Re: side effects of radiation

[Guest guest]

How old were your children? We have a 6 week old that we are very concerned

about re radiation and leaving her without her mom for such an extended

period ... How long did you stay away from them?

> -----Original Message-----

> From: C & B Sabal

> I would have been allowed to go home after my 100mCi dose if I didn't have

> small children at home.

>

> Barb

[Guest guest]

Hey Jeffery-

I have a two year old & just received 150 mci of RAI. I stayed in the

hospital for three days & then I stayed at a friends house for an additional

three days just to be safe. That was definetly the worse part of the whole

thing - being away from my little guy for that long!! )

Kristie

dx Pap 2/01

TT with lymph involvement 3/01

More nodes removed 7/01

RAI 9/01

RE: side effects of radiation

> How old were your children? We have a 6 week old that we are very

concerned

> about re radiation and leaving her without her mom for such an extended

> period ... How long did you stay away from them?

>

> > -----Original Message-----

> > From: C & B Sabal

>

> > I would have been allowed to go home after my 100mCi dose if I didn't

have

> > small children at home.

> >

> > Barb

>

>

>

> For more information regarding thyroid cancer visit www.thyca.org. If you

do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank

email to thyca-unsubscribe

>

>

>

[Guest guest]

Jeffery-

When I was diagnosed & had my TT, our baby was 10 months old. She was 1 by

the time I had my Rad Rx. Our boys were aged 5, 4 and 4 at the time as

well. I was very concerned about holding our baby who was SUCH a mammas

girl then. I had weaned her right before I had surgery. I was advised by

the nuc med guys to avoid holding her at neck level for more than 15 minutes

or so at a shot until I was less radioactive. For many, I think that's just

a few days. For me, I was still " hot " when I went in for my post-ablation

scan one week after ablation...that Geiger counter was singin'! (I had asked

them to check me w/ the Geiger..it's not something they typically do). In

light of that, I went a second week without snuggling the stuffing out of

the baby and the boys. Probably overkill, but I didn't want to take any

chances. FYI- I think the reason I was hot for so long had to do w/ the

fact that I'll bet I had a pretty good sized remnant left over from surgery

that took up a lot of iodine. Next time won't be so bad.

You asked how long I stayed away from the kids....it went like this for me.

Had RAI on a Thursday, discharged from hospital Friday AM...went to a hotel

Fri & Sat nights and came home Sunday afternoon. THIS time, if I have to

have RAI again...I'm going to lock myself in our newly finished guest room

in the basement for a couple of days and eat take-out!

Have you read the info at the thyroid manager site?

(http://www.thyroidmanager.org/Chapter18/18-cancerframe.htm)

It gives radiation precautions that seem reasonable.

Lastly, I have complete empathy for your wife. It's tough enough having a

new baby at home without having it complicated by thyca and all those visits

to the docs. Where is she at w/ all of this? Has she had her surgery yet?

Let me know if I can help in any other way.

Barb

TT Jan 01

~3 cm pap thyca

RAI 100mCi Mar 01

RE: side effects of radiation

How old were your children? We have a 6 week old that we are very

concerned

about re radiation and leaving her without her mom for such an extended

period ... How long did you stay away from them?

> -----Original Message-----

> From: C & B Sabal

> I would have been allowed to go home after my 100mCi dose if I didn't

have

> small children at home.

>

> Barb

[Guest guest]

My side effects were the following:

Sore jaw line - everything was tender from neck to saliva glands.

Burned tongue - couldn't taste for about 1 month

My hair fell out - from being hypo (not RAI)

Nauseated from the RAI for about 5 days.

Extremely tired!

Headache

I had these during my last RAI which was 150 mCi's. YMMV.

in Michigan

Papillary ThyCa - PT 3/1/00, TT 4/12/00

RAI 100 mCi's 5/26/00

2nd RAI 150 mCi's 1/19/01

Synthroid .150 mg

side effects of radiation

> What are the known side effects of receiving high doses of I-131? And

secondly what is so significant with the number 29.9? Why not 30 or 29?

>

> Bergeron

> elizabetholson0@...

> that last 0 is a zero

> pap. thyca 11/00 (both lobes and extensive lymph nodes)

> tt 12/00, RAD 175mCi 1/01

> total body scan one week later with residual activity in the neck

> TG 1.4 5 months after RAI. TG 2.4 3 months later that is current as of 2

weeks ago

> TSH 2.32, T3T4 1.4, TG antibodies <2, TG 2.4

>

>

> --

>

> On Sat, 29 Sep 2001 14:22:37

> djkoplen wrote:

> >Kim,

> >

> >I had 29.9 mCi. It was a hard decision for me to make regarding the

dosage

> >level. I nearly opted for 100 mCi, but weighing the side effects of the

> >larger dose with my positive prognosis, I took the smaller dose. In

addition

> >to the advice I received here, I consulted with three doctors locally.

The

> >docs here suggest at least 100 mCi.

