Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 Bravo! Don didn't need the AM as it made him groggy. He was pleasant up until we had to admit him again. Love Imogene In a message dated 4/21/2010 12:25:50 P.M. Central Daylight Time, planomom@... writes: Hi all, I took Mom this morning to see her neurologist. Remember she started her on seroquel 25 mg. for AM and PM for 2 weeks now. She said she is very very cautious with that dr. as there is a BLACK BOX on the label stating it can cause death or can cause strokes. So she did up it at night to 50 mg. She's on Seroquel 25mg AM and 50mg PM now. She sees the dr. in 3 months. In meantime if she gets worse, she said she can up it in the afternoon. But right now she wants to see if this will work. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 This is outrageous! There are good doctors out there. We had one that was bad, and indifferent, or down right uneducated. We left him when he gave the wrong medicine, without knowing the disease. I sure am sorry about your experience, Love, Imogene In a message dated 4/21/2010 3:58:45 P.M. Central Daylight Time, golfcol@... writes: i took my jim to three neurologist the last one he spent 3 seconds in the room and said by i think if they have this dreaded desease they just throw the key away..yesterday got him back there and thought it would be different ..the dr never saw him just the pa and we left but not before they took a 3o dollar co pay this is bull and i get so up set ..i know he is in later stages but does not need this lack of respect..................................thanks for listening................ On Wed, 4/21/10, L. Ayers wrote: Subject: Saw neurologist To: LBDcaregivers Date: Wednesday, April 21, 2010, 1:22 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 Oh my gosh, I feel for you and who needs to pay a copay and not see the dr. How old is your husband and I am assuming you are his main caregiver:) God bless, in Texas In a message dated 4/21/2010 3:58:46 P.M. Central Daylight Time, golfcol@... writes: i took my jim to three neurologist the last one he spent 3 seconds in the room and said by i think if they have this dreaded desease they just throw the key away..yesterday got him back there and thought it would be different ...the dr never saw him just the pa and we left but not before they took a 3o dollar co pay this is bull and i get so up set ..i know he is in later stages but does not need this lack of respect.....up set ..up set ..up set ...up set ..i know he is in lateup set ..up s On Wed, 4/21/10, L. Ayers <_planomom@..._ (mailto:planomom@...) > wrote: From: L. Ayers <_planomom@..._ (mailto:planomom@...) > Subject: Saw neurologist To: _LBDcaregivers@LBDcaregiverLBD_ (mailto:LBDcaregivers ) Date: Wednesday, April 21, 2010, 1:22 PM Hi all, I took Mom this morning to see her neurologist. Remember she started her on seroquel 25 mg. for AM and PM for 2 weeks now. She said she is very very cautious with that dr. as there is a BLACK BOX on the label stating it can cause death or can cause strokes. So she did up it at night to 50 mg. She's on Seroquel 25mg AM and 50mg PM now. She sees the dr. in 3 months. In meantime if she gets worse, she said she can up it in the afternoon. But right now she wants to see if this will work. [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 i took my jim to three neurologist the last one he spent 3 seconds in the room and said by i think if they have this dreaded desease they just throw the key away..yesterday got him back there and thought it would be different ..the dr never saw him just the pa and we left but not before they took a 3o dollar co pay this is bull and i get so  up set ..i know he is in later stages but does not need this lack of respect..................................thanks for listening................ Subject: Saw neurologist To: LBDcaregivers Date: Wednesday, April 21, 2010, 1:22 PM  Hi all, I took Mom this morning to see her neurologist. Remember she started her on seroquel 25 mg. for AM and PM for 2 weeks now. She said she is very very cautious with that dr. as there is a BLACK BOX on the label stating it can cause death or can cause strokes. So she did up it at night to 50 mg. She's on Seroquel 25mg AM and 50mg PM now. She sees the dr. in 3 months. In meantime if she gets worse, she said she can up it in the afternoon. But right now she wants to see if this will work. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 i would notify insurance company, as seeing a pa isnt billed the same and make sure that they arent billing that you see the doctor, what a shame, i hope you can find a neuro that cares,m hugs. sharon I am the daughter of Leonard whom was diagnosed in May 2004 and he died of complicatons *blood pressure started dropping and wouldn't recover* on Sept 25, 2005. He had bad case of Dr Jekyl/Mr Hyde scenarios. He was showing hallucinations and falling issues since prior to 1994. We moved in to take care of him Jan 19, 2003 and still live in his house. And in feb 2009, i have been diagonosed with 99% probability of lbd. Hoping that a cure or treatment will be found before it's too late for me. From: L. Ayers <_planomomaol (DOT) pla_ (mailto:planomomaol (DOT) com) > Subject: Saw neurologist To: _LBDcaregivers@ LBDcaregiverLBD_ (mailto:LBDcaregivers@ yahoogroups. com) Date: Wednesday, April 21, 2010, 1:22 PM Hi all, I took Mom this morning to see her neurologist. Remember she started her on seroquel 25 mg. for AM and PM for 2 weeks now. She said she is very very cautious with that dr. as there is a BLACK BOX on the label stating it can cause death or can cause strokes. So she did up it at night to 50 mg. She's on Seroquel 25mg AM and 50mg PM now. She sees the dr. in 3 months. In meantime if she gets worse, she said she can up it in the afternoon. But right now she wants to see if this will work. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 It is the entire medical profession... The doctors pick and choose what part of the patient's life they want to be involved in. I had a neurosurgeon that did two different surgies and that is what he did the surgery...alll the office visits...got it PA. The walk in clinic that I used to go to all the time in California...the head doctor was my Primary Care Physician but many days at this clinic people just see the PA. That was OK with me...but When you go to a specialist...there is a reason you want to go to that specialist. I was told once that the PA can do everything except surgery...well neurologists don't do surgery, do they? I could be very wrong. My spine surgeon here just recently got a PA in his office....but this is the way that it goes there. I get called in from the waiting room into an examination room...the PA comes in and talks to me and I guess takes notes on the general subjects...but then the actual spine surgeon comes in after that and he doesn't have to do all the petty note-taking of more general nature but he talks to me, he will prod and have me do range of motion if necessary, etc. That way is very good in my book. > > > Subject: Saw neurologist > To: LBDcaregivers > Date: Wednesday, April 21, 2010, 1:22 PM > > > > > > > > > > > > > > > > > Â > > > > > > > > > > Hi all, > > I took Mom this morning to see her neurologist. Remember she started her on seroquel 25 mg. for AM and PM for 2 weeks now. She said she is very very cautious with that dr. as there is a BLACK BOX on the label stating it can cause death or can cause strokes. So she did up it at night to 50 mg. > > > > She's on Seroquel 25mg AM and 50mg PM now. She sees the dr. in 3 months. > > > > In meantime if she gets worse, she said she can up it in the afternoon. But right now she wants to see if this will work. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2010 Report Share Posted April 22, 2010 Hi , Your mom may not need the AM one or you can half it for AM and afternoon if you find your mom gets too sleepy through out the day. Best, Courage Saw neurologist Hi all, I took Mom this morning to see her neurologist. Remember she started her on seroquel 25 mg. for AM and PM for 2 weeks now. She said she is very very cautious with that dr. as there is a BLACK BOX on the label stating it can cause death or can cause strokes. So she did up it at night to 50 mg. She's on Seroquel 25mg AM and 50mg PM now. She sees the dr. in 3 months. In meantime if she gets worse, she said she can up it in the afternoon. But right now she wants to see if this will work. Quote Link to comment Share on other sites More sharing options...
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