Guest guest Posted June 13, 2007 Report Share Posted June 13, 2007 Joyce, thats amazing I dont have lung trouble and I couldnt do that!!!!!! Well done you, you definitely get a gold star. It must be exhausting but it has got to be doing you so much good. My mum went for a trial at the hospice today just for day care and she seemed fairly happy with it. The oxygen company here in the Uk have agreed to put an extra concentrator at the hospice for her and also another one at the place she has started to go for respite care so that is a worry. Apparently the hospice trust took their concentrator off them due to cost so it was good that the oxygen company are happy to have concentrators in several different locations for mum. The hospice also spoke to her about making requests for care she would hope to have in the future, to ensure her needs are met. She has been uplifted by the news of the new drug trials and has been saying for months she feels a cure wont be too far away, now DNA is more understood lets hope the future holds new hope. When most of you were first diagnosed the 2 years before drugs might be released would have seemed a long way off but as you have all done so well with meds and rehab its not that far, every day is another day nearer. Mums respiratory nurse phoned today just as I had put a wax strip on her face (she suffers long hairs on her face which she puts down to it being like a greenhouse under her mask) I had to ask her to hold a second while I pulled strip off and asked her to please excuse screams!!!! Could get any facial cream and mum didnt want to wait 2 weeks until pharmacy got it in so she opted for wax strips, its done now and she looks radiant, but then when you put up with that you deserve to glow a little, lol. Take care all of you, most of you seem to have picked up this last few weeks which is good news, maybe feeling more positive rubs off?? love Ann (carer UK) xxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2007 Report Share Posted June 13, 2007 After 5 hours of recouperating, I am ready to brag. I stayed on the dreadmill for 28 minutes without stopping and coughing and gasping for breath. I admit that the speed is very slow and I am not able to walk on an incline, but it is real progress for me. I also did 10 minutes on the Nustep and 30 sit to stands. Then we did the stairs again....ugh! I made it to the landing without going over 5L of 02. I have had a real problem with dragging my feet (I refuse to call it shuffling), but today I didn't. I have been working with leg weights (o.k. only 2 lbs) but they think it has strengthened my legs. I am so proud of me. The fact remains that I am sooooo lazy and I hate excersize, especially the dreadmill. I am not disciplined and like Peggy, when I get the question "did you use the treadmill today", it just burns me up. I don't know how much longer I will be in pul. rehab, but I told them today that I wanted to do maintenence. That depends on how expensive it is. This is costing a fortune....we could have taken a trip! I wish I had stayed active over the years, but most of the time I was too sick to excersize on my own (docs orders). It is hard, as you all know, to pull yourself out of bed in the a.m....let alone excersize. But, it is making me stronger so that now I can get out of this house more! We have had to adjust a few meds and 02 here and there.....but I did it!!! Well, today I did! Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2007 Report Share Posted June 13, 2007 Joyce....Horray!!!! You did it!!!!! Keep up the great work..you're an inspiration for all of us!!! I know how much it takes to get to 28 minutes on the " dreadmill" ..I've gotten to 20 minutes but at only 1.6 mph and 3 lpm of o2...but I do feel stronger especially on the steps!!! So again...great going!!!! Z fibriotic NSIP/05 Z fibriotic NSIP/o5/PA Potter, reader,carousel lover and MomMom to Darah “I’m gonna be iron like a lion in Zion” Bob Marley Joyce wrote: After 5 hours of recouperating, I am ready to brag. I stayed on the dreadmill for 28 minutes without stopping and coughing and gasping for breath. I admit that the speed is very slow and I am not able to walk on an incline, but it is real progress for me. I also did 10 minutes on the Nustep and 30 sit to stands. Then we did the stairs again....ugh! I made it to the landing without going over 5L of 02. I have had a real problem with dragging my feet (I refuse to call it shuffling), but today I didn't. I have been working with leg weights (o.k. only 2 lbs) but they think it has strengthened my legs. I am so proud of me. The fact remains that I am sooooo lazy and I hate excersize, especially the dreadmill. I am not disciplined and like Peggy, when I get the question "did you use the treadmill today", it just burns me up. I don't know how much longer I will be in pul. rehab, but I told them today that I wanted to do maintenence. That depends on how expensive it is. This is costing a fortune....we could have taken a trip! I wish I had stayed active over the years, but most of the time I was too sick to excersize on my own (docs orders). It is hard, as you all know, to pull yourself out of bed in the a.m....let alone excersize. But, it is making me stronger so that now I can get out of this house more! We have had to adjust a few meds and 02 here and there.....but I did it!!! Well, today I did! Hugs, Joyce D. PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.472 / Virus Database: 269.8.15/847 - Release Date: 6/12/2007 9:42 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2007 Report Share Posted June 13, 2007 , I am only at 1.2 and level with 5L. They were trying to use 4L and I would not last but minutes till my saturation dropped. It does make me feel more positive....but very tired. But, hey, I was tired anyway! Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> > > After 5 hours of recouperating, I am ready to brag. I stayed on the > > dreadmill for 28 minutes without stopping and coughing and gasping for > > breath. I admit that the speed is very slow and I am not able to > > walk on an incline, but it is real progress for me. I also did 10 > > minutes on the Nustep and 30 sit to stands. Then we did the stairs > > again....ugh! I made it to the landing without going over 5L of 02. > >> > I have had a real problem with dragging my feet (I refuse to call it > > shuffling), but today I didn't. I have been working with leg weights > > (o.k. only 2 lbs) but they think it has strengthened my legs. > >> > I am so proud of me. The fact remains that I am sooooo lazy and I > > hate excersize, especially the dreadmill. I am not disciplined and > > like Peggy, when I get the question "did you use the treadmill today", > > it just burns me up. I don't know how much longer I will be in pul. > > rehab, but I told them today that I wanted to do maintenence. That > > depends on how expensive it is. This is costing a fortune....we could > > have taken a trip! > >> > I wish I had stayed active over the years, but most of the time I was > > too sick to excersize on my own (docs orders). It is hard, as you all > > know, to pull yourself out of bed in the a.m....let alone excersize. > > But, it is making me stronger so that now I can get out of this house > > more! > >> > We have had to adjust a few meds and 02 here and there.....but I did > > it!!! Well, today I did!> >> > Hugs, Joyce D.> > PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA > > 2 COR. 12:10 ....when I am weak, then I am strong.> >> > > >> > > >> > > >> >------------------------------------------------------------------------> >> >No virus found in this incoming message.> >Checked by AVG Free Edition. > >Version: 7.5.472 / Virus Database: 269.8.15/847 - Release Date: 6/12/2007 9:42 PM> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2007 Report Share Posted June 13, 2007 Great job Joyce.You are an inspiration to get me walking, because exercising is the last thing I want to do. IPF 2/07 Il --- Joyce wrote: > > After 5 hours of recouperating, I am ready to brag. > I stayed on the > dreadmill for 28 minutes without stopping and > coughing and gasping for > breath. I admit that the speed is very slow and I > am not able to walk > on an incline, but it is real progress for me. I > also did 10 minutes on > the Nustep and 30 sit to stands. Then we did the > stairs again....ugh! > I made it to the landing without going over 5L of > 02. > > I have had a real problem with dragging my feet (I > refuse to call it > shuffling), but today I didn't. I have been working > with leg weights > (o.k. only 2 lbs) but they think it has strengthened > my legs. > > I am so proud of me. The fact remains that I am > sooooo lazy and I hate > excersize, especially the dreadmill. I am not > disciplined and like > Peggy, when I get the question " did you use the > treadmill today " , it > just burns me up. I don't know how much longer I > will be in pul. rehab, > but I told them today that I wanted to do > maintenence. That depends on > how expensive it is. This is costing a > fortune....we could have taken a > trip! > > I wish I had stayed active over the years, but most > of the time I was > too sick to excersize on my own (docs orders). It > is hard, as you all > know, to pull yourself out of bed in the a.m....let > alone excersize. > But, it is making me stronger so that now I can get > out of this house > more! > > We have had to adjust a few meds and 02 here and > there.....but I did > it!!! Well, today I did! > > Hugs, Joyce D. > PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 > INDIANA > 2 COR. 12:10 ....when I am weak, then I am strong. > > > > > > > ________________________________________________________________________________\ ____ Get your own web address. Have a HUGE year through Yahoo! Small Business. http://smallbusiness.yahoo.com/domains/?p=BESTDEAL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2007 Report Share Posted June 13, 2007 , I would not advise anyone with PF excersize without doing rehab first and even then it can get tricky at home. You know your body and if you are too sick to move, you are to sick to move! Just do the best you can. Hugs, Joyce D. > > > > > After 5 hours of recouperating, I am ready to brag. > > I stayed on the> > dreadmill for 28 minutes without stopping and> > coughing and gasping for> > breath. I admit that the speed is very slow and I> > am not able to walk> > on an incline, but it is real progress for me. I> > also did 10 minutes on> > the Nustep and 30 sit to stands. Then we did the> > stairs again....ugh! > > I made it to the landing without going over 5L of> > 02.