Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 Hi! My name is from BA argentina and I have ben caring for my Dad for 4 years with LBD. Until last year we managed with meds but as from June 2008 his memory went worse and has had day care till Feb 2009 when went down the rollercoaster as you saiy. All the year long he had his ups and downs but now he is getting worse. We cannot manage to get him seated for more than 10 min and apart from pacing all along the house he can stand for hours on end looking at the floor and picking up things tiring both my brother and me and both of his caregivers. I haven't written but read the mails in the group for years, which has been of great help to understand this desease. Thanks to all those who shared their experience and sad stories, which makes us all stronger to face this suffering. Happy new Year to all And let´s rejoice on the love we can give to our loved ones. Caregiver to 81 A group to provide support and information for Lewy Body Dementia caregivers Messages In This Digest (10 Messages) 1a.Re: Pacing From: Randy 1b.Re: Pacing From: Iward27663@... 1c.Re: Pacing From: Iward27663@... 2a.Fw: Re: it is happening too fast From: Donna Mido 2b.Re: Fw: Re: it is happening too fast From: Sharon Murray 2c.Fw: Re: it is happening too fast From: Joan 3a.not lbd related my aunt died today From: Sharon Murray 3b.Re: not lbd related my aunt died today From: Joan 4.Re: Pacing/ Correction OT From: Iward27663@... 5.Re: Sharon - not lbd related my aunt died today From: Sandie / View All Topics | Create New Topic Messages 1a.Re: Pacing Posted by: " Randy " randalisa@... randalisa Mon Dec28,2009 8:08am (PST) I wish I knew! Butch did that a lot too before this last fall where he broke a few ribs. He's not had much strength since then.But, before thathe would walk around the house constantly and was not resting much at all. I could usually distract him with food or by telling him it was a holiday and he had the day off. He told us it was part of his routine too and he was working. Butch was a mail carrier for years and as his disease progresses, he is obsessed with " delivering " mail. He was putting all the mail together and rubber banding it together. Then, he'd look for his mail truck all over the house so he could go deliver the mail to the other house with the same address as ours. It can be exhausting on a caregiver when their LO is in this state of mind. You have to watch them closely or they may get outside and wander off and Butch was so unsteady, we had to watch him to try and make sure he didn't fall (which happens anyway, you can't prevent all of their falls, its impossible). Hang in there! Alisa daughter-in-law to Butch, 74, DX PD 13 years ago & LBD 3 years ago. ________________________________ To: LBDcaregiversyahoogroups (DOT) com Sent: Mon, December 28, 2009 1:01:21 AM Subject: Pacing Dad paces every now and then ... but lately it has been getting overbearing. ...He paces from room to room or from upstairs to downstairs.. for hours on end.. One time.. he literally walked for 18 hours.. only stopping when I said he needed to eat. The following day he would complain of pain... of course... There are times he doesnt believe me when i tell him he has been pain all day. Most sleeping meds dont work or just aggravate the symptoms.. I have tried herbal rememdies but no result.. Does anyone have tips on how to handle this?... He says it's part of the routine when asked about it and it has been tough for me to deal with.. Any advice? yn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 patricia please dont forget totake care of yourslf hugs sharon Brusco wrote: > > Hi! > My name is from BA argentina and I have ben caring for my Dad for 4 years > with LBD. Until last year we managed with meds but as from June 2008 his memory went > worse and has had day care till Feb 2009 when went down the rollercoaster as you saiy. All > the year long he had his ups and downs but now he is getting worse. We cannot manage to > get him seated for more than 10 min and apart from pacing all along the house he can stand > for hours on end looking at the floor and picking up things tiring both my brother and me and > both of his caregivers. > I haven't written but read the mails in the group for years, which has been of great help to > understand this desease. > Thanks to all those who shared their experience and sad stories, which makes us all stronger > to face this suffering. > Happy new Year to all > And let´s rejoice on the love we can give to our loved ones. > > Caregiver to 81 > A group to provide support and information for Lewy Body Dementia caregivers > Messages In This Digest (10 > Messages) > 1a.Re: Pacing From: Randy > 1b.Re: Pacing From: Iward27663aol (DOT) com > 1c.Re: Pacing From: Iward27663aol (DOT) com > 2a.Fw: Re: it is happening too fast From: Donna Mido > 2b.Re: Fw: Re: it is happening too fast From: Sharon Murray > 2c.Fw: Re: it is happening too fast From: Joan > 3a.not lbd related my aunt died today From: Sharon Murray > 3b.Re: not lbd related my aunt died today From: Joan > 4.Re: Pacing/ Correction OT From: Iward27663aol (DOT) . com > 5.Re: Sharon - not lbd related my aunt died today From: Sandie / > View All Topics | Create New Topic > Messages > 1a.Re: Pacing > Posted by: " Randy " randalisayahoo (DOT) com > randalisa > Mon Dec28,2009 8:08am (PST) > I wish I