Guest guest Posted May 8, 1998 Report Share Posted May 8, 1998 Lori, I am glad you are back, I missed you. And I am so glad for Alycia and hope it works. Did you find out anything else on the thymidine? I am interested but tied up with the 4 yr old suicidal thing and bills, etc. I now go to the same therapists office (which is in her home) 4-5 times a week with me, Joe and I, , and Tylynn and Kody. I said the other day I should have done her dishes while I waited as I might as well be a family member! S. I'm Back! > > >Hi all, > >As you can see, I have re-joined the mito list after a brief >sebbatical. Anyone wishing to reach me can do so via the list or in >private. > >Lynnie: I have emailed Dr. DiMauro regarding the possibiltiy of >including Alycia in the MNGIE trials. I am waiting to hear from him. > >I spoke with Alycia's GI Doctor and he agrees that she fits into the >MNGIE catagory (he is very knowlegable about mitochondrial disease) >and that we should visit the Mitochondrial clinic in Boston to have >her checked for the specific deletions. He agrees that we should try >and get her into the trials. He said he would also like to include >her in the trials of a new Motility drug that he and his collegue are >researching! > >I have scheduled an appointment in the Mitochondrial clinic for June >with the specific purpose of investigating the possibility the Alycia >may have MNGIE and the goal of getting her into human clinical trials >for the treatment as soon as possible. > >I hope this isn't just another pot of gold under a rainbow that I am >chasing. :0) > >Lori > > >------------------------------------------------------------------------ >Did you know ONElist has over 300 Star Wars lists? >http://www.onelist.com >Join one today! >------------------------------------------------------------------------ >Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 1998 Report Share Posted May 8, 1998 Lori, I am glad you are back, I missed you. And I am so glad for Alycia and hope it works. Did you find out anything else on the thymidine? I am interested but tied up with the 4 yr old suicidal thing and bills, etc. I now go to the same therapists office (which is in her home) 4-5 times a week with me, Joe and I, , and Tylynn and Kody. I said the other day I should have done her dishes while I waited as I might as well be a family member! S. I'm Back! > > >Hi all, > >As you can see, I have re-joined the mito list after a brief >sebbatical. Anyone wishing to reach me can do so via the list or in >private. > >Lynnie: I have emailed Dr. DiMauro regarding the possibiltiy of >including Alycia in the MNGIE trials. I am waiting to hear from him. > >I spoke with Alycia's GI Doctor and he agrees that she fits into the >MNGIE catagory (he is very knowlegable about mitochondrial disease) >and that we should visit the Mitochondrial clinic in Boston to have >her checked for the specific deletions. He agrees that we should try >and get her into the trials. He said he would also like to include >her in the trials of a new Motility drug that he and his collegue are >researching! > >I have scheduled an appointment in the Mitochondrial clinic for June >with the specific purpose of investigating the possibility the Alycia >may have MNGIE and the goal of getting her into human clinical trials >for the treatment as soon as possible. > >I hope this isn't just another pot of gold under a rainbow that I am >chasing. :0) > >Lori > > >------------------------------------------------------------------------ >Did you know ONElist has over 300 Star Wars lists? >http://www.onelist.com >Join one today! >------------------------------------------------------------------------ >Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 1998 Report Share Posted May 8, 1998 Thanks Lori, I was told by a pediatric psychiatrist yest. that Zoloft would not be good for one so young and how dangerous all the drugs are. He says they sometimes give small kids imapramine for bedwetting so I'm chking that out. If his mom didn't have so many of her own problems she could follow thru on giving him the correct nutrients (he did well on the lipoic and the CoQ10 but she won't follow thru) and keep her house clean (the clutter bugs him so bad) and treat him with more sensibility and kindness-she is emotionally abusive also. Then I don't think we would have to look for the anti-dep. to get him thru. So sad. I threatoned to get a lawyer and take him if they didn't get help just before the suicide attempt. My son was pissed at me but now they are getting help (I am tending to all of that). Shane is not mad at me now. S. Re: I'm Back! > > >Hi , > >I am sorry to hear that you are going through such a terrible time with your grandson. I hope the >therpist can do something for him. > >Lori > > > > >------------------------------------------------------------------------ >Want to learn more about your list users? >http://www.onelist.com >Now you can with our new User Survey Tool - see homepage for details >------------------------------------------------------------------------ >Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 1998 Report Share