Re: Bladder pressure caused by fibroids

[Guest guest]

I just consulted with a Urogynocologist yesterday about the same problem. The

recommendations are as follows:

Enroll in a study for a new drug Duloxetene (recently approved by the FDA,

but not available on the market) for six months to see if this lessens the

leakage or frequency to urinate. If it works, continue with dosages until

menopause.

Have a Myomectomy/Hysterectomy.

Take Detrol/Ditrapan until menopause.

He didn't state any long term effects by doing nothing about the condition.

Right now I will just deal with the problem. I'm not willing to take any

drugs until I reach menopause or have anymore surgery.

I guess it depends on how bad your situation gets.

Good Luck!

[Guest guest]

why does your doctor not want you to have a UAE? Its your body you should

look into it. Much less invasive and if you don't think its for you then

don't do it but certainly look into it. Your situation sounds like mine with

the bladder pressure. Its a nuisance. Do you plan anymore children and

where do you live that maybe you could see a interventional radiologist to at

least discuss this as an option. Rose K

[Guest guest]

Have you had a renal ultra sound? That will determine what damage if

any is being done to your kidneys or bladder. The ultra sound

diagnosed hydronephrosis in a kidney and I had a myomectomy. I

was " laid up " for one week although I took 6 weeks total from work.

> Hi,

>

> I have multiple fibroids with an enlarged uterus, the largest being

3.5.

> I had an US done and could see the fibroids are pressing on 1/3 of

my

> bladder. Consequently, I am getting up in the middle of the night

every

> 3 hours...12, 3 and 6. The doctor wanted to schedule a myo, as she

does

> not recommend UAE. I am a single Mom and cannot be laid up with

school

> about to start. My concern is if I delay a surgical procedure, will

it

> do long term damage to my bladder or ureter. Does any one know or

have

> had experience with this. I would not be able to schedule a myo

until

> next June when my daughter is out of school.

>

> I appreciate your feedback.

>

> Kathleen

[Guest guest]

Hi Kathleen,

I have a similar problem where my 12cm fibroid presses on my bladder.

Whenever I actually sleep thru the night (7 hours) my bladder feels ready to

burst in the am! When I've waited way too long to go, I have actually had

cramping that was horrible. My fibroid is pressing on the back of my bladder.

I just talked to my Dr. and she said that in all her practice she has never

seen kidney problems from fibroids pressing on things. (unless they are

really blocking the whole bladder)

I've somewhat been considering a myo. but have a 3 1/2 year old son that I

really can't leave (thru bedrest for 6weeks!) I would need to wait on a

better time. Plus he is just starting Nursery School 2x a week. He is a

very active child and is pretty needy of me at this stage. My fibroid is

degenerating (dying) but the Dr. says it takes quite a while for it to shrink

up and die! I need to weigh the quality of my life and having surgery, not

quite ready to make that decision as yet.

Blessings!

Elise

[Guest guest]

Kathleen,

Like Rose, I am also wondering why your doctor doesn't recommend

UAE. It is not recommended if you want more children, since the long-

term effects are not known, but if you are through having kids, this

is an option you may want to explore further. Doctors who don't do

UAE often don't recommend it, so if interested, you should schedule a

consult with an Interventional Radiologist.

If your largest fibroid is 3.5 cm, I would think you would get good

results with UAE for your symptoms. Even with multiple fibroids,

they are ALL treated with UAE, so it seems like it would work well

for you. I had UAE for primarily urinary symptoms - urinary

frequency and at times I had difficulty going even when I knew my

bladder was full. I got up several times in the night to go to the

bathroom - it sounds like as often as you. I had one dominant

fibroid that was 8 cm, and you could see on the MRI that it was

squeezing my bladder - it looked like an hourglass.

My gyn. recommended hysterectomy or UAE - he did not recommend

myomectomy if I did not intend to have children, which I don't (I'm

46). UAE seemed the best option for my symptoms and in my research,

it seemed that the best results would be for fibroids under 10 cm.

Still, I was concerned about how long it would take for the symptoms

to be relieved, and it was my IR's opinion that they would be

relieved right away. He said that once the fibroid loses its blood

supply, its consistency becomes softer and I would likely see relief

right away.

I am happy to say that this is exactly what happened. The effect was

almost immediate. Right now (4-1/2 months post UAE) I am trying to

take off pounds and am drinking GOBS of water, and my urinary

problems are history, and I never get up during the night any more.

My gyn. wanted me to do something before the problem got worse. I am

glad I did, because if the fibroid had grown, I might not have gotten

as good results.

Sorry this is so long....just wanted you to hear from someone with

similar symptoms. I had UAE on a Friday and took the whole next week

off from work, but I could have gone back earlier if I really had to.

B.

> Hi,

>

> I have multiple fibroids with an enlarged uterus, the largest being

3.5.

> I had an US done and could see the fibroids are pressing on 1/3 of

my

> bladder. Consequently, I am getting up in the middle of the night

every

> 3 hours...12, 3 and 6. The doctor wanted to schedule a myo, as she

does

> not recommend UAE. ...

[Guest guest]

It probably would not harm your bladder unless it caused reflux and stenosis and

infection. If you

don't have infections why would it be any different than say, an eight pound

baby displacing the

space? gg

Kathleen Monroe wrote:

> Hi,

>

> I have multiple fibroids with an enlarged uterus, the largest being 3.5.

> I had an US done and could see the fibroids are pressing on 1/3 of my

> bladder. Consequently, I am getting up in the middle of the night every

> 3 hours...12, 3 and 6. The doctor wanted to schedule a myo, as she does

> not recommend UAE. I am a single Mom and cannot be laid up with school

> about to start. My concern is if I delay a surgical procedure, will it

> do long term damage to my bladder or ureter. Does any one know or have

> had experience with this. I would not be able to schedule a myo until

> next June when my daughter is out of school.

>

> I appreciate your feedback.

>

> Kathleen

>

>

[Guest guest]

As others have said in their responses, the time of limited activity

post myo is short. You probably would need help with an active

toddler however.

Margaret

> Hi Margaret,

>

> You were only laid up 1 week after the Myo??!! I thought it was 6

weeks bed

> rest!!

> I have a son that I feel I don't want to leave him (with 6 weeks

bed rest) I

> think I could handle 1 week though.

>

> Blessings,

> Elise

>

>

>

[Guest guest]

I had hydronephrosis in one kidney but I had no symptoms at all. It

was discovered by a renal ultra sound that my doctor had ordered.

> Kim,

>

> Sorry to hear of your kidney problems. How does one know if they

have a

> kidney problem? Does it usually show up as blood in the urine?

>

> Blessings,

> Elise

>

>

>