Guest guest Posted November 11, 2001 Report Share Posted November 11, 2001 I would appreciate any insights or exoerience anyone could lend to helping really understand this report. My original ultrasound was 6 months ago. My uterus is now 16x10x10 I don't know what is was.Realistically hom big can it get before Ishould be concerned ? My uterus is diffusely inhomogenous {what does that really indicate?} with diffuse leiomyomateous {fibroids} change {is this a problem?} 1 fibroid with interval{?} increase to 7.3 from 5.3 and 1 5.s of mixed ethogenicity {?} and degenerating The report also stated quite marked inhomgenity within the 2 dominate areas, may represent degeneration but the appearance is atypical {?} If the uterus continues to increase removal may be prudent The nurse at my Dr.s office told me {besides " you're 47, why do you need your uterus anymore? " } that my Dr was concerned about the size of my uterus, the rapid growth of 1 and the degeneration of the other { i thought dgeneration was what we wanted}. My Dr also said the radiologist was so concerned after my test she called my Dr. personally to share the results. They badgered me into scheduling a hysterctomy for Jan. Does anyone see a red flag that can't wait until I see the Dr. HERS referred in Feb {the first appt. I could get}? I'm ready to cancel surgery . 2 FEMALE DR.s telling me to have a hysterectomy-help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2001 Report Share Posted November 11, 2001 Unfortunately many women physicians have the same pro-hysterectomy bias as the men who train them. You can definitely wait until February. Cancel the hysterectomy. Many women are pushed into having hysterectomies by docs who frighten them. While you wait for your February appointment get all the information you can find. You should read Sex, Lies, and the Truth About Uterine Fibroids by Carla Dionne and The Hysterectomy Hoax by Dr. Stanley West. Look back in the archives. I am sure that many of your questions have been answered by previous posts. > I would appreciate any insights or exoerience anyone could lend to helping really understand this report. My original ultrasound was 6 months ago. > My uterus is now 16x10x10 I don't know what is was.Realistically hom big can it get before Ishould be concerned ? > My uterus is diffusely inhomogenous {what does that really indicate?} with diffuse leiomyomateous {fibroids} change {is this a problem?} > 1 fibroid with interval{?} increase to 7.3 from 5.3 and 1 5.s of mixed ethogenicity {?} and degenerating > The report also stated quite marked inhomgenity within the 2 dominate areas, may represent degeneration but the appearance is atypical {?} If the uterus continues to increase removal may be prudent > The nurse at my Dr.s office told me {besides " you're 47, why do you need your uterus anymore? " } that my Dr was concerned about the size of my uterus, the rapid growth of 1 and the degeneration of the other { i thought dgeneration was what we wanted}. My Dr also said the radiologist was so concerned after my test she called my Dr. personally to share the results. They badgered me into scheduling a hysterctomy for Jan. Does anyone see a red flag that can't wait until I see the Dr. HERS referred in Feb {the first appt. I could get}? I'm ready to cancel surgery . 2 FEMALE DR.s telling me to have a hysterectomy-help. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2001 Report Share Posted November 11, 2001 No one should be " badgered " into having a hysterectomy. If it were so urgent, they would have scheduled it sooner than January. If you can wait that long, you can surely wait till after your February appointment to make such a critical decision. I would cancel the January surgery, since you have this other appointment scheduled in February - and see where that leads you. Also, ultrasound reports aren't nearly as definitive as MRIs. I would never agree to a hysterectomy on the basis of ultrasound results alone, barring some true medical emergency. You didn't say whether or not you are having symptoms, or worsening symptoms, at this time. If you are, maybe you could call the office of the doctor you are scheduled with for February and ask if they can see you earlier or to call you if they have a cancellation (if you haven't already). It doesn't seem to me as if gender matters when it comes to a gynecologist recommending hysterectomy. It is what they are most familiar with, it is easier for THEM, and it has been an accepted treatment for fibroids for years and years. Now there are other options, which you are seeking out. Don't be forced into anything until YOU are ready. Good luck! B. interpreting ultrasound report ... My Dr also said the radiologist was so concerned after my test she called my Dr. personally to share the results. They badgered me into scheduling a hysterctomy for Jan. Does anyone see a red flag that can't wait until I see the Dr. HERS referred in Feb {the first appt. I could get}? I'm ready to cancel surgery . 2 FEMALE DR.s telling me to have a hysterectomy-help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 Dear JRMU, When I first found out about my fibroid it was through this one lying asshole gyn! I say that because I didn't know what fibroids were and she told me 15% of fibroids were cancerous. I'm mad because she greatly exaggerated in the hope to scare me into hysterectomy. What the idiot gyn never figured was that I would immediately buy every book on fibroids before deciding. It was through my reading and research that I learned less than 1% of fibroids are cancerous. She unnecessarily frightened me for her own gain. So I never returned to that gyn and I'll never trust another Dr. again. The valuable lesson I've learned is that you have to take your medical care into your own hands. A Dr. is likely to sell you what he can deliver, and not tell you about other alternatives that he cannot deliver. So I found and visited 5 other specialists before picking the one I wanted. - Debbie Re: interpreting ultrasound report It sounds like your doctors are worried about uterine cancer. I am not in any position to say whether these worries are particularly justified from the appearance of your scan. I think they are worried about the appearance of the fibroid described as " 1 fibroid with interval increase to 7.3 from 5.3 and 1 5.s of mixed ethogenicity and degenerating " . All I can say is that you should get a second opinion; the ideal doctor would have oncology training but also be generally in favour of conserving the uterus - not someone who would always advise hyst. " just in case " . Also you should try to get your present doctor to discuss the situation with you in more detail. Try to read about