Posted May 8, 1998 Thanks Lori, I was told by a pediatric psychiatrist yest. that Zoloft would not be good for one so young and how dangerous all the drugs are. He says they sometimes give small kids imapramine for bedwetting so I'm chking that out. If his mom didn't have so many of her own problems she could follow thru on giving him the correct nutrients (he did well on the lipoic and the CoQ10 but she won't follow thru) and keep her house clean (the clutter bugs him so bad) and treat him with more sensibility and kindness-she is emotionally abusive also. Then I don't think we would have to look for the anti-dep. to get him thru. So sad. I threatoned to get a lawyer and take him if they didn't get help just before the suicide attempt. My son was pissed at me but now they are getting help (I am tending to all of that). Shane is not mad at me now. S. Re: I'm Back! > > >Hi , > >I am sorry to hear that you are going through such a terrible time with your grandson. I hope the >therpist can do something for him. > >Lori > > > > >------------------------------------------------------------------------ >Want to learn more about your list users? >http://www.onelist.com >Now you can with our new User Survey Tool - see homepage for details >------------------------------------------------------------------------ >Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 1999 Report Share Posted May 8, 1999 Hi , I am sorry to hear that you are going through such a terrible time with your grandson. I hope the therpist can do something for him. Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 1999 Report Share Posted May 8, 1999 Hi , I am sorry to hear that you are going through such a terrible time with your grandson. I hope the therpist can do something for him. Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 1999 Report Share Posted May 11, 1999 In a message dated 99-05-08 00:17:03 EDT, you write: << I have scheduled an appointment in the Mitochondrial clinic for June with the specific purpose of investigating the possibility the Alycia may have MNGIE and the goal of getting her into human clinical trials for the treatment as soon as possible. I hope this isn't just another pot of gold under a rainbow that I am chasing. :0) Lori >> dear Lori: Have you called NORD and asked them to mail you a spread sheet on MNGIE facts? I'll bet they have some usefull info for you on MNGIE. Lynnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 1999 Report Share Posted May 11, 1999 In a message dated 99-05-08 00:17:03 EDT, you write: << I have scheduled an appointment in the Mitochondrial clinic for June with the specific purpose of investigating the possibility the Alycia may have MNGIE and the goal of getting her into human clinical trials for the treatment as soon as possible. I hope this isn't just another pot of gold under a rainbow that I am chasing. :0) Lori >> dear Lori: Have you called NORD and asked them to mail you a spread sheet on MNGIE facts? I'll bet they have some usefull info for you on MNGIE. Lynnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 1999 Report Share Posted May 11, 1999 Hi Lynnie, I didn't think of that. Thanks for the tip! GOLYNIE@... wrote: > F<snip>Have you called NORD and asked them to mail you a spread sheet on MNGIE > facts? I'll bet they have some usefull info for you on MNGIE. > > Lynnie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2000 Report Share Posted December 21, 2000 Try not to get so upset about her " ways " . I know you would do things differently but is it really so bad? Alot of people (especially in diff. countries) smoke and their babies are just fine. I'm not downplaying things but look at the overall picture--she's in fine health. A cigarette is not going to demise that baby! People are doing CRACK and giving up babies--who are fine. I'm not saying this is ok, but there ARE LESS THINGS too worry about. cheryl > >Reply-To: Ashermansegroups >To: <Ashermansegroups> >Subject: I'm back! >Date: Thu, 21 Dec 2000 22:55:47 +0200 > >Hi everyone, >I got back yesterday. I've got loads to catch up on. > >Just to brief you all on how I got on. I'm glad I went together with >Sotiria. It made me realise a lot about who she is and that we are from >totally different backgrounds. I do sympathise with her and why she >behaves like she does because of her upbringing, but I also lost my trust >in her. I caught her smoking and she swore to me that she does not smoke >since she found out about her pregnancy. I know now that it is a lie. I >told her that I preferred it if she told me when she felt like smoking >instead of hiding it from me and she promised but the next day, she never >kept that promise. Everytime she left for the toilet, I knew that she >would have a cigarette and that hurt me a lot because she is supposed to be >giving me this child and I can't control the babies health. I bought fresh >fruit and nuts and laid them on the hotel table but she hardly had any. >She preferred junk food like macdonalds, kebabs etc. She drank no milk. It >made me feel terrible for this little soul growing inside her, but it made >me understand also how lucky