Questions

[Guest guest]

I'm surprised you haven't had more responses to this one, I know

Patti commented with a different subject line on her pregnancy but I

also know several other women have had sucessful pregnancies after

removing a fibroid(s) that was preventing conception.

Unfortunately my story is more like Presha's. I got pregnant the

first month after my doctor gave me the OK to try - after 7+ years of

interfility. But mine pregnancy ended up being in a fallopian tube

that possibly was damaged by the fibroid. I lost that tube and the

remaining one looked to be damaged too. Plus I'm now full of

adhesions from the internal bleeding after the tubal rupture - so,

I'm calling it a day.

Fortunately for me I have children already so I'm OK with this. I

just wish I never had to deal with any of it in the first place. Or,

alternately, that I had been diagnosed 7 years ago when I first had

problems and before the fibroid did this much to me.

DeAnn

> > I have recently been told that I have some very

> > large uterine fibroids. My

> > uterus is about the size of one that is in the 4 or

> > 5th month of pregnancy.

> > My doctor is advising me to have some of the larger

> > fibroids removed

> > because I would like to try to become pregnant. Has

> > anyone out there had

> > fibroids removed and later gotten pregnant? Was

> > conception more difficult?

> > Do the fibroids come back and if so, how soon? Does

> > it interfere with

> > trying to become pregnant?

> >

> > Any information and experience anyone has will be

> > greatly appreciated.

> >

> > Thanks,

> > Joanne

> >

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Hi Rikki,

I'll try to answer some of your questions, but my brain is on vacation

also, so I won't be of much help.

In a message dated 8/27/2001 12:49:57 AM Eastern Daylight Time,

rikkif@... writes:

> Hello Everyone,

>

> I have a couple of questions and I am trying to remember what they

> are...LOL.

>

> 1. Why do hypo patients retain water, is anyone besides me having

> difficulty with this? Is it normal to get terrible headaches from it?

>

I am. I gained two pounds today, but I can't remember why this happens. My

face swells up, and my eyes get puffy, and to me that's the worst part of

being hypo, except for the LID, of course.

> 2. I took my last RAI ablative dose in pill form. You all are

> talking about the big swallow and I'm wondering if my doctors didn't

> know what they were doing?

>

I always have my RAI dose in pill form, and I'm happy about that. That drink

sounds pretty bad. I'm sure one is just as effective as the other, and don't

know why the two different methods are used.

> 3. Does anyone have anything that helps brain fog because I am the

> walking village idiot. Thankful I can laugh...usually, but I find

> it very frusterating to try and communicate with people right now.

Good thing we don't live in the same town right now, or we'd have to fight

for the title! I keep forgetting words, or losing my train of thought. In

another week or so my tongue will begin to trip over itself. Most of my

friends and family understand it all by now and are used to it. This is my

fourth hypo time in 20 months. We all laugh at me. And many say they are

like this all the time. I don't know of a cure, except going back on our

wonderful little pills. Meanwhile, just keep laughing.

>

> 4. I am worried about when I had my ablative dose of RAI 6 months

> ago. My doctors didn't even tell me that I should be on a low iodine

> diet. Does this render my RAI ineffective?

If your Tg went down, it was successful, but I hope you're going to do the

LID this time, and if you do, it may even be more successful.

>

> 5. When people have a reoccurance of thyca, how do they know?

They either feel a lump somewhere, or have a rise in their Tg, or it is seen

on a scan, or all of the above.

Wouldn't it be fun to have a hypo get together? That would be hilarious.

Are you having hypo nightmares yet? Mine started last night, and it was a

horror, as usual. Okay, my attention span has expired.

Hang in there, and this too shall pass.

Carolyn-history to long to go into now.

going hypo for RAI 200mCi in mid September

[Guest guest]

Hi Ricki...

> 1. Why do hypo patients retain water, is anyone

> besides me having

> difficulty with this? Is it normal to get terrible

> headaches from it?

I don't know why we tend to retain water when we're

hypo but I know it is a very common symptom. I've

also heard headaches are very common, too. Some endos

will prescribe diuretics during the hypo period to

help alleviate the puffiness.

> 2. I took my last RAI ablative dose in pill form.

> You all are

> talking about the big swallow and I'm wondering if

> my doctors didn't

> know what they were doing?

I received 148 mCi in pill form.

