Re: Re: nerve-related pain, Neurontin, & stuff

[Guest guest]

I'm on Neurontin as I replied before,,,but it doesn't make me sleepy..wish I

could find something that did..tried benadryl, chamomile, hot baths,

massages...guess I'm just a night lizard for life...

Blessings, doris

Re: nerve-related pain, Neurontin, & stuff

> Hi,

> I love neurontin. It really helps me! And I'm a bit calmer too, I

> think. =) Anyway, why don't you ask to go back on it? It has very

> little side effects.

> -Nanette

>

>

> > Hey guys,

> > I recently went off Neurontin which was my preventative med.

> for migranes but

> > wasn't working any longer and started Topamax. Since the

> Neurontin is now

> > completely out of my system, all the tingling, pins and needles

> and nerve

> > type pain in my arms, hands, sides of my face, etc. is back with

> a vengence.

> > I'd forgotten that my neurologist had said that the Neurontin

> could help

> > that. It obviously helped it A LOT!! I had forgotten how bad it

> was or it has

> > just gotten so much worse.!! I find myself rubbing my arms all

> the time now.

> >

> > Does anyone take anything for type of thing? It is really like

> getting little

> > electric shocks all the time.

> >

>

>

>

>

[Guest guest]

I haven't tried zanaflex, but am taking Robaxin at the moment..makes me

hyper??? wild for me.

I was up until four this morning. some of it is from being in the middle of

changing meds, but I've been a night crawler ever since I can remember. Even

when I worked for a living..I just made it on four to five hours sleep a

night, and slept all day on Saturdays. I " ve tried all the valerian and

melatonin makes me hyper, and most of the other things too...but not mixing

several together..food for thought.

Blessings, Doris

Re: nerve-related pain, Neurontin, & stuff

> Hi Night Lizard,

> I can relate. Have you tried zanaflex, a muscle relaxant? It helps

> me. Melatonin, a supplement also helps me a lot. I take those

> both along with benedryl, paxil and neurontin and I fall asleep

> within an hour.

>

> Herbs that may help (in addition to chamomile) are valerian root,

> Passion Flower (passiflora), Kava Kava, and hops. I take a

> mixture that has all 4, and the hops really help. Can you tell I'm a

> die-hard night critter?

> -nanette

>

> > > > Hey guys,

> > > > I recently went off Neurontin which was my preventative

> med.

> > > for migranes but

> > > > wasn't working any longer and started Topamax. Since the

> > > Neurontin is now

> > > > completely out of my system, all the tingling, pins and

> needles

> > > and nerve

> > > > type pain in my arms, hands, sides of my face, etc. is back

> with

> > > a vengence.

> > > > I'd forgotten that my neurologist had said that the Neurontin

> > > could help

> > > > that. It obviously helped it A LOT!! I had forgotten how bad it

> > > was or it has

> > > > just gotten so much worse.!! I find myself rubbing my arms

> all

> > > the time now.

> > > >

> > > > Does anyone take anything for type of thing? It is really like

> > > getting little

> > > > electric shocks all the time.

> > > >

> > >

> > >

> > >

> > >

[Guest guest]

I forgot...can't take Paxil..gives me more of what I have too much of

already...that's why we went to the old meds to get off, and try the

Neurontin...I must have an odd chemical makeup or something. Seems to always

be a challenge for my docs and me.

Blessings, Doris

Re: nerve-related pain, Neurontin, & stuff

> Hi Night Lizard,

> I can relate. Have you tried zanaflex, a muscle relaxant? It helps

> me. Melatonin, a supplement also helps me a lot. I take those

> both along with benedryl, paxil and neurontin and I fall asleep

> within an hour.

>

> Herbs that may help (in addition to chamomile) are valerian root,

> Passion Flower (passiflora), Kava Kava, and hops. I take a

> mixture that has all 4, and the hops really help. Can you tell I'm a

> die-hard night critter?

> -nanette

>

> > > > Hey guys,

> > > > I recently went off Neurontin which was my preventative

> med.

> > > for migranes but

> > > > wasn't working any longer and started Topamax. Since the

> > > Neurontin is now

> > > > completely out of my system, all the tingling, pins and

> needles

> > > and nerve

> > > > type pain in my arms, hands, sides of my face, etc. is back

> with

> > > a vengence.