> > > > I have had a real problem with dragging my feet (I> > refuse to call it> > shuffling), but today I didn't. I have been working> > with leg weights> > (o.k. only 2 lbs) but they think it has strengthened> > my legs.> > > > I am so proud of me. The fact remains that I am> > sooooo lazy and I hate> > excersize, especially the dreadmill. I am not> > disciplined and like> > Peggy, when I get the question "did you use the> > treadmill today", it> > just burns me up. I don't know how much longer I> > will be in pul. rehab,> > but I told them today that I wanted to do> > maintenence. That depends on> > how expensive it is. This is costing a> > fortune....we could have taken a> > trip!> > > > I wish I had stayed active over the years, but most> > of the time I was> > too sick to excersize on my own (docs orders). It> > is hard, as you all> > know, to pull yourself out of bed in the a.m....let> > alone excersize. > > But, it is making me stronger so that now I can get> > out of this house> > more!> > > > We have had to adjust a few meds and 02 here and> > there.....but I did> > it!!! Well, today I did!> > > > Hugs, Joyce D.> > PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004> > INDIANA> > 2 COR. 12:10 ....when I am weak, then I am strong.> > > > > > > > > > > > > > > > > > > ____________________________________________________________________________________> Get your own web address. > Have a HUGE year through Yahoo! Small Business.> http://smallbusiness.yahoo.com/domains/?p=BESTDEAL> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2007 Report Share Posted June 14, 2007 Joyce I am just amazed at you.. You just show me up so badly. I am still gettin ready to get ready to start walking again. Ya know I've got a lot of gettin ready to do..lol. My daughter tells me " Mom pick up your feet, heel to toe. " makes me wanna smack her ear to ear..lol not really-- well yea I do. Anyhow keep up the good work. I'm gettin ready. Love ya. I wonder if medicare will pay for any of this rehab?? I start on medicare in Oct. (You Know I can figure this one out).. Caring Voices is going to help me to make the right choices, thank God. I just got my Old People card yesterday in the mail. Think I'll look at a day or two before I decide I'm old for real. But for now I'm going in and color my hair. Love and Prayers, Peggy 9/04 ipf Florida " Worry looks around, Sorry looks back, Faith looks up " After 5 hours of recouperating, I am ready to brag. I stayed on the dreadmill for 28 minutes without stopping and coughing and gasping for breath. I admit that the speed is very slow and I am not able to walk on an incline, but it is real progress for me. I also did 10 minutes on the Nustep and 30 sit to stands. Then we did the stairs again....ugh! I made it to the landing without going over 5L of 02. I have had a real problem with dragging my feet (I refuse to call it shuffling), but today I didn't. I have been working with leg weights (o.k. only 2 lbs) but they think it has strengthened my legs. I am so proud of me. The fact remains that I am sooooo lazy and I hate excersize, especially the dreadmill. I am not disciplined and like Peggy, when I get the question " did you use the treadmill today " , it just burns me up. I don't know how much longer I will be in pul. rehab, but I told them today that I wanted to do maintenence. That depends on how expensive it is. This is costing a fortune....we could have taken a trip! I wish I had stayed active over the years, but most of the time I was too sick to excersize on my own (docs orders). It is hard, as you all know, to pull yourself out of bed in the a.m....let alone excersize. But, it is making me stronger so that now I can get out of this house more! We have had to adjust a few meds and 02 here and there.....but I did it!!! Well, today I did! Hugs, Joyce D. PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2007 Report Share Posted June 14, 2007 Joyce...just read about your rehab! Wow, what a gal. I know the discipline it takes to do that. I know 'cause I don't use it! I'm up and running again after buying a refurbished tower. It is so nice to have a responsive computer again. Keep on keepin' on. Love ya. Sher ipf 3-06 OR Don't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2007 Report Share Posted June 14, 2007 Peggy, You know, people who are not specifically trained to work with lung disease patients or are the patients themselves....should not give advice to patients. It has always made me so mad that people (even daughters who mean well) try to instruct us with "pick up your feet, etc, etc" have no idea how hard that is when each foot weighs 500 pounds. Medicare pays in some states and not in others for rehab. That is what the