Re: Update on my Mom in N.H.

[Guest guest]

linda,

 

all nursing homes have an ombudsman to monitor the nh facitily,  you can call

them and have them do an inspection * unannojcned and they will deal wtih teh

issues you are talkinga bout, i am sure there are other places you can complain

to but i am not famliat iht them so i wont say anything about them.  also many

dementias including lbd effect the frontal lobe part of the brain tnat si wehre

our tact and inhibtions are. so if htis part of  the brain has shrunk or chages

abnomrally, teh person will not longer be able to disecrn waht is morally

right/worng, they ahve no concerp of embarrassment of sexaul comments/.  they

lose teh tact, the ability to judge right from worng.  and it is the disease. 

even teh meekest mmildest person, even a nun could be cursing and talking 'dirty

' like a sailor who has been out to sea too long.  there isnothigs anyone an do

ot stop the talk or actions.   my daddy wouuld whip 'it' out and tell me and

others to

'suck' dry.  etc.  for that reason you cannot judge the nh bad for that, that

is a dementia  issue. 

as for food, feed her whatever she wants when yuo get theer,  i would alwyas

bring daddy snackes, milk shakes, rootbeer floats, things taht were thicker and

nmore nutricious, i wuold being real shakes from ice creams place, like baskin

robbins not from mcdonalds or wendys.  i wanted the high calorie stuff.  often

i would make it at honme using hagan daaz ice cream * ade with real cream * and

use whole milk, and at times i would crush up vitamins to put in there for him

or protien powder too. as the ice cream masked the taste of it.  i also used

coke/root beer or creme soda to make his floats adn top it with real whipped

cream or mkae sundaes with differnt flaovrs of ice creams,  i was going to

learn how to make my own icecream but daddy died before i had a chnace too.  

just a few thought  we were lucky the nhs daddy were in the food was pretty

good.  but frequenly  not enough as up unil the ay he died adadd ate more than

they exected him

too.  oh yeah i made fruit smoothies too.l    jsut a few thoughts i hope

they help hugs. sharon

I am the daughter of Leonard whom was diagnosed in May 2004 and  he died of

complicatons *blood pressure started dropping and wouldn't recover* on Sept 25,

2005. He had bad case of Dr Jekyl/Mr Hyde scenarios. He was showing

hallucinations and falling issues since prior to 1994. We moved in to take care

of him Jan 19, 2003 and still live in his house. And in feb 2009, i have been

diagonosed with 99% probability of lbd. Hoping that a cure or treatment will be

found before it's too late for me.

Subject: Update on my Mom in N.H.

To: LBDcaregivers

Date: Sunday, May 9, 2010, 10:30 AM

 

Hi All,

Friday, my Mom seemed to be doing good, she had a normal conversation with me,

but then came the " people " that live in her mind. But all in all everything was

good. I left feeling a little better.

Yesterday, another story, back to her scary thoughts. LBD is a rollercoaster

ride for them, it is so scary for them, and sad for us.

My daughter and 2 others went to visit her, and she said someone was going to

kill her in there, they were all after her. They suggested for her to go to the

dining room to eat, no, never she said, outside, no. They brought her Kentucky

Fried chicken, she loved it, they have her on mechanical diet, but her

swallowing is not bad as far as I can see. She hates the food and that

thickening agent is so thick she won't drink. She enjoyed the coke they brought

her.

I went up for supper time, this place stinks so bad I want to throw up the min.

I get in there with so much urine/poop smell. Most of the residents here are in

bad bad shape mentally. There was one man down the hall from her, and my

granddaughter was with me, and every word out of his mouth was so much cursing,

I had to hold her ears. It was unbelievable. No one was seeing about him and he

lie in bed sreaming out horrible vulgar words. She refused to go to the dining

room, telling me people all over that place were going to kill her. She has gone

to the dining room only a couple of times, but won't any more. She had a salad,

beef macaroni sauce, roll, gross cheesecake, and thickened ingredients for her

drinks, she ate 2 bites of her macaroni and two bites of her bread, that was it.

She is going to get sick from this bad food.

