Re: To weak to keep up

[Guest guest]

Brigite, Thank you, I really need to know I'm not alone. It has been so confusing for me. I thought I had all of these other things wrong with me and to find out it has been the implants this whole time, it shocks me. KissofSadness@... wrote: >>>>>>>The thing is, my implants are saline but the surgeon said if they were saline they would be empty, not leaking siowly. <<<<<<< , This isn't true. You can have a slow leak, especially if it's through a faulty valve. Leaks can be so slow they can only leak a drop or two here and there. My first set of implants began leaking

immediately, and I couldn't remove them because I didn't have the funds. From October 1997 to April 1999, it only went down 1 cup size. And Mentor themselves told me it was a faulty valve. Then, my second set I got April 1999 did the same thing. I have record of having been to doctors who've agreed I have a slow leak for the past 8 years starting from 6 months after surgery when I noticed a volume change, except that first doctor who implanted me told me it was just one dropping faster than the other. (Probably because he was about to leave the country and didn't want to fool with me.) It's taken 8 years of leaking, and it's about half the size of the other one --- and really, most of that happened over the past year. For some reason, it got worse when I quit being able to wear regular bras and went with sports bras because the tissue up under my breasts and armpits hurts so bad I can't stand a regular one. (Sports bras still hurt, but I can handle

them a few hours.) Anyway... leaks CAN be slow. I've had many doctors who've concurred. I also got sick within a matter of a month or two, and my first disease was neurological. Then, over the next months, the depression and anxiety came. Once you have that, they'll blame anything on it. I also have trouble with energy like you're describing. It was diagnosed over time as Chronic Fatigue Syndrome, and Fibromyalgia. There are also periods where I can't even sit up at the computer, or the couch... and on a normal basis, I only leave my house a day or two per week because doing any more walking than what it takes just being indoors exhausts me too bad. So, you might also look into doctors who can do such a diagnosis... although there's really nothing they do for it. Best wishes, and good luck to you. I wish I could say something helps that kind of fatigue, but I haven't found it in anything. Brigite See what's free at AOL.com.

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[Guest guest]

Dede, Thank you so much! Since I started the group I've begun making notes, things to discuss with the doctor. I want to go in prepared so they at least think I know what I'm talking about.I've learned a great deal also.DGRAHAMA@... wrote: ~ Bless You ! ! Saline implants can leak slowly, and without rupture ! ! ! It is the valve. The valves that have leaks have been known to have bi-directional flow problems, leaking fluids out as well as flowing in, making a nasty soup of who knows what inside of you. Very IMPORTANT to have your implants removed en bloc so that the

fluids in the capsules dont get into your body cavity. Dont let anyone touch you unless they agree to do the proceedure that way, and they have lots of experience. I still have my last pair inside me. One is 1/3 smaller than the other. Both have grown from 36 C to way past 42 DD. I no longer wear a bra. They squash my heart and make it jump constantly. I have a pacemaker/defibrillator to control my heart. I am sure the implant closest to my heart just is way too heavy. I am also sure that they are full of fluid from irritation. One explant I had the doc did not explant and do it enbloc and I got so sick. I was sick to begin with cuz it was a silicone rupture, then to have the caps left behind about did me in. YOU do NOT want that. That is why I stress the enbloc

proceedure, aslo with drain tubes. You will heal much better with drain tubes. I will pray this doctor knows his stuff and will get you in soon. Hugs and Prayers ~ Dede See what's free at AOL.com.

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[Guest guest]

Lynn, Thanks for the advice about the dounut pillow. Right now I'm using my old feather pillow that wraps around my neck.Thanks for the prayers also.spinkscl <spinkscl@...> wrote: You are not the only one. There are a few other women on this site who have also exerienced this neck pain. There were some days were I wished I had one of those white foam like neck braces to wear to hold up my head!! I also always found myself leaning on my hand, using my hand to hold up the weight of my head. I didn't understand any of this and it freaked me out and made my anxiety sore. Take care and I pray you can have surgery soon so you can begin to reclaim your health. Again, you should look into getting one of those neck dounut things, it has helped me tremendously. If you don't know what