pending bill before congress is all about. My co-pay is sooooo high and that should not be so. Rehab is a real hardship. But, when you can work it out, go. Make sure that it is a rehab that knows how to work with PF patients because most only deal with COPD. Once it is determined what you can do it safely, then what I am hoping to do is move into maintenance therapy. I am hoping that will be cheaper. I know me and I know that I will not do it alone! Been there. I have hung clothes on my treadmill too many years to think I won't do it again. If I don't do this I am facing the chair with the big wheels on the sides and one of those beds with the comfortable plastic covered thin mattress that goes up and down. I don't want either. I laughed about the hair color. One of the last e-mails I got from Ginger (yes, my heart still hurts) was concerning doing her hair color and nails. No matter how sick I am.....the color goes on the hair. The smell is about to kill me...but I will take my chances. That grey hair just freaks me out. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. >> Joyce I am just amazed at you.. You just show me up so badly. I am still> gettin ready to get ready to start walking again. Ya know I've got a lot of> gettin ready to do..lol.> My daughter tells me "Mom pick up your feet, heel to toe." makes me wanna> smack her ear to ear..lol> not really-- well yea I do. Anyhow keep up the good work. I'm gettin> ready. Love ya.> > I wonder if medicare will pay for any of this rehab?? I start on medicare in> Oct. (You Know I can figure this one out).. Caring Voices is going to help> me to make the right choices, thank God. I just got my Old People card> yesterday in the mail. Think I'll look at a day or two before I decide I'm> old for real. But for now> I'm going in and color my hair.> > Love and Prayers, Peggy 9/04 ipf Florida "Worry looks around, Sorry> looks back, Faith looks up"> > After 5 hours of recouperating, I am ready to brag. I stayed on the> dreadmill for 28 minutes without stopping and coughing and gasping for> breath. I admit that the speed is very slow and I am not able to walk on an> incline, but it is real progress for me. I also did 10 minutes on the> Nustep and 30 sit to stands. Then we did the stairs again....ugh! I made> it to the landing without going over 5L of 02.> > I have had a real problem with dragging my feet (I refuse to call it> shuffling), but today I didn't. I have been working with leg weights (o.k.> only 2 lbs) but they think it has strengthened my legs.> > I am so proud of me. The fact remains that I am sooooo lazy and I hate> excersize, especially the dreadmill. I am not disciplined and like Peggy,> when I get the question "did you use the treadmill today", it just burns me> up. I don't know how much longer I will be in pul. rehab, but I told them> today that I wanted to do maintenence. That depends on how expensive it is.> This is costing a fortune....we could have taken a trip!> > I wish I had stayed active over the years, but most of the time I was too> sick to excersize on my own (docs orders). It is hard, as you all know, to> pull yourself out of bed in the a.m....let alone excersize. But, it is> making me stronger so that now I can get out of this house more!> > We have had to adjust a few meds and 02 here and there.....but I did it!!!> Well, today I did! > > Hugs, Joyce D.> PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA> 2 COR. 12:10 ....when I am weak, then I am strong.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2007 Report Share Posted June 14, 2007 Good to see you back on board, Sher. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.>> Joyce...just read about your rehab! Wow, what a gal. I know the discipline it takes to do that. I know 'cause I don't use it!> I'm up and running again after buying a refurbished tower. It is so nice to have a responsive computer again.> Keep on keepin' on.> Love ya.> Sher ipf 3-06 OR> Don't fret about tomorrow, God is already there!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2007 Report Share Posted June 14, 2007 Well Hello Ladybug, So glad to see you back on the board. I've been going to call but have two teenagers staying with me this week. How are things with your teen?? I hope you are well. Love and Prayers, Peggy 9/04 ipf Florida " Worry looks around, Sorry looks back, Faith looks up " Joyce...just read about your rehab! Wow, what a gal. I know the discipline it takes to do that. I know 'cause I don't use it! I'm up and running again after buying a refurbished tower. It is so nice to have a responsive computer again. Keep on keepin' on. Love ya. Sher ipf 3-06 OR Don't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2007 Report Share Posted June 14, 2007 Peggy, I start Medicare in September... about a year earlier due to my SSDI status...you know 24 months after disability sets in medicare takes effect.!!! Old is a state of mind...I state that I definitely mind!!!!! Just a joke! I'll be 65 in 18 months anyway. My hair color appointment is on Wednesday...I'm not letting the grey win just yet!!! I'm still fighting the wrinkles