Guest guest Posted April 28, 2010 Report Share Posted April 28, 2010 I dont post as much as Id like to.Its been a little over a year since mom died.To be honest Im still there.I dont think it will ever go away.The only difference is that now I cant see mamma and hug her and love her.The fight still goes on for me.I dont sleep well.I get extremely emotional.Physically Ive gone downhill...Im still in the fight. Many days at work I think and wonder, " what can I do? " What can I do to help one caregiver?Make a difference for someone who is still in the fight .Someone who is not only stressed out but also greiving the eventual loss of their precious loved one.Someone who like me, has felt small, weak, overmatched, over taxed, stupid and vulnerable at times.Someone who cries themselves to sleep at night on a regular occasion. WE ARE ALL IN THIS TOGETHER... I know weve had some problems here lately but this is the best group of people in the world.I love you people like my family because you understood.You walked with me and mom.You cared for us. Let us all come together and continue to fight this horrible disease with love and support eachother in our worst moments.Let us give eachother strength.Let us carry eachother through the toughest times and let us caregive our fellow caregivers.The LBDA has a hotline for caregivers .Im not sure if everyone knows this.Its 1800 lewysos.Never be afraid to use that number....I wasnt....Also I want anyone here to email me personally if they EVER need someone to talk to.I will give you my cell and would love to talk or listen or just be there for you.Were all in it together...Lets all care for eachother....Heartfelt best wishes to you all, my family ...The greatest people on earth... Ron Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2010 Report Share Posted April 29, 2010 Ron, you are so right! I haven't participated much, lately because even though it's been 6 months of my daddy's passing, I still can't seem to get it together. I feel I am no position to give advice yet…...emotionally, anyway. I've read the thread that has been going back and forth, but tried to steer clear from it. I love Imogene very much and have learned so much from her as well as from everyone in this group. I consider you all as part of my family and I have no idea what I would have done, had I not found you! Each and everyone one of you is precious and very dear to my heart. Thank you from the bottom of my heart for all the love, support and advice you have shared with me. On that note, I believe we should turn the page and continue with the love, support and advice that everyone so wonderfully offers. I love you guys!!!! from NYC Daughter of Celestino (Tino) Suarez Misdiagnosed for years. Diagnosed with LBD March 2009, but we now know he's had it for at least 4-5 years. God called him home on October 27, 2009. Rest in peace, Daddy. (January 29, 1930 - October 27, 2009) > > I dont post as much as Id like to.Its been a little over a year since mom died.To be honest Im still there.I dont think it will ever go away.The only difference is that now I cant see mamma and hug her and love her.The fight still goes on for me.I dont sleep well.I get extremely emotional.Physically Ive gone downhill...Im still in the fight. > Many days at work I think and wonder, " what can I do? " What can I do to help one caregiver?Make a difference for someone who is still in the fight .Someone who is not only stressed out but also greiving the eventual loss of their precious loved one.Someone who like me, has felt small, weak, overmatched, over taxed, stupid and vulnerable at times.Someone who cries themselves to sleep at night on a regular occasion. > WE ARE ALL IN THIS TOGETHER... > I know weve had some problems here lately but this is the best group of people in the world.I love you people like my family because you understood.You walked with me and mom.You cared for us. > Let us all come together and continue to fight this horrible disease with love and support eachother in our worst moments.Let us give eachother strength.Let us carry eachother through the toughest times and let us caregive our fellow caregivers.The LBDA has a hotline for caregivers .Im not sure if everyone knows this.Its 1800 lewysos.Never be afraid to use that number....I wasnt....Also I want anyone here to email me personally if they EVER need someone to talk to.I will give you my cell and would love to talk or listen or just be there for you.Were all in it together...Lets all care for eachother....Heartfelt best wishes to you all, my family ...The greatest people on earth... Ron > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2010 Report Share Posted April 29, 2010 Ron, It is good to see you on my email. You are at a year and that was the hardest for me. I hope things start to settle a bit now or soon. Your loving and caring for your Mom was always there. And I bet she is there for you