> 3. Does anyone have anything that helps brain fog

> because I am the

> walking village idiot. Thankful I can

> laugh...usually, but I find

> it very frusterating to try and communicate with

> people right now.

Try stand-up comedy right now

> 4. I am worried about when I had my ablative dose

> of RAI 6 months

> ago. My doctors didn't even tell me that I should be

> on a low iodine

> diet. Does this render my RAI ineffective?

I went hypo so quickly I didn't have time to complete

(or even BEGIN) a LID! I underwent my RAI without

LID.

> 5. When people have a reoccurance of thyca, how do

> they know?

There can be several ways, the most common being #'s

1 & 2:

1) Uptake on scan

2) Elevated Tg

3) Combination of both

4) Notice a new lump

5) Identication of a new cancer elsewhere in the body

=====

Christy, 42, Las Vegas

2.5 cm Follicular and .9 cm Papillary

2/26/01 LL (Frozen Section was read as benign)

3/10/01 TT after a positive final pathology

Hypoparathyroidism (.5 Rocaltrol/1500 mg calcium daily)

3/28/01 148 mCi RAI (w/o LID), .225 Synthroid, 0 Tg

__________________________________________________

[Guest guest]

rikkif@... says:

> 1. Why do hypo patients retain water, is anyone besides me having

> difficulty with this? Is it normal to get terrible headaches from it?

Well, _everything_ slows down when you're hypo, which I suppose

includes processing and eliminating fluids. I always retain fluid

when I'm hypo, and I have headaches then, too.

> 2. I took my last RAI ablative dose in pill form. You all are

> talking about the big swallow and I'm wondering if my doctors didn't

> know what they were doing?

Stop worrying; they knew. Many of us get our dose in capsule form.

> 3. Does anyone have anything that helps brain fog because I am the

> walking village idiot. Thankful I can laugh...usually, but I find

> it very frusterating to try and communicate with people right now.

Sorry, but the only known cure for brain fog is to stop being hypo :-).

It is frustrating, but console yourself with the thought that you're

providing entertainment for others. My husband laughs out loud watching

me try to play solitaire when I'm hypo, and we have frequent treasure

hunts trying to discover where I put the laundry away.

> 4. I am worried about when I had my ablative dose of RAI 6 months

> ago. My doctors didn't even tell me that I should be on a low iodine

> diet. Does this render my RAI ineffective?

Not ineffective, but possibly less effective. Lots of doctors don't

mention (or don't believe in) the low-iodine diet and plenty of us

had RAI before we knew about it. Don't lose sleep over it, but if

you ever need another RAI treatment, follow the diet whether your

doctor thinks it's necessary or not (every little bit helps!).

> 5. When people have a reoccurance of thyca, how do they know?

Patients who do not have anti-thyroglobulin antibodies can be

monitored using the thyroglobulin blood test. Talk to your doctor

about this (he should know your antibody status from your last lab

work).

Hope this helps. Don't forget to laugh today!

ellen

--

mailto:ellen@...

[Guest guest]

Hi Rikki, My doctors never told me that my memory or thought process would be

as bad as it was. My husband and teenage boys got alot of good laughs from what

I was doing(and so did I !). I felt there was nothing I could do about it so I

might as well find humor in it. When I would go to the grocery store with my son

I would stare at the shelves for long periods of time until my son would say " do

you know what you want mom? " Of course I didn't. Someone asked me directions to

my house from about 20 miles away and I couldn't give them because I couldn't

remember which way to turn off the expressways. Talk about embarrassing. I also

did things like put my son's clothes in my husband's closet, put my underware in

someone elses drawer, make coffee but forget to put the caraffe in place so

guess where all the coffee went!!!! I could go on and on just like others who

have posted here. It took about a good 6 weeks+ for me to get back to normal

after restarting my synthroid. I think that was what was more distressing to me

because I thought my sharp memory was losted forever. But it was because of all

the encouraging e-mails from this group that helped me through it. Good luck to

you and laugh, it is often the best medicine

Jan from Michigan, PT d Dec/2000, TT March/2001, pap/foll vari, Rai 30 mCi May

2001

rikkif@... wrote: Hello Everyone,

I have a couple of questions and I am trying to remember what they

are...LOL.

1. Why do hypo patients retain water, is anyone besides me having

difficulty with this? Is it normal to get terrible headaches from it?

