Re: Re: weight loss

[Guest guest]

ddaddy was diagnosed may 2004 and he died sept 2005 and between those two dages

he lost over 80 lbs during that time, and for 6 months he must have consurem

3-4000 calores a day adn stilll lost weight.  hugs. sharon

Daughter of Leonard whom was diagnosed in May 2004 and died of complicatons

*blood pressure started dropping and wouldn't recover* on Sept 25, 2005. He had

bad case of Dr Jekyl/Mr Hyde scenarios. He was showing hallucinations and

falling issues since prior to 1994. We moved in to take care of him Jan 19, 2003

and still live in his house. And in feb 2009, i have been diagonosed with 99%

probability of lbd.

Subject: Re: Re: Tight fist and a fetal position

To: LBDcaregivers

Date: Sunday, March 14, 2010, 11:03 PM

 

Hi Imogene-

My dad was very ill, with respiration pneumonia, in January 2000. He was so very

sick and very, very thin. He looked as if he had aged years. He had a PEG tube

inserted and prevailed. Had the PEG tube removed April 4, 2000 and lived another

2 1/2 years. There is no defining time frame with LBD. I always said, as long as

there is life, there is hope!

Interesting you mentioned Don is still losing weight. That happened to my dad

and my mother-in-law. Unexplained weight loss. If you can get into the photo's

in the LBDcaregivers yahoo site, please go to the folder titled S -

Sandie and . You will see when my dad was ill with aspiration pneumonia

to where he prevailed with weight gain, happy, rosey cheeks, then one year later

which was taken a couple months before he passed away.

So pleased to read you have Don's bowels regulated. Very important.

Our loved ones often rebound. Keep your faith. Hang in there and know others are

also sending up many prayers for you and Don.

Big Iowa hugs-

Sandie

Des Moines, IA

dad, Merle, passed from LBD 9-20-02, age 65

mother-in-law, Jo, (New Zealand) passed from LBD 4-29-07, age 78

----- Re: Tight fist and a fetal position

Date: Mon, 15 Mar 2010 03:24:25 -0000

Hi Sandie,

Thanks for your reply. So now I know that just because Don is still walking,

does not mean he is out of the woods. Don is very thin. The kids commented about

it today. He eats very good. I have his bowel regulated, and it is good. But, he

is still loosing a little more weight all along. He has weighed 200 lbs. But,

held his weight at 185 for years. Now, it is 143, and he is a tall man, about

6'2 " now, maybe 6'1 " . He is so stooped over it is difficult to tell.

I think eating is one of the biggest signs to look for in how he is really

doing. And, he is eating well.

Thanks again, Sandie, with love,

Imogene

> > >

> > > Hi everyone,

> > >

> > > Marilyn, I am glad things are working out. I haven't been able to write

but I am with you in spirit.

> > >

> > > I have a question. Have any of you experineced your LO in a fetal position

and the fist are tightly clinched, then have to help get them open and get him

up, and after getting his sea legs, he is able to walk just fine?

> > >

> > > My Don has been doing this for almost three weeks. I thought when a person

started doing those things (clinching fist and going into a fetal position) that

they were close to the end. Yet, how can he get up (with help) and move around

without any trouble? He doesn't seem a bit close to the end to me.

> > >

> > > We have Hospice now, for all the help they are so far. I had to send the

bathing girl away this morning because she was wearing heavy perfume. We told

her I would get sick from it. She must have forgotten. She said I only have on a

little bit. I told her it only takes a bee sting to kill some people, and that

is just a little bit.

> > >

> > > Love you all, and waiting for an answer,

> > > Imogene

> > >

> >

>

>

>

>

> ------------ --------- --------- ------

>

> Welcome to LBDcaregivers.

>

>