Re:UAE/HYSTERECTOMY

[Guest guest]

Dear Group,

I have been a member of this group since January 2000, and I am very thankful

for all the giving of information, thoughts, and feelings, that got me

through some rough months. Your sharing made me much more knowledgeable,

caring, sad and happy at times, and lets not forget the letters that made me

laugh on days when I needed to!!

I had also hoped not to go the hysterectomy route, especially since I was

feeling so good after the UAE (April 2000). Unfortunately, my fibroids had

started to grow again this past spring and I am right back to where I

started. The UAE procedure blocked two arteries in the uterus with pellets,

but because I had two other arteries opened blood was able to flow to the

fibroid making it grow again. If I was ready for menopause the tumor would

have possibly started to shrink...but I am still getting my period.

I often wonder, if a UAE is performed before the fibroids reach the size of a

grapefruit, would we have a better chance in shrinkage than waiting it out?

I know for me that I had waited and suffered so long that I was almost ready

to have the hysterectomy right away. I do not have any regrets regarding the

UAE procedure (April 2000). If this surgery or any other can stop fibroid

growth ...than GO FOR IT! I am 52, had fibroids since I was in my thirties,

thyroid problem stated in my early forties (I'm on synthroid), at the age of

49, one of my fibroids started to grow inside and outside the uterus and it

was then and is now really starting to make me feel ill.

I have two grown children, a loving husband, I just want to feel " normal " and

truly want to start to enjoy the quality of life again!! I am scheduled for

a hysterectomy on October 26, 2001.

To all those who keep sharing their information, thoughts, feelings, and

prayers . ...

I wish you health, and happiness, and I pray for peace in your life and so

many others if this world.

As always thank you Carla, Marsha, my friend, (will e-mail you soon) and

so many others for all the time and input that you give to this group.

Janet

[Guest guest]

Hi again =I figure if you already have kids, or you don't plan on having

any.....what the heck eliminate the problem. My Dr. is a down to earth

lady(peg w/ twins!)and she also advises go for it-she says they usually

do come growing again anyway so why not rid ourselves of future

headaches!

I'm 46, and my periods are so heavy for years now-even with maxipads &

tampons I have to hit the b-room every 20 min.! I won't miss it a bit!

Think of the clothes, sheets, monthly supplies...talk about a savings!

Geez-I quit smoking one year ago and can pay my taxes on that

savings-now I think I'll save for a getaway:) There is always a good

side with everything.

Sharon

[Guest guest]

Hi Sharon,

As I stated there are days when I really needed to laugh...and it's " special'

people like you that look at the bright side of life and give me some kind of

encouragement!

Are you scheduled to have a hysterectomy?

Janet

In a message dated 09/22/2001 10:31:24 PM Eastern Daylight Time,

sdPrudhomme@... writes:

<< Hi again =I figure if you already have kids, or you don't plan on having

any.....what the heck eliminate the problem. My Dr. is a down to earth

lady(peg w/ twins!)and she also advises go for it-she says they usually

do come growing again anyway so why not rid ourselves of future

headaches!

I'm 46, and my periods are so heavy for years now-even with maxipads &

tampons I have to hit the b-room every 20 min.! I won't miss it a bit!

Think of the clothes, sheets, monthly supplies...talk about a savings!

Geez-I quit smoking one year ago and can pay my taxes on that

savings-now I think I'll save for a getaway:) There is always a good

side with everything.

Sharon >>

[Guest guest]

Dear CB,

Thank you for your e-mail...sharing thoughts, prayers, and information is

very helpful!

Janet

In a message dated 09/23/2001 3:27:52 AM Eastern Daylight Time,

CountryBride@... writes:

<< Dear Janet,

I am sorry to hear that after your UAE your fibroid is coming back and

is making you feel ill. I only hope that the hysterectomy will go well

for you and that your recovery will be a very good one. Don't rush the

recovery, just let your body take the time it needs to heal itself.I

wish you good luck and best wishes and prayer to you and your family.

