Re: Re: Help! No mercury coming out

[Guest guest]

This answer will be very unpopular on this list but when we did not see high

levels coming out with my son despite high hair test results, I felt he

wasn't absorbing the DMSA as well so persuaded our doc to do a few rounds of

IV DMPS. I had talked to parents of several kids who had done well with this

treatment and felt in my gut it would be appropriate for my son. The metals

immediately poured out with the DMPS and he experienced a rapid improvement.

You do have to carefully weigh the benefits of bypassing the digestive system

with the dangers of doing anything by IV and pulling alot of metals quickly

but it was extremely helpful for my son. After several rounds of DMPS, we

did return to oral chelation which seemed to work better then as well. For

those concerned about the IV but don't seem to be pulling metals the tests

show are there, perhaps a few rounds of oral DMPS might be wise since it is

supposed to bind to mercury better than DMSA.

Another thing that I think may help some kids who aren't eliminating properly

is to have them do a round of the homeopathic drainers I posted about last

week prior to chelation. If your body can't eliminate well, chelation won't

work well.

Gaylen

[Guest guest]

Hi Gaylen,

I just wanted to say this is great: you are informed about

the risks of various options, and have considered the options.

I am wildly in favor of people having choices, and knowing

about what is involved. It is also wonderful that this

worked out well. I'll bet you also did a great job of

watching the results and considering the details (how often

to get the injections, how much to use, when to stop,

retrying oral, etc) (If I were going to do it I'd be very

cautious about the amount of DMPS.) I also wonder if a

higher dose of DMPS or DMPS might have gotten things

moving, but it is a moot point, since you are long past

that issue.

More power to you! And thanks for sharing this.

Moria

At 11:13 AM 8/24/2001 EDT, you wrote:

>This answer will be very unpopular on this list but when we did not see high

>levels coming out with my son despite high hair test results, I felt he

>wasn't absorbing the DMSA as well so persuaded our doc to do a few rounds of

>IV DMPS. I had talked to parents of several kids who had done well with

this

>treatment and felt in my gut it would be appropriate for my son. The metals

>immediately poured out with the DMPS and he experienced a rapid

improvement.

>You do have to carefully weigh the benefits of bypassing the digestive

system

>with the dangers of doing anything by IV and pulling alot of metals quickly

>but it was extremely helpful for my son. After several rounds of DMPS, we

>did return to oral chelation which seemed to work better then as well. For

>those concerned about the IV but don't seem to be pulling metals the tests

>show are there, perhaps a few rounds of oral DMPS might be wise since it is

>supposed to bind to mercury better than DMSA.

>

>Another thing that I think may help some kids who aren't eliminating

properly

>is to have them do a round of the homeopathic drainers I posted about last

>week prior to chelation. If your body can't eliminate well, chelation won't

>work well.

>Gaylen

[Guest guest]

In a message dated 8/24/01 11:38:25 AM Central Daylight Time,

moriam@... writes:

> I also wonder if a higher dose of DMPS or DMPS might have gotten things

> moving, but it is a moot point, since you are long past

> that issue.

>

>

I'm assuming you meant a higher dose of DMSA or oral DMPS here? Curtis was

on a higher dose of DMSA for a few rounds early on. We did see aluminum,

arsenic and lead but very little mercury in urine tests. We did not know

mercury was a problem until switching to DMPS. The doc did recommend oral

DMPS when I wanted to change but I was concerned that his digestive problems

were interfering with him being able to absorb the chelator so we opted for

IV.

Interestingly, I've been watching many cases of kids being chelated over the

past few years using a variety of chelators and protocols. The only cases of

major problems I've personally seen or talked to parents about involved those

using the DAN protocol for chelation. These are fairly rare still, only 8

kids out of probably 50-60 I know about, but those I personally know of who

have gone into major seizing or had severe regressions were not the ones I

know who have done IV DMPS but rather ones using DMSA/ALA or doing the full

DAN supplementing/chelator recommendation, most on the every four hour

protocol and under the care of a DAN doctor new to chelation (which the

majority of them are).

Gaylen

[Guest guest]

on 8/24/01 2:50 AM, Pat Gallagher at patgallagher@... wrote:

> Dear Listmates,

> My 10 year old son has had 5 rounds of chelation, 3on, 4 off using the 3/4

> hour protocol. He weighs 140 lb and takes 50 mg ALA and 250 mg DMSA. We

> did one round using only DMSA and 4 with ALA and DMSA. During this time

> I've seen no behavioral results (posistive or negative). We did a stool

> test and a urine test with the last round and I just got the results back

> and it looks very normal. No elevations in Mercury. Antimony, Arsenic,

> Cadmium and Uranium seem to be somewhat elevated (values unclear as I am

> looking at a fax copy - still waiting for the real copy). Copper and zinc

> are both lower than he would have expected given that he is taking a

> chelating agent. My doctor thinks mercury may not be the problem.

> However, several years ago (before the currrent research hit) he tested

> very high on hair and urine tests (both repeated to rule out lab error) and

> he fits the counting rules. Does anyone know what to make of this? Is it

> worth continuing? Might we see results further down the line? Another

> idea that my doctor has raised is that he may not be absorbing the chelator

> (as well as the many supplements etc. he is taking). He suggested a

> Comprehensive Digestive Stool Test which I am going to do ASAP. In the

> meantime, feedback from others will be greatly appreciated. Pat

>

>

>

>

> =======================================================

>

[Guest guest]

Pat -

I was told that Mercury is the last toxin to come out when you chelate because

it binds so well to the organs (brain, liver, etc.).

mom to Dean (autistic)

Pat Gallagher wrote:

> Dear Listmates,

> My 10 year old son has had 5 rounds of chelation, 3on, 4 off using the 3/4

> hour protocol. He weighs 140 lb and takes 50 mg ALA and 250 mg DMSA. We

> did one round using only DMSA and 4 with ALA and DMSA. During this time

> I've seen no behavioral results (posistive or negative). We did a stool

> test and a urine test with the last round and I just got the results back

> and it looks very normal. No elevations in Mercury. Antimony, Arsenic,

> Cadmium and Uranium seem to be somewhat elevated (values unclear as I am

> looking at a fax copy - still waiting for the real copy). Copper and zinc

> are both lower than he would have expected given that he is taking a

> chelating agent. My doctor thinks mercury may not be the problem.

