Re:Ron Lets all Come together

[Guest guest]

Thanks so much Ron! I feel him near me and know he is my Guardian Angel

watching over me now, but I miss him so much!

Huge, heartfelt hugs to you too, Ron!

p.s. CONGRATULATIONS on quitting! After reading how many in this group have

quit it's encouraging me to do the same. I am still not mentally ready to do

so, but soon, promise!

Thanks again!

from NYC

Daughter of Celestino (Tino) Suarez

Misdiagnosed for years. Diagnosed with LBD March 2009, but we now know he's had

it for at least 4-5 years.

God called him home on October 27, 2009. Rest in peace, Daddy.

(January 29, 1930 - October 27, 2009)

> >

> > I dont post as much as Id like to.Its been a little over a year since mom

died.To be honest Im still there.I dont think it will ever go away.The only

difference is that now I cant see mamma and hug her and love her.The fight still

goes on for me.I dont sleep well.I get extremely emotional.Physicall y Ive gone

downhill...Im still in the fight.

> > Many days at work I think and wonder, " what can I do? " What can I do to help

one caregiver?Make a difference for someone who is still in the fight .Someone

who is not only stressed out but also greiving the eventual loss of their

precious loved one.Someone who like me, has felt small, weak, overmatched, over

taxed, stupid and vulnerable at times.Someone who cries themselves to sleep at

night on a regular occasion.

> > WE ARE ALL IN THIS TOGETHER...

> > I know weve had some problems here lately but this is the best group of

people in the world.I love you people like my family because you understood.You

walked with me and mom.You cared for us.

> > Let us all come together and continue to fight this horrible disease with

love and support eachother in our worst moments.Let us give eachother

strength.Let us carry eachother through the toughest times and let us caregive

our fellow caregivers.The LBDA has a hotline for caregivers .Im not sure if

everyone knows this.Its 1800 lewysos.Never be afraid to use that number....I

wasnt....Also I want anyone here to email me personally if they EVER need

someone to talk to.I will give you my cell and would love to talk or listen or

just be there for you.Were all in it together...Lets all care for eachother...

..Heartfelt best wishes to you all,  my family ...The greatest people on

earth...     Ron

> >

>

>

>

>

>

>

>

>