CB

>>

[Guest guest]

Hi Dottie,

Thank you for your offer...believe me ..I will keep your e-mail address in my

address book...I am a little nervous, but because I do know what it felt to

feel healthy after the UAE (even if it was for only one year). I am looking

forward to the hyst.

In a message dated 09/23/2001 12:05:48 PM Eastern Daylight Time,

dottie_123@... writes:

<< Janet,

I had a hysterectomy on August 13, if you have any questions I will

be glad to answer them.

Dottie

>>

[Guest guest]

Hi Jill,

I was also under the impression that there were only two arteries that led to

a fibroid, but according to my GYN there must have been more than two because

blood found a way back to the fibroid to make it start growing again.

I need to share some information with you and the group...I am part of a

study for UAE's at Wood Hospital in New Jersey. My GYN who

recommended the procedure works with a Radiologist. After the UAE was

performed (April 2000), I was closely monitored.

In December 2001 I began spotting off and on and after numerous MRI's,

Ultrasounds, (which found a few cysts on my ovaries) I was told I needed a

D & C. The results in February were not that great. The fibroid had only

shrunk from a grapefruit size to a navel orange.

In May 2001, I started to bleed (somedays light and somedays very heavy) and

did not stop until July 2001. Right now I would bet that little " devil " is

the size of a cantaloupe. I am back to feeling extremely tired, cannot and

do not even feel like walking (and that is an exercise I love to do)! All I

can tell you is that this fibroid is taking all my nourishment and energy

from my body and I cannot enjoy life this way.

What I love about this " Wonderful Doctor " is that she did not rush me into to

making a decision. She talked to me in August, and then again in September,

and when I was ready, we set up the appointment for October (by the way

because my blood count fell so low..she also had to put me on an iron pill).

I hope that someday, by the time my daughter is in her forties, that there

will be a " Choice " for her to make and hopefully by then it won't have to be

a hysterectomy.

As always, please keep sharing your information, knowledge, thoughts with

others, I know it really it makes a difference.

Peace to all!

Janet

In a message dated 09/23/2001 7:13:15 PM Eastern Daylight Time,

mcwhinnie@... writes:

<< Hi. I hope everything will goes well for you when you have your surgery.

I'm

sorry to hear this has become necessary for you but I'm sure your positive

attitude will see you through this and will speed your recovery.

I couldn't help being curious about what you said about two arteries being

blocked and two others being open. I guess I've been under the impression

there are only two branches of the uterine artery - is your case very

unusual? Was there any medical explanation for what happned to you and why?

Hope you don't mind being asked this.

Again, hope all goes well for you on the 26th.

Sincerely,

Jill >>

[Guest guest]

Hi. I hope everything will goes well for you when you have your surgery. I'm

sorry to hear this has become necessary for you but I'm sure your positive

attitude will see you through this and will speed your recovery.

I couldn't help being curious about what you said about two arteries being

blocked and two others being open. I guess I've been under the impression

there are only two branches of the uterine artery - is your case very

unusual? Was there any medical explanation for what happned to you and why?

Hope you don't mind being asked this.

Again, hope all goes well for you on the 26th.

Sincerely,

Jill

Re:UAE/HYSTERECTOMY

> Dear Group,

>

> I have been a member of this group since January 2000, and I am very

thankful

> for all the giving of information, thoughts, and feelings, that got me

> through some rough months. Your sharing made me much more knowledgeable,

> caring, sad and happy at times, and lets not forget the letters that made

me

> laugh on days when I needed to!!

>

> I had also hoped not to go the hysterectomy route, especially since I was

> feeling so good after the UAE (April 2000). Unfortunately, my fibroids had

> started to grow again this past spring and I am right back to where I

> started. The UAE procedure blocked two arteries in the uterus with

pellets,

> but because I had two other arteries opened blood was able to flow to the

> fibroid making it grow again. If I was ready for menopause the tumor

would

> have possibly started to shrink...but I am still getting my period.

>

> I often wonder, if a UAE is performed before the fibroids reach the size

of a

> grapefruit, would we have a better chance in shrinkage than waiting it

out?

