Not really MS? Or what?

[Guest guest]

Hello All,

Well, I will start with this.

I am almost 51 yo. I was dxed with MS a little over a

year ago. My Neuro is a fine guy. However, I live in a

TICK infested area.

And get this part.It is sort of funny. NOT. I also

have a LOW IgA and IGG, nearly non functioning, which

ruins most tests for Lymes. Yah.

Just found all these fun facts out.

Anyway, so I started Copaxone in January of 07. What a

hoot, Instead of being really really better, I had my

first ever really really bad times, then went on IV

Solumedrol, for an EXACERBATION, which I had not had

before. Initially had a screwy limpy eye droop, DUE to

a BLOW to the head. Although I could not pinpoint the

time, AND I have been fatigued for MANY years.

Life, perhaps.

So, then, I go on copax, have the worst symptoms since

I was born, then, I end up after feeling REAALY good,

after a trip with my BFF, with Lymphocytic Colitis.

My GASTRO, decided, well, it's the Copax, you must go

off. I said, do you realize what the alternatives are

mr. GASTRO dR?

So, I went off Copax, QUIT gluten around t he same

time, as well as milk, and corn, which I found

elicited the same results as the others.

So, then, I go to my Neuro, he is kind of upset with

the GASTRO doc, and says, well pick from the shiny

brochures, I do not want you to go backwards, I do not

like your alternatives, etc.

i said, well, I would like to go not on anything.

He says, well you know the risks.

I said yes.

he said, then well then I will do neuro check, and MRI

every 3 mos.

I would like you to be on drug that fixes ms, but I

see you are motivated, and I am not happy with

interferons, blah blah blah,

so.

Anyway, I am on no gluten diet, no lactose, no corn. I

feel better. Plus I separated from my husband who is

toxic.

I am now home for holidays with children to pretend

that we are all happy and have begun smoking, which

obviously is stupid, however, I need a stupid habit to

deal with my abusive husband...

I think STRESS is part of all of the above, hence I am

Legally Separating from him, will save me money since

he seems to accept that more than real divorce.

And I don't care about husbands anymore anyway.

Just want to be healthy.

So,

My point is, I have like 3 things going on.

1. MS. pROBABLE.

2. lYMES> Untestable Low IGA Low IGG=

3. Nearly Common Variable Immune Deficiency. See

Above.

4. Lymphocytic Colitis-Lost 25 pounds in 3 months.

I am 5'8 " , weigh 105. Sick.

No one can figure how this all ties in.

I don't know.

I know I feel better on a Gluten Free, Dairy Free,

Corn free Diet.

Can't gain weight tho,

My husband stRESSES me out., I personally think this

stress is killing me. He is a Major A with a Capital a

Whatever...

I have moved out.

I am " home " for the holidays with our adult children,

and am smoking Cigarettes, WHICH is really stupid, I

know that. I know. I am like, eat green, think green,

be green. So I smoke when I am stressed.

Sorry,

I don't really know if there is a question in this

whole thing, but if ANYONE has any or ALL of these

things, like Low IGG LOW IGA, dxed with MS, AND

Lymphocytic colitis, (hard to dx, gives u the runs

that keep on runnin, til you lose about 25-30 lbs.)

So,

There ya have it,

So sorry to be a long run on sentencer.

Love,

KM

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[Guest guest]

Hey KM, sorry to hear of your situation. Try to keep a positive funny attitude,

sometimes you gotta laugh when its to serious. If your not benefiting from

having your husband around, lose him, get rid of him, who needs anyone who can't

be understanding or any compassion due to your sickness. Stress kills and

causes ms to kick in more. I use to be a smoker myself and one thing I will

tell you, If you want to gain weight quit smoking besides its not doing anything

positive for your ms. If your stressed out eat something healthful for your

benefit. Treat yourself to the good treats and foods that you could eat, Only

because you say your 5.8 and only 105 pds so you could afford to eat alot of raw

greens. Try following the swank diet or the Best bet diet. There both good and

beneficial for you. Stress will cause your health to go down the drain. I

remember being married which I am divorced now but when I was married the animal

stressed me so bad I had colitis of some

sort couldn't eat stomach reacted really really bad. Once I got rid of the

jerk, my health got better and so so so much happier. For your health benefit

and for yourself do what's best for you and whatever is going to make yourself

happy. Happiness is a really great medication to health!!!

Good Luck &

Have a Happy new Year!

VS

Mr T Moen wrote:

Hello All,

Well, I will start with this.

I am almost 51 yo. I was dxed with MS a little over a

year ago. My Neuro is a fine guy. However, I live in a

TICK infested area.