knew! Butch did that a lot too before this last fall where he broke a few ribs. He's > not had much strength since then.But, before thathe would walk around the house > constantly and was not resting much at all. I could usually distract him with food or by > telling him it was a holiday and he had the day off. He told us it was part of his routine too > and he was working. Butch was a mail carrier for years and as his disease progresses, he > is obsessed with " delivering " mail. He was putting all the mail together and rubber > banding it together. Then, he'd look for his mail truck all over the house so he could go > deliver the mail to the other house with the same address as ours. It can be exhausting > on a caregiver when their LO is in this state of mind. You have to watch them closely or > they may get outside and wander off and Butch was so unsteady, we had to watch him to > try and make sure he didn't fall (which happens anyway, > you can't prevent all of their falls, its impossible). Hang in there! > Alisa > daughter-in- law to Butch, 74, DX PD 13 years ago & LBD 3 years ago. > ____________ _________ _________ __ > From: yn < joelynobi@rocketmai l.com > > To: LBDcaregivers@ yahoogroups. com > Sent: Mon, December 28, 2009 1:01:21 AM > Subject: Pacing > Dad paces every now and then ... but lately it has been getting overbearing. ...He paces > from room to room or from upstairs to downstairs.. for hours on end.. One time.. he > literally walked for 18 hours.. only stopping when I said he needed to eat. > The following day he would complain of pain... of course.... There are times he doesnt > believe me when i tell him he has been pain all day. Most sleeping meds dont work or just > aggravate the symptoms.. I have tried herbal rememdies but no result.. > Does anyone have tips on how to handle this?... He says it's part of the routine when > asked about it and it has been tough for me to deal with.. Any advice? > yn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 patricia please dont forget totake care of yourslf hugs sharon Brusco wrote: > > Hi! > My name is from BA argentina and I have ben caring for my Dad for 4 years > with LBD. Until last year we managed with meds but as from June 2008 his memory went > worse and has had day care till Feb 2009 when went down the rollercoaster as you saiy. All > the year long he had his ups and downs but now he is getting worse. We cannot manage to > get him seated for more than 10 min and apart from pacing all along the house he can stand > for hours on end looking at the floor and picking up things tiring both my brother and me and > both of his caregivers. > I haven't written but read the mails in the group for years, which has been of great help to > understand this desease. > Thanks to all those who shared their experience and sad stories, which makes us all stronger > to face this suffering. > Happy new Year to all > And let´s rejoice on the love we can give to our loved ones. > > Caregiver to 81 > A group to provide support and information for Lewy Body Dementia caregivers > Messages In This Digest (10 > Messages) > 1a.Re: Pacing From: Randy > 1b.Re: Pacing From: Iward27663aol (DOT) com > 1c.Re: Pacing From: Iward27663aol (DOT) com > 2a.Fw: Re: it is happening too fast From: Donna Mido > 2b.Re: Fw: Re: it is happening too fast From: Sharon Murray > 2c.Fw: Re: it is happening too fast From: Joan > 3a.not lbd related my aunt died today From: Sharon Murray > 3b.Re: not lbd related my aunt died today From: Joan > 4.Re: Pacing/ Correction OT From: Iward27663aol (DOT) . com > 5.Re: Sharon - not lbd related my aunt died today From: Sandie / > View All Topics | Create New Topic > Messages > 1a.Re: Pacing > Posted by: " Randy " randalisayahoo (DOT) com > randalisa > Mon Dec28,2009 8:08am (PST) > I wish I knew! Butch did that a lot too before this last fall where he broke a few ribs. He's > not had much strength since then.But, before thathe would walk around the house > constantly and was not resting much at all. I could usually distract him with food or by > telling him it was a holiday and he had the day off. He told us it was part of his routine too > and he was working. Butch was a mail carrier for years and as his disease progresses, he > is obsessed with " delivering " mail. He was putting all the mail together and rubber > banding it together. Then, he'd look for his mail truck all over the house so he could go > deliver the mail to the other house with the same address as ours. It can be exhausting > on a caregiver when their LO is in this state of mind. You have to watch them closely or > they may get outside and wander off and Butch was so unsteady, we had to watch him to > try and make sure he didn't fall (which happens anyway, > you can't prevent all of their falls, its impossible). Hang in there! > Alisa > daughter-in- law to Butch, 74, DX PD 13 years ago & LBD 3 years ago. > ____________ _________ _________ __ > From: yn < joelynobi@rocketmai l.com > > To: LBDcaregivers@ yahoogroups. com > Sent: Mon, December 28, 2009 1:01:21 AM > Subject: Pacing > Dad paces every now and then ... but lately it has been getting overbearing. ...He paces > from room to room or from upstairs to downstairs.. for hours on end.. One time.. he > literally walked for 18 hours.. only stopping when I said he needed to eat. > The following day he would complain of pain... of