>

> I know for me that I had waited and suffered so long that I was almost

ready

> to have the hysterectomy right away. I do not have any regrets regarding

the

> UAE procedure (April 2000). If this surgery or any other can stop fibroid

> growth ...than GO FOR IT! I am 52, had fibroids since I was in my

thirties,

> thyroid problem stated in my early forties (I'm on synthroid), at the age

of

> 49, one of my fibroids started to grow inside and outside the uterus and

it

> was then and is now really starting to make me feel ill.

>

> I have two grown children, a loving husband, I just want to feel " normal "

and

> truly want to start to enjoy the quality of life again!! I am scheduled

for

> a hysterectomy on October 26, 2001.

>

> To all those who keep sharing their information, thoughts, feelings, and

> prayers . ...

> I wish you health, and happiness, and I pray for peace in your life and so

> many others if this world.

>

> As always thank you Carla, Marsha, my friend, (will e-mail you soon)

and

> so many others for all the time and input that you give to this group.

>

> Janet

>

>

>

[Guest guest]

My older sister just had a viginal hysterectomy 4 weeks ago, 8/24/01, she

still can't leave the house and has pain today, 9/24/01.

Re: Re:UAE/HYSTERECTOMY

> I'm now debating about when to sched the hyster. We own a restaurant & I

> cannotsee me not being there for weeks on end....however, I know I'll

> feel so much better. I really am learning more as I read these e-mails

> from everyone! I didn't realize my feeling drained & tired, not even

> feeling up to taking my two goldens for a river or lake run....always

> looking forward to bed time, etc. All little signs I had overlooked

> because I'm one of those odd balls that never goes to the Dr!! This

> fibroid I could feel and knew I had to go, but it was only my 3rd time

> to a gyno (I'm 46!)I know, I know-shame on me! When I was only 22 I went

> to one that as I found out was a little quirky in his

> techniques....after talking to friends I found out that he was checking

> for things he shouldn't have, and it turned me off for years! At least

> now I've found a Dr that is great & I trust her and feel ok about it

> all.

> I am looking forward to the hyster. just can't wait to feel " normal "

> again. I know my husband would like that too!

>

>

>

>

[Guest guest]

My younger sister also had a vaginal hyst in July. Although she is

feeling a little better lately, she is by no means back to normal.

Her recovery has been much longer than my myomectomy even though I had

an open abdominal incision and she did not. Her doctor is now telling

her she cannot prescribe any more pain medication because she's afraid

my sister may be becomming addicted to it.

I haven't had either procedure but at this point I would not recommend

a hysterectomy to anyone. Hopefully the next few months will see

things improve for her and I'll change my mind but this has been a

very bad experience.

DeAnn

> My older sister just had a viginal hysterectomy 4 weeks ago,

8/24/01, she

> still can't leave the house and has pain today, 9/24/01.

>

> Re: Re:UAE/HYSTERECTOMY

>

>

> > I'm now debating about when to sched the hyster. We own a

restaurant & I

> > cannotsee me not being there for weeks on end....however, I know

I'll

> > feel so much better. I really am learning more as I read these

e-mails

> > from everyone! I didn't realize my feeling drained & tired, not

even

> > feeling up to taking my two goldens for a river or lake

run....always

> > looking forward to bed time, etc. All little signs I had

overlooked

> > because I'm one of those odd balls that never goes to the Dr!!

This

> > fibroid I could feel and knew I had to go, but it was only my 3rd

time

> > to a gyno (I'm 46!)I know, I know-shame on me! When I was only 22

I went

> > to one that as I found out was a little quirky in his

> > techniques....after talking to friends I found out that he was

checking

> > for things he shouldn't have, and it turned me off for years! At

least

> > now I've found a Dr that is great & I trust her and feel ok about

it

> > all.

> > I am looking forward to the hyster. just can't wait to feel

" normal "

> > again. I know my husband would like that too!

> >

> >

> >

> >

[Guest guest]

Hi DeAnn i just wanted to say that i am sorry to hear that your sister

is stil not doing well after her hysterectomy in July, i do hope that

she gets better and that her doctor will find a way to help her get

better. Do take care and keep us informed.

CB