And get this part.It is sort of funny. NOT. I also

have a LOW IgA and IGG, nearly non functioning, which

ruins most tests for Lymes. Yah.

Just found all these fun facts out.

Anyway, so I started Copaxone in January of 07. What a

hoot, Instead of being really really better, I had my

first ever really really bad times, then went on IV

Solumedrol, for an EXACERBATION, which I had not had

before. Initially had a screwy limpy eye droop, DUE to

a BLOW to the head. Although I could not pinpoint the

time, AND I have been fatigued for MANY years.

Life, perhaps.

So, then, I go on copax, have the worst symptoms since

I was born, then, I end up after feeling REAALY good,

after a trip with my BFF, with Lymphocytic Colitis.

My GASTRO, decided, well, it's the Copax, you must go

off. I said, do you realize what the alternatives are

mr. GASTRO dR?

So, I went off Copax, QUIT gluten around t he same

time, as well as milk, and corn, which I found

elicited the same results as the others.

So, then, I go to my Neuro, he is kind of upset with

the GASTRO doc, and says, well pick from the shiny

brochures, I do not want you to go backwards, I do not

like your alternatives, etc.

i said, well, I would like to go not on anything.

He says, well you know the risks.

I said yes.

he said, then well then I will do neuro check, and MRI

every 3 mos.

I would like you to be on drug that fixes ms, but I

see you are motivated, and I am not happy with

interferons, blah blah blah,

so.

Anyway, I am on no gluten diet, no lactose, no corn. I

feel better. Plus I separated from my husband who is

toxic.

I am now home for holidays with children to pretend

that we are all happy and have begun smoking, which

obviously is stupid, however, I need a stupid habit to

deal with my abusive husband...

I think STRESS is part of all of the above, hence I am

Legally Separating from him, will save me money since

he seems to accept that more than real divorce.

And I don't care about husbands anymore anyway.

Just want to be healthy.

So,

My point is, I have like 3 things going on.

1. MS. pROBABLE.

2. lYMES> Untestable Low IGA Low IGG=

3. Nearly Common Variable Immune Deficiency. See

Above.

4. Lymphocytic Colitis-Lost 25 pounds in 3 months.

I am 5'8 " , weigh 105. Sick.

No one can figure how this all ties in.

I don't know.

I know I feel better on a Gluten Free, Dairy Free,

Corn free Diet.

Can't gain weight tho,

My husband stRESSES me out., I personally think this

stress is killing me. He is a Major A with a Capital a

Whatever...

I have moved out.

I am " home " for the holidays with our adult children,

and am smoking Cigarettes, WHICH is really stupid, I

know that. I know. I am like, eat green, think green,

be green. So I smoke when I am stressed.

Sorry,

I don't really know if there is a question in this

whole thing, but if ANYONE has any or ALL of these

things, like Low IGG LOW IGA, dxed with MS, AND

Lymphocytic colitis, (hard to dx, gives u the runs

that keep on runnin, til you lose about 25-30 lbs.)

So,

There ya have it,

So sorry to be a long run on sentencer.

Love,

KM

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[Guest guest]

,

I take vitamins magnesium, calcium, potassim, and B1. I also do stretches

before I get out of bed. My parents have noticed a change especially in foot

drop. I knew this was going to be a problem before I started LDN because of

past MS issues, and took recommendations from this site. I know everyone is

different. Hope this helps.

Re:Not really MS? Or what?

If by spasticity you mean tightness of the limbs, very warm epsom salt

baths (2 cups of epsom salt in very warm bath) helps relive that

symptom for me quite a bit.

>

> I've been on ldn nearly two months, but the spasticity is terribly

disabling. Any help: I'm running out of self-motivating ideas.

> wendy

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[Guest guest]

I think that would do me in. I can't tolerate the heat of a bath or shower. I

have to alternate between hot and cold water so that I'm warm but not weak. See

how lucky you are to not have this symptom?! I think it's thyroid related.

trekkie323 wrote: If by spasticity you mean tightness

of the limbs, very warm epsom salt

baths (2 cups of epsom salt in very warm bath) helps relive that

symptom for me quite a bit.

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[Guest guest]

I totally believe that lack of oxygen is a problem. I believe in taking

supplements that increase oxygen in the cells, and do so with much success. I

know that oxygen kills many pathogens. I wonder how it effects the

oxygen-loving species. We have tested positive for both aerobic and anaerobic

pathogens, thus I am experimenting now with oxygen (Cell food by Lumina) to see

how

it affects our anaerobic pathogens (Bartonella). Trial and error is the best

way to tell.

Heidi N

" Read the first article in our files, A Different Look at MS. It is the

author's view that disease is caused by a lack of oxygen in the cells. "

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