> > > > I'd forgotten that my neurologist had said that the Neurontin

> > > could help

> > > > that. It obviously helped it A LOT!! I had forgotten how bad it

> > > was or it has

> > > > just gotten so much worse.!! I find myself rubbing my arms

> all

> > > the time now.

> > > >

> > > > Does anyone take anything for type of thing? It is really like

> > > getting little

> > > > electric shocks all the time.

> > > >

> > >

> > >

> > >

> > >

[Guest guest]

no problem popping in there Loraine...I'm getting more good input on my meds

and other meds and reactions and actions than I can ever get from my

doctors. My psychiatrist is looking at me in confused wonder...trying to

decide if " I'm for real " or just yanking his chain on the meds.. sometimes

he says, " I " ve never had that happen with this! " funny, but not really

helpful to me.

Doris

Re: Re: nerve-related pain, Neurontin, & stuff

> I have been on muscle relaxants and have had serious problems with them. I

> feel ok but then my joints start going apart due to the muscles being so

lax

> and I end up being exhausted but in too much pain. The worst episode ever

> was after surgery when they administered a muscle relaxant instead of

giving

> me more morphine. Big mistake. My areas that are a problem are my back and

> neck so when your neck starts flopping it's like you would rather have

them

> chop it off than deal with the pain. I am serious too, if I had of had a

gun

> it would not have been pretty. I wonder why some people have had good luck

> with muscle relaxants and others not?

>

> Lorraine

> (SORRY TO POP IN HERE)

>

> Re: nerve-related pain, Neurontin, & stuff

>

>

> > Hi Night Lizard,

> > I can relate. Have you tried zanaflex, a muscle relaxant? It helps

>

>

>

>

>

[Guest guest]

Doris, have you ever tried Valerian Root? It sticks like heck, but it seems

to work for me sometimes.

Love Lana

[Guest guest]

I started taking Imovane this year. It's the first time in my life I'm not a

night hawk, and I wake up ready to wake up sometimes!!!! (its a very low

dose)

Lorraine

> I'm on Neurontin as I replied before,,,but it doesn't make me sleepy..wish

I

> could find something that did..tried benadryl, chamomile, hot baths,

> massages...guess I'm just a night lizard for life...

> Blessings, doris

[Guest guest]

I have been on muscle relaxants and have had serious problems with them. I

feel ok but then my joints start going apart due to the muscles being so lax

and I end up being exhausted but in too much pain. The worst episode ever

was after surgery when they administered a muscle relaxant instead of giving

me more morphine. Big mistake. My areas that are a problem are my back and

neck so when your neck starts flopping it's like you would rather have them

chop it off than deal with the pain. I am serious too, if I had of had a gun

it would not have been pretty. I wonder why some people have had good luck

with muscle relaxants and others not?

Lorraine

(SORRY TO POP IN HERE)

Re: nerve-related pain, Neurontin, & stuff

> Hi Night Lizard,

> I can relate. Have you tried zanaflex, a muscle relaxant? It helps

[Guest guest]

Doesn't just stink....'tis enough to make a vulture you know what!!!!!!!

yup, been there done that too. I know it does work for other people I know

in my family, or did... sure is wierdy stuff this EDS. Blessings, Doris

Re: Re: nerve-related pain, Neurontin, & stuff

> Doris, have you ever tried Valerian Root? It sticks like heck, but it

seems

> to work for me sometimes.

>

> Love Lana

>

>

>

[Guest guest]

In message <9pacc2+f5tkeGroups>, nmsaucier@... writes

> Have you tried zanaflex, a muscle relaxant? It helps

>me.

<snip>

The only thing that keeps my body more or less upright is my muscles. If

they gave me muscle relaxants I would collapse in a heap. So not

suitable for all EDSers.

--

Fuller

Winchester, England

HEDS (VEDS overlay), FMS, OA, IBS, lumbar scoliosis, tinnitus, some hearing

loss, stomach problems, chronic depression, multiple allergies, asthma....

Please excuse any typos or odd phrases. I am talking to the Dragon.