> However, several years ago (before the currrent research hit) he tested

> very high on hair and urine tests (both repeated to rule out lab error) and

> he fits the counting rules. Does anyone know what to make of this? Is it

> worth continuing? Might we see results further down the line? Another

> idea that my doctor has raised is that he may not be absorbing the chelator

> (as well as the many supplements etc. he is taking). He suggested a

> Comprehensive Digestive Stool Test which I am going to do ASAP. In the

> meantime, feedback from others will be greatly appreciated. Pat

>

>

> =======================================================

>

[Guest guest]

My son is now 12, weighs nearly 150, and has been chelating for over a year on

evolving protocols. We didn't see mercury in a stool sample 6 months into

chelation, or in other tests run here and there. But I was told by many, that a

child this old and large would have tightly bound mercury that would be very

slow to come out. We did see immediate improvements (probably because we had

eaten fish, and had other metals coming out, too) but now are in the long slow

haul of waiting to get the tightly bound stuff out. The improvements now are

slower and steadier, with the " toddler mischief " stage that Jane El-Dahr told me

is common, behind us. Make sure your son drinks lots of water, and try the

four-hour protocol if you haven't already.

Lorilyn

[Guest guest]

on 8/27/01 10:55 AM, Lorilyn Teasdale at kteasda1@... wrote:

> My son is now 12, weighs nearly 150, and has been chelating for over a year on

> evolving protocols. We didn't see mercury in a stool sample 6 months into

> chelation, or in other tests run here and there. But I was told by many, that

> a child this old and large would have tightly bound mercury that would be very

> slow to come out. We did see immediate improvements (probably because we had

> eaten fish, and had other metals coming out, too) but now are in the long slow

> haul of waiting to get the tightly bound stuff out. The improvements now are

> slower and steadier, with the " toddler mischief " stage that Jane El-Dahr told

> me is common, behind us. Make sure your son drinks lots of water, and try the

> four-hour protocol if you haven't already.

> Lorilyn

Dear Lorilyn,

That comment you made about " toddler mischief " really hit home with me.

My son DJ is 12 years old. We started chelating back in October 2000

(DJ was 11). We had lots of tin, lead come out. Some nickel and aluminum.

We never saw mercury at all until our last urinalysis this past June. We

started 100mg dmsa every 4 hours. After three months we added ALA but the

doctor changed the protocol to 300mg dmsa every 8 hours and 100 ala every 8

hours 3 days on and 4 days off. We've were doing this for several months

and even though stuff was coming out (we try to do urinalysis every 6

weeks), we haven't seen any improvement. We did start noticing some

regression and when I read back in the archives, I realized that most were

doing every 3-4 hours protocol and Andy feels very strongly about the 3-4

hour schedule. A couple of months ago, DJ got up very early one morning and

got the key and left the house. The police found him 2 miles from my home

and were just waiting for the 911 call. Very scary experience because he

never did that before but thank God he was fine. A couple of weeks ago, he

found the hair clippers and cut off all of his hair. I was just thankful

that he's a boy and we were able to shave it all off without him looking too

bad.

We decided to go back to every 3-4 hours (100mg dmsa and

25mg ala) but want to slow it down to 3 days on and 11 days off. This is

our 2nd weekend and I'm still hoping for the best. I hope we didn't make DJ

worse by doing every 8 hours. I sent in a urinalysis on Monday and should

hear the results in a week or so.

So you see, it was months before we saw any mercury at all. Our kids are

older and it has been stated that it does take longer.

[Guest guest]

,

I hope you'll post the urine and stool results (along with normal ranges), as

I'm curious how they compare to each other.

Your experience (no improvements, no mercury, other metals showing up) is what I

was told by our DAN doctor would happen - that other metals have more afinity

for the chelator and will show up first, and improvements won't be noticable

until the mercury starts to be eliminated. Hang in there! K.

| > Dear Listmates,

| > My 10 year old son has had 5 rounds of chelation, 3on, 4 off using the 3/4

| > hour protocol. He weighs 140 lb and takes 50 mg ALA and 250 mg DMSA. We

| > did one round using only DMSA and 4 with ALA and DMSA. During this time

| > I've seen no behavioral results (posistive or negative). We did a stool

| > test and a urine test with the last round and I just got the results back

| > and it looks very normal. No elevations in Mercury. Antimony, Arsenic,

| > Cadmium and Uranium seem to be somewhat elevated (values unclear as I am

| > looking at a fax copy - still waiting for the real copy). Copper and zinc

| > are both lower than he would have expected given that he is taking a

| > chelating agent. My doctor thinks mercury may not be the problem.

| > However, several years ago (before the currrent research hit) he tested

| > very high on hair and urine tests (both repeated to rule out lab error) and

| > he fits the counting rules. Does anyone know what to make of this? Is it

| > worth continuing? Might we see results further down the line? Another

| > idea that my doctor has raised is that he may not be absorbing the chelator

| > (as well as the many supplements etc. he is taking). He suggested a

| > Comprehensive Digestive Stool Test which I am going to do ASAP. In the

| > meantime, feedback from others will be greatly appreciated. Pat