my boys were (in the short life of 24 weeks >that they had) that they got the best care in food and love I could offer >them. I guess that is the cruel life that we are forced to accept. My >children die after having such good care and hers survives with such bad >care. > >Anyway, I will write more another time. Just thought I'd let you all know >that I'm back. Hope you are all ok and that you have a wonderful Christmas. > >Poly > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2000 Report Share Posted December 21, 2000 Try not to get so upset about her " ways " . I know you would do things differently but is it really so bad? Alot of people (especially in diff. countries) smoke and their babies are just fine. I'm not downplaying things but look at the overall picture--she's in fine health. A cigarette is not going to demise that baby! People are doing CRACK and giving up babies--who are fine. I'm not saying this is ok, but there ARE LESS THINGS too worry about. cheryl > >Reply-To: Ashermansegroups >To: <Ashermansegroups> >Subject: I'm back! >Date: Thu, 21 Dec 2000 22:55:47 +0200 > >Hi everyone, >I got back yesterday. I've got loads to catch up on. > >Just to brief you all on how I got on. I'm glad I went together with >Sotiria. It made me realise a lot about who she is and that we are from >totally different backgrounds. I do sympathise with her and why she >behaves like she does because of her upbringing, but I also lost my trust >in her. I caught her smoking and she swore to me that she does not smoke >since she found out about her pregnancy. I know now that it is a lie. I >told her that I preferred it if she told me when she felt like smoking >instead of hiding it from me and she promised but the next day, she never >kept that promise. Everytime she left for the toilet, I knew that she >would have a cigarette and that hurt me a lot because she is supposed to be >giving me this child and I can't control the babies health. I bought fresh >fruit and nuts and laid them on the hotel table but she hardly had any. >She preferred junk food like macdonalds, kebabs etc. She drank no milk. It >made me feel terrible for this little soul growing inside her, but it made >me understand also how lucky my boys were (in the short life of 24 weeks >that they had) that they got the best care in food and love I could offer >them. I guess that is the cruel life that we are forced to accept. My >children die after having such good care and hers survives with such bad >care. > >Anyway, I will write more another time. Just thought I'd let you all know >that I'm back. Hope you are all ok and that you have a wonderful Christmas. > >Poly > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2000 Report Share Posted December 21, 2000 Try not to get so upset about her " ways " . I know you would do things differently but is it really so bad? Alot of people (especially in diff. countries) smoke and their babies are just fine. I'm not downplaying things but look at the overall picture--she's in fine health. A cigarette is not going to demise that baby! People are doing CRACK and giving up babies--who are fine. I'm not saying this is ok, but there ARE LESS THINGS too worry about. cheryl > >Reply-To: Ashermansegroups >To: <Ashermansegroups> >Subject: I'm back! >Date: Thu, 21 Dec 2000 22:55:47 +0200 > >Hi everyone, >I got back yesterday. I've got loads to catch up on. > >Just to brief you all on how I got on. I'm glad I went together with >Sotiria. It made me realise a lot about who she is and that we are from >totally different backgrounds. I do sympathise with her and why she >behaves like she does because of her upbringing, but I also lost my trust >in her. I caught her smoking and she swore to me that she does not smoke >since she found out about her pregnancy. I know now that it is a lie. I >told her that I preferred it if she told me when she felt like smoking >instead of hiding it from me and she promised but the next day, she never >kept that promise. Everytime she left for the toilet, I knew that she >would have a cigarette and that hurt me a lot because she is supposed to be >giving me this child and I can't control the babies health. I bought fresh >fruit and nuts and laid them on the hotel table but she hardly had any. >She preferred junk food like macdonalds, kebabs etc. She drank no milk. It >made me feel terrible for this little soul growing inside her, but it made >me understand also how lucky my boys were (in the short life of 24 weeks >that they had) that they got the best care in food and love I could offer >them. I guess that is the cruel life that we are forced to accept. My >children die after having such good care and hers survives with such bad >care. > >Anyway, I will write more another time. Just thought I'd let you all know >that I'm back. Hope you are all ok and that you have a wonderful Christmas. > >Poly > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2000 Report Share Posted December 22, 2000 Poly: Welcome back - we did miss you! I'm so sorry to hear about your discoveries concerning Sotiria. (am I spelling that right?) I can imagine how difficult it was to watch her doing