I am talking about, let me know and I will try to find a photo of one on a website.Lynn> >> > I went to see a surgeon on Wednesday about explant surgery. It was a > > disaster. They never received my ultrasound or the report so I got > > sent home. I've been so sick and weak, I can't think straight. I

see > a > > different surgeon Friday the 25th. I wish I didn't sound so stupid > > when I went to the doctor but I'm doing all I can to hold my head up > > lately. I'm sick of being sick. I feel I make no sense and I'm not > > getting my point across. I'm so angry! The doctors act like I'm crazy > > for saying the implants have made me so sick. They say I'm depressed. > > I tell them I wouldn't be so depressed if I wasn't so sick.> >> > > > >

[Guest guest]

Sandy, I was wondering if my night sweats were caused by the implants. When you say crawly feeling, do you mean like restless leg syndrome? I have restless leg syndrome all over my body.Sandy <dusty.com@...> wrote: Three years later when my implants were removed. The pain in my head,shoulders, neck, the night sweats and crawly feeling dissipated immediately upon removal. Hope this gives you a ray of hope, Sandy~ I know that heart trouble can cause neck pain, and I would bet with implants in it irritates your heart, causing the pain in the neck, and when you are expanted, it eventually goes away. Sounds good anyway, I plan for my pain to go away when I am explanted. .

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[Guest guest]

Thank you so much for your help! I'm new at this computer stuff and I don't always think straight. You lead me to where I needed to go.Rogene S <saxony01@...> wrote: Pynerone, If you'll click on the "Visit Your Group" , on the link below, you'll be able to access our archives. . . Then go to "Files" . . We recommend a number of surgeons who will take your problems seriously . . Some of them will answer your questions via email. If you can't find one near you, we can help you with questions to ask before even going in for a consult. Most plastic surgeons get defensive when illness from breast implants is brought up . . . IMHO, the reason is lots of denial and guilt. The good news is that you can

get much, much better by having your implants properly removed and detoxing. . . It may take some time - but it's well worth the effort to get your life back! Hugs and prayers, Rogene

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[Guest guest]

, Having a goal to work towards is very important . . . We all want to "be healthy" . . . but often we don't SEE ourselves there. I can tell that you are already picturing yourself healthy and back to enjoying your plants! . . . Keep doing that and it will become your reality one of the days - hopefully very soon. Hugs, Rogene

[Guest guest]

Just to add ... I really don't know what happened with me, the right

one had a sore spot behind it, then they both started burning, but

seemed like it happened so quickly. I just posted that I have had 5

lymph nodes removed now, all with silicone in them, and mine were

saline and had them 2 1/2 years. So you just don't know what the

heck is going on in there. It is more complicated than leaking.

And just like both of you, was sick pretty fast and did not think it

was the implants the whole time! Nan

>

> >>>>>>>The thing is, my implants are saline but the surgeon said

if they

> were saline they would be empty, not leaking siowly. <<<<<<<

>

> ,

>

> This isn't true. You can have a slow leak, especially if it's

through a

> faulty valve. Leaks can be so slow they can only leak a drop or

two here and

> there. My first set of implants began leaking immediately, and I

couldn't remove

> them because I didn't have the funds. From October 1997 to April

1999, it only

> went down 1 cup size. And Mentor themselves told me it was a

faulty valve.

> Then, my second set I got April 1999 did the same thing. I have

record of

> having been to doctors who've agreed I have a slow leak for the

past 8 years

> starting from 6 months after surgery when I noticed a volume

change, except that

> first doctor who implanted me told me it was just one dropping

faster than

> the other. (Probably because he was about to leave the country

and didn't want

> to fool with me.) It's taken 8 years of leaking, and it's about

half the

> size of the other one --- and really, most of that happened over

the past year.

> For some reason, it got worse when I quit being able to wear

regular bras and

> went with sports bras because the tissue up under my breasts and

armpits

> hurts so bad I can't stand a regular one. (Sports bras still hurt,

but I can

> handle them a few hours.) Anyway... leaks CAN be slow. I've had

many doctors

> who've concurred.

>

> I also got sick within a matter of a month or two, and my first

disease was

> neurological. Then, over the next months, the depression and

anxiety came.