We had to leave and there she was in that room terrified. Her roommate told me

she was deaf, but I can understand her speech perfectly, and she looks at her TV

and stares out into space. Its a very sad place this place. The other N.H. rehab

she was in 6 months ago was beautiful, clean, no smell whatsoever, the

envirnoment was so much much better. I don't know if this would make a

difference in her mental health or not to have a cleaner, bigger place or not.

But once she gets her medicaid approved, I am moving her to a cleaner, better

environment place in the months to come. One that does have a wander guard/or

alzheimers unit. She does not wander in here anymore, she lies in bed terrified.

Any others that have had this experience?

Thanks and Happy Mother's Day!

[Guest guest]

Where do you live Donna? I'm in Texas.

I have a friend, who's Mom was in a not so good pending NH in the Dallas

area, and she went on a waiting list for a nicer one in the area, and she

did get her moved within 9 months later when her mom's name came up.

,

You may not have the same problems I had, but it was very difficult to

move Mom once she was on Medicaid. I had the same thoughts you are having and

it didn't work. If you can get her moved because you don't like this place,

do it now. You may not be able to do it afterward.

Hugs,

Donna R

Cared for Mom 3 years in my home and the last year at a nh. She passed

away from LBD in 2002.

Update on my Mom in N.H.

Hi All,

Friday, my Mom seemed to be doing good, she had a normal conversation with

me, but then came the " people " that live in her mind. But all in all

everything was good. I left feeling a little better.

Yesterday, another story, back to her scary thoughts. LBD is a

rollercoaster ride for them, it is so scary for them, and sad for us.

My daughter and 2 others went to visit her, and she said someone was going

to kill her in there, they were all after her. They suggested for her to

go to the dining room to eat, no, never she said, outside, no. They brought

her Kentucky Fried chicken, she loved it, they have her on mechanical diet,

but her swallowing is not bad as far as I can see. She hates the food and

that thickening agent is so thick she won't drink. She enjoyed the coke

they brought her.

I went up for supper time, this place stinks so bad I want to throw up the

min. I get in there with so much urine/poop smell. Most of the residents

here are in bad bad shape mentally. There was one man down the hall from

her, and my granddaughter was with me, and every word out of his mouth was so

much cursing, I had to hold her ears. It was unbelievable. No one was

seeing about him and he lie in bed sreaming out horrible vulgar words. She

refused to go to the dining room, telling me people all over that place were

going to kill her. She has gone to the dining room only a couple of times, but

won't any more. She had a salad, beef macaroni sauce, roll, gross

cheesecake, and thickened ingredients for her drinks, she ate 2 bites of her

macaroni and two bites of her bread, that was it. She is going to get sick from

this bad food.

We had to leave and there she was in that room terrified. Her roommate

told me she was deaf, but I can understand her speech perfectly, and she looks

at her TV and stares out into space. Its a very sad place this place. The

other N.H. rehab she was in 6 months ago was beautiful, clean, no smell

whatsoever, the envirnoment was so much much better. I don't know if this

would make a difference in her mental health or not to have a cleaner, bigger

place or not. But once she gets her medicaid approved, I am moving her to a

cleaner, better environment place in the months to come. One that does have

a wander guard/or alzheimers unit. She does not wander in here anymore,

she lies in bed terrified.

Any others that have had this experience?

Thanks and Happy Mother's Day!

[Non-text portions of this message have been removed]

[Guest guest]

,

You may not have the same problems I had, but it was very difficult to move Mom

once she was on Medicaid. I had the same thoughts you are having and it didn't

work. If you can get her moved because you don't like this place, do it now.

You may not be able to do it afterward.

Hugs,

Donna R

Cared for Mom 3 years in my home and the last year at a nh. She passed away

from LBD in 2002.

Update on my Mom in N.H.

Hi All,

Friday, my Mom seemed to be doing good, she had a normal conversation with me,

but then came the " people " that live in her mind. But all in all everything was

good. I left feeling a little better.

Yesterday, another story, back to her scary thoughts. LBD is a rollercoaster

ride for them, it is so scary for them, and sad for us.