> >

> >

> >>

> >

> >

> >

> >

> >

> >----

> >

> >

> >

> >

[Guest guest]

I had the same, jaw pain (sometimes horrible), swelling and hair breaking

off, it lasted for about 8 months post RAI, 149 mCi. It's been 1 1/2 years

now since my RAI and from time to time I still have jaw swelling/pain, my

dr's tell me that my salivary glands are most likely permanently damaged and

I will probably always have problems with them. But I'll deal with it, my

last scan was clean!!!

Lynn in New York

PT 1/00, TT 3/00, RAI 5/00, clean scan 9/27/01!

[Guest guest]

,

I have had some similar symptoms with my jaws. I had 150mci RAI. The

day after receiving the RAI, I woke up looking like I had had my

wisdom teeth removed, big time chipmunk cheeks, swollen from the RAI.

The swelling went down with ice and tylenol helped with the

discomfort, but my jaws have ached since. I assume that this will

eventually go away, it's been 6 weeks since my RAI. Today, I noticed

that my hair was falling out, only proof that this takes quite a bit

of time to recover from.

Best of luck and good wishes to you!

pap/fol thyca

pt 05/01, tt 06/01

RAI 150mci 9/01

Synthroid 125 mg

> >> >Kim,

> >> >

> >> >I had 29.9 mCi. It was a hard decision for me to make regarding

the

> >dosage

> >> >level. I nearly opted for 100 mCi, but weighing the side

effects of the

> >> >larger dose with my positive prognosis, I took the smaller

dose. In

> >addition

> >> >to the advice I received here, I consulted with three doctors

locally.

> >The

> >> >docs here suggest at least 100 mCi.

> >> >

> >> >

> >> >>

> >> >

> >> >

> >> >

> >> >

> >> >

> >> >----

> >> >

> >> >

> >> >

> >> >

[Guest guest]

,

My gums bleed for about a month after RAI, my face hurt, my hair broke off,

and I had nausea. Try to keep your salivary glands working by eating lemon

drops to make your mouth water and the doctor can give you something for your

nausea.

Hang in there.

Toni

(CT)

[Guest guest]

In my experience, intermittent pain and or swelling of the parotid glands

(which are in the cheeks and the angle of the jaw) and the sub-mandibular

glands (below the jaw) are the most common long term side effect of RAI.

Usually people have pain or swelling for a day or two that comes and goes

in intervals of weeks or months.

Jeff

At 06:39 PM 10/21/2001 -0400, you wrote:

>My endo said if these problems were from rai it would simply mean dry

>mouth. It is so frustrating. It has been 9 months since my first dose of

>rai (175 mCi) and still experience discomfort. My question is are there

>Dr.'s that will actually conceed to this being side effects from rai?

>

> Bergeron

A. , MD

Nuclear Medicine, A-72 (Fax)

Albany Medical Center (Beeper)

Albany, NY 12208 A@...

[Guest guest]

Is this caused by damaged salivary glands?

--

On Sun, 21 Oct 2001 18:51:20

A. , MD wrote:

>In my experience, intermittent pain and or swelling of the parotid glands

>(which are in the cheeks and the angle of the jaw) and the sub-mandibular

>glands (below the jaw) are the most common long term side effect of RAI.

>Usually people have pain or swelling for a day or two that comes and goes

>in intervals of weeks or months.

>

>Jeff

>

>At 06:39 PM 10/21/2001 -0400, you wrote:

>>My endo said if these problems were from rai it would simply mean dry

>>mouth. It is so frustrating. It has been 9 months since my first dose of

>>rai (175 mCi) and still experience discomfort. My question is are there

>>Dr.'s that will actually conceed to this being side effects from rai?

>>

>> Bergeron

>

> A. , MD

>Nuclear Medicine, A-72 (Fax)

>Albany Medical Center (Beeper)

>Albany, NY 12208 A@...

>

>

>

[Guest guest]

At 06:54 PM 10/21/2001 -0400, you wrote:

>Is this caused by damaged salivary glands?

Yes

Jeff

A. , MD

Nuclear Medicine, A-72 (Fax)

Albany Medical Center (Beeper)

Albany, NY 12208 A@...

[Guest guest]

I have serious pain in these glands almost all the time (especially

about 3 hours after eating) and I had my RAI (206 mci) last December. I

am beginning to think it's not going to get better and as ther's a good

chance I will need more RAI I am VERY worried about it getting even

worse.

" A. , MD " wrote:

>

> In my experience, intermittent pain and or swelling of the parotid

> glands

> (which are in the cheeks and the angle of the jaw) and the

> sub-mandibular

> glands (below the jaw) are the most common long term side effect of

> RAI.

> Usually people have pain or swelling for a day or two that comes and

> goes

> in intervals of weeks or months.

>

> Jeff

>

> At 06:39 PM 10/21/2001 -0400, you wrote:

> >My endo said if these problems were from rai it would simply mean dry

>

> >mouth. It is so frustrating. It has been 9 months since my first dose

> of

> >rai (175 mCi) and still experience discomfort. My question is are

> there

> >Dr.'s that will actually conceed to this being side effects from rai?

> >

> > Bergeron

>

> A. , MD

> Nuclear Medicine, A-72 (Fax)

> Albany Medical Center (Beeper)

> Albany, NY 12208 A@...

>

>

>