Guest guest Posted February 11, 2001 Report Share Posted February 11, 2001 Good Morning Everyone..... Hello Ann-Marie I'm so darn sorry that on top of everything else you have.... you have to fight a virus as well. I hope you start feeling better real soon. I don't know about getting an Academy Award for my piping ability but I should get it for my sheer stupidity for even trying. It's not easy to get down on the ground and it's really not easy to get back up. I'm really paying for it though. My legs are very sore and I feel like I've been hit by a bus. Ann-Marie....How many nuns are in the south wing? Are the rest of the nuns complaining about the heat? I do hope you start feeling better soon. Take care and rest. Gentle hugs Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2001 Report Share Posted February 11, 2001 Vicki, Not everyone is quite as vocal as yours truly, but yes, the word is OUT. Some parts of the house are better. There are about 12 of us who sleep in the south wing, and 12 who sleep in the north wing.. I slept all afternoon...I still do not want to eat..a sure sign of an ominous presence! Take care and rest your poor leggies! Love, Ann-Marie _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2001 Report Share Posted February 11, 2001 Thank you AnnMarie. If I can't laugh, I can't do anything. Its good for the soul. Besides, looking at him, there is a lot to laugh at. Hope everyone is having a pain free day! Deneen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2001 Report Share Posted September 2, 2001 Its nice to hear from you again Jill, I hope the rest of your recovery will be speedy. It sounds like its been a slow healing time. Please take care of your self. & Petra Hello > Hi all, > > Many thanks to Beth for her help with the list of late and to all who asked what was up. I have a strep infection in my leg and it's been slow healing. Thanks to the wonders of home IV and great nursing care, my hospital stay was minimal. Things are improving but I have a sneaking suspicion today that 5 days of antibiotics may not have been enough, so time will tell. > > I hope that everyone is well and gearing up for their kiddies to return to school next week! > > Jill > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2001 Report Share Posted September 2, 2001 Oops by the way a , Petra, were ready a month ago.) Hello > Hi all, > > Many thanks to Beth for her help with the list of late and to all who asked what was up. I have a strep infection in my leg and it's been slow healing. Thanks to the wonders of home IV and great nursing care, my hospital stay was minimal. Things are improving but I have a sneaking suspicion today that 5 days of antibiotics may not have been enough, so time will tell. > > I hope that everyone is well and gearing up for their kiddies to return to school next week! > > Jill > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2001 Report Share Posted September 2, 2001 Hi Jill, I'm sorry that you have had such a rough time of it. I hope that you are feeling better soon. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2003 Report Share Posted April 2, 2003 Hi Arran, Welcome to you and Donna. We actually have a few members who are from Australia! We are glad to add to that contingency. I am sorry to hear about you being rushed to the hospital. I can only imagine how your emotions must be swimming with the suddenness of all this. I do really hope your biopsy comes back that you don't have IgAN, but if so, you have come to the right place. It is very important to keep your blood pressure in check because elevated BP is very hard on your kidneys. By chance, did they tell you what your serum creatinine level is? I sincerely hope that your kidney function is not too compromised at this point. You may want to check out <A HREF= " www.igan.ca " >www.igan.ca</A> if the biopsy comes back that you have IgAN. It sounds like you have a precious family with two darlings at such fun ages to help you through this too. Again, we warmly welcome you to our group! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2003 Report Share Posted April 2, 2003 Welcome Arran and ! I'm sorry to hear about your scare in the hospital! Let us know the results-I hope everything turns out well! If it's IGAN you have come to the right place. I joined this group just a few months ago and it has been very beneficial to me. You can ask any question and it's easier talking to these people than to the nephrologist! It's very scary at the beginning, especially the not knowing part, but things do get better! Even those members who are on dialysis and who have had transplants are doing well and have so much insight for the rest of us. Welcome again, Dana In a message dated 4/2/03 5:55:41 PM Central Standard Time, asnimrod2@... writes: << Hi, my name is Arran Steele and I am 30 years old. I am married to and have to little boys who will be 3 in June and Craig who is 7 mths old. We live in Australia's Central Coast in NSW. I was rushed into hospital last week with high blood pressure after having found protein and blood in the urine. I also was given a biopsy and I am