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barry beyerstein wrote about this " Paradoxical Belifs About Badness,

Sickness, and Addiction " at

http://bcrecovernet.org/articles/paradoxical_beliefs_about_badnes.htm

I read it last night and it explains why the shift to medical model of

addictions is inadequate and paternalistic.

Carol

At 09:54 PM 6/23/99 +0200, you wrote:

>Hi.

>

>Could anybody explain the mutual interests between AA and medical

>science?

>

>The explanation so far on the net goes about like this: The medicine

>science is canvassing the view that all addictions are a result of a

>disease of the brain. XA's are working cheap, as their survival are

>dependent on helping fellow XA'ers.

>

>The mutual benefit is as follows:

>

>The medicine science gets a powerful lobby through TV etc. expressing

>the view that those addictions are diseases.

>

>AA gets a recognition from the most estimated people (the doctors) that

>their condition is a result of an inherited disease.

>

>Therefore: Science will soon discover a medical therapy that will make

>the sufferings of alcoholics unnecessary.

>

>But until the realization of this scientific progress it's necessary for

>diseased subjects to participate in XA. Because the society doesn't

>understand. And because your mind have been twisted by your disease.

>

>Comments?

>

>Bjørn.

>

>

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At 01:53 PM 6/23/99 -0700, you wrote:

>barry beyerstein wrote about this " Paradoxical Belifs About Badness,

>Sickness, and Addiction " at

>http://bcrecovernet.org/articles/paradoxical_beliefs_about_badnes.htm

>

>

>I read it last night and it explains why the shift to medical model of

>addictions is inadequate and paternalistic.

>

>Carol

It is very interesting and I liked it a lot, that is until I got to this

part, at which point my interst started to fade somewhat;

>The strong lobbying efforts of patient support groups promoting an organic

rather than psychological etiology for so-called " chronic fatigue syndrome "

reflect this lingering abhorrence of psychological explanations for malaise

(Shorter, 1992).

The problem I have with this is that the reality is not really at all like

it sounds when he puts it that way. I have this illness and I know it is

physcial, my hospital consultant says it is, and she is a specialist in

this area working in the UK's most prestigious teaching (and research)

hospital. I have read the scientific research. A growing body of this

research has shown that patients who have the severe chronic fatigue

illness that is usually called " Chronic Fatigue Syndrome " do in fact have a

variety of real, physical abnormalites in a number of body systems

indicating that what they have is a real physical illness. Under such

circumstances the lobbying by patient groups to promote a proper

understanding of the ilness makes perfect sense. It is the strange and

paradoxical desire of many uninformed physicians and psychologists to treat

this physical illness as if it was " all in the mind " , as this article

subtly suggests that it is, that is the irrational and damaging behaviour here.

Joe Berenbaum

mailto:joe-b@...

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cfs is definitely organic caused by who knows what. Maybe the environment.

It has another name ME and there are support and medical research. Not all

is known and there is a bias that the disorder is psychosomatic. The author

obviously didn't know but the points on switching to a disease medical

model are true. There is no " treatment " for alcoholism.

Carol

At 01:20 AM 6/24/99 +0100, you wrote:

>At 01:53 PM 6/23/99 -0700, you wrote:

>>barry beyerstein wrote about this " Paradoxical Belifs About Badness,

>>Sickness, and Addiction " at

>>http://bcrecovernet.org/articles/paradoxical_beliefs_about_badnes.htm

>>

>>

>>I read it last night and it explains why the shift to medical model of

>>addictions is inadequate and paternalistic.

>>

>>Carol

>

>It is very interesting and I liked it a lot, that is until I got to this

>part, at which point my interst started to fade somewhat;

>

>>The strong lobbying efforts of patient support groups promoting an organic

>rather than psychological etiology for so-called " chronic fatigue syndrome "

>reflect this lingering abhorrence of psychological explanations for malaise

>(Shorter, 1992).

>

>The problem I have with this is that the reality is not really at all like

>it sounds when he puts it that way. I have this illness and I know it is

>physcial, my hospital consultant says it is, and she is a specialist in

>this area working in the UK's most prestigious teaching (and research)

>hospital. I have read the scientific research. A growing body of this

>research has shown that patients who have the severe chronic fatigue

>illness that is usually called " Chronic Fatigue Syndrome " do in fact have a

>variety of real, physical abnormalites in a number of body systems

>indicating that what they have is a real physical illness. Under such

>circumstances the lobbying by patient groups to promote a proper

>understanding of the ilness makes perfect sense. It is the strange and

>paradoxical desire of many uninformed physicians and psychologists to treat

>this physical illness as if it was " all in the mind " , as this article

>subtly suggests that it is, that is the irrational and damaging behaviour

here.