things you know are not good for your baby. And having no real control over it must be difficult too - that would drive me crazy. I think you are right to be concerned about the smoking, there are so many studies that show that it can lead to low birth weight, asthma, allergies, even behavioral problems later in life. Have you thought about explaining these risks to Sotiria. Is it possible that she doesn't know how bad this is for the baby? I mean, she may generally know that it is not the best idea...but maybe some more concrete information might help her to stop or at least cut back quite a bit? I've found a few good websites with information on this...I'd be happy to forward to you if you like. (I did a bunch of research when my friend was pregnant as she was a smoker and I'm happy to say that thanks to my pushing she stopped and did not smoke at all during the pregnancy and so far hasn't gone " back " to it either!) As for her eating habits...I wouldn't really be too worried about that - here's why. My OB told me (and I have read this in numerous places) that the baby will get what it needs from the mother's body. It will literally " sap " or " raid " the mother's body to get what it needs. So, the real danger in not eating well during pregnancy is to Sotiria. If she doesn't drink milk or eat other healthy dairy foods, the baby will " pull " the calcium it needs from her body and she will end up losing a tooth or getting brittle bones or osteoporosis or something. If she doesn't eat fruits and vegetables the baby will " pull " the vitamins and minerals it needs from her body and she will end up weak and sick after pregnancy. Would it be better if she ate healthy foods? Most definitely....but ultimately, the baby will get what it needs even if it has to deplete her bones and her body to get it so Sotiria is really only hurting herself in this respect. Do you think she is drinking alcohol? Now that would be a danger that I really wouldn't mess with - the risk of fetal alcohol syndrome which can cause mental retardation is really too great. I'm not talking about an occasional glass of wine (I turned out fine and my mother still jokes that it is funny I weighed 7 pounds 7 ounces at birth because she had a 7 & 7 the night before I was born - Seagram's 7 is a brand of whiskey here in the U.S. that, when mixed with a soda called 7-Up is called a 7 & 7....)but if she's drinking often you should know about that. Anyway, I'm not trying to scare you....just want you to know that I completely understand your worry and concern, I think it's deserved. But, do remember that babies are pretty resilient - they will get what they need. And many of us were born from mothers that drank or smoke during pregnancy and we turned out just fine. Try not to worry too much ok? And see if sharing some statistics and research with her might help. Merry Christmas to you too Poly! I hope your holidays are filled with love and hope. Gwen __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2000 Report Share Posted December 22, 2000 Poly: Welcome back - we did miss you! I'm so sorry to hear about your discoveries concerning Sotiria. (am I spelling that right?) I can imagine how difficult it was to watch her doing things you know are not good for your baby. And having no real control over it must be difficult too - that would drive me crazy. I think you are right to be concerned about the smoking, there are so many studies that show that it can lead to low birth weight, asthma, allergies, even behavioral problems later in life. Have you thought about explaining these risks to Sotiria. Is it possible that she doesn't know how bad this is for the baby? I mean, she may generally know that it is not the best idea...but maybe some more concrete information might help her to stop or at least cut back quite a bit? I've found a few good websites with information on this...I'd be happy to forward to you if you like. (I did a bunch of research when my friend was pregnant as she was a smoker and I'm happy to say that thanks to my pushing she stopped and did not smoke at all during the pregnancy and so far hasn't gone " back " to it either!) As for her eating habits...I wouldn't really be too worried about that - here's why. My OB told me (and I have read this in numerous places) that the baby will get what it needs from the mother's body. It will literally " sap " or " raid " the mother's body to get what it needs. So, the real danger in not eating well during pregnancy is to Sotiria. If she doesn't drink milk or eat other healthy dairy foods, the baby will " pull " the calcium it needs from her body and she will end up losing a tooth or getting brittle bones or osteoporosis or something. If she doesn't eat fruits and vegetables the baby will " pull " the vitamins and minerals it needs from her body and she will end up weak and sick after pregnancy. Would it be better if she ate healthy foods? Most definitely....but ultimately, the baby will get what it needs even if it has to deplete her bones and her body to get it so Sotiria is really only hurting herself in this respect. Do you think she is drinking alcohol? Now