course.... There are times he doesnt > believe me when i tell him he has been pain all day. Most sleeping meds dont work or just > aggravate the symptoms.. I have tried herbal rememdies but no result.. > Does anyone have tips on how to handle this?... He says it's part of the routine when > asked about it and it has been tough for me to deal with.. Any advice? > yn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 Hello , I like you do more reading than writing and I also have learned a lot. Good luck with your father. It is a sad thing. My mother is not quite that bad yet, and I am so sad at the thought of it. Again, good luck and take care. Robin ________________________________ To: LBDcaregivers Sent: Wed, December 30, 2009 3:34:13 PM Subject: Re: Digest Number 6112  Hi! My name is from BA argentina and I have ben caring for my Dad for 4 years with LBD. Until last year we managed with meds but as from June 2008 his memory went worse and has had day care till Feb 2009 when went down the rollercoaster as you saiy. All the year long he had his ups and downs but now he is getting worse. We cannot manage to get him seated for more than 10 min and apart from pacing all along the house he can stand for hours on end looking at the floor and picking up things tiring both my brother and me and both of his caregivers. I haven't written but read the mails in the group for years, which has been of great help to understand this desease. Thanks to all those who shared their experience and sad stories, which makes us all stronger to face this suffering. Happy new Year to all And let´s rejoice on the love we can give to our loved ones. Caregiver to 81 A group to provide support and information for Lewy Body Dementia caregivers Messages In This Digest (10 Messages) 1a.Re: Pacing From: Randy 1b.Re: Pacing From: Iward27663aol (DOT) com 1c.Re: Pacing From: Iward27663aol (DOT) com 2a.Fw: Re: it is happening too fast From: Donna Mido 2b.Re: Fw: Re: it is happening too fast From: Sharon Murray 2c.Fw: Re: it is happening too fast From: Joan 3a.not lbd related my aunt died today From: Sharon Murray 3b.Re: not lbd related my aunt died today From: Joan 4.Re: Pacing/ Correction OT From: Iward27663aol (DOT) com 5.Re: Sharon - not lbd related my aunt died today From: Sandie / View All Topics | Create New Topic Messages 1a.Re: Pacing Posted by: " Randy " randalisayahoo (DOT) com randalisa Mon Dec28,2009 8:08am (PST) I wish I knew! Butch did that a lot too before this last fall where he broke a few ribs. He's not had much strength since then.But, before thathe would walk around the house constantly and was not resting much at all. I could usually distract him with food or by telling him it was a holiday and he had the day off. He told us it was part of his routine too and he was working. Butch was a mail carrier for years and as his disease progresses, he is obsessed with " delivering " mail. He was putting all the mail together and rubber banding it together. Then, he'd look for his mail truck all over the house so he could go deliver the mail to the other house with the same address as ours. It can be exhausting on a caregiver when their LO is in this state of mind. You have to watch them closely or they may get outside and wander off and Butch was so unsteady, we had to watch him to try and make sure he didn't fall (which happens anyway, you can't prevent all of their falls, its impossible). Hang in there! Alisa daughter-in- law to Butch, 74, DX PD 13 years ago & LBD 3 years ago. ____________ _________ _________ __ From: yn <joelynobi@rocketmai l.com> To: LBDcaregivers@ yahoogroups. com Sent: Mon, December 28, 2009 1:01:21 AM Subject: Pacing Dad paces every now and then ... but lately it has been getting overbearing. ...He paces from room to room or from upstairs to downstairs.. for hours on end.. One time.. he literally walked for 18 hours.. only stopping when I said he needed to eat. The following day he would complain of pain... of course... There are times he doesnt believe me when i tell him he has been pain all day. Most sleeping meds dont work or just aggravate the symptoms.. I have tried herbal rememdies but no result.. Does anyone have tips on how to handle this?... He says it's part of the routine when asked about it and it has been tough for me to deal with.. Any advice? yn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2009 Report Share Posted December 31, 2009 , I'd like to welcome you and your dad to the forum. From Argentina no less. Please don't be a stranger and post whenever you wish. My best to you, your dad and your brother. Courage Pacing Dad paces every now and then ... but lately it has been getting overbearing. ...He paces from room to room or from upstairs to downstairs.. for hours on end.. One time.. he literally walked for 18 hours.. only stopping when I said he needed to eat. The following day he would complain of pain... of course... There are times he doesnt believe me when i tell him he has been pain all day. Most sleeping meds dont work or just aggravate the symptoms.. I have tried herbal rememdies but no result.. Does anyone have tips on how to handle this?... He says it's part of the routine when asked about it and it has been tough for me to deal with.. Any advice? yn Quote Link to comment Share on other sites More sharing options...
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