>

>Joe Berenbaum

>mailto:joe-b@...

>

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At 06:24 PM 6/23/99 -0700, you wrote:

>cfs is definitely organic caused by who knows what. Maybe the environment.

>It has another name ME and there are support and medical research. Not all

>is known and there is a bias that the disorder is psychosomatic. The author

>obviously didn't know but the points on switching to a disease medical

>model are true. There is no " treatment " for alcoholism.

>

>Carol

No, I know, the rest of what he says is really good. After I posted that I

read the rest. I just tend to react nowadays (and regard that as a healthy

thing!) when I read misinformation about ME especially when it is written

by a professional who should know better and who is writing from a

perspective of prejudice rather than science. A lot of people with ME are

learning to react. We have found that without it we tend to get walked all

over, often lose our state benefits and get treated with colossal idiocy by

ignorant doctors with strangely aggressive attitudes. All of that has

happened to me, some of it several times- now I stand up for msyelf and

make a well worded complaint to whatever professional body I can. The

message is getting through, gradually. There is now a ME Action UK list

that I am involved in to some extent. Sometimes you just gotta fight the

idiocy, or it just carries on.

Joe Berenbaum

mailto:joe-b@...

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Hey Joe;

I think it's pretty well accepted that " Chronic Fatigue Syndrome " is

the result of several systems malfunctioning in what would

otherwise be minor, if they didn't happen in bunches.

Rose was originally diagnosed as chronic fatigue, but that was

later changed to Fibromyalgia, which produces similar symptoms.

I think the psychological part of chronic fatigue or Fibromyalgia is a

result of the physical, plus time. The stuff just wears a person right

into the ground and Rose gets to the point where she just can't go

another inch, she's done for a while. Then if she's down and can't

do the things she wants for three or four days, along comes

depression and makes the cycle longer. She takes Prozac along

with the specifics for the Fybromyalgia and the arthritus that she

has. The Prozac does a pretty fair job of heading off the

depression, not 100%, but a lot better than before she was taking it.

If I remember right Chronic Fatigue Syndrome defied diagnosis for a

long time because the tests for the physical ailments were within

normal limits. However when looked at overall, too many were near

the far ends of the limits. If you buy a car and all the cylinders in

the engine are near the + end of the tolerance range and all the

pistons are at the - limit of tolerance, you've bought a new car that

will use oil, yet all systems are within tolerance. Combine that

with the same luck in the transmission and you got big time

trouble, yet everything is within tolerance.

Same is true with medical tests on the body, they have ranges

generally, not just one target figure.

Best analogy I could think of.

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At 08:15 PM 6/23/99 -0600, you wrote:

>Hey Joe;

>

>I think it's pretty well accepted that " Chronic Fatigue Syndrome " is

>the result of several systems malfunctioning in what would

>otherwise be minor, if they didn't happen in bunches.

>

>Rose was originally diagnosed as chronic fatigue, but that was

>later changed to Fibromyalgia, which produces similar symptoms.

There is a number of people claiming improvement and even cure of fibro

with a relatively inactive drug called guaifenesin. She (or you) might like

to take a look at the web page that explains this- I keep meaning to try

this myself but I haven't yet;

http://www.geocities.com/HotSprings/Spa/5252/

>I think the psychological part of chronic fatigue or Fibromyalgia is a

>result of the physical, plus time. The stuff just wears a person right

>into the ground and Rose gets to the point where she just can't go

>another inch, she's done for a while. Then if she's down and can't

>do the things she wants for three or four days, along comes

>depression and makes the cycle longer. She takes Prozac along

>with the specifics for the Fybromyalgia and the arthritus that she

>has. The Prozac does a pretty fair job of heading off the

>depression, not 100%, but a lot better than before she was taking it.

The thing is, and this is what makes the psychologist's and shrink's

assertions that ME/CFS is psychological so stupid- we already know that

many serious and disabling physical illness have a psychological component.

It is well known. Cancer, heart disease, multiple sclerosis, you name it-

you do a psychological profile of these patients and you can find the same

tenuous evidence that they have a psychological problem. Of course they

have, they are very ill! It fucks your head up! Yet in the case of ME/CFS

this well known phenomenon is taken to signify something entirely

different- that the cause of the illness is itself psychological. It is

junk science. With a certain amount of stupidity, prejudice and hypocrisy

mixed in there too, I think, based on some of the doctors I have dealt with

in the past.