> Once you have that, they'll blame anything on it. I also have

trouble with

> energy like you're describing. It was diagnosed over time as

Chronic Fatigue

> Syndrome, and Fibromyalgia. There are also periods where I can't

even sit up at

> the computer, or the couch... and on a normal basis, I only leave

my house a

> day or two per week because doing any more walking than what it

takes just

> being indoors exhausts me too bad. So, you might also look into

doctors who can

> do such a diagnosis... although there's really nothing they do

for it.

>

> Best wishes, and good luck to you. I wish I could say something

helps that

> kind of fatigue, but I haven't found it in anything.

>

> Brigite

>

>

>

>

>

> ************************************** See what's free at

http://www.aol.com.

>

[Guest guest]

,

I got sick right after getting saline implants, too, and mine

weren't even leaking. I had saline implants for six months and then

had them removed.

Sis

> When did you start getting sick from the implants? When did

they rupture, and were you injured that caused the rupture, or did

they do it on their own?

> Where do you live? There is a list of doctors that remove

implants and do it properly in our archives.

> Wishing you get your health back ~

> Dede

>

>

>

>

> ---------------------------------

> See what's free at AOL.com.

>

>

>

> ---------------------------------

> Ready for the edge of your seat? Check out tonight's top picks on

TV.

>

[Guest guest]

~

You put it so well," living this undead life that isnt dead, but not alive" .....it is a very painful way to manage dieing alive. Only those that have been there can understand......In life, My hope is to heal and live again, in death I know it is my birth into heaven, and I look forward to that. I just have more living to do here first ! I wish you well with your new doctor !

Blessings ~ DedeSee what's free at AOL.com.

[Guest guest]

Bless you ~ remember to stop and smell the roses

do you meditate?

Hugs N Prayers

DedeSee what's free at AOL.com.

[Guest guest]

Sis, Thanks for responding. I go see the surgeon tomorrow, wish me luck!auntsisnj <auntsisnj@...> wrote: ,I got sick right after getting saline implants, too, and mine weren't even leaking. I had saline implants for six months and then had them removed.Sis> When did you start getting sick from the implants? When did they rupture, and were you injured that caused the rupture, or did they do it on their own? > Where do you live? There is a list of doctors that remove implants and do it properly in our archives. > Wishing you get your health back ~ > Dede> > > > > ---------------------------------> See what's free at AOL.com. > > > > ---------------------------------> Ready for the edge of your seat? Check out tonight's top picks on TV.>

[Guest guest]

Dede, I'm hopeful I will finally be heard. I fear being disfigured but not as much as living this undead life. Not dead, but yet not alive. I want to live!!! DGRAHAMA@... wrote: ~ You are welcome. You are in my prayers ! Remember, no matter what the doctor says, you are NOT alone, and we are here for you in full support. Hopefully he will be a good listener, and a doctor with morals, and empathy, and skill. Hugs ! Dede See what's free at AOL.com.

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[Guest guest]

Rogene, I honestly don't think I would have this new hopeful attitude if it wasn't for the support I've been getting the last few days by you and all of the other women. For this I am grateful! I can try to discuss this issue with my friends and loved ones but they can never understand. I have a 4 year old little girl and one day soon I will run with her for the first time in her life, I can't wait.Rogene S <saxony01@...> wrote: , Having a goal to work towards is very important . . . We all want to "be healthy" . . . but often we don't SEE ourselves there. I can tell that you are already picturing yourself healthy and back to enjoying your plants! . . . Keep doing that and it will become your reality one of the

days - hopefully very soon. Hugs, Rogene

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[Guest guest]

Thanks Dede, I'm so tired. I've been at the computer for 2 hours making copies for the surgeon on everything in the group files about capsule removal-total capsulectomy, en bloc , and more.DGRAHAMA@... wrote: ~ You put it so well," living this undead life that isnt dead, but not alive" .....it is a very painful way to manage dieing alive. Only those that have been there can understand......In life, My hope is to heal and live again, in death I know it is my birth into heaven, and I look forward to that. I just have more living to do here first ! I wish you well with your new doctor !

Blessings ~ Dede See what's free at AOL.com.

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[Guest guest]

,

Good luck, and if Rogene hasn't already forewarned you, if the

doctor says that you'll be deformed or unhappy with the results

after explant, consider that a testimony to their skill and continue

your search for the right surgeon.

