Guest guest Posted March 19, 1999 Report Share Posted March 19, 1999 --- >...Sounds like this goes along with my line of thinking about " co-dependency " >theories. I think it's a bunch of sh*t. Sorry 'bout the language, but that >word comes closest to what I really think it is. I'll look up the books. I >don't put much trust in analysts, because from what I've seen they all buy >into the disease theory of love, life and human emotion. They all suck. They >are all more screwed up than anyone else on this planet. (I know, I'm >ranting!) >Anywhom, I really have to find some sources for direction that aren't planted >in their silly theories. I'm a nurse. I know what disease is. Loving >someone, and committing to them, faults & all, is not a disease. Having an >addiction is not a disease, It still comes down to choices. Next thing we >know road rage will be a disease, LOL. >Joy --------------------------------------- Joy, I totally agree with you that " codependency " and other ways of " diseasing " human emotions and behavior are a lot of crap (have you read Stanton Peele's " Diseasing of America " or Kaminer's " I'm Dysfunctional, You're Dysfunctional " ?). However, please try not to be prejudiced against therapists as a whole. A good therapist, who respects your individuality and dignity, can do a world of good. A lousy therapist, who thinks constantly in terms of " pathology " , encourages childlike dependency, and tries to impose his/her viewpoint or style on you as the mark of " wellness " , is just like an AA sponsor -- should be discarded in favor of healthier pursuits. ~Rita -----== Sent via Deja News, The Discussion Network ==----- http://www.dejanews.com/ Easy access to 50,000+ discussion forums ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 1999 Report Share Posted March 19, 1999 Having an > addiction is not a disease, It still comes down to choices. Next thing we > know road rage will be a disease, LOL. Pretty well thought is already. 'Rageoholism'. Ive heard ppl identify as rageoholics, listing it in their " i'm an etc " litany. Pete ---------------------- Grant me the Strength To Change the Things I Can Not Accept PERSONALITY-DISORDERS SUPPORT/INFO LIST: http://rdz.acor.org/athenaeum/lists.phtml?personality-disorders ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 1999 Report Share Posted March 19, 1999 My apologies to anyone I may have offended. Didn't mean to be acerbic or prejudiced. My mistake is in generalizing, and I know that isn't really fair. My opinion was based on the fact that the schools of thought on behaviorism all originate from " old " " modern " theories. Very little new research seems to be forthcoming to support opposing views (like mine) therefore what's coming out of the learning institutes seems to be a bit lopsided. My experiences with the lot have all been bad. Except for an anger management class my husband & I took at our church a few years ago - it was very rewarding. My hubby is back in rehab at this moment. The 'nurse' that did his intake ( I use that term loosely - I think most psych nurses suck too ) was so hateful I wanted to hit him, and I'm usually as gentle as a lamb. <sigh> They don't know how to run these institutions and treat people like people. It's so dismaying. And why is it that every nurse in the psych field is more hateful than a badger in heat? That's one reason I didn't do psych nursing. I can't be mean to people, because they are human. 90% of my patients have problems related to drinking problems (scary huh) I'm a critical care nurse. I hold their hands, talk to them, listen, I don't judge them. I get them the drugs they need so they don't have to DT while healing from a traumatic surgery. THAT'S nursing, not locking doors, doling out cigarrets and acting bitchy- sweet. Any user sees right through that crapola. This egroup is the closest I've ever come to a sane voice on such matters. I'm glad it is here! Joy In a message dated 3/19/99 1:21:23 PM Central Standard Time, railroadrita@my- dejanews.com writes: << --- >...Sounds like this goes along with my line of thinking about " co- dependency " >theories. I think it's a bunch of sh*t. Sorry 'bout the language, but that >word comes closest to what I really think it is. I'll look up the books. I >don't put much trust in analysts, because from what I've seen they all buy >into the disease theory of love, life and human emotion. They all suck. They >are all more screwed up than anyone else on this planet. (I know, I'm >ranting!) >Anywhom, I really have to find some sources for direction that aren't planted >in their silly theories. I'm a nurse. I know what disease is. Loving >someone, and committing to them, faults & all, is not a disease. Having an >addiction is not a disease, It still comes down to choices. Next thing we >know road rage will be a disease, LOL. >Joy --------------------------------------- Joy, I totally agree with you that " codependency " and other ways of " diseasing " human emotions and behavior are a lot of crap (have you read Stanton Peele's " Diseasing of America " or Kaminer's " I'm Dysfunctional, You're Dysfunctional " ?). However, please try not to be prejudiced against therapists as a whole. A good therapist, who respects your individuality and dignity, can do a world of good. A lousy therapist, who thinks constantly in terms of " pathology " , encourages childlike dependency, and tries to impose his/her viewpoint or style on you as the mark of " wellness " , is just like an AA sponsor -- should be discarded in favor of healthier pursuits. ~Rita >> ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 1999 Report Share Posted March 19, 1999 Oh, my Pete. This society is doomed! How outrageous. And I was being facetious. Joy In a message dated 3/19/99 1:47:54 PM Central Standard Time, awatt04@... writes: << Having an > addiction is not a disease, It still comes down to choices. Next thing we > know road rage will be a disease, LOL. Pretty well thought is already. 