>If I remember right Chronic Fatigue Syndrome defied diagnosis for a

>long time because the tests for the physical ailments were within

>normal limits. However when looked at overall, too many were near

>the far ends of the limits. If you buy a car and all the cylinders in

>the engine are near the + end of the tolerance range and all the

>pistons are at the - limit of tolerance, you've bought a new car that

>will use oil, yet all systems are within tolerance. Combine that

>with the same luck in the transmission and you got big time

>trouble, yet everything is within tolerance.

>

>Same is true with medical tests on the body, they have ranges

>generally, not just one target figure.

>

>Best analogy I could think of.

>

>

As I understand it, it isn't just a case of everything being at an extreme

end of yet still within the normal range, but lots of systems being

affected- there really are things that are WAY out of whack. There are

well-established tests that can be done that show clear physical

abnormalities in the brain and central nervous system, but they are scans

and are expensive to perform. But they are there. Plus a few years ago,

they also found reduced blood supply to part of the brain (in some

particular kind of brain scans) in a pattern that is not found in depressed

patients, and is thought to be unique to ME/CFS. Plus now two new potential

dignostic tests- cortisol levels are different from healthy patients (also

in a unique way I think), and some very new research showing abnormal

response to light in the eye (and brain?) that is also thought to be

unique. So there are a whole lot of physical abnormalities to find. And

then of course there are the abnormal ratios of muscle fibres found in ME

patients when muscle biopsies are performed, and of course abrnormalities

in the immune system and so on. That is what makes these psychologising

doctors' behaviour so criminally stupid. The proof that is is a physical

condition is there. They just like to ignore it.

Joe Berenbaum

mailto:joe-b@...

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Isn't Chronic Fatique associated with Epstein Barr which is caused by the

same virus that causes mononucleosis? And when you have mono, you are very

tired (fatiqued?) for quite a few weeks.

Jan

Re: AA/ Brain industry?

>cfs is definitely organic caused by who knows what. Maybe the environment.

>It has another name ME and there are support and medical research. Not all

>is known and there is a bias that the disorder is psychosomatic. The author

>obviously didn't know but the points on switching to a disease medical

>model are true. There is no " treatment " for alcoholism.

>

>Carol

>

>

>At 01:20 AM 6/24/99 +0100, you wrote:

>>At 01:53 PM 6/23/99 -0700, you wrote:

>>>barry beyerstein wrote about this " Paradoxical Belifs About Badness,

>>>Sickness, and Addiction " at

>>>http://bcrecovernet.org/articles/paradoxical_beliefs_about_badnes.htm

>>>

>>>

>>>I read it last night and it explains why the shift to medical model of

>>>addictions is inadequate and paternalistic.

>>>

>>>Carol

>>

>>It is very interesting and I liked it a lot, that is until I got to this

>>part, at which point my interst started to fade somewhat;

>>

>>>The strong lobbying efforts of patient support groups promoting an

organic

>>rather than psychological etiology for so-called " chronic fatigue

syndrome "

>>reflect this lingering abhorrence of psychological explanations for

malaise

>>(Shorter, 1992).

>>

>>The problem I have with this is that the reality is not really at all like

>>it sounds when he puts it that way. I have this illness and I know it is

>>physcial, my hospital consultant says it is, and she is a specialist in

>>this area working in the UK's most prestigious teaching (and research)

>>hospital. I have read the scientific research. A growing body of this

>>research has shown that patients who have the severe chronic fatigue

>>illness that is usually called " Chronic Fatigue Syndrome " do in fact have

a

>>variety of real, physical abnormalites in a number of body systems

>>indicating that what they have is a real physical illness. Under such

>>circumstances the lobbying by patient groups to promote a proper

>>understanding of the ilness makes perfect sense. It is the strange and

>>paradoxical desire of many uninformed physicians and psychologists to

treat

>>this physical illness as if it was " all in the mind " , as this article

>>subtly suggests that it is, that is the irrational and damaging behaviour

>here.

>>

>>Joe Berenbaum

>>mailto:joe-b@...

>>

>>------------------------------------------------------------------------

>>FreeShop is the #1 place for free and trial offers and great deals!

>>Try something new and discover more ways to save!