awaiting further tests. I have been given severe medication to try and get the blood pressure down. This has been a huge shock for everyone especially my wife. This is why I wanted to join this group for her as well as me. The not knowing is the scariest part at the moment. Thank you for taking time to read this, Kind Regards, Arran Steele >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2003 Report Share Posted April 2, 2003 Hello Arran, My husband and I can relate to your situation. Im 32 and had a biopsy last March. I have IgAN. I also have a daughter that is 3 and a son that is 7 months. I hope this site will help you like it does me. I feel sorry for my husband and children. Its nice to come here when you dont want to put more pressure on your spouse. I got an awsome email today that has helped me alot!! I was just told what I have in March and my next appointment is in a few weeks. Maybe Ill be in my right mind this time. Take care and good luck!! Keep me posted! Penny > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 Ok, that explains it. Ace inhibitors are known to have a renal protective quality, as well as help to lower protein. I have been on Lisinopril for many many years for the same reasons. My BP has never been very high, but I take it for the renal protective qualities. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2003 Report Share Posted April 10, 2003 Hi Ally Welcome to the group, and thanks for your web site link, I went and had a look and signed your guestbook. Boy Lupus and IGAN sure does sound a lot to cope with, but I am pleased that your IGAN has thus far not caused you any problems. Lupus I know is a complex condition to deal with, but you come across here (and your website) as positive people and I commend you for this. I wish you a safe and trouble free pregnancy, and look forward to perhaps hearing from you again once baby he or she is here. Best wishes UK Moderator hello Just wanted to say hello to everyone as im new to this group. I have had IGA for 10 years without serious problem, but i also have SLE (systemic lupus) with alot of problems. Im now pregnant with my 5th child and all seems to be going well although my blood pressure is high and i have protein in my urine.If anyone wants to know more then please have a look at our website and sign our guestbook...wed love to hear from anybody...thanks and good health to you all http://homepage.ntlworld.com/neads1/index.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2003 Report Share Posted April 10, 2003 Hi Ally, Welcome to our family here. All I can say to you is...sit down and rest your feet girl! Pregnant with your 5th child and having I both IgAN and systemic lupus. You are one brave woman! We have had many discussions about pregnancy here and I believe some members of the board are either pregnant or wanting to become pregnant at this time. The sharing of information will be great for you. Welcome again, and come here anytime for support! Keep us posted on the progress of your pregnancy. When are you due? Connie Moderator, USA hello Just wanted to say hello to everyone as im new to this group. I have had IGA for 10 years without serious problem, but i also have SLE (systemic lupus) with alot of problems. Im now pregnant with my 5th child and all seems to be going well although my blood pressure is high and i have protein in my urine.If anyone wants to know more then please have a look at our website and sign our guestbook...wed love to hear from anybody...thanks and good health to you all http://homepage.ntlworld.com/neads1/index.htm To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2003 Report Share Posted April 10, 2003 Hi Ally, Yoiks! I just wanted to pop in to say hi. SLE plus IgA plus pregnancy sounds daunting (actually, four kids, let alone anything else, would have the best of me). When were you diagnosed with SLE? Is it the proliferative kind? My son has MPGN (not IgAN) and his docs are always turning to SLE patients as models for treatment. I'll check our your web site shortly. Just wanted to extend a warm welcome. Cy hello > Just wanted to say hello to everyone as im new to this group. I have > had IGA for 10 years without serious problem, but i also have SLE > (systemic lupus) with alot of problems. Im now pregnant with my 5th > child and all seems to be going well although my blood pressure is > high and i have protein in my urine.If anyone wants to know more > then please have a look at our website and sign our guestbook...wed > love to hear from anybody...thanks and good health to you all > http://homepage.ntlworld.com/neads1/index.htm > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2003 Report Share Posted April 11, 2003 > Hi Ally > > > > Welcome to the group, and thanks for your web site link, I went and had > a look and signed your guestbook. Boy Lupus and IGAN sure does sound a > lot to cope with, but I am pleased that your IGAN has thus far not > caused you any problems. Lupus I know is a complex condition to deal > with, but you come across here (and your website) as positive people and > I commend you for this. I wish you a safe and trouble