2. I took my last RAI ablative dose in pill form. You all are

talking about the big swallow and I'm wondering if my doctors didn't

know what they were doing?

3. Does anyone have anything that helps brain fog because I am the

walking village idiot. Thankful I can laugh...usually, but I find

it very frusterating to try and communicate with people right now.

4. I am worried about when I had my ablative dose of RAI 6 months

ago. My doctors didn't even tell me that I should be on a low iodine

diet. Does this render my RAI ineffective?

5. When people have a reoccurance of thyca, how do they know?

Thanks for all you help with these questions.

Rikki

Dx 1/11/01

TT 2/5/01

RAI -- can't remember dose -- 3/13ish/01

[Guest guest]

Hi Rikki,

1. Luckily, I never had the water retention but I did get the

headaches.

2. I took my RAI in pill form as well. Your doc is doing just fine.

3. As you can tell by now from all the responses, there is no cure

for the fog. I found it very frustrating, this was actually the most

frustrating part of hypo. My dogs, however, would love to have me

hypo again. I must of fed them 3 times at dinner time. My husband

figured it out after awhile. The dogs had put on about 10 lbs. He

then put a note on the bins where we keep the dog food and he would

check off if they had been fed for the day already. Once I went back

to work, my co-workers thought it was hilarious how I had a million

sticky notes in my cube to remind myself to do or not to do things.

It does get better with time.

4. As for the LID, I have read that many people went on LID for 2

weeks prior. I only did it for 3 days. I guess it varies with docs.

5. As for reoccurance, I am getting checked for it right now. I went

for my yearly Ultrasound and it came back with nodules. All my

results come back tomorrow. I will know then. I didn't feel

anything. It was just chance. I will have the results of my Tg test

tomorrow.

Keep a good attitude about being hypo. It will come to an end one

day soon. Also misery loves company. Feel free to talk to other

hypos, they love to compare funny stories

> Hello Everyone,

>

> I have a couple of questions and I am trying to remember what they

> are...LOL.

>

> 1. Why do hypo patients retain water, is anyone besides me having

> difficulty with this? Is it normal to get terrible headaches from

it?

>

> 2. I took my last RAI ablative dose in pill form. You all are

> talking about the big swallow and I'm wondering if my doctors

didn't

> know what they were doing?

>

> 3. Does anyone have anything that helps brain fog because I am the

> walking village idiot. Thankful I can laugh...usually, but I find

> it very frusterating to try and communicate with people right now.

>

> 4. I am worried about when I had my ablative dose of RAI 6 months

> ago. My doctors didn't even tell me that I should be on a low

iodine

> diet. Does this render my RAI ineffective?

>

> 5. When people have a reoccurance of thyca, how do they know?

>

> Thanks for all you help with these questions.

>

> Rikki

> Dx 1/11/01

> TT 2/5/01

> RAI -- can't remember dose -- 3/13ish/01

[Guest guest]

PMS + Hypothyroidism = Hell

Anonymous

In a message dated 8/27/01 8:20:55 PM Eastern Daylight Time,

rikkif@... writes:

> I hadn't even thought about how our bodys slowing down might cause

>

[Guest guest]

Carolyn,

Thanks for the encouragement regarding the hypo brain. I love to

hear funny stories. It helps lift my spirits and makes me laugh with

relief that we hypo people are flabergasting the world together. I

have been finding that I can chatter on about absolutely nothing and

I can't stop. Remember the commercial " help I've fallen and I can't

get up " ? Well, Help! I'm talking and I can't shut up! :0) I am

laughing about this a lot and my husband thinks I'm so funny.

Rikki

> Hi Rikki,

>

> I'll try to answer some of your questions, but my brain is

on vacation

> also, so I won't be of much help.

>

> In a message dated 8/27/2001 12:49:57 AM Eastern Daylight Time,

> rikkif@b... writes:

> > Hello Everyone,

> >

> > I have a couple of questions and I am trying to remember what

they

> > are...LOL.

> >

> > 1. Why do hypo patients retain water, is anyone besides me

having

> > difficulty with this? Is it normal to get terrible headaches

from it?

> >

> I am. I gained two pounds today, but I can't remember why this

happens. My

> face swells up, and my eyes get puffy, and to me that's the worst

part of

> being hypo, except for the LID, of course.