that would be a danger that I really wouldn't mess with - the risk of fetal alcohol syndrome which can cause mental retardation is really too great. I'm not talking about an occasional glass of wine (I turned out fine and my mother still jokes that it is funny I weighed 7 pounds 7 ounces at birth because she had a 7 & 7 the night before I was born - Seagram's 7 is a brand of whiskey here in the U.S. that, when mixed with a soda called 7-Up is called a 7 & 7....)but if she's drinking often you should know about that. Anyway, I'm not trying to scare you....just want you to know that I completely understand your worry and concern, I think it's deserved. But, do remember that babies are pretty resilient - they will get what they need. And many of us were born from mothers that drank or smoke during pregnancy and we turned out just fine. Try not to worry too much ok? And see if sharing some statistics and research with her might help. Merry Christmas to you too Poly! I hope your holidays are filled with love and hope. Gwen __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2000 Report Share Posted December 22, 2000 Poly: Welcome back - we did miss you! I'm so sorry to hear about your discoveries concerning Sotiria. (am I spelling that right?) I can imagine how difficult it was to watch her doing things you know are not good for your baby. And having no real control over it must be difficult too - that would drive me crazy. I think you are right to be concerned about the smoking, there are so many studies that show that it can lead to low birth weight, asthma, allergies, even behavioral problems later in life. Have you thought about explaining these risks to Sotiria. Is it possible that she doesn't know how bad this is for the baby? I mean, she may generally know that it is not the best idea...but maybe some more concrete information might help her to stop or at least cut back quite a bit? I've found a few good websites with information on this...I'd be happy to forward to you if you like. (I did a bunch of research when my friend was pregnant as she was a smoker and I'm happy to say that thanks to my pushing she stopped and did not smoke at all during the pregnancy and so far hasn't gone " back " to it either!) As for her eating habits...I wouldn't really be too worried about that - here's why. My OB told me (and I have read this in numerous places) that the baby will get what it needs from the mother's body. It will literally " sap " or " raid " the mother's body to get what it needs. So, the real danger in not eating well during pregnancy is to Sotiria. If she doesn't drink milk or eat other healthy dairy foods, the baby will " pull " the calcium it needs from her body and she will end up losing a tooth or getting brittle bones or osteoporosis or something. If she doesn't eat fruits and vegetables the baby will " pull " the vitamins and minerals it needs from her body and she will end up weak and sick after pregnancy. Would it be better if she ate healthy foods? Most definitely....but ultimately, the baby will get what it needs even if it has to deplete her bones and her body to get it so Sotiria is really only hurting herself in this respect. Do you think she is drinking alcohol? Now that would be a danger that I really wouldn't mess with - the risk of fetal alcohol syndrome which can cause mental retardation is really too great. I'm not talking about an occasional glass of wine (I turned out fine and my mother still jokes that it is funny I weighed 7 pounds 7 ounces at birth because she had a 7 & 7 the night before I was born - Seagram's 7 is a brand of whiskey here in the U.S. that, when mixed with a soda called 7-Up is called a 7 & 7....)but if she's drinking often you should know about that. Anyway, I'm not trying to scare you....just want you to know that I completely understand your worry and concern, I think it's deserved. But, do remember that babies are pretty resilient - they will get what they need. And many of us were born from mothers that drank or smoke during pregnancy and we turned out just fine. Try not to worry too much ok? And see if sharing some statistics and research with her might help. Merry Christmas to you too Poly! I hope your holidays are filled with love and hope. Gwen __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 Welcome Back old Friend, & Petra I'm back! > Hi ceda family! > > I just joined the list again after several months away. I missed you guys, > and it's good to be back. > > Just to let you know what's changed since I left the list.... I graduated > from college in May, and now I'm teaching special ed in a public elementary > school. I love it! My health is holding together well enough, but I'm > getting to the point where my colleagues are starting to notice that i'm > ALWAYS dealing with some injury or illness, so I'm going to have to tell them > about EDS sooner or later. I'm not using my wheelchair at work, and I > actually haven't needed it at all lately. > > How's everyone here? Thanks to those of you who kept in touch while I was > off the list.... the rest of you can catch me up on your lives now. > > love, > Beth > (aka