too. I can't stand looking in the mirror in the morning...I see my grandmother's face .. . she was 75 when she died so many years ago. I look just like I remember her. So I look at that face, put on some concealer, blush and lipstick and eyebrows...fix my hair then look again. Usually I look a bit more like me and I start my day...This happens every morning..one of these days I won't see any difference. Then I'll know I'm old. Until then I'm fighting the best I can. Z fibriotic NSIP/05 Z fibriotic NSIP/o5/PA Potter, reader,carousel lover and MomMom to Darah “I’m gonna be iron like a lion in Zion” Bob Marley Peggy wrote: Joyce I am just amazed at you.. You just show me up so badly. I am still gettin ready to get ready to start walking again. Ya know I've got a lot of gettin ready to do..lol. My daughter tells me "Mom pick up your feet, heel to toe." makes me wanna smack her ear to ear..lol not really-- well yea I do. Anyhow keep up the good work. I'm gettin ready. Love ya. I wonder if medicare will pay for any of this rehab?? I start on medicare in Oct. (You Know I can figure this one out).. Caring Voices is going to help me to make the right choices, thank God. I just got my Old People card yesterday in the mail. Think I'll look at a day or two before I decide I'm old for real. But for now I'm going in and color my hair. Love and Prayers, Peggy 9/04 ipf Florida "Worry looks around, Sorry looks back, Faith looks up" After 5 hours of recouperating, I am ready to brag. I stayed on the dreadmill for 28 minutes without stopping and coughing and gasping for breath. I admit that the speed is very slow and I am not able to walk on an incline, but it is real progress for me. I also did 10 minutes on the Nustep and 30 sit to stands. Then we did the stairs again....ugh! I made it to the landing without going over 5L of 02. I have had a real problem with dragging my feet (I refuse to call it shuffling), but today I didn't. I have been working with leg weights (o.k. only 2 lbs) but they think it has strengthened my legs. I am so proud of me. The fact remains that I am sooooo lazy and I hate excersize, especially the dreadmill. I am not disciplined and like Peggy, when I get the question "did you use the treadmill today", it just burns me up. I don't know how much longer I will be in pul. rehab, but I told them today that I wanted to do maintenence. That depends on how expensive it is. This is costing a fortune....we could have taken a trip! I wish I had stayed active over the years, but most of the time I was too sick to excersize on my own (docs orders). It is hard, as you all know, to pull yourself out of bed in the a.m....let alone excersize. But, it is making me stronger so that now I can get out of this house more! We have had to adjust a few meds and 02 here and there.....but I did it!!! Well, today I did! Hugs, Joyce D. PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.472 / Virus Database: 269.8.15/848 - Release Date: 6/13/2007 12:50 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2007 Report Share Posted June 14, 2007 Hi , I couldn't get disability because I didn't have any SS credits for the quarter before I applied..crazy. My whole family had gray hair since our early 20's. I have been about every color under the sun in my younger days. My Mother and my son got the beautiful silver..white for me. The prednisone just ruined my skin. I have more wrinkles than I could ever imagine. When my face went down the skin didn't..lol.. not funny to look at in the AM.. pretty shocking. Oh well life is good. I am only old from 6:pm to 12: midnight.. then I get old again about noon until 5:30pm not to bad. LOL wow look at the time I gotta get some sleep. ( I do hope so.) Take care of you.. Love and Prayers, Peggy 9/04 ipf Florida " Worry looks around, Sorry looks back, Faith looks up " Peggy, I start Medicare in September... about a year earlier due to my SSDI status...you know 24 months after disability sets in medicare takes effect.!!! Old is a state of mind...I state that I definitely mind!!!!! Just a joke! I'll be 65 in 18 months anyway. My hair color appointment is on Wednesday...I'm not letting the grey win just yet!!! I'm still fighting the wrinkles too. I can't stand looking in the mirror in the morning...I see my grandmother's face .. . she was 75 when she died so many years ago. I look just like I remember her. So I look at that face, put on some concealer, blush and lipstick and eyebrows...fix my hair then look again. Usually I look a bit more like me and I start my day...This happens every morning..one of these days I won't see any difference. Then I'll know I'm old. Until then I'm fighting the best I can. Z fibriotic NSIP/05 Z fibriotic NSIP/o5/PA Potter, reader,carousel lover and MomMom to Darah ³I¹m gonna be iron like a lion in Zion² Bob Marley Peggy wrote: Joyce I am just amazed at you.. You just show me up so badly. I am still gettin ready to get ready to start walking again. Ya know I've got a lot of gettin ready to do..lol. My daughter tells me " Mom pick up your feet, heel to toe. " makes me wanna smack her ear to ear..lol not