'Rageoholism'. Ive heard ppl identify as rageoholics, listing it in their " i'm an etc " litany. Pete >> ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 1999 Report Share Posted March 19, 1999 In a message dated 3/20/99 12:52:46 AM Central Standard Time, jfrancey@... writes: << Yeah, I even have the book on Stuart Smalley " which has his diary of dysfunctional adventures as a 12 stepper who belongs to 8 twelve step groups. Hillarious. I saw " Drunks " with , Faye Dunnaway and Calista Lockhart which is in a church basement during an AA meeting. Weird movie. They were all going round and round in circles. Probably accurate for any generic AA meeting. Its on video kids. Cheers, Carol >> I saw part of that movie, it was disturbing, so I changed the channel. Joy ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2001 Report Share Posted August 17, 2001 Dear , I'm 57 and was diagnosed in 1965. No RAI at time of dx. Yearly scans for five years, then declared " cured. " Much to my surprise, I had a recurrence after 17 years. Then I had the RAI. Now it is nineteen years later and I'm still going like the energizer bunny. I have to go hypo soon for a scan and possible treatment. You will probably get to go home this time if you need treatment. I remember feeling like an outcast with my RAI and the nurses being afraid of me, etc. You are too young to give up. You have a lot of years left. Stick around these wonderful people here. You will get great support amd find out answers to all of your questions, even a little humor along the way. You are still the same tough person. Gather those reserves and join us in the fight to conquer this enemy. You can do it. We will be here with you. --- rosehart57@... wrote: > I was dx.,tt 1977. Told I was cured.Had endo. follow me.He did > tgbNever had any other tx.I went to Vanderbilt. Uultra souund foung > 1.5 lymph node.Had two fn biospies, revealed nothing. Had terrible > hypo hell. I was so sick with RAI. Never been that sick! Do not want > to be again.Endo. told me that I have 80% getting it first time? Is > this true? I also had involvement on other side of neck, buut body > scan clean. Doc. wants me back in 6 mons.Is that real soon.I get > terrified just thinking about more RAI. I am 58. Would it not be > better to leave me alone at this age? I was treated worse than an old > dog in the back yard. They cracked the door, and threw in blankets on > the floor. I was so cold,and deathly sick! My reserves seem to have > run out.I have always been tough, buut juust the thought of going > thru all that again is too much. Can anyone assist? Thanks. nancy ===== 1965 TT Well diff mixed pap/foll w/mets to lymph nodes 1982 176 mCi RAI for neck & chest mets Hypoparathyroidism __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2001 Report Share Posted August 17, 2001 Dear , I'm 57 and was diagnosed in 1965. No RAI at time of dx. Yearly scans for five years, then declared " cured. " Much to my surprise, I had a recurrence after 17 years. Then I had the RAI. Now it is nineteen years later and I'm still going like the energizer bunny. I have to go hypo soon for a scan and possible treatment. You will probably get to go home this time if you need treatment. I remember feeling like an outcast with my RAI and the nurses being afraid of me, etc. You are too young to give up. You have a lot of years left. Stick around these wonderful people here. You will get great support amd find out answers to all of your questions, even a little humor along the way. You are still the same tough person. Gather those reserves and join us in the fight to conquer this enemy. You can do it. We will be here with you. --- rosehart57@... wrote: > I was dx.,tt 1977. Told I was cured.Had endo. follow me.He did > tgbNever had any other tx.I went to Vanderbilt. Uultra souund foung > 1.5 lymph node.Had two fn biospies, revealed nothing. Had terrible > hypo hell. I was so sick with RAI. Never been that sick! Do not want > to be again.Endo. told me that I have 80% getting it first time? Is > this true? I also had involvement on other side of neck, buut body > scan clean. Doc. wants me back in 6 mons.Is that real soon.I get > terrified just thinking about more RAI. I am 58. Would it not be > better to leave me alone at this age? I was treated worse than an old > dog in the back yard. They cracked the door, and threw in blankets on > the floor. I was so cold,and deathly sick! My reserves seem to have > run out.I have always been tough, buut juust the thought of going > thru all that again is too much. Can anyone assist? Thanks. nancy ===== 1965 TT Well diff mixed pap/foll w/mets to lymph nodes 1982 176 mCi RAI for neck & chest mets Hypoparathyroidism __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2001 Report Share Posted August 17, 2001 > I was dx.,tt 1977. Told I was cured. Hi . I think many doctors do use the " you're cured " line because they believe that it give us peace of mind so that we can get on with our lives. In reality, thyroid cancer is more like a condition that you have to manage