point, " Oh my! This utilitarian view of life

inevitably leads us exactly where the Nazis were creating a master race.

Can't we see it? "

See Colson's Article in Townhall: The eliminators

http://www.townhall.com/columnists/ChuckColson/2006/08/03/th...

.... " the social cost of accommodating [their] birth is increasingly

being seen as exceeding [their] worth. "

Brief comment: In the US, one does not need a reason to have a legal

abortion. Logically then, happening to have a particular reason beyond

convenience, like selecting for no autism, or blue eyes, or a football

line-backer physique is irrelevant. It's ok to terminate a fetus, but

somehow not ok to tweak for it? It is silly to accept the blank check right

to legalized abortion, but then get offended by some people's unaesthetic

application of that right. So far, laws banning doctor involvement in

eugenic screening seem difficult to enforce. As long as abortion is legal --

and that seems unlikely to change soon, the proverbial eugenics genie is out

of the bottle and prospects are indeed frightening -- and not just in

regards to autism. -LS.

.. . .

LETTERS

Regarding " The Eliminators: Eugenics by Default. " My son regressed

starting when he was 15 months old, and was eventually diagnosed with

autism. Through a lot of hard work, he is also, at five years old,

significantly recovered. And I can't imagine this world without him in it.

He's an inspiration to many people, and the thought of a child like this

being aborted because of a genetic test is unbearable. To this degree, I

agree with the author of this article.

However. There is a camp out there that advocates against genetic

research in autism, based on the arguments that it will lead to abortions.

They're the anti-Cure Autism Now, anti-using the " cure " word crowd. To

them, genetic research, or a " search for a cure " equates to " let's kill

autistic babies. " The line must be drawn here.

You cannot equate this to testing for Downs, because with Downs there

is no environmental component. We know there is an environmental component

to autism. Genetic research will lead us to determining what the

environmental components are, so we can prevent exposure. Not prevent

autistics.

There will come a day when autism is detectable like phenylketonuria

(see http://en.wikipedia.org/wiki/Phenylketonuria for a definition). A

simple test at birth can now detect phenylketonuria, and when detected, a

modified diet (elimination of exposure to the environmental component of

this genetic disease) prevents the effect of this disease, mental

retardation.

When used ethically, genetic research is a good thing.

- Riley San Clemente, CA

Public Service Announcement to the Reader:

AUTISM IS TREATABLE. Consult these sources:

. Autism Research Institute http://tinyurl.com/ccxco

. Generation Rescue http://www.generationrescue.org

. UK - Autism Treatment Trust http://www.autismtrust.org.uk

COPYRIGHT NOTICE: The above items are copyright protected. They are for our

readers' personal education or research purposes only and provided at their

request. Articles may not be further reprinted or used commercially without

consent from the copyright holders. To find the copyright holders, follow

the referenced website link provided at the beginning of each item.

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