Guest guest Posted February 24, 2010 Report Share Posted February 24, 2010 hi joan, yeah i have always been sensitive to peoples negativity towards me, and espeically when i am not feeling well anyway, that makes me easily hurt and yes, i was stressing yesterday big time, when i do get emotional whether up. down, happy sad, angry depressed my lbd kicks in more and tehn i have to be more careful and i make sure i dont drive at all, stress is definitely a has a negative definite impact on my lbd issues, my vocabulary and usage of words gets worser, i have a tendency to have diffiuclty swallowing and i ahve to concentrate on swallowing, and i fall more. so donnie and my friends all try to keep me from getting overly stressed out, even kenneth avoids getting on my nerves on my bad days. well i just got to let negativity flow off of me, i am trying but not easy habit to master,  thanks for your concern joan, hugs to you  sharon Daughter of Leonard whom was diagnosed in May 2004 and died of complicatons *blood pressure started dropping and wouldn't recover* on Sept 25, 2005. He had bad case of Dr Jekyl/Mr Hyde scenarios. He was showing hallucinations and falling issues since prior to 1994. We moved in to take care of him Jan 19, 2003 and still live in his house. And in feb 2009, i have been diagonosed with 99% probability of lbd. Subject: Re: sniffling i had a baddddd fall tonite To: LBDcaregivers Date: Wednesday, February 24, 2010, 10:20 PM  Hi Sharon, Oh...my..... I am so sorry that you have fallen and seemed to have injured yourself pretty badly. Did you just fall for no reason...you said that the last time you were all upset and emotional when it happened the last time, and then it sounded like maybe that is the reason that you fell this time, too. Your friends are right, it isn't right to jeopardize your health just because of people that stress you out. Sending hugs and prayers for stress-free healing and stress-free days ahead, Joan > > hi all, >  > i am sniffling here, i had a really bad episode for the infamous lewy body fall. i was walking to teh laundry room it is outdoors in our carport, and i have to go down a deck and steps that are concrete but carpeted with indoor /outdoor carpet and is not slick, i was not carrying anything, and there was nothing to trip over, dogs were asleep in house unitl i screamed and cried out. > i was holding onto railing and stepped onto deck and the next thing i knew i was on my back on the steps, with my right toe nicely tucked uner my feet. my elbows, back and the back of my legs are now blessed with some very pretty red rug burns. my neck kinda whiplashed when i fell and now my neck wtih has severe osteoarthirstis at all level o f my neck. my knee is throbbing and i am guessing i will end out getting another steroid injection in my neck and then of course teh big toe i hope i didnt hairline fractur it, but it is already turning a very nice shae of blue/purlple arghhhhhh this happened not even 30 mintues ago and i am already in sooo much pain, i have started putting ice on eveything, and taken ibuprofen for swelling and then i also took my extra pain thru morphine cause anytime i get hurt or sick,  my kidneys start to spasm and go into intense pain so if i can get ahead ot it, that helps ,  i thik that i son eo fthe worst > tihngs i know about lbd is teh unexplained falls, they are so damn frustrating, > the last time i fell like this was almost 8 months ago and at that time i was very upset and emotional about something and fell in the driveway and hit my head on the concrete and had to go to ER fortunately no concussion, i try not to let people upset me or let things get to me so i dont have these falls. my friends * hugs* keep telling me, my health isnt worth me letting people get to me, esp when they seem to try to get to me. > lol, i am trying my friend, i am trying   hugs. sharon  > > Daughter of Leonard whom was diagnosed in May 2004 and died of complicatons *blood pressure started dropping and wouldn't recover* on Sept 25, 2005. He had bad case of Dr Jekyl/Mr Hyde scenarios. He was showing hallucinations and falling issues since prior to 1994. We moved in to take care of him Jan 19, 2003 and still live in his house. And in feb 2009, i have been diagonosed with 99% probability of lbd. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2010 Report Share Posted February 24, 2010 hi sandra, thanks for the note of concern, i am certainly covered in bruises, theose yellow ones that seem to hurt more than the other ones, sheeeesh and my right foot adn knee are both extremly swollen, i am betting i will have to get another cortosine shot in my knee, the last one lasted about 1 year so not bad at all, my knee was just starting to get where it was reminding me it wasnt healthy when i fell, i know stress makes my lbvd and my kidneys worse but i still have a hard time letting conflict or negatve attiutdes roll off of me. lol  i amtaking extra pain meds and using ice packs and using some arthiritc pain gel pads my doc gave me as samples those helped ease my neck pain i will call my doc and get a steroid dose pack and see if that might hlep before i have to get teh shot, bexue teh shot will be for my knee not my nekc the medrol dosepack will take care of both, how are tihngs up there with the olympics, are you all surviving , it is almost over, lol hugs. sharon Daughter of Leonard whom was diagnosed in May 2004 and died of complicatons *blood pressure started dropping and wouldn't recover* on Sept 25, 2005. He had bad case of Dr Jekyl/Mr Hyde scenarios. He was showing hallucinations and falling issues since prior to 1994. We moved in to take care of him Jan 19, 2003 and still live in his house. And in feb 2009, i have been diagonosed with 99% probability of lbd. Subject: Re: sniffling i had a baddddd fall tonite To: LBDcaregivers Date: Wednesday, February 24, 2010, 10:51 AM  Sharon, so sorry to hear. I have to wonder if you are even ambulatory today, most likely very sore. Take it easy as you recover from this one. > > hi all, >  > i am sniffling here, i had a really bad episode for the infamous lewy body fall. i was walking to teh laundry room it is outdoors in our carport, and i have to go down a deck and steps that are concrete but carpeted with indoor /outdoor carpet and is not slick, i was not carrying anything, and there was nothing to trip over, dogs were asleep in house unitl i screamed and cried out. > i was holding onto railing and stepped onto deck and the next thing i knew i was on my back on the steps, with my right toe nicely tucked uner my feet. my elbows, back and the back of my legs are now blessed with some very pretty red rug burns. my neck kinda whiplashed when i fell and now my neck wtih has severe osteoarthirstis at all level o f my neck. my knee is throbbing and i am guessing i will end out getting another steroid injection in my neck and then of course teh big toe i hope i didnt hairline fractur it, but it is already turning a very nice shae of blue/purlple arghhhhhh this happened not even 30 mintues ago and i am already in sooo much pain, i have started putting ice on eveything, and taken ibuprofen for swelling and then i also took my extra pain thru morphine cause anytime i get hurt or sick,  my kidneys start to spasm and go into intense pain so if i can get ahead ot it, that helps ,  i thik that i son eo fthe worst > tihngs i know about lbd is teh unexplained falls, they are so damn frustrating, > the last time i fell like this was almost 8 months ago and at that time i was very upset and emotional about something and fell in the driveway and hit my head on the concrete and had to go to ER fortunately no concussion, i try not to let people upset me or let things get to me so i dont have these falls. my friends * hugs* keep telling me, my health isnt worth me letting people get to me, esp when they seem to try to get to me. > lol, i am trying my friend, i am trying   hugs. sharon  > > Daughter of Leonard whom was diagnosed in May 2004 and died of complicatons *blood pressure started dropping and wouldn't recover* on Sept 25, 2005. He had bad case of Dr Jekyl/Mr Hyde scenarios. He was showing hallucinations and falling issues since prior to 1994. We moved in to take care of him Jan 19, 2003 and still live in his house. And in feb 2009, i have been diagonosed with 99% probability of lbd. > > > > > Quote Link to comment Share on other sites More sharing options...
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