Guest guest Posted August 14, 2001 Report Share Posted August 14, 2001 Dear Theresa, Thanks so much for your welcoming e-mail, how thoughtful. I really love tthis site. I get so much info, and I'm meeting so many new friends. And finally a chat for just people with RSD, its wonderful. If I can help u in any way please let me know. I live in Massachusetts near the RI border. Thanks again my new friend Love Leesa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2001 Report Share Posted August 14, 2001 Dear Theresa, Thanks so much for your welcoming e-mail, how thoughtful. I really love tthis site. I get so much info, and I'm meeting so many new friends. And finally a chat for just people with RSD, its wonderful. If I can help u in any way please let me know. I live in Massachusetts near the RI border. Thanks again my new friend Love Leesa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 Welcom to the group, Rick, I have only been a member since 2/3/02, but have learned so much here (over and above what I learned on the internet,etc.). I think you will find this group exceptional. They are always willing to help, lend an ear, share a joke or two. It's nice to have others who know what you are talking about when you speak of your symptoms and things. We all have a common bond, but there is also alot of variety in what people go through. Tell us about yourself. Are you married? Kids? Where are you from? You'll get to know everyone pretty well, if you have that desire. (From MO, married, 1 child (18), age 38, PSC/UC 1984, chronic pancreatitis 1997, and several other not too convenient ails) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 Welcom to the group, Rick, I have only been a member since 2/3/02, but have learned so much here (over and above what I learned on the internet,etc.). I think you will find this group exceptional. They are always willing to help, lend an ear, share a joke or two. It's nice to have others who know what you are talking about when you speak of your symptoms and things. We all have a common bond, but there is also alot of variety in what people go through. Tell us about yourself. Are you married? Kids? Where are you from? You'll get to know everyone pretty well, if you have that desire. (From MO, married, 1 child (18), age 38, PSC/UC 1984, chronic pancreatitis 1997, and several other not too convenient ails) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 I saw one report recently that suggested Vitamin E could help fatigue in people with PSC. Hi Rick, Welcome to our group. I have recently been started on Vit E by my GI/Hep at 100 mgs twice a day. I don't know if its helping but he said it might take a while as I have had psc for a long time. Barbara (UK) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 Rick, welcome to the group, sorry you have the need to be here. Sounds like you will be a valuable asset to our group if you have done extensive research on PSC information. I'm one of the lazy ones who just reads what others write about what they find. I joke alot. I am 44 and have PSC for 5 years with only the last 2 being symptomatic. I had UC for 16 years, but had my colon removed and a jpouch created 2.5 years ago. Look forward to learning more about you. ===== in Michigan (Dx UC 1984, Dx MISSING COLON 1999, Dx PSC 1997, PSC symptoms 2000) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 Rick, welcome to the group, sorry you have the need to be here. Sounds like you will be a valuable asset to our group if you have done extensive research on PSC information. I'm one of the lazy ones who just reads what others write about what they find. I joke alot. I am 44 and have PSC for 5 years with only the last 2 being symptomatic. I had UC for 16 years, but had my colon removed and a jpouch created 2.5 years ago. Look forward to learning more about you. ===== in Michigan (Dx UC 1984, Dx MISSING COLON 1999, Dx PSC 1997, PSC symptoms 2000) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 Rick, welcome to the group, sorry you have the need to be here. Sounds like you will be a valuable asset to our group if you have done extensive research on PSC information. I'm one of the lazy ones who just reads what others write about what they find. I joke alot. I am 44 and have PSC for 5 years with only the last 2 being symptomatic. I had UC for 16 years, but had my colon removed and a jpouch created 2.5 years ago. Look forward to learning more about you. ===== in Michigan (Dx UC 1984, Dx MISSING COLON 1999, Dx PSC 1997, PSC symptoms 2000) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2002 Report Share Posted March 27, 2002 Hi, My name is Pam and I am a new member to this group. I'm 22 years old and I live in Milwaukee, Wisconsin. I don't currently have Diabetes, but it has affected me seriously. My father died from complications due to it, I have an Aunt with it, a stepfather with it, and now my sister has it pretty bad. I grew up watching my stepfather undergo all the complications that come with it, kidney failure, dialysis, loss of a limb, and failure of his eyesight among others. Lately, I have been attempting to get involved. I have started doing some volunteering for the ADA in my city, and becoming educated. I also hae gained a couple of penpals through Diabetes Today, which is a magazine that I have a subscription to. I hope to become friends with several of you, and become an active member of this group. I noticed that someone said that he/she visited a nutritionist. I actually went to a series of Diabetes Education Classes, but I wasn't happy. The objective was to change my lifestyle so that I could become more healthy given my risk. Nobody in the classes were my age, most people there were 3 times my age. I didn't learn much from it, I just wish there were education classes geared towards younger people, that can teach us how to restructure our lives. I am always looking for new friends and penpals that may be in my age group, a bit older, or a bit younger. Please don't hesitate to email me or IM me. However, I look forward to getting to know all of you better. Thanks for having me, Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2002 Report Share Posted April 3, 2002 Anyway... if there's anyone out there who needs some advice or support or wants to offer their's on these or any other issues, I'm here. Hi Welcome back to the group, sorry you have had to wait such a long time for a new liver. A number of this group have had or are planing to have a living donor because of the wait so I'm sure they'll have a tale or two to tell you. all the best for a quick transplant. Barbara (UK) Quote Link to comment Share on other sites More sharing options...
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