My daughter and 2 others went to visit her, and she said someone was going to

kill her in there, they were all after her. They suggested for her to go to the

dining room to eat, no, never she said, outside, no. They brought her Kentucky

Fried chicken, she loved it, they have her on mechanical diet, but her

swallowing is not bad as far as I can see. She hates the food and that

thickening agent is so thick she won't drink. She enjoyed the coke they brought

her.

I went up for supper time, this place stinks so bad I want to throw up the min.

I get in there with so much urine/poop smell. Most of the residents here are in

bad bad shape mentally. There was one man down the hall from her, and my

granddaughter was with me, and every word out of his mouth was so much cursing,

I had to hold her ears. It was unbelievable. No one was seeing about him and

he lie in bed sreaming out horrible vulgar words. She refused to go to the

dining room, telling me people all over that place were going to kill her. She

has gone to the dining room only a couple of times, but won't any more. She had

a salad, beef macaroni sauce, roll, gross cheesecake, and thickened ingredients

for her drinks, she ate 2 bites of her macaroni and two bites of her bread, that

was it. She is going to get sick from this bad food.

We had to leave and there she was in that room terrified. Her roommate told me

she was deaf, but I can understand her speech perfectly, and she looks at her TV

and stares out into space. Its a very sad place this place. The other N.H.

rehab she was in 6 months ago was beautiful, clean, no smell whatsoever, the

envirnoment was so much much better. I don't know if this would make a

difference in her mental health or not to have a cleaner, bigger place or not.

But once she gets her medicaid approved, I am moving her to a cleaner, better

environment place in the months to come. One that does have a wander guard/or

alzheimers unit. She does not wander in here anymore, she lies in bed

terrified.

Any others that have had this experience?

Thanks and Happy Mother's Day!

[Guest guest]

Hi Dear ,

I am so sorry to read your letter. Don WAS the terror in four nursing homes, and

was kicked out of all of them, so I can't give you an answer. But, I sure would

find another place, as you said.

It is so sad when our LO have to suffer with a bad disease and then suffer under

the conditions your mother is in. I am so very sorry.

Love you dear,

Imogene

>

> Hi All,

>

> Friday, my Mom seemed to be doing good, she had a normal conversation with me,

but then came the " people " that live in her mind. But all in all everything was

good. I left feeling a little better.

>

> Yesterday, another story, back to her scary thoughts. LBD is a rollercoaster

ride for them, it is so scary for them, and sad for us.

>

> My daughter and 2 others went to visit her, and she said someone was going to

kill her in there, they were all after her. They suggested for her to go to the

dining room to eat, no, never she said, outside, no. They brought her Kentucky

Fried chicken, she loved it, they have her on mechanical diet, but her

swallowing is not bad as far as I can see. She hates the food and that

thickening agent is so thick she won't drink. She enjoyed the coke they brought

her.

>

> I went up for supper time, this place stinks so bad I want to throw up the

min. I get in there with so much urine/poop smell. Most of the residents here

are in bad bad shape mentally. There was one man down the hall from her, and my

granddaughter was with me, and every word out of his mouth was so much cursing,

I had to hold her ears. It was unbelievable. No one was seeing about him and

he lie in bed sreaming out horrible vulgar words. She refused to go to the

dining room, telling me people all over that place were going to kill her. She

has gone to the dining room only a couple of times, but won't any more. She had

a salad, beef macaroni sauce, roll, gross cheesecake, and thickened ingredients

for her drinks, she ate 2 bites of her macaroni and two bites of her bread, that

was it. She is going to get sick from this bad food.

>

> We had to leave and there she was in that room terrified. Her roommate told

me she was deaf, but I can understand her speech perfectly, and she looks at her

TV and stares out into space. Its a very sad place this place. The other N.H.

rehab she was in 6 months ago was beautiful, clean, no smell whatsoever, the

envirnoment was so much much better. I don't know if this would make a

difference in her mental health or not to have a cleaner, bigger place or not.

But once she gets her medicaid approved, I am moving her to a cleaner, better

environment place in the months to come. One that does have a wander guard/or

alzheimers unit. She does not wander in here anymore, she lies in bed

terrified.

>

> Any others that have had this experience?

>

> Thanks and Happy Mother's Day!

>

>