J. Beth) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 Welcome welcome home Beth! You've been missed!!! Jill I just joined the list again after several months away. I missed you guys, and it's good to be back. Just to let you know what's changed since I left the list.... I graduated from college in May, and now I'm teaching special ed in a public elementary school. I love it! My health is holding together well enough, but I'm getting to the point where my colleagues are starting to notice that i'm ALWAYS dealing with some injury or illness, so I'm going to have to tell them about EDS sooner or later. I'm not using my wheelchair at work, and I actually haven't needed it at all lately. How's everyone here? Thanks to those of you who kept in touch while I was off the list.... the rest of you can catch me up on your lives now. love, Beth (aka J. Beth) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 In a message dated 10/30/01 7:28:08 PM Central Standard Time, nmsaucier@... writes: > . Sp Ed > can be a stressful but fun job. > -Nanette > > Yep, because you have to put up with parents like ME <G> Peggikaye <G> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 Welcome back, Beth. Congrats on finishing school and finding a good job. When we met last year I could see how much it meant to you to get to work in special education, so I am really pleased to read that you are finally getting to do it! -Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 Beth, Please be sure to keep a check on stress. I am on medical leave from my job as a speech therapist at 2 public schools. Sp Ed can be a stressful but fun job. -Nanette > Just to let you know what's changed since I left the list.... I graduated > from college in May, and now I'm teaching special ed in a public elementary > school. I love it! My health is holding together well enough, but I'm > getting to the point where my colleagues are starting to notice that i'm > ALWAYS dealing with some injury or illness, so I'm going to have to tell > them > about EDS sooner or later. I'm not using my wheelchair at work, and I > actually haven't needed it at all lately. > > How's everyone here? Thanks to those of you who kept in touch while I was > off the list.... the rest of you can catch me up on your lives now. > > love, > Beth > (aka J. Beth) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 Hey there...heard you had a birthday? Okay, here goes...hold your ears (eyes?) Happy birthday to you, happy birthday to you, happy birthday J Beth, happy birthday to you!!! Cha cha cha, chicken soup! Glad you're back, congratulations on your graduation! Did you celebrate? Should we now? A toast (holding my coffee up)...anyone with me? I'll finish the toast another time...toast and coffee - that's BREAKFAST! Okay, enough! You're such a kind spirit to really enjoy working with children who need it most and probably appreciate your care more than most children, yeah? Thanks for helping to make our world a better place...you are! For each evil person that causes havok on others, there's at least one person that's pure hearted, like many here with us. I'm proud to email you! ; ) Many blessings, Janet : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 In a message dated 1/5/2003 10:26:53 AM Pacific Standard Time, msteechur@... writes: > Hey everyone! I'm back and spent the entire day just vegging in front of > my computer, catching up on emails, and writing lesson plans (one unit > down, two to go). > Welcome Back )!!!!!!!! Sounds like you had a blast!!!!!!!! Congrats on losing a pound with all that )!!!!!!! Gymmie in Cali )!!!!!!!!! " One day at a time, no guilt and move on " ....Dotti Tomorrow is " Monday " Breaking Free in 2K3 Week of 12/29 Goals Journal Wednesday Abs Challenge 128 oz. Water Weights 241.6/157/140 WAYOOM Goal 150 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 Wow Tory! Sounds like you had an absolute blast!! I have never been to Disneyland, I hopw to get there some day!! Doesn't conquering your weight have and effect on you of giving you more bravery? I wonder why that is?..... Semalee For unto us this day a child is born..... -- I'm back! Hey everyone! I'm back and spent the entire day just vegging in front of my computer, catching up on emails, and writing lesson plans (one unit down, two to go). So had a very good time, overall, in California. I'll sort of recap a bit for anyone interested. My brother, Craig, picked me up at the airport on Sunday. He didn't recognize me, but his friend, who had been told to look for a girl with really curly hair, pointed me out. He just stood there and stared at me saying " Tory...Tory!...Tory...! " over and over again. He was completely stunned. He kept wanting to ask questions, but then he'd say " No, I'm not going to make a huge deal out of this. " He took me to Westport where I sat in a chair for four hours having my hair straightened. Oh my LORD it took forever. Bless my wonderful husband who shopped for awhile and then sat outside at a table reading. When I had the neutralizer on my hair I was able to rush out and say " Food! Must have food! " he rushed and picked up some