>>http://clickhere./click/381

>>

>>

>>

>>eGroups.com home: /group/12-step-free

>> - Simplifying group communications

>>

>>

>>

>>

>>

>>

>>

>---

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>

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I cannot begin to express my relief in finding this group for my husbands

sake as well as my own. Our stories are the same as yours, and I am still

outraged that we both fell for the AA doctrine hook line and sinker. I am so

excited to live my life. And when Jack Trimpney told me about the Beast and

what things in life were my own choice, I did not even want to drink, now

that I knew that I could. Childish, yes, but also very human.

Thank You Thank You Thank You

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Hi ;

That pinpoint of light that sort of gets bigger and maybe forms a

shape such as a rough horse shoe or circle is the aura that I was

talking about.

Rose and I both use Darvocet N-100's. Also laying the body down

is a must or they can last days. Two Darvocet and lay down as

soon as that aura starts and two hours or so later all is ok. I know

of no medication that will consistently allow Rose or myself to just

keep on going with one. If I try it I wind up throwing up and the

whole nine yards. I just give in. However, once I made the

decision that it was OK to give in and rest, the headaches got

farther apart. Last one I had was while we were moving last July.

Oh, I almost forgot, I also keep Anti-vert, which is a much milder

anti-emetic than that Compazine, but works just as well for me.

The Generic name is Meclizine. Basically it's a sophisticated form

of drammamine, but works well for me. I don't believe it's any

relative of Compazine, but I could be wrong on that. I get some

bad results from most of the Chlorapromazine drugs such as

compazine, thorazine et al.

My prescription says one or two every 4 hours and that would be

high for a 25mg Chlorapromazine drug. That's why I don't believe

Meclizine is a relative of compazine. Also they it put in over the

counter motion sickness stuff which I doubt they would if it

belonged to that family. Rose and I both try to use the mildest

drug possible that will work.

The Darvocet only works if I lay down. It will knock it for long

enough to fall asleep. When I wake up, I may still be a little rocky

but the headache has passed.

Migraines are nothing to fool with. They are serious business and I

need to treat myself like the sick person I am when they come on.

It doesn't make a damn what causes it when I'm having an attack.

I pamper myself just as I would if I had pneumonia.

A migraine is my body saying " I've had enough and I need some

rest, if you don't give me that rest you will pay dearly! " These

stresses are the same that will come with the flu or other seious

ailments. It's not " All in my head " other than that's where it begins

hurting.

I'm adamant about this because AA taught me " Well it's just

stress, if I relax here for a minute it should go away " Then I'd beat

myself up when it didn't! NO MORE!

If it means missing work, so be it. Anyone who has had or knows

someone who has migraines knows how serious they are. Why be

sick for days when you stand a good chance knocking it in 4 hours

or so if you attack it immediately with the proper drugs and rest?

Take that time and pamper yourself, no guilt, no apology, you

cannot legitimately apologize for something you cannot control.

AA's religion teaches us in a backhanded way that these things

are our punishments from God. It reinforces a fear in us that this is

true, well it's not, it's a lie we've bought into and need to unlearn.

We are not damned we are just people who developed some

unhealthy behaviors. The NEED for these behaviors was forced on

us against our will. Would we punish a child for being the victim of

a kidnapping, telling them they should have known better? Why

not it's the way we treat ouselves. So long it takes to learn such

simple things about the way we feel toward ourselves and then do

something about it. The something is treating ourselves with

Tender Loving Care. We deserve it and need it. We grow old,

cynical and bitter otherwise.

Be very careful about the way you treat yourself, you are a fragile

human being like I am.

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(chuckle) I don't think they are related strains. Just hope the Roseanne

Barr virus is not contagious.

Jan

Re: AA/ Brain industry?

>>

>>

>> >cfs is definitely organic caused by who knows what. Maybe the

environment.

>> >It has another name ME and there are support and medical research. Not

all

>> >is known and there is a bias that the disorder is psychosomatic. The

author

>> >obviously didn't know but the points on switching to a disease medical

>> >model are true. There is no " treatment " for alcoholism.

>> >

>> >Carol

>> >

>> >

>> >At 01:20 AM 6/24/99 +0100, you wrote:

>> >>At 01:53 PM 6/23/99 -0700, you wrote:

>> >>>barry beyerstein wrote about this " Paradoxical Belifs About Badness,

>> >>>Sickness, and Addiction " at

>> >>>http://bcrecovernet.org/articles/paradoxical_beliefs_about_badnes.htm

>> >>>

>> >>>

>> >>>I read it last night and it explains why the shift to medical model of

>> >>>addictions is inadequate and paternalistic.