now. Take care of yourself. Hugs, Donna R Lets all Come together I dont post as much as Id like to.Its been a little over a year since mom died.To be honest Im still there.I dont think it will ever go away.The only difference is that now I cant see mamma and hug her and love her.The fight still goes on for me.I dont sleep well.I get extremely emotional.Physically Ive gone downhill...Im still in the fight. Many days at work I think and wonder, " what can I do? " What can I do to help one caregiver?Make a difference for someone who is still in the fight .Someone who is not only stressed out but also greiving the eventual loss of their precious loved one.Someone who like me, has felt small, weak, overmatched, over taxed, stupid and vulnerable at times.Someone who cries themselves to sleep at night on a regular occasion. WE ARE ALL IN THIS TOGETHER... I know weve had some problems here lately but this is the best group of people in the world.I love you people like my family because you understood.You walked with me and mom.You cared for us. Let us all come together and continue to fight this horrible disease with love and support eachother in our worst moments.Let us give eachother strength.Let us carry eachother through the toughest times and let us caregive our fellow caregivers.The LBDA has a hotline for caregivers .Im not sure if everyone knows this.Its 1800 lewysos.Never be afraid to use that number....I wasnt....Also I want anyone here to email me personally if they EVER need someone to talk to.I will give you my cell and would love to talk or listen or just be there for you.Were all in it together...Lets all care for eachother....Heartfelt best wishes to you all,� my family ...The greatest people on earth...���� Ron Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2010 Report Share Posted April 29, 2010 Huge heartfelt hugs .He is always with you in your heart.  Big hugs  Ron ________________________________ To: LBDcaregivers Sent: Thu, April 29, 2010 10:09:22 AM Subject: Re: Lets all Come together  Ron, you are so right! I haven't participated much, lately because even though it's been 6 months of my daddy's passing, I still can't seem to get it together. I feel I am no position to give advice yet…...emotionally, anyway. I've read the thread that has been going back and forth, but tried to steer clear from it. I love Imogene very much and have learned so much from her as well as from everyone in this group. I consider you all as part of my family and I have no idea what I would have done, had I not found you! Each and everyone one of you is precious and very dear to my heart. Thank you from the bottom of my heart for all the love, support and advice you have shared with me. On that note, I believe we should turn the page and continue with the love, support and advice that everyone so wonderfully offers. I love you guys!!!! from NYC Daughter of Celestino (Tino) Suarez Misdiagnosed for years. Diagnosed with LBD March 2009, but we now know he's had it for at least 4-5 years. God called him home on October 27, 2009. Rest in peace, Daddy. (January 29, 1930 - October 27, 2009) > > I dont post as much as Id like to.Its been a little over a year since mom died.To be honest Im still there.I dont think it will ever go away.The only difference is that now I cant see mamma and hug her and love her.The fight still goes on for me.I dont sleep well.I get extremely emotional.Physicall y Ive gone downhill...Im still in the fight. > Many days at work I think and wonder, " what can I do? " What can I do to help one caregiver?Make a difference for someone who is still in the fight .Someone who is not only stressed out but also greiving the eventual loss of their precious loved one.Someone who like me, has felt small, weak, overmatched, over taxed, stupid and vulnerable at times.Someone who cries themselves to sleep at night on a regular occasion. > WE ARE ALL IN THIS TOGETHER... > I know weve had some problems here lately but this is the best group of people in the world.I love you people like my family because you understood.You walked with me and mom.You cared for us. > Let us all come together and continue to fight this horrible disease with love and support eachother in our worst moments.Let us give eachother strength.Let us carry eachother through the toughest times and let us caregive our fellow caregivers.The LBDA has a hotline for caregivers .Im not sure if everyone knows this.Its 1800 lewysos.Never be afraid to use that number....I wasnt....Also I want anyone here to email me personally if they EVER need someone to talk to.I will give you my cell and would love to talk or listen or just be there for you.Were all in it together...Lets all care for eachother... .Heartfelt best wishes to you all, my family ...The greatest people on earth...    Ron > Quote Link to comment Share on other sites More sharing options...
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