sushi for me. (It was about 3 and I hadn't eaten anything but the Snackwell's cookies on the plane.) Craig then took me to see my sister, Kendra at the shop. She was shocked too, although she knew. Mark, Craig's business partner and the guy who used to do my hair when he lived in Seattle, was called and he rushed over. (I'm telling you, gay men love a makeover...okay, maybe not ALL gay men...but this group sure does.) He was so excited about the hair thing! We headed over to his house where he gave me a quick trim, cleaning up the ends of my hair, and proclaimed his approval of the hair and the weight loss. Robbie, another friend of Craig's and someone I've known forever, almost started to cry when he saw me. We ran home and grabbed Richie (Craig's partner) and headed to Koo Koo Roo for dinner. I wish we had this near us! Since WW my fast food repertoire is limited to Subway. Monday we headed to the Fashion District where I picked up a few knock offs, Roy bought some boot leg DVDs and Craig bought me these killer boots. They are SO awesome. I must take a picture. He also took us out to lunch and then Kendra and I met up and went shopping for jeans. Craig tried to talk me into these $160 jeans, but no go (even though they were a very small size and that alone made me want to buy them). Kendra, the voice of reason, dragged me to the Gap and I got some new low rider jeans. I've never worn low riders, but I kind of like them! I also got an awesome tank top and white shirt that looked great on Christmas day. The only low point of that day was my doctor calling telling me that I'd need to have a surgery consultation when I returned. I guess the pancreatic tumor isn't so much nothing as the other doctor put it. Still shouldn't be horrible or life threatening, but I have to have it out before it starts causing trouble. I chose to just let go of my worries and continue to enjoy my vacation. Craig did my makeup that night in preparation to see Mom. She showed up on time, walked in and just stood and stared at me. It was really interesting. Her face was a mixture of shock, surprise, happiness, and jealousy...I kid you not. Within one minute she went from " Look at you! Look at how great you look! " to " You know, I've lost weight too... " and I had to hear that the rest of the night. I as expecting it, though, so it was more comical than anything else. That night Craig and Richie took us to Spago in Beverly Hills for dinner. Very swanky place! I really enjoyed it, although I felt kind of self concious. Saw a few minor celebs there and at the Grove, which was kind of fun. Had the grilled ahi, which was amazing and we all shared a dessert (which was only okay). Christmas Eve Roy and I walked over to The Grove and enjoyed the nice weather and the crazy shoppers. I needed some hair stuff because unfortunately my hair is pretty damaged. Craig and Richie cooked for everyone. They made a prime rib, creamed spinach, macaroni and cheese, veggies, appetizers, etc. It was QUITE a feast! Everything was delicious. I think it was honestly one of the nicest holiday meals I've had in a long time. Everyone was happy, talking to each other, and having a nice time. Kendra had made probably 8 kinds of cookies and Craig's friend, , had made a raspberry chocolate cake (from scratch) and creme brulee. The kids were all nuts, but that's pretty normal for Christmas Eve. After dinner we all participated in a gift exchange. I actually prefer just to get gifts for everyone in the family, but it was still fun. We each were to bring 2 gifts worth no more than $50 each. I ended up with a gift card for Home Depot and some really nice Ralph towels (which I returned because I didn't have room to take them home). Kendra also brought me a really nice pair of leather pants (ooh la la). On the 26th we had breakfast out with my parents and then spent part of the day at Universal. It was a madhouse there! We had fun, though. We actually walked all the way down AND up the stairs from the upper level to the lower level and back. (If you've never been there, we're talking HUNDREDS and HUNDREDS of steps.) NUTS of a walk, but lots of fun. I wanted to spend a day doing something Roy wanted to do because he'd been so patient with all the makeover stuff up to that point. I think my mom was kind of bummed, but she wanted to take me on a tour of the history of Los Angeles and as much as I'd love to spend the day in a car (where I get carsick, a fact she always forgets) listening to her version of how the west was won, I had to pass. That afternoon my sister, Tammy, met us for dinner at Wolfgang Pucks and we went home with her for a few days. We had a nice quiet visit with Tammy. She gave me tons of clothes. It's fun now that we're the same size. I think she was shocked to see me in person. When she showed up Christmas EVe she just couldn't stop hugging me. She's been one of my biggest supporters. She probably gave me 8 pairs of jeans, 4 or 5 skirts, 8 pairs of shorts, and 3 or 4 shirts. Whee! She used to steal clothes out of my closet when we were kids, and now the tables are turned! On the 28th Roy and I took the train from Moorpark to Anaheim