and monitor on an ongoing basis. >Had terrible hypo hell. I was so sick with RAI. Never been that sick! >Do not want to be again. Did your doctor prescribe Cytomel for you to use up until 2 weeks prior to your RAI? If you need a I-131 scan for monitoring your condition, it is possible for your doctor to use a product called Thyrogen instead of you having to go hypo again. Though Thyrogen is not approved to be used for treatment dose of RAI - it is used just for scanning. >Endo. told me that I have 80% getting it first time? Is this true? I don't know - but you could ask your endo the next time you see him. Ask him to explain what particular characteristics of your case suggest the " 80% liklihood of success the first time " . >I also had involvement on other side of neck, but body scan clean. When they did the body scan, did they also check your TG level? What was it? Sometimes it is possible to have a clean scan, but with an elevated TG which is a good indicator for thyca. >Doc. wants me back in 6 mons.Is that real soon. I get terrified just thinking about more RAI. Many folks on this list see their doctor every six months for monitoring of medications & checking for thyca recurrence. Some of us who are at a higher risk of recurrence or have other complications (like low calcium) get to see our doctors even more frequently -I go every 3 months. Just because you see your doctor every six months, doesn't mean that you need to go hypo for a scan that frequently. Doctors have multiple methods to monitor our condition - eg blood work (checking TG), neck exams, neck ultrasounds, chest x-rays. The next time you see your doctor, ask him about what kinds of method he plans to use to monitor your condition & how often. Also, if he wants to do another I-131 scan with a tracer dose of RAI, ask about the option of using Thyrogen and not going off your thyroid pills. Specifically ask him to outline both the advantages and disadvantages of using Thyrogen given your health history >I am 58. Would it not be better to leave me alone at this age? >I was treated worse than an old dog in the back yard. They cracked >the door, and threw in blankets on the floor. I was so cold,and >deathly sick! Hospital staff do try to minimize contact with radioactive patients, but you should still be monitored and cared for at all times. Did you speak to your doctor about the care you received in the hospital? Just because this happened to you once, doesn't mean that it will happen again. >My reserves seem to have run out.I have always been tough, but just >the thought of going thru all that again is too much. Can anyone >assist? We all have days when we feel that all of this is just too much. Thankfully, the ThyCa list is full of folks who have been thru the battles of thyca and have a lot of really good ideas and suggestions on how to make sure you get the very best care possible. Describe your problems/concerns and I'm sure people will offer suggestions. dx pap-Hurthle cell variant, tt 9/99, RAI 100 mCi 12/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2001 Report Share Posted August 17, 2001 > I was dx.,tt 1977. Told I was cured. Hi . I think many doctors do use the " you're cured " line because they believe that it give us peace of mind so that we can get on with our lives. In reality, thyroid cancer is more like a condition that you have to manage and monitor on an ongoing basis. >Had terrible hypo hell. I was so sick with RAI. Never been that sick! >Do not want to be again. Did your doctor prescribe Cytomel for you to use up until 2 weeks prior to your RAI? If you need a I-131 scan for monitoring your condition, it is possible for your doctor to use a product called Thyrogen instead of you having to go hypo again. Though Thyrogen is not approved to be used for treatment dose of RAI - it is used just for scanning. >Endo. told me that I have 80% getting it first time? Is this true? I don't know - but you could ask your endo the next time you see him. Ask him to explain what particular characteristics of your case suggest the " 80% liklihood of success the first time " . >I also had involvement on other side of neck, but body scan clean. When they did the body scan, did they also check your TG level? What was it? Sometimes it is possible to have a clean scan, but with an elevated TG which is a good indicator for thyca. >Doc. wants me back in 6 mons.Is that real soon. I get terrified just thinking about more RAI. Many folks on this list see their doctor every six months for monitoring of medications & checking for thyca recurrence. Some of us who are at a higher risk of recurrence or have other complications (like low calcium) get to see our doctors even more frequently -I go every 3 months. Just because you see your doctor every six months, doesn't mean that you need to go hypo for a scan that frequently. Doctors have multiple methods to monitor our condition - eg blood work (checking TG), neck exams, neck ultrasounds, chest x-rays. The next time you see your doctor, ask him about what kinds of method he plans to use to monitor your condition & how often. Also, if he wants to do another I-131 scan with a tracer dose of RAI, ask about the option of using Thyrogen and not going off your thyroid pills. Specifically ask him to outline both the advantages and disadvantages of using Thyrogen given your health history >I am 58. Would it not be better to leave me alone at this age? >I was treated worse than an old dog in the back yard. They cracked >the door, and threw in blankets on