>> >>>

>> >>>Carol

>> >>

>> >>It is very interesting and I liked it a lot, that is until I got to

this

>> >>part, at which point my interst started to fade somewhat;

>> >>

>> >>>The strong lobbying efforts of patient support groups promoting an

>> organic

>> >>rather than psychological etiology for so-called " chronic fatigue

>> syndrome "

>> >>reflect this lingering abhorrence of psychological explanations for

>> malaise

>> >>(Shorter, 1992).

>> >>

>> >>The problem I have with this is that the reality is not really at all

like

>> >>it sounds when he puts it that way. I have this illness and I know it

is

>> >>physcial, my hospital consultant says it is, and she is a specialist in

>> >>this area working in the UK's most prestigious teaching (and research)

>> >>hospital. I have read the scientific research. A growing body of this

>> >>research has shown that patients who have the severe chronic fatigue

>> >>illness that is usually called " Chronic Fatigue Syndrome " do in fact

have

>> a

>> >>variety of real, physical abnormalites in a number of body systems

>> >>indicating that what they have is a real physical illness. Under such

>> >>circumstances the lobbying by patient groups to promote a proper

>> >>understanding of the ilness makes perfect sense. It is the strange and

>> >>paradoxical desire of many uninformed physicians and psychologists to

>> treat

>> >>this physical illness as if it was " all in the mind " , as this article

>> >>subtly suggests that it is, that is the irrational and damaging

behaviour

>> >here.

>> >>

>> >>Joe Berenbaum

>> >>mailto:joe-b@...

>> >>

>>

>>------------------------------------------------------------------------

>> >>FreeShop is the #1 place for free and trial offers and great deals!

>> >>Try something new and discover more ways to save!

>> >>http://clickhere./click/381

>> >>

>> >>

>> >>

>> >>eGroups.com home: /group/12-step-free

>> >> - Simplifying group communications

>> >>

>> >>

>> >>

>> >>

>> >>

>> >>

>> >>

>> >---

>> >Up With People!

>> >

>> >Visit: Information on recovery alternatives at

>> >Http:\\www.BCRecovernet.org

>> >

>> >------------------------------------------------------------------------

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>> >http://clickhere./click/380

>> >

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>> >

>>

>>

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>

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Joe, actually I don't expect the doctors with the highest incomes to be the best

-- but in this system, I think the best doctors do tend to have the highest

incomes. I have to qualify that statement, though, because my experience was

before HMOs became the standard. So perhaps it's not true any more.

You know, in this country, people don't believe that medical care is a basic

right, and I'm at a loss to understand why. We do believe (at least we give lip

service to the idea) that education is a basic right, and that freedom of speech

is a basic right (as long as we don't holler " Fire " in a theater), and I don't

mean to disparage either of those principles. It's puzzling to me, however,

that health care is not a basic right when it's clearly a prerequisite to

exercising either of the other rights. After all, you can't learn or say

anything if you're dead.

---

Kayleigh

Zz

zZ

|\ z _,,,---,,_

/,`.-'`' _ ;-;;,_

|,4- ) )-,_..;\ ( `'-'

'---''(_/--' `-'\_)

>At 03:26 PM 6/26/99 -0700, you wrote:

>>I don't know if it's true in the UK, Joe, but here some of the very best

>doctors I have met do have very high incomes. The two I have met were

>surgeons. They went out of their way to establish rapport with patients,

>as well as being exceptional surgeons. This is an unusual combination, in

>my opinion, but very welcome.

>>---

>>Kayleigh

>

>It is a bit different here because there is state (National Health Service)

>treatment which is supposed to be as good as anyone really needs, and a lot

>of dedicated doctors work in that system, so it is good, in spite of

>political manipulation and squeezing of it by unprincipled persons. That is

>where I would expect to find the best doctors. Then there is also private

>medicine which is much more of a minority choice and there are very likely

>very good doctors working in the private medical system but I would think

>the prime motive would not so much be to help people get better, as to make

>money. And some will work in both private and state medical systems. So

>here I would not expect the highest paid doctors to necessarily be the best

>medical practitioners- if I wamted the best I would look for it in the

>state system. My consultant is a good examople- she is about as good as

>they come, and I don't pay a cent to see her. Well I wouldn't- we don't use

>cents here... ;-) I'm not unbiased though- my father did medical research

>for many years working in the same hopital and I probably inherited some of

>his attitudes, like decent medical care was something everyone deserved as

>a right, and so on.

>

>Joe Berenbaum

>mailto:joe-b@...

>

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