free pregnancy, > and look forward to perhaps hearing from you again once baby he or she > is here. > > > > Best wishes > > > > > > UK Moderator > > > > hello > > > > Just wanted to say hello to everyone as im new to this group. I have > had IGA for 10 years without serious problem, but i also have SLE > (systemic lupus) with alot of problems. Im now pregnant with my 5th > child and all seems to be going well although my blood pressure is > high and i have protein in my urine.If anyone wants to know more > then please have a look at our website and sign our guestbook...wed > love to hear from anybody...thanks and good health to you all > http://homepage.ntlworld.com/neads1/index.htm > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2003 Report Share Posted April 11, 2003 > Hi Ally, > Welcome to our family here. All I can say to you is...sit down and rest > your feet girl! Pregnant with your 5th child and having I both IgAN and > systemic lupus. You are one brave woman! > > We have had many discussions about pregnancy here and I believe some members > of the board are either pregnant or wanting to become pregnant at this time. > The sharing of information will be great for you. > > Welcome again, and come here anytime for support! > > Keep us posted on the progress of your pregnancy. When are you due? > > Connie > Moderator, USA > > > > > > > > hello > > > Just wanted to say hello to everyone as im new to this group. I have > had IGA for 10 years without serious problem, but i also have SLE > (systemic lupus) with alot of problems. Im now pregnant with my 5th > child and all seems to be going well although my blood pressure is > high and i have protein in my urine.If anyone wants to know more > then please have a look at our website and sign our guestbook...wed > love to hear from anybody...thanks and good health to you all > http://homepage.ntlworld.com/neads1/index.htm > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > Visit our companion website at www.igan.ca. The site is entirely supported > by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2003 Report Share Posted April 11, 2003 > Hi Ally, > Yoiks! I just wanted to pop in to say hi. SLE plus IgA plus pregnancy > sounds daunting (actually, four kids, let alone anything else, would have > the best of me). When were you diagnosed with SLE? Is it the proliferative > kind? My son has MPGN (not IgAN) and his docs are always turning to SLE > patients as models for treatment. > I'll check our your web site shortly. Just wanted to extend a warm welcome. > Cy > hello > > > > Just wanted to say hello to everyone as im new to this group. I have > > had IGA for 10 years without serious problem, but i also have SLE > > (systemic lupus) with alot of problems. Im now pregnant with my 5th > > child and all seems to be going well although my blood pressure is > > high and i have protein in my urine.If anyone wants to know more > > then please have a look at our website and sign our guestbook...wed > > love to hear from anybody...thanks and good health to you all > > http://homepage.ntlworld.com/neads1/index.htm > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > Visit our companion website at www.igan.ca. The site is entirely supported > by donations. If you would like to help, go to: > > http://www.igan.ca/id62.htm > > > > Thank you > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2007 Report Share Posted June 21, 2007 Guess I will tell you that I am Tony and I live in south Louisiana, and yes I eat crawfish. I was DX in 1994 with IPF and am still here to talk about it, so if we got any more from Louisiana speak up and let the world know we are here lol-thank you all Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2007 Report Share Posted June 21, 2007 Hello Tony, So glad you chose to post on our board. I, too, am a long time survivor. God is so good. I am so grateful for these years. Every day is a gift. Oh, yes, we have a Louisiana girl...although she lives in TX now. Stay in touch and tell us more about yourself. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.>> Guess I will tell you that I am Tony and I live in south Louisiana, and > yes I eat crawfish. I was DX in 1994 with IPF and am still here to talk > about it, so if we got any more from Louisiana speak up and let the > world know we are here lol-thank you all> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2007 Report Share Posted June 21, 2007 Hi Tony, Welcome, You have been fighting this monster for quite a while, hope your doing ok. You need to meet our little . She is a Louisiana girl the baby of this group. She will be posting to you before long...lol... God Bless. Love and Prayers, Peggy 9/04 ipf Florida " Worry looks around, Sorry looks back, Faith looks up " Guess I will tell you that I am Tony and I live in south Louisiana, and yes I eat crawfish. I was DX in 1994 with IPF and am still here to talk about it, so if we got any more from Louisiana speak up and let the world know we are here lol-thank you all Quote Link to comment Share on other sites More sharing options...
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