Sis

> > When did you start getting sick from the implants? When did

> they rupture, and were you injured that caused the rupture, or did

> they do it on their own?

> > Where do you live? There is a list of doctors that remove

> implants and do it properly in our archives.

> > Wishing you get your health back ~

> > Dede

> >

> >

> >

> >

> > ---------------------------------

> > See what's free at AOL.com.

> >

> >

> >

> > ---------------------------------

> > Ready for the edge of your seat? Check out tonight's top picks

on

> TV.

> >

>

>

>

>

>

[Guest guest]

I hear you! auntsisnj <auntsisnj@...> wrote: ,Good luck, and if Rogene hasn't already forewarned you, if the doctor says that you'll be deformed or unhappy with the results after explant, consider that a testimony to their skill and continue your search for the right surgeon. Sis> > When did you start getting sick from the implants? When did > they rupture, and were you injured that caused the rupture, or did > they

do it on their own? > > Where do you live? There is a list of doctors that remove > implants and do it properly in our archives. > > Wishing you get your health back ~ > > Dede> > > > > > > > > > ---------------------------------> > See what's free at AOL.com. > > > > > > > > ---------------------------------> > Ready for the edge of your seat? Check out tonight's top picks on > TV.> >> > > > >

[Guest guest]

Dede, Yes I do, I have prayer and meditation each day. Sometimes twice a day and sometimes off and on all day long. That's why I loved landscaping, there's a peace I felt with my hands in God's green earth. Being one on one with God in my own spiritual space admiring his greatest creation,the earth. My prayer and meditation is the only thing that has kept me sane these past couple of years. I almost lost everything materially last year but I haven't given up.I meditate to quiet the voices and negativity of things such as my financial burdens that I would not have if I were not sick. I have anger and resentment issues because I'm sick also, meditation helps me with these things as well. Thank you so much for becoming my friend, DGRAHAMA@... wrote: Bless you ~ remember to stop and smell the roses do you meditate? Hugs N Prayers Dede See what's free at AOL.com.

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[Guest guest]

~

That is awesome. I used to love doing yardwork and having lots of fun things in my yard, I love the beauty of our gift as well. That is wonderful. You will be able to run your own business again. It is wonderful to have you as a friend as well ! !

Hugs N Prayers~

DedeSee what's free at AOL.com.

[Guest guest]

, Was your daughter born after your implants? . . . I started a group . . group SiliconeKids for the families of children born after implants. Some of the children's issues are quite severe . . . What the mothers post is just the tip of the iceberg. It appears that getting them on a very health diet early on makes a big difference. . . And, some of the kids are hypersensitive to silicone . . . Removing all silicone/silica/silicone dioxide products from their environment makes a big difference. I pray your daughter is doing fine. Hugs and prayers, Rogene

[Guest guest]

, Have you checked the Shutterfly album (check the link below) . . . You'll see that our women come out looking good! We can't post boob pictures on , or we get classified as an adult website, so we had to move them to Shutterfly. Rogene

[Guest guest]

, I am so sad that you lost all of your plants. There are more plants waiting for you to rescue them. I love to do gardening and yard work too, but thank you to the Rats, I can no longer work the way that I used to.

Sending you love and support....Lea

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~````

Re: To weak to keep up

~

That is awesome. I used to love doing yardwork and having lots of fun things in my yard, I love the beauty of our gift as well. That is wonderful. You will be able to run your own business again. It is wonderful to have you as a friend as well ! !

Hugs N Prayers~

Dede

See what's free at AOL.com.

[Guest guest]

Rogene, No, thank God she was 2 when I had them done. Rogene S <saxony01@...> wrote: , Was your daughter born after your implants? . . . I started a group . . group SiliconeKids for the families of children born after implants. Some of the children's issues are quite severe . . . What the mothers post is just the tip of the iceberg. It appears that getting them on a very health diet early on makes a big difference. . . And, some of the kids are hypersensitive to silicone . . . Removing all silicone/silica/silicone dioxide products from their environment makes a big difference. I pray your daughter is doing fine. Hugs and prayers, Rogene

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[Guest guest]

Lea ~

The silicone shells for the saline break down, our bodies are programmned to fight foreign bodies, that is why when you get a splinter and cant get it out, your body will eventually spit it out. Silicone particles just go where they want to, and of course our bodies are filters for junk, and it just so happened that her lymph nodes got clogged from those particles ! !