really-- well yea I do. Anyhow keep up the good work. I'm gettin ready. Love ya. I wonder if medicare will pay for any of this rehab?? I start on medicare in Oct. (You Know I can figure this one out).. Caring Voices is going to help me to make the right choices, thank God. I just got my Old People card yesterday in the mail. Think I'll look at a day or two before I decide I'm old for real. But for now I'm going in and color my hair. Love and Prayers, Peggy 9/04 ipf Florida " Worry looks around, Sorry looks back, Faith looks up " After 5 hours of recouperating, I am ready to brag. I stayed on the dreadmill for 28 minutes without stopping and coughing and gasping for breath. I admit that the speed is very slow and I am not able to walk on an incline, but it is real progress for me. I also did 10 minutes on the Nustep and 30 sit to stands. Then we did the stairs again....ugh! I made it to the landing without going over 5L of 02. I have had a real problem with dragging my feet (I refuse to call it shuffling), but today I didn't. I have been working with leg weights (o.k. only 2 lbs) but they think it has strengthened my legs. I am so proud of me. The fact remains that I am sooooo lazy and I hate excersize, especially the dreadmill. I am not disciplined and like Peggy, when I get the question " did you use the treadmill today " , it just burns me up. I don't know how much longer I will be in pul. rehab, but I told them today that I wanted to do maintenence. That depends on how expensive it is. This is costing a fortune....we could have taken a trip! I wish I had stayed active over the years, but most of the time I was too sick to excersize on my own (docs orders). It is hard, as you all know, to pull yourself out of bed in the a.m....let alone excersize. But, it is making me stronger so that now I can get out of this house more! We have had to adjust a few meds and 02 here and there.....but I did it!!! Well, today I did! Hugs, Joyce D. PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.472 / Virus Database: 269.8.15/848 - Release Date: 6/13/2007 12:50 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2007 Report Share Posted June 15, 2007 , Again, I will say.....Even an old barn looks better with a coat of paint!!! Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> > > Joyce I am just amazed at you.. You just show me up so badly. I am > > still gettin ready to get ready to start walking again. Ya know I've > > got a lot of gettin ready to do..lol.> > My daughter tells me "Mom pick up your feet, heel to toe." makes me > > wanna smack her ear to ear..lol> > not really-- well yea I do. Anyhow keep up the good work. I'm gettin > > ready. Love ya.> >> > I wonder if medicare will pay for any of this rehab?? I start on > > medicare in Oct. (You Know I can figure this one out).. Caring Voices > > is going to help me to make the right choices, thank God. I just got > > my Old People card yesterday in the mail. Think I'll look at a day or > > two before I decide I'm old for real. But for now> > I'm going in and color my hair.> >> > Love and Prayers, Peggy 9/04 ipf Florida "Worry looks around, > > Sorry looks back, Faith looks up"> >> > After 5 hours of recouperating, I am ready to brag. I stayed on> > the dreadmill for 28 minutes without stopping and coughing and> > gasping for breath. I admit that the speed is very slow and I am> > not able to walk on an incline, but it is real progress for me. I> > also did 10 minutes on the Nustep and 30 sit to stands. Then we> > did the stairs again....ugh! I made it to the landing without> > going over 5L of 02. > >> > I have had a real problem with dragging my feet (I refuse to call> > it shuffling), but today I didn't. I have been working with leg> > weights (o.k. only 2 lbs) but they think it has strengthened my> > legs. > >> > I am so proud of me. The fact remains that I am sooooo lazy and I> > hate excersize, especially the dreadmill. I am not disciplined> > and like Peggy, when I get the question "did you use the treadmill> > today", it just burns me up. I don't know how much longer I will> > be in pul. rehab, but I told them today that I wanted to do> > maintenence. That depends on how expensive it is. This is> > costing a fortune....we could have taken a trip! > >> > I wish I had stayed active over the years, but most of the time I> > was too sick to excersize on my own (docs orders). It is hard, as> > you all know, to pull yourself out of bed in the a.m....let alone> > excersize. But, it is making me stronger so that now I can get> > out of this house more!> >> > We have had to adjust a few meds and 02 here and there.....but I> > did it!!! Well, today I did!> >> > Hugs, Joyce D.> > PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA> > 2 COR. 12:10 ....when I am weak, then I am strong.> >> > > >> >> > > >> >> > > >> >------------------------------------------------------------------------> >> >No virus found in this incoming message.> >Checked by AVG Free Edition. > >Version: 7.5.472 / Virus Database: 269.8.15/848 - Release Date: 6/13/2007 12:50 PM> > > >> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.