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Re: Womens questions/pregnancy?

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I truly appreciate when people respond to something I have asked. It

is such a wonderful feeling when you can get some answers or at least

some support. For that, I thank all of you.

Now, to expand on my situation... I had a tt in May '01 (pap thyca).

I have had many problems finding the right doctor to treat me because

of insurance problems and the fact that no one in my area really

knows anything about thyca. Long story short, I am seeing Dr.

Ringel at the Washington Hospital Center on Wednesday, 9/19

in hopes of scheduling RAI for some time this fall. Since I knew

that I would have to wait for some time, my family physician and I

decided to work on finding out what dose of Levoxyl would work best

for me. In June, my TSH was 9.1 (on .112 for the past seven years,

increased to .125). In July, it was 24.6 (increased to .175). In

August, it was 3.56 (increased to .200). Now, from my previous post

the other day, I am now 18 days late for my cycle. Mind you, I am

VERY irregular and have been this late on a few other occasions.

My question is, is it possible to be this late with all the

medication dose changes? Could it really screw you up this much? I,

too, have been having the handfuls of hair falling out and I'm not

even that hypo. I think at times I am just grasping at straws

because after three kids and dealing with this thyca, I am just not

prepared physically or emotionally to have another child. I do know

that if I am pregnant, it is meant to be and I will not only accept

the situation, but certainly realize the wonderful gift that has been

given to me. However, I am really worried about how long you can

wait for the RAI. I nursed all three of my children and if I am

pregnant, I would want to give this to the " new " child as well. I

know that thyca is really slow growing and my thyca was completely

encapsulated (per pathology). I know that it is impossible for the

surgeon to get all of the thyroid tissue and realistically, there

probably is some of the cancerous tissue still inside me, right?

Oh, I just need someone to comfort me!!! I will get a pregnancy test

either tomorrow or Monday and that will at least answer one of my

questions. I have to take my daughter to our family physician on

Tuesday, so I may request a blood test to be 100% sure.

Thank you so much for reading my long post... and thank you in

advance for any words of wisdom.

Peace to all and God Bless America!

Nanette

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Nanette -

Isn't life ironic. I just got the clear bill of health after two RAI's in

the last year and am hoping to get pregnant and you are worried you are. I

am not a Dr but I can speak from experience that these drugs control more

things in our bodies than we can understand. Remember that you are dealing

with a hormone. Think of how much it effects your skin, hair, moods,

energy, etc. Our bodies are so complex that even the Dr's cannot understand

it all - only our mighty creator knows. I know that there is more to it

because I went of my birth control pills last Sunday in anticipation that I

would have good test results on Friday and could start trying for another

child. Today I started with some familiar hypo/hyper symptoms. I get

positional vertigo when my meds are off and I suspect (even though Dr's tell

you there is no link to BCP) that it is due to the loss of the BCP hormones.

Time will tell but I would suspect that your lack of period is due to your

body trying to get regulated again. A lot of trauma occurs when you have

surgery, RAI and then have to take synthetic hormones that your body used to

produce. Don't panic yet - I have seen other postings where periods were

irregular. Let us know how you are doing - and your results.

(35) in Michigan

Papillary ThyCa - PT 3/1/00, TT 4/12/00

RAI 100 mCi's 5/26/00

2nd RAI 150 mCi's 1/19/01

Synthroid .150 mg

Re: Womens questions/pregnancy?

> I truly appreciate when people respond to something I have asked. It

> is such a wonderful feeling when you can get some answers or at least

> some support. For that, I thank all of you.

>

> Now, to expand on my situation... I had a tt in May '01 (pap thyca).

> I have had many problems finding the right doctor to treat me because

> of insurance problems and the fact that no one in my area really

> knows anything about thyca. Long story short, I am seeing Dr.

> Ringel at the Washington Hospital Center on Wednesday, 9/19

> in hopes of scheduling RAI for some time this fall. Since I knew

> that I would have to wait for some time, my family physician and I

> decided to work on finding out what dose of Levoxyl would work best

> for me. In June, my TSH was 9.1 (on .112 for the past seven years,

> increased to .125). In July, it was 24.6 (increased to .175). In

> August, it was 3.56 (increased to .200). Now, from my previous post

> the other day, I am now 18 days late for my cycle. Mind you, I am

> VERY irregular and have been this late on a few other occasions.

>

> My question is, is it possible to be this late with all the

> medication dose changes? Could it really screw you up this much? I,

> too, have been having the handfuls of hair falling out and I'm not

> even that hypo. I think at times I am just grasping at straws

> because after three kids and dealing with this thyca, I am just not

> prepared physically or emotionally to have another child. I do know

> that if I am pregnant, it is meant to be and I will not only accept

> the situation, but certainly realize the wonderful gift that has been

> given to me. However, I am really worried about how long you can

> wait for the RAI. I nursed all three of my children and if I am

> pregnant, I would want to give this to the " new " child as well. I

> know that thyca is really slow growing and my thyca was completely

> encapsulated (per pathology). I know that it is impossible for the

> surgeon to get all of the thyroid tissue and realistically, there

> probably is some of the cancerous tissue still inside me, right?

>

> Oh, I just need someone to comfort me!!! I will get a pregnancy test

> either tomorrow or Monday and that will at least answer one of my

> questions. I have to take my daughter to our family physician on

> Tuesday, so I may request a blood test to be 100% sure.

>

> Thank you so much for reading my long post... and thank you in

> advance for any words of wisdom.

>

> Peace to all and God Bless America!

> Nanette

>

>

>

> For more information regarding thyroid cancer visit www.thyca.org. If you

do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank

email to thyca-unsubscribe

>

>

>

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Nanette,

I did notice increased hair loss with every dose change, maybe that's

it. It all settled down once on a consistent and correct dose for 6

weeks or so - it seemed that the range of numbers (TSH) wasn't the

culprit as much as the medication dose changes/adjustments in many

ways. Your TSH is still high enough to have hypo symptoms such as

hair loss. Stress and hormonal shifts can definitely wreak havoc on

our cycles.

Also, I learned last year that my body took longer to " catch up " to

my test results. My TSH and calcium tests weren't way off, but I

continued to have symptoms (including irregular cycles). I don't

know if this is common, but probably one of those YMMV things.

A quick pregnancy test is what you need before you allow yourself to

wander into the land of the " what ifs " .

Let us know - best wishes!

Sandy

TT/RAI Oct. 2000

withdrawal for scan

> My question is, is it possible to be this late with all the

> medication dose changes? Could it really screw you up this much?

I,

> too, have been having the handfuls of hair falling out and I'm not

> even that hypo. I think at times I am just grasping at straws

> because after three kids and dealing with this thyca, I am just not

> prepared physically or emotionally to have another child. I do

know

> that if I am pregnant, it is meant to be and I will not only accept

> the situation, but certainly realize the wonderful gift that has

been

> given to me. However, I am really worried about how long you can

> wait for the RAI. I nursed all three of my children and if I am

> pregnant, I would want to give this to the " new " child as well. I

> know that thyca is really slow growing and my thyca was completely

> encapsulated (per pathology). I know that it is impossible for the

> surgeon to get all of the thyroid tissue and realistically, there

> probably is some of the cancerous tissue still inside me, right?

>

> Oh, I just need someone to comfort me!!! I will get a pregnancy

test

> either tomorrow or Monday and that will at least answer one of my

> questions. I have to take my daughter to our family physician on

> Tuesday, so I may request a blood test to be 100% sure.

>

> Thank you so much for reading my long post... and thank you in

> advance for any words of wisdom.

>

> Peace to all and God Bless America!

> Nanette

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