Who has burning pain? Family MS and stupid doctors

[Guest guest]

Hi Trista:

Yes I do take Neurontin but I've been trying to wean down on it because of the cost (even of the generic). The Neurontin doesn't do anything for my pain in my legs--makes no difference for me. What it does though is help with the Trigeminal Neuralgia pain in my jaw/face/neck/ear area. So I've not been successful at getting below 1200 mg a day. I had been on 3200 mg. a day before I started weaning down. I just started taking Cymbalta a few weeks ago. I got samples from my PC. Cymbalta is an anti-depressant but also works on nerve pain. And I do think it's working a little. I also take Baclofen and Clonazapam. During the day I take hydrocodone for my back and neck pain but it gives me energy for some reason so I don't take it at night.

Family MS? I hope you aren't all seeing the same doctor because they will probably discount it for all of you right off the bat. I know because that happened to me. You know Challis has symptoms but so does my son (not the same as Challis but still neuro problems). His wife has leg numbing and has fallen down a few times. My son, his wife and I went to a new neuro and the neuro completely discounted anyone's symptoms when he saw me. He was a real jerk and said something along the lines of "Your whole family has MS symptoms? How ridiculous". He told me he doubted that I even had MS. I like my regular, long-standing neuro but he kind of annoyed me when I saw him last week.

What kind of symptoms does your mom have?

Sharon

Who has burning pain?

Just wondering who has burning pain and where is it on your body?

Sharon (MSersLife Group Owner/Creator)

Kind words may be short... but their echoes are endless.... Mother Theresa

[Guest guest]

Sharon,

She has fatigue, pain, burning, numbness/tingling, vision problems ( color changes, losing sight in 1 eye for short periods of time), and depression.

What I'm wondering is if there may be some environmental factor that causes sx's that mimic MS. Or possibly an environmental trigger that sets off MS. I know for me, my sx's started to hit me hard in college, after I had been dx'd with Mono and after having Hep A, B, and the flu shot. These happened around the same time. I've been sick ever since.

I wonder if Cymbalta might work for me. I didn't know it helped with nerve pain. Elavil has helped, but it also adds to the fatigue. I plan on asking for something for fatigue and muscle spasms when I go.

What ticks me off, is first thing, the Dr. asks if I have any family members with MS. I say no. Then I tell them that my mom has similar sx's, and they act like I'm crazy and can't think of what may be causing it! What the??? Does that make sense to you? So, I am quite fed up with Dr.s who think they know it all. There sure are a lot of us living with these sx's that have no dx. I had no idea how many, until recently. And when you try to tell them about all the people you've heard of dealing with the same thing, they scoff when they hear "internet". (rolling my eyes) As if they never get any of their info from the internet. There is a wealth of info out there, but they are extremely threatened, if you are trying to educate yourself.

Like I said, I feel for Challis. No wonder she doesn't want to go back to the Dr. for this. What's the point?

Trista

Who has burning pain?

Just wondering who has burning pain and where is it on your body?

Sharon (MSersLife Group Owner/Creator)

Kind words may be short... but their echoes are endless.... Mother Theresa