Vern's Endo appt. yesterday

September 19, 2001

Hi Thyca friends,

Well, Vern finally had his endo appt. The news was good and not so

good. I think I have been in denial since April. The not so good

news is that in addition to lung mets, there are liver mets in one

lobe of the liver. The MD believes Vern's cancer to be non-avid

because there was no uptake in '93 or '94. He also said that at this

time there is no clinical trial that he thinks is appropriate.

I also learned that at April appt., TSH was 4.5. His synthroid was

upped to .200. Anxious to see what TSH was yesterday, but doubt if

it is suppressed yet. I am angry and frustrated that the former endo

never acted to suppress his TSH. (Or maybe she thought going

from .150 to .175 was enough, and didn't follow through after that.)

After we talked with the new endo a bit, we all decided that since

Vern and I had not been told about eating seafood, or any of the

other LID restrictions before the previous RAI treatments, (different

endo, different city) it might be beneficial to try 300 mCi of RAI.

He is scheduled for RAI in early January. Reason for the delay is

that we have a vacation planned and paid for, so want to enjoy it.

I have downloaded the LID cookbook and will check previous posts for

other recipes so we get it right. Keep us in your thoughts please.

Jane

Husband, Vern dx papca 11/91, pt & tt 12/91, RAI '92, '93, '94, total

500 mCi. Recurrent rt. neck mets annually '92 to '00, mets in front

left neck '01, lung and liver mets dx '01. Also parathyroids

destroyed '91, kidney stones 3 times, (now has good urologist

managing calcium)

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