Guest guest Posted March 26, 2000 Report Share Posted March 26, 2000 You will mourn every time there is another loss. It's normal. Been there, too many times to count. Hugs to you AMV MCK-LAZ wrote: > > > > Hi there everyone...what a stressful few weeks we have had here! As > some of you know my knee was broken and I have been layed up for almost > five weeks. Good news on that is the bones are healing and I am walking > (sort of) I had a ton of messgages to go through there were about 700 in > my folder. I am glad to be caught up and sorry I missed so much. > During my time away had another hearing test and has lost > 10-20db through the ranges. We also received kidney results back that > are showing him way out of wack again and his symptoms seem to be > getting worse. It is a strange thing that even a year ago when all of > s difficulties were begining to be diagnosed we were told his > loss would likely be degeneritive and I thought I was ready for that. > Last October when we saw his next drop (10-15db) I was sad again but > back up and fighting in just a few days and this time the saddness and > sense of being overwhellmed is holding on so long. Perhaps partly > because I have been away fromt he support of the list and perhaps partly > because the kidney results came within days of the hearing test...I am > not sure just why. > So looking for some help to get back up on my feet and to put everything > back in perspective. > ~ and 's Mom > > ------------------------------------------------------------------------ > Good friends, school spirit, hair-dos you'd like to forget. > Classmates.com has them all. And with 4.4 million alumni already > registered, there's a good chance you'll find your friends here: > http://click./1/2623/1/_/440511/_/954120832/ > ------------------------------------------------------------------------ > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2000 Report Share Posted March 26, 2000 Hi there everyone...what a stressful few weeks we have had here! As some of you know my knee was broken and I have been layed up for almost five weeks. Good news on that is the bones are healing and I am walking (sort of) I had a ton of messgages to go through there were about 700 in my folder. I am glad to be caught up and sorry I missed so much. During my time away had another hearing test and has lost 10-20db through the ranges. We also received kidney results back that are showing him way out of wack again and his symptoms seem to be getting worse. It is a strange thing that even a year ago when all of s difficulties were begining to be diagnosed we were told his loss would likely be degeneritive and I thought I was ready for that. Last October when we saw his next drop (10-15db) I was sad again but back up and fighting in just a few days and this time the saddness and sense of being overwhellmed is holding on so long. Perhaps partly because I have been away fromt he support of the list and perhaps partly because the kidney results came within days of the hearing test...I am not sure just why. So looking for some help to get back up on my feet and to put everything back in perspective. ~ and 's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2000 Report Share Posted March 26, 2000 Dennis Eggerling wrote: > > > , > I'm sorry to hear about 's loss. It has to be difficult to > deal with. My daughter was profound from the start, and so far nothing > else has crept into the picture. Can they do anything to help his > kidneys? I'll keep all of you in my thoughts and prayers. > > Hugs, > > is suffering form Alsport Syndrome, so as far as the kidney goes it is mostly just waiting to see how quickly or slowly the kidney loss will progress. Inthe future we may be looking at transplant but still there are cases where the new kidney is still affected and basiclly you start over formt he begining. For now that is in the future, but it seems so overwhellming to get allthe news at once. It must have been hard for you to see a profound loss on the audiogram that first time, I know for me even to see the moderate to moderately severe was a shock. How old was your daughter when you had her first tested and how old is she now? Thanks for the support! ~ and ' Mom > ------------------------------------------------------------------------ > Good friends, school spirit, hair-dos you'd like to forget. > Classmates.com has them all. And with 4.4 million alumni already > registered, there's a good chance you'll find your friends here: > http://click./1/2623/1/_/440511/_/954123866/ > ------------------------------------------------------------------------ > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2000 Report Share Posted March 26, 2000 > it is nice to know others have been there and others have mourned also, and that it is Okay! We've been there too, and I agree 100% with in that you mourn each loss. In 9 more days we will celebrate the 1 year anniversary of his CI surgery, but the year before that was certainly rocky in that every time JD was in the sound booth, at least 6 times that year, we found what little residual hearing he had was slipping away from him. Those on this list who knew me then will vouch that I was a wreck the last few times it happened. It's certainly one thing that doesn't get easier with practice. I hope you continue to heal and that you are able to find the answers you're looking for. If not, remember our collective shoulders are here for you to lean on, or cry on should you need to. Hugs, Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2000 Report Share Posted March 26, 2000 I don't think any parent actually gets used to the fact that some of the hearing their child does have is slipping away. My family didn't understand my reaction when Adam's hearing dropped 20 db over 1 month. Just thinking that now there is more speech and environmental sounds he will not hear even forget he ever heard broke my heart. You are not alone and aren't over reacting! Here is to hoping your leg heals well things fall into place! You are in my thoughts! Take Care, Nikki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2000 Report Share Posted March 26, 2000 - I, too, send my support and sympathy...it is always difficult to continue to muster the strength when you feel overwhelmed on a fairly constant basis...sometimes I think to myself... " I just don't way to play this game anymore " but, you keep going because you know that your little ones depend on your strength and courage to carry on in their behalf. I remember when I was told that had lost all of her residual hearing, I felt like I was reliving a nightmare all over again. It also seems like the bad news comes in clumps...we never have the luxury of dealing with one thing at a time! I think just being overwhelmed makes it a little harder to bounce back time and time again. Hang in there...my thoughts are with you and your family. Jeane Struggling Hi there everyone...what a stressful few weeks we have had here! As some of you know my knee was broken and I have been layed up for almost five weeks. Good news on that is the bones are healing and I am walking (sort of) I had a ton of messgages to go through there were about 700 in my folder. I am glad to be caught up and sorry I missed so much. During my time away had another hearing test and has lost 10-20db through the ranges. We also received kidney results back that are showing him way out of wack again and his symptoms seem to be getting worse. It is a strange thing that even a year ago when all of s difficulties were begining to be diagnosed we were told his loss would likely be degeneritive and I thought I was ready for that. Last October when we saw his next drop (10-15db) I was sad again but back up and fighting in just a few days and this time the saddness and sense of being overwhellmed is holding on so long. Perhaps partly because I have been away fromt he support of the list and perhaps partly because the kidney results came within days of the hearing test...I am not sure just why. So looking for some help to get back up on my feet and to put everything back in perspective. ~ and 's Mom ------------------------------------------------------------------------ Good friends, school spirit, hair-dos you'd like to forget. Classmates.com has them all. And with 4.4 million alumni already registered, there's a good chance you'll find your friends here: http://click./1/2623/1/_/440511/_/954120832/ ------------------------------------------------------------------------ All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
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