More proof salines are NOT what they say they are ! !

I hope you are feeling better today sweet Lea ! Love Dede

See what's free at AOL.com.

[Guest guest]

Lea ~

I dont know why, but the kefir gives me energy ! ! It is amazing, and it could be because I am so out of balance, the kefir is giving me something I am without. I used to just drink it in the am before lunch. Now I am drinking some about 30 min to an hour before lunch, and also mid afternoon before supper. I have been so ill this last month because of what that new diuretic did to me, I am still streightening myself back out. I am much better ! !

I am glad you are feeling better. Please take bunches of breaks, and dont over do it. Cant enjoy that new big deck if you are in bed. It would be kewl to have a very comfortable bed like chair for you and Dave out there ! Enjoy your day, Love you bunches ! DSee what's free at AOL.com.

[Guest guest]

Dearest Nan:

Honey, are you sure that you had saline, or did you have the Double-Lumen? How could they find silicone in your lymph nodes when you had saline? This must be frustrating for you. When I spoke to Dr. Blais a few weeks ago, he told me that bugs would come out of the saline implants, and that it is important to have them removed soon. Could this really happen, and where would the bugs go! With silicone, the bugs would surely die, I just do not understand all this. How do we kill the bugs, if they do get into our bodies via the implants???

Health Canada and the FDA have never mentioned anything about bugs growing in the saline implants! Why would any women have parisites, this is crazy. What should we do about all this? There must be someone who could help to prove that they are trying to kill many thousands of people with their unsafe devices.

Nan, we have to find a way to fight back, because this must stop. My wish is that you get better, now that you have had this garbage removed.

Sending love to you....Lea

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~`

Re: To weak to keep up

Just to add ... I really don't know what happened with me, the right one had a sore spot behind it, then they both started burning, but seemed like it happened so quickly. I just posted that I have had 5 lymph nodes removed now, all with silicone in them, and mine were saline and had them 2 1/2 years. So you just don't know what the heck is going on in there. It is more complicated than leaking. And just like both of you, was sick pretty fast and did not think it was the implants the whole time! Nan>> >>>>>>>The thing is, my implants are saline but the surgeon said if they > were saline they would be empty, not leaking siowly. <<<<<<<> > ,> > This isn't true. You can have a slow leak, especially if it's through a > faulty valve. Leaks can be so slow they can only leak a drop or two here and > there. My first set of implants began leaking immediately, and I couldn't remove > them because I didn't have the funds. From October 1997 to April 1999, it only > went down 1 cup size. And Mentor themselves told me it was a faulty valve. > Then, my second set I got April 1999 did the same thing. I have record of > having been to doctors who've agreed I have a slow leak for the past 8 years > starting from 6 months after surgery when I noticed a volume change, except that > first doctor who implanted me told me it was just one dropping faster than > the other. (Probably because he was about to leave the country and didn't want > to fool with me.) It's taken 8 years of leaking, and it's about half the > size of the other one --- and really, most of that happened over the past year. > For some reason, it got worse when I quit being able to wear regular bras and > went with sports bras because the tissue up under my breasts and armpits > hurts so bad I can't stand a regular one. (Sports bras still hurt, but I can > handle them a few hours.) Anyway... leaks CAN be slow. I've had many doctors > who've concurred.> > I also got sick within a matter of a month or two, and my first disease was > neurological. Then, over the next months, the depression and anxiety came. > Once you have that, they'll blame anything on it. I also have trouble with > energy like you're describing. It was diagnosed over time as Chronic Fatigue > Syndrome, and Fibromyalgia. There are also periods where I can't even sit up at > the computer, or the couch... and on a normal basis, I only leave my house a > day or two per week because doing any more walking than what it takes just > being indoors exhausts me too bad. So, you might also look into doctors who can > do such a diagnosis... although there's really nothing they do for it.> > Best wishes, and good luck to you. I wish I could say something helps that > kind of fatigue, but I haven't found it in anything.> > Brigite > > > > > > ************************************** See what's free at http://www.aol.com.>