Guest guest Posted March 22, 2010 Report Share Posted March 22, 2010 Hi Tammy, I feel for your mother. I am in the same boat. I would like to respond but like your mother, I have very little time. I try to look at my mail every few days. I am on this site, and put my mail on " NO Mail. " I read the mail on our WEB site. I am not bothered with a lot of mail, but when I can I take a look and can usually just skim, but once in a while I'll write, as to you. When your father is napping, if she will sign up, she can do as I do and will gain a wealth of knowledge, and " how to, " as well as friends who care. This is as important as doing everything in the house. Knowledge is power. Knowledge will make it easier on her. She needs some care big time. I have a caregiver for me, but she is only here 3 1/2 hours a day. She will make lunch. My husband has hospice. I have been caring for him since he began acting differently. He wasn't diagnosed until March of 06. Well, he had been diagnosed the year before with Alzheimer's. (wrong!) I do give my husband all the love in the world, showing him affection several times a day. It helps keep him calm at home. He has been kicked out of 4 nursing homes because of agitation and violence. He wasn't in them long. I also try to agree with him. Never argue. He can't reason. Dear, I could help your Mom some once in a while, but will not be able to do much one on one, because I would have to be here checking all the time. There is nothing much worse than the situation your mother is in, and I feel for her with all my heart. I don't know your address. Love a bunch, Imogene > > We are having such a hard time, Mom taking the blunt of it all as she is his primary caregiver. She calls me at least once to twice a week in tears and about ready to give up. Along with him being hyper at night and not settling down which is not allowing her to sleep, so she stays exhausted, he has began pissing all over the house, he REFUSES to wear depends diapers. He is getting aggressive physically with Mom, swinging at her, pushing her and has also begun spitting all over the house instead of swallowing his saliva. Mom is at her wits end and severely depressed and has NO insurance and no job as she was just laid off recently from her job. So she is getting no aid with drugs to calm her down. We BOTH especially MOM just needs an email buddy to maybe even CALL her and help support her in these times and maybe answer some lingering questions she keeps presenting to me. I try to reach out to her in suggestions, some work, some don't, try to help her out at home as best I can, I have an infant and live three hours from them, and try to reach out to folks online as well. Mom does NOT have the time to sit online and do forums or chat groups, she has a LBD husband to care for. I can't count the number of times she will try to get online only to have him calling out for her or if we are on the phone talking to have her put me on hold or call me back because she has to go help him go to the bathroom, eat, etc. I am so scared of loosing her to a mental breakdown or heart attack with the stress level she has gone into and how she is not coping well with some of the stages his disease has recently taken on and how to care for him. So any suggestions beyond our individual stories of where I can aid her in reaching out to find her some individuals who have or have had a loved one with LBD that she can talk to is imperative to me at this point, cause without her, well I hate to finish the sentence. > > So anyone willing to send her private emails for her to address when she has a computer moment of time or make a call to her, PLEASE PLEASE contact me and help me get my Mother through these difficult times. > > Worried Daughter, Tammy > Love with a smile, Imogene Caregiver for my true Texas Gentleman Husband, who was diagnosed with AD in '05, but correctly diagnosed with LBD in March '06. A happy personality is contagious. Infect someone today Yours Truly Quote Link to comment Share on other sites More sharing options...
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