Guest guest Posted September 15, 2001 Report Share Posted September 15, 2001 I truly appreciate when people respond to something I have asked. It is such a wonderful feeling when you can get some answers or at least some support. For that, I thank all of you. Now, to expand on my situation... I had a tt in May '01 (pap thyca). I have had many problems finding the right doctor to treat me because of insurance problems and the fact that no one in my area really knows anything about thyca. Long story short, I am seeing Dr. Ringel at the Washington Hospital Center on Wednesday, 9/19 in hopes of scheduling RAI for some time this fall. Since I knew that I would have to wait for some time, my family physician and I decided to work on finding out what dose of Levoxyl would work best for me. In June, my TSH was 9.1 (on .112 for the past seven years, increased to .125). In July, it was 24.6 (increased to .175). In August, it was 3.56 (increased to .200). Now, from my previous post the other day, I am now 18 days late for my cycle. Mind you, I am VERY irregular and have been this late on a few other occasions. My question is, is it possible to be this late with all the medication dose changes? Could it really screw you up this much? I, too, have been having the handfuls of hair falling out and I'm not even that hypo. I think at times I am just grasping at straws because after three kids and dealing with this thyca, I am just not prepared physically or emotionally to have another child. I do know that if I am pregnant, it is meant to be and I will not only accept the situation, but certainly realize the wonderful gift that has been given to me. However, I am really worried about how long you can wait for the RAI. I nursed all three of my children and if I am pregnant, I would want to give this to the " new " child as well. I know that thyca is really slow growing and my thyca was completely encapsulated (per pathology). I know that it is impossible for the surgeon to get all of the thyroid tissue and realistically, there probably is some of the cancerous tissue still inside me, right? Oh, I just need someone to comfort me!!! I will get a pregnancy test either tomorrow or Monday and that will at least answer one of my questions. I have to take my daughter to our family physician on Tuesday, so I may request a blood test to be 100% sure. Thank you so much for reading my long post... and thank you in advance for any words of wisdom. Peace to all and God Bless America! Nanette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2001 Report Share Posted September 16, 2001 Nanette - Isn't life ironic. I just got the clear bill of health after two RAI's in the last year and am hoping to get pregnant and you are worried you are. I am not a Dr but I can speak from experience that these drugs control more things in our bodies than we can understand. Remember that you are dealing with a hormone. Think of how much it effects your skin, hair, moods, energy, etc. Our bodies are so complex that even the Dr's cannot understand it all - only our mighty creator knows. I know that there is more to it because I went of my birth control pills last Sunday in anticipation that I would have good test results on Friday and could start trying for another child. Today I started with some familiar hypo/hyper symptoms. I get positional vertigo when my meds are off and I suspect (even though Dr's tell you there is no link to BCP) that it is due to the loss of the BCP hormones. Time will tell but I would suspect that your lack of period is due to your body trying to get regulated again. A lot of trauma occurs when you have surgery, RAI and then have to take synthetic hormones that your body used to produce. Don't panic yet - I have seen other postings where periods were irregular. Let us know how you are doing - and your results. (35) in Michigan Papillary ThyCa - PT 3/1/00, TT 4/12/00 RAI 100 mCi's 5/26/00 2nd RAI 150 mCi's 1/19/01 Synthroid .150 mg Re: Womens questions/pregnancy? > I truly appreciate when people respond to something I have asked. It > is such a wonderful feeling when you can get some answers or at least > some support. For that, I thank all of you. > > Now, to expand on my situation... I had a tt in May '01 (pap thyca). > I have had many problems finding the right doctor to treat me because > of insurance problems and the fact that no one in my area really > knows anything about thyca. Long story short, I am seeing Dr. > Ringel at the Washington Hospital Center on Wednesday, 9/19 > in hopes of scheduling RAI for some time this fall. Since I knew > that I would have to wait for some time, my family physician and I > decided to work on finding out what dose of Levoxyl would work best > for me. In June, my TSH was 9.1 (on .112 for the past seven years, > increased to .125). In July, it was 24.6 (increased to .175). In > August, it was 3.56 (increased to .200). Now, from my previous post > the other day, I am now 18 days late for my cycle. Mind you, I am > VERY irregular and have been this late on a few other occasions. > > My question is, is it possible to be this late with all the > medication dose changes? Could it really screw you up this much? I, > too, have been having the handfuls of hair falling out and I'm not > even that hypo. I think at times I am just grasping at straws > because after three kids and dealing with this thyca, I am just not > prepared physically or emotionally to have another child. I do know > that if I am pregnant, it is meant to be and I will not only accept > the situation, but certainly realize the wonderful gift that has been > given to me. However, I am really worried about how long you can > wait for the RAI. I nursed all three of my children and if I am > pregnant, I would want to give this to the " new " child as well. I > know that thyca is really slow growing and my thyca was completely > encapsulated (per pathology). I know that it is impossible for the > surgeon to get all of the thyroid tissue and realistically, there > probably is some of the cancerous tissue still inside me, right? > > Oh, I just need someone to comfort me!!! I will get a pregnancy test > either tomorrow or Monday and that will at least answer one of my > questions. I have to take my daughter to our family physician on > Tuesday, so I may request a blood test to be 100% sure. > > Thank you so much for reading my long post... and thank you in > advance for any words of wisdom. > > Peace to all and God Bless America! > Nanette > > > > For more information regarding thyroid cancer visit www.thyca.org. If you do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank email to thyca-unsubscribe > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2001 Report Share Posted September 17, 2001 Nanette, I did notice increased hair loss with every dose change, maybe that's it. It all settled down once on a consistent and correct dose for 6 weeks or so - it seemed that the range of numbers (TSH) wasn't the culprit as much as the medication dose changes/adjustments in many ways. Your TSH is still high enough to have hypo symptoms such as hair loss. Stress and hormonal shifts can definitely wreak havoc on our cycles. Also, I learned last year that my body took longer to " catch up " to my test results. My TSH and calcium tests weren't way off, but I continued to have symptoms (including irregular cycles). I don't know if this is common, but probably one of those YMMV things. A quick pregnancy test is what you need before you allow yourself to wander into the land of the " what ifs " . Let us know - best wishes! Sandy TT/RAI Oct. 2000 withdrawal for scan > My question is, is it possible to be this late with all the > medication dose changes? Could it really screw you up this much? I, > too, have been having the handfuls of hair falling out and I'm not > even that hypo. I think at times I am just grasping at straws > because after three kids and dealing with this thyca, I am just not > prepared physically or emotionally to have another child. I do know > that if I am pregnant, it is meant to be and I will not only accept > the situation, but certainly realize the wonderful gift that has been > given to me. However, I am really worried about how long you can > wait for the RAI. I nursed all three of my children and if I am > pregnant, I would want to give this to the " new " child as well. I > know that thyca is really slow growing and my thyca was completely > encapsulated (per pathology). I know that it is impossible for the > surgeon to get all of the thyroid tissue and realistically, there > probably is some of the cancerous tissue still inside me, right? > > Oh, I just need someone to comfort me!!! I will get a pregnancy test > either tomorrow or Monday and that will at least answer one of my > questions. I have to take my daughter to our family physician on > Tuesday, so I may request a blood test to be 100% sure. > > Thank you so much for reading my long post... and thank you in > advance for any words of wisdom. > > Peace to all and God Bless America! > Nanette Quote Link to comment Share on other sites More sharing options...
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