the floor. I was so cold,and >deathly sick! Hospital staff do try to minimize contact with radioactive patients, but you should still be monitored and cared for at all times. Did you speak to your doctor about the care you received in the hospital? Just because this happened to you once, doesn't mean that it will happen again. >My reserves seem to have run out.I have always been tough, but just >the thought of going thru all that again is too much. Can anyone >assist? We all have days when we feel that all of this is just too much. Thankfully, the ThyCa list is full of folks who have been thru the battles of thyca and have a lot of really good ideas and suggestions on how to make sure you get the very best care possible. Describe your problems/concerns and I'm sure people will offer suggestions. dx pap-Hurthle cell variant, tt 9/99, RAI 100 mCi 12/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2001 Report Share Posted August 18, 2001 What is the logic behind some docs using Thyrogen, while others make you go hypo naturally? Debbi (Wash., DC) Age 41 dx pap thyca 5/01 TT 7/01 2 cm tumor/no spread to nodes RAI anyday now > If you need a I-131 scan for monitoring your condition, it is > possible for your doctor to use a product called Thyrogen instead > of you having to go hypo again. Though Thyrogen is not approved > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2001 Report Share Posted August 18, 2001 What is the logic behind some docs using Thyrogen, while others make you go hypo naturally? Debbi (Wash., DC) Age 41 dx pap thyca 5/01 TT 7/01 2 cm tumor/no spread to nodes RAI anyday now > If you need a I-131 scan for monitoring your condition, it is > possible for your doctor to use a product called Thyrogen instead > of you having to go hypo again. Though Thyrogen is not approved > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2001 Report Share Posted August 18, 2001 Thryogen is fairly new, and initially the protocol for using it was to have two clean scans first, the traditional withdrawal (hypo) method - then to be used for periodic scanning. More docs are using it right off the bat in some cases, or after one clean withdrawal scan. In the initial clinical trials, folks having a scan with thyrogen sometimes had a false negative (indicating they were clean when they weren't) - as more history is gained with it, the protocols are changing. On the www.thyrogen.com web site - it indicates that its use is appropriate where Tg is undetectable on supression, or for folks who won't go hypo, or for whom its contraindicated. The initial clinical trials showed: " Across the two clinical studies, the Thyrogen scan failed to detect remnant and/or cancer localized to the thyroid bed in 16% (20/124) of patients in whom it was detected by a scan after thyroid hormone withdrawal. In addition, the Thyrogen scan failed to detect metastatic disease in 24% (9/38) of patients in whom it was detected by a scan after thyroid hormone withdrawal. " Thyrogen is not the perfect tool for every thycan, but it can be a useful tool in monitoring a person for recurrence going forward, combined with Tg tests on supression, and further followups with your endo. barb > What is the logic behind some docs using Thyrogen, while others make you go > hypo naturally? > > Debbi (Wash., DC) > Age 41 > dx pap thyca 5/01 > TT 7/01 > 2 cm tumor/no spread to nodes > RAI anyday now > > > If you need a I-131 scan for monitoring your condition, it is > > possible for your doctor to use a product called Thyrogen instead > > of you having to go hypo again. Though Thyrogen is not approved > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2001 Report Share Posted August 18, 2001 Thryogen is fairly new, and initially the protocol for using it was to have two clean scans first, the traditional withdrawal (hypo) method - then to be used for periodic scanning. More docs are using it right off the bat in some cases, or after one clean withdrawal scan. In the initial clinical trials, folks having a scan with thyrogen sometimes had a false negative (indicating they were clean when they weren't) - as more history is gained with it, the protocols are changing. On the www.thyrogen.com web site - it indicates that its use is appropriate where Tg is undetectable on supression, or for folks who won't go hypo, or for whom its contraindicated. The initial clinical trials showed: " Across the two clinical studies, the Thyrogen scan failed to detect remnant and/or cancer localized to the thyroid bed in 16% (20/124) of patients in whom it was detected by a scan after thyroid hormone withdrawal. In addition, the Thyrogen scan failed to detect metastatic disease in 24% (9/38) of patients in whom it was detected by a scan after thyroid hormone withdrawal. " Thyrogen is not the perfect tool for every thycan, but it can be a useful tool in monitoring a person for recurrence going forward, combined with Tg tests on supression, and further followups with your endo. barb > What is the logic behind some docs using Thyrogen, while others make you go > hypo naturally? > > Debbi (Wash., DC) > Age 41 > dx pap thyca 5/01 > TT 7/01 > 2 cm tumor/no spread to nodes > RAI anyday now > > > If you need a I-131 scan for monitoring your condition, it is > > possible for your doctor to use a product called Thyrogen instead > > of you having to go hypo again. Though Thyrogen is not approved > > > > > > > Quote Link to comment Share on other sites More sharing options...
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