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Re: Petra's Biopsy

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ohh waaaah.. I'm so sorry you have to go through that again

hope this time you get the information you need

Louise

> Petra's Biopsy

>

>

> Hi every one,

>

>

>

> I hope every one is doing their best.

> We just received news That Petra's biopsy is contaminated they

> said that we were so close to finding out.

> Well I guess we start from scratch, now that I'am use to waiting

> i guess thats alright. Petra is the one I worry about,

> not only does she bleed easily she takes and long time to heal

> and then scars. This also means another full day

> trip to Toronto. Sorry for venting, I thought we were almost

> through this.

>

>

> Thanks for reading

>

> please take care & God Bless

>

>

> & Petra

>

>

>

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,

I am sorry that this sample was corrupted. I urge you to get this sample

taken elsewhere, as this is not the first time this has happened at that

hospital. I have heard from many families with the same complaint. One

entire family I know of submitted not only skin samples, but muscle

biopsies, mouth swabs, etc. from members all over Ontario and other

provinces as well....and after three years of waiting for a result, have yet

to hear anything. It is believed that the samples were lost and no one is

willing to admit it! There are some doctors there who seem to using the

samples for their own purposes, and this is perhaps what happened to Petra's

sample. I furnished you with the name of our medical board member who is

happy to see you and take a sample, I am sure. I understood that the sample

was taken in May, am I wrong? There is no waiting time to wait for approval

for our healthcare plan to send it to Seattle, so you might want to

investigate why this sample was not sent immediately. When our doctor takes

a sample, it goes to Seattle that day.

Jill

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Hi Jill could you please go ahead and send that information just incase. I

just don't want to step on any toes.

Mybe you don't know this but I got this info from Seattle them selves. Sue

Ginley Introduced me to Pepin

who wrote me write away to tell what was going on. I feel like a rock that

has just been thrown into space

and there is no way to get back to earth, meaning getting the results

needed. Sick Kids has not even called me back to tell me this and its been

since Sept. 20 when they were faxed about this.

I hope that you have been well Jill,

Re: Petra's Biopsy

> ,

>

> I am sorry that this sample was corrupted. I urge you to get this sample

> taken elsewhere, as this is not the first time this has happened at that

> hospital. I have heard from many families with the same complaint. One

> entire family I know of submitted not only skin samples, but muscle

> biopsies, mouth swabs, etc. from members all over Ontario and other

> provinces as well....and after three years of waiting for a result, have

yet

> to hear anything. It is believed that the samples were lost and no one is

> willing to admit it! There are some doctors there who seem to using the

> samples for their own purposes, and this is perhaps what happened to

Petra's

> sample. I furnished you with the name of our medical board member who is

> happy to see you and take a sample, I am sure. I understood that the

sample

> was taken in May, am I wrong? There is no waiting time to wait for

approval

> for our healthcare plan to send it to Seattle, so you might want to

> investigate why this sample was not sent immediately. When our doctor

takes

> a sample, it goes to Seattle that day.

>

> Jill

>

>

>

>

>

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Thanks, Doris, Blessing to you too.

Re: Petra's Biopsy

> i think you have a right to vent...unbelievable that that should happen. i

> hope you can get it done soon and done right.

> blessings doris

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

>

>

>

>

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Hi Lorraine, We are in Hastings Ont. Which is half an hr east of

borough

We are in between Bellville and borough. Do you go to Sick kids Too?

Petra's Biopsy

>

>

> > Hi every one,

> >

> >

> >

> > I hope every one is doing their best.

> > We just received news That Petra's biopsy is contaminated they said

that

> we were so close to finding out.

> > Well I guess we start from scratch, now that I'am use to waiting i

guess

> thats alright. Petra is the one I worry about,

> > not only does she bleed easily she takes and long time to heal and then

> scars. This also means another full day

> > trip to Toronto. Sorry for venting, I thought we were almost through

> this.

> >

> >

> Thanks for reading

> >

> please take care & God Bless

> >

> >

> & Petra

> >

> >

> >

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Thanks Louise, We Hope that everything is well with you.

Petra's Biopsy

> >

> >

> > Hi every one,

> >

> >

> >

> > I hope every one is doing their best.

> > We just received news That Petra's biopsy is contaminated they

> > said that we were so close to finding out.

> > Well I guess we start from scratch, now that I'am use to waiting

> > i guess thats alright. Petra is the one I worry about,

> > not only does she bleed easily she takes and long time to heal

> > and then scars. This also means another full day

> > trip to Toronto. Sorry for venting, I thought we were almost

> > through this.

> >

> >

> > Thanks for reading

> >

> > please take care & God Bless

> >

> >

> > & Petra

> >

> >

> >

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Where are you located in Canada? I am near Stratford.

Lorraine

Petra's Biopsy

> Hi every one,

>

>

>

> I hope every one is doing their best.

> We just received news That Petra's biopsy is contaminated they said that

we were so close to finding out.

> Well I guess we start from scratch, now that I'am use to waiting i guess

thats alright. Petra is the one I worry about,

> not only does she bleed easily she takes and long time to heal and then

scars. This also means another full day

> trip to Toronto. Sorry for venting, I thought we were almost through

this.

>

>

Thanks for reading

>

please take care & God Bless

>

>

& Petra

>

>

>

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Hi ,

I will send you the doctors name and number. She is kind, gentle and

wonderful. Never feel that you are stepping on anyone's toes when it comes

to medical care. You have a right to answers and proper treatment and you

have to sometimes, speak up and shout to be heard.

Jill

Hi Jill could you please go ahead and send that information just incase. I

just don't want to step on any toes.

Mybe you don't know this but I got this info from Seattle them selves. Sue

Ginley Introduced me to Pepin

who wrote me write away to tell what was going on. I feel like a rock that

has just been thrown into space

and there is no way to get back to earth, meaning getting the results

needed. Sick Kids has not even called me back to tell me this and its been

since Sept. 20 when they were faxed about this.

I hope that you have been well Jill,

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& Petra,

Don't worry about venting...that's what we're hear for. Say what you need to

get out. We can all identify with medical setbacks that are caused by

something other than our medical condition. With having so much to deal with

it's bound to happen..just wish it hadn't happened with THIS particular test.

I know it's hard to wait...but know that we're praying for you both during

this time of uncertainty.

Love y'all, Janet PS - GIB'M HELL!! : )

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