New Member

[Guest guest]

Dear Theresa, Thanks so much for your welcoming e-mail, how thoughtful. I

really love tthis site. I get so much info, and I'm meeting so many new

friends. And finally a chat for just people with RSD, its wonderful. If I can

help u in any way please let me know. I live in Massachusetts near the RI

border. Thanks again my new friend Love Leesa

[Guest guest]

Dear Theresa, Thanks so much for your welcoming e-mail, how thoughtful. I

really love tthis site. I get so much info, and I'm meeting so many new

friends. And finally a chat for just people with RSD, its wonderful. If I can

help u in any way please let me know. I live in Massachusetts near the RI

border. Thanks again my new friend Love Leesa

[Guest guest]

Welcom to the group, Rick,

I have only been a member since 2/3/02, but have learned so much here (over and above what I learned on the internet,etc.). I think you will find this group exceptional. They are always willing to help, lend an ear, share a joke or two. It's nice to have others who know what you are talking about when you speak of your symptoms and things. We all have a common bond, but there is also alot of variety in what people go through.

Tell us about yourself. Are you married? Kids? Where are you from? You'll get to know everyone pretty well, if you have that desire.

(From MO, married, 1 child (18), age 38, PSC/UC 1984, chronic pancreatitis 1997, and several other not too convenient ails)

[Guest guest]

Welcom to the group, Rick,

I have only been a member since 2/3/02, but have learned so much here (over and above what I learned on the internet,etc.). I think you will find this group exceptional. They are always willing to help, lend an ear, share a joke or two. It's nice to have others who know what you are talking about when you speak of your symptoms and things. We all have a common bond, but there is also alot of variety in what people go through.

Tell us about yourself. Are you married? Kids? Where are you from? You'll get to know everyone pretty well, if you have that desire.

(From MO, married, 1 child (18), age 38, PSC/UC 1984, chronic pancreatitis 1997, and several other not too convenient ails)

[Guest guest]

I saw one report recently that suggested Vitamin E could help fatigue in people with PSC.

Hi Rick,

Welcome to our group. I have recently been started on Vit E by my GI/Hep at 100 mgs twice a day. I don't know if its helping but he said it might take a while as I have had psc for a long time.

Barbara (UK)

[Guest guest]

Rick, welcome to the group, sorry you have the need to

be here. Sounds like you will be a valuable asset to

our group if you have done extensive research on PSC

information. I'm one of the lazy ones who just reads

what others write about what they find. I joke alot.

I am 44 and have PSC for 5 years with only the last 2

being symptomatic. I had UC for 16 years, but had my

colon removed and a jpouch created 2.5 years ago.

Look forward to learning more about you.

=====

in Michigan (Dx UC 1984, Dx MISSING COLON 1999, Dx PSC 1997, PSC symptoms

2000)

__________________________________________________

[Guest guest]

Rick, welcome to the group, sorry you have the need to

be here. Sounds like you will be a valuable asset to

our group if you have done extensive research on PSC

information. I'm one of the lazy ones who just reads

what others write about what they find. I joke alot.

I am 44 and have PSC for 5 years with only the last 2

being symptomatic. I had UC for 16 years, but had my

colon removed and a jpouch created 2.5 years ago.

Look forward to learning more about you.

=====

in Michigan (Dx UC 1984, Dx MISSING COLON 1999, Dx PSC 1997, PSC symptoms

2000)

__________________________________________________

[Guest guest]

Rick, welcome to the group, sorry you have the need to

be here. Sounds like you will be a valuable asset to

our group if you have done extensive research on PSC

information. I'm one of the lazy ones who just reads

what others write about what they find. I joke alot.

I am 44 and have PSC for 5 years with only the last 2

being symptomatic. I had UC for 16 years, but had my

colon removed and a jpouch created 2.5 years ago.

Look forward to learning more about you.

=====

in Michigan (Dx UC 1984, Dx MISSING COLON 1999, Dx PSC 1997, PSC symptoms

2000)

__________________________________________________

[Guest guest]

Hi,

My name is Pam and I am a new member to this group. I'm 22 years old

and I live in Milwaukee, Wisconsin. I don't currently have Diabetes,

but it has affected me seriously. My father died from complications

due to it, I have an Aunt with it, a stepfather with it, and now my

sister has it pretty bad. I grew up watching my stepfather undergo

all the complications that come with it, kidney failure, dialysis,

loss of a limb, and failure of his eyesight among others. Lately, I

have been attempting to get involved. I have started doing some

volunteering for the ADA in my city, and becoming educated. I also

hae gained a couple of penpals through Diabetes Today, which is a

magazine that I have a subscription to. I hope to become friends

with several of you, and become an active member of this group. I

noticed that someone said that he/she visited a nutritionist. I

actually went to a series of Diabetes Education Classes, but I wasn't

happy. The objective was to change my lifestyle so that I could

become more healthy given my risk. Nobody in the classes were my

age, most people there were 3 times my age. I didn't learn much from

it, I just wish there were education classes geared towards younger

people, that can teach us how to restructure our lives.

I am always looking for new friends and penpals that may be in my age

group, a bit older, or a bit younger. Please don't hesitate to email

me or IM me. However, I look forward to getting to know all of you

better.

Thanks for having me,

Pam

[Guest guest]

Anyway... if there's anyone out there who needs some advice or support or wants to offer their's on these or any other issues, I'm here.

Hi

Welcome back to the group, sorry you have had to wait such a long time for a new liver. A number of this group have had or are planing to have a living donor because of the wait so I'm sure they'll have a tale or two to tell you.

all the best for a quick transplant.

Barbara (UK)