the subject and prepare some questions before you see her again. Cancer of the lining of the uterus can be tested for my taking samples of endometrial cells, but there isn't a reliable way to distinguish uterine sarcoma (tumours) from benign fibroids without actually removing the whole tumour and examining it in laboratory. Presumably you could have fibroids removed by myomectomy and only return for further surgery if the lab reports indicate malignancy. Rapid growth is common in fibroids too and they can spontaneously degenerate. I have read that cancerous tumours may have a more irregular shape, so the nonhomogenous appearance of your uterus may be a concern. But that description appears to refer to the whole uterus - which is varied with normal tissue and fibroids and possibly adenomyosis (a condition like endometriosis, endometrial cells of the uterine lining become diffused through the myometrial tissue of uterine walls). There's also the comment about " mixed ethogenicity " of one tumour . I'm not sure what this means, but it sounds like it would mean that there's more than one type of cell observed. As for the size, there are 2.5 cms. in an inch. About cantaloupe melon size. The normal nonpregnant uterus is more like a lemon or a pear, I'm told. The largest one of my several fibroids was about the size of your uterus! But it is better to treat fibroids before they get to the size that mine were; unfortunately my uterus was huge before I even knew I had the condition. JRMU... wrote: " I would appreciate any insights or experience anyone could lend to helping really understand this report. My original ultrasound was 6 months ago. My uterus is now 16x10x10 I don't know what is was. Realistically how big can it get before I should be concerned ? My uterus is diffusely inhomogenous {what does that really indicate?} with diffuse leiomyomateous {fibroids} change {is this a problem?} 1 fibroid with interval{?} increase to 7.3 from 5.3 and 1 5.s of mixed ethogenicity {?} and degenerating The report also stated quite marked inhomgenity within the 2 dominate areas, may represent degeneration but the appearance is atypical {?} If the uterus continues to increase removal may be prudent The nurse at my Dr.s office told me {besides " you're 47, why do you need your uterus anymore? " } that my Dr was concerned about the size of my uterus, the rapid growth of 1 and the degeneration of the other { i thought dgeneration was what we wanted}. My Dr also said the radiologist was so concerned after my test she called my Dr. personally to share the results. They badgered me into scheduling a hysterctomy for Jan. Does anyone see a red flag that can't wait until I see the Dr. HERS referred in Feb {the first appt. I could get}? I'm ready to cancel surgery . 2 FEMALE DR.s telling me to have a hysterectomy-help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 That doctor should not be practicing! What a lier! Re: interpreting ultrasound report > > > It sounds like your doctors are worried about uterine cancer. I am not in > any position to say whether these worries are particularly justified from > the appearance of your scan. I think they are worried about the appearance > of the fibroid described as " 1 fibroid with interval increase to 7.3 from > 5.3 and 1 5.s of mixed ethogenicity and degenerating " . All I can say is > that you should get a second opinion; the ideal doctor would have oncology > training but also be generally in favour of conserving the uterus - not > someone who would always advise hyst. " just in case " . Also you should try to > get your present doctor to discuss the situation with you in more detail. > Try to read about the subject and prepare some questions before you see her > again. > > Cancer of the lining of the uterus can be tested for my taking samples of > endometrial cells, but there isn't a reliable way to distinguish uterine > sarcoma (tumours) from benign fibroids without actually removing the whole > tumour and examining it in laboratory. Presumably you could have fibroids > removed by myomectomy and only return for further surgery if the lab reports > indicate malignancy. > > Rapid growth is common in fibroids too and they can spontaneously > degenerate. I have read that cancerous tumours may have a more irregular > shape, so the nonhomogenous appearance of your uterus may be a concern. But > that description appears to refer to the whole uterus - which is varied with > normal tissue and fibroids and possibly adenomyosis (a condition like > endometriosis, endometrial cells of the uterine lining become diffused > through the myometrial tissue of uterine walls). There's also the comment > about " mixed ethogenicity " of one tumour . I'm not sure what this means, but > it sounds like it would mean that there's more than one type of cell > observed. > > As for the size, there are 2.5 cms. in an inch. About cantaloupe melon > size. The normal nonpregnant uterus is more like a lemon or a pear, I'm > told. The largest one of my several fibroids was about the size of your > uterus! But it is better to treat fibroids before they get to the size that > mine were; unfortunately my uterus was huge before I even knew I had the > condition. > > > JRMU... wrote: " > I would appreciate any insights or experience anyone could lend to helping > really understand this report. My original ultrasound was 6 months ago. > My uterus is now 16x10x10 I don't know what is was. Realistically how big > can it get before I should be concerned ? > My uterus is diffusely inhomogenous {what does that really indicate?} with > diffuse leiomyomateous {fibroids} change {is this a problem?} > 1 fibroid with interval{?} increase to 7.3 from 5.3 and 1 5.s of mixed > ethogenicity {?} and degenerating > The report also stated quite marked inhomgenity within the 2 dominate > areas, may represent degeneration but the appearance is atypical {?} If the > uterus continues to increase removal may be prudent > The nurse at my Dr.s office told me {besides " you're 47, why do you need > your uterus anymore? " } that my Dr was concerned about the size of my uterus, > the rapid growth of 1 and the degeneration of the other { i thought > dgeneration was what we wanted}. My Dr also said the radiologist was so > concerned after my test she called my Dr. personally to share the results. > They badgered me into scheduling a hysterctomy for Jan. Does anyone see a > red flag that can't wait until I see the Dr. HERS referred in Feb {the first > appt. I could get}? I'm ready to cancel surgery . 2 FEMALE DR.s telling me > to have a hysterectomy-help. > > > > Quote Link to comment Share on other sites More sharing options...
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