and spent the rest of our vacation visiting Mickey. We had a great time. It was amazing to walk all day and all night all over the Magic Kingdom and literally NOT get worn out at all. My feet didn't even hurt! I also finally got the guts up to do the Maliboomer (shoots up into the air 900 feet) and the California Screamin' roller coaster. Turns out I love those rides and dragged Roy on them over and over again until he literally cried Uncle. I used to always feel too fat to go on them...which is silly, I know, but I did. New Years Eve the entire family met us in Disneyland to ring in the new year together. It was a lot of fun, although it ws totally nuts. As much as I love my nieces and nephews, I truly do not think I want to do Disneyland with six kids ever again. Maybe one or two at a time...but six was too many! We had a good time, though, and it was great to ring in the new year with 50,000 of our closest friends! We then had a few more days alone in Disneyland and California Adventure. Wednesday I even got into the Hot Seat on Who Wants to be a Millionaire in California Adventure. It's just like the show (they even film it) except you win prizes instead of money. I lost the grand prize (a cruise to the Bahamas) by two freaking questions! It's true, though, your mind goes totally blank in the situation. It was fun. I got some pins, a shirt, and a hat. I also got to sit in front of about 300 people and show off my big brain with such stellar facts as which stooge was known a " Porcupine " , that Webster made the commemorating speech on the 200th anniversary of the landing at Plymouth Rock, and a Carnotaur was the bad guy in the movie " Dinosaur. " If only I hadn't had a total brain fart on the question about the longest monarchy in history...Japan, DUH, I might be heading for the Bahamas this summer! DAMN! Friday a friend picked us up for a great meal and a drive to the airport. That was really really sweet of her. It was much nicer than Subway and a long train ride back to Burbank. We got home last night at 1:00 a.m. and today has been unpacking, getting the dogs, restocking the fridge, and answering tons of email. Too spite concerns that this trip would disappoint (as so many family trips before have) I really really had a great time. I said at one point that I felt like Cinderella...I've never received so much attention from my family. Roy commemorated that by buying me this really neat Cinderella shirt. He is my prince Charming. When I stepped on the scale this morning to survey the damage I had gained...NOTHING! In fact, I lost a pound so now I'm down to 127, which is 3 pounds below my goal weight! ~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~`~` Tory Klementsen, MCP A+ Career and Technology Educator The successful person will do things that the unsuccessful person will not. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 It totally gave me the effect of being braver. In fact while I was in California none of my body image issues came into light at all. I think it was a combination of being completely someplace else, even though we've visited many many times, and the makeover. I felt like someone else other than me, in a strange kind of way. I swear I strutted at times, one day even wore a mini skirt and small top (and judging by the picture didn't even look half bad...in fact looked like I dress that way all the time). I had always been terrified of going on the roller coaster, and almost went on the Maliboomer last time, but just as they snappped the safety harness on my husband I chickened out and ran off, leaving him to go on it alone. By the end he was sorry he'd gotten me to go ont those rides because I wanted to ride again and again! Re: I'm back! Wow Tory! Sounds like you had an absolute blast!! I have never been to Disneyland, I hopw to get there some day!! Doesn't conquering your weight have and effect on you of giving you more bravery? I wonder why that is?..... Semalee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2003 Report Share Posted January 5, 2003 In a message dated 1/5/2003 4:28:56 PM Eastern Standard Time, SteigGirl2@... writes: > When I stepped on the scale this morning to survey the damage I had > gained...NOTHING! In fact, I lost a pound so now I'm down to 127, which > is 3 pounds below my goal weight! > Absolutely Awesome, Tory!!! I, myself, could LIVE at Disneyland... but that's the native Californian in me <g>. -Crys- (Lifetimer since August 1995) WW to date: 178.6/ 140.2 / 140Â Â (-38.4) Weight in 2003: 139.6 / 140.2 / 130 (+0.6) Well, the day has just begun and I'm already running late. With too many Irons in the fire and too much on my plate. I'd be pulling out my hair if I could just get one had free, And I'd stop the world if I could find the key! What I see is telling me the worlds gone crazy. But what is real says God's still on his throne. What I need is to remember one thing: That the Lord of the gentle breeze is Lord of the rough and tumble. And He is the King of the jungle! - Curtis Chapman- Quote Link to comment Share on other sites More sharing options...
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