>

> > 2. I took my last RAI ablative dose in pill form. You all are

> > talking about the big swallow and I'm wondering if my doctors

didn't

> > know what they were doing?

> >

> I always have my RAI dose in pill form, and I'm happy about that.

That drink

> sounds pretty bad. I'm sure one is just as effective as the other,

and don't

> know why the two different methods are used.

>

> > 3. Does anyone have anything that helps brain fog because I am

the

> > walking village idiot. Thankful I can laugh...usually, but I

find

> > it very frusterating to try and communicate with people right now.

>

> Good thing we don't live in the same town right now, or we'd have

to fight

> for the title! I keep forgetting words, or losing my train of

thought. In

> another week or so my tongue will begin to trip over itself. Most

of my

> friends and family understand it all by now and are used to it.

This is my

> fourth hypo time in 20 months. We all laugh at me. And many say

they are

> like this all the time. I don't know of a cure, except going back

on our

> wonderful little pills. Meanwhile, just keep laughing.

> >

> > 4. I am worried about when I had my ablative dose of RAI 6

months

> > ago. My doctors didn't even tell me that I should be on a low

iodine

> > diet. Does this render my RAI ineffective?

>

> If your Tg went down, it was successful, but I hope you're going

to do the

> LID this time, and if you do, it may even be more successful.

> >

> > 5. When people have a reoccurance of thyca, how do they know?

>

> They either feel a lump somewhere, or have a rise in their Tg, or

it is seen

> on a scan, or all of the above.

> Wouldn't it be fun to have a hypo get together? That would be

hilarious.

> Are you having hypo nightmares yet? Mine started last night, and

it was a

> horror, as usual. Okay, my attention span has expired.

>

> Hang in there, and this too shall pass.

> Carolyn-history to long to go into now.

> going hypo for RAI 200mCi in mid September

>

>

>

>

>

[Guest guest]

Ellen,

I hadn't even thought about how our bodys slowing down might cause

problems with retaining water. Also, I'm glad to know that their are

a lot of people out there who have taken a pill. I have found in my

hypo state I worry a lot more than I ever have. I can also let go of

my worry a lot easier...it's kindof weird.

Anyway, thanks for the reply.

Rikki

> rikkif@b... says:

>

> > 1. Why do hypo patients retain water, is anyone besides me

having

> > difficulty with this? Is it normal to get terrible headaches

from it?

>

> Well, _everything_ slows down when you're hypo, which I suppose

> includes processing and eliminating fluids. I always retain fluid

> when I'm hypo, and I have headaches then, too.

>

> > 2. I took my last RAI ablative dose in pill form. You all are

> > talking about the big swallow and I'm wondering if my doctors

didn't

> > know what they were doing?

>

> Stop worrying; they knew. Many of us get our dose in capsule form.

>

> > 3. Does anyone have anything that helps brain fog because I am

the

> > walking village idiot. Thankful I can laugh...usually, but I

find

> > it very frusterating to try and communicate with people right now.

>

> Sorry, but the only known cure for brain fog is to stop being

hypo :-).

> It is frustrating, but console yourself with the thought that you're

> providing entertainment for others. My husband laughs out loud

watching

> me try to play solitaire when I'm hypo, and we have frequent

treasure

> hunts trying to discover where I put the laundry away.

>

> > 4. I am worried about when I had my ablative dose of RAI 6

months

> > ago. My doctors didn't even tell me that I should be on a low

iodine

> > diet. Does this render my RAI ineffective?

>

> Not ineffective, but possibly less effective. Lots of doctors don't

> mention (or don't believe in) the low-iodine diet and plenty of us

> had RAI before we knew about it. Don't lose sleep over it, but if

> you ever need another RAI treatment, follow the diet whether your

> doctor thinks it's necessary or not (every little bit helps!).

>

> > 5. When people have a reoccurance of thyca, how do they know?

>

> Patients who do not have anti-thyroglobulin antibodies can be

> monitored using the thyroglobulin blood test. Talk to your doctor

> about this (he should know your antibody status from your last lab

> work).

>

> Hope this helps. Don't forget to laugh today!

>

> ellen

> --

> mailto:ellen@e...

[Guest guest]

Jan,

I can really relate to staring at the grocery shelves. A couple of

weeks ago, my husband and I were traveling to another city and we

stopped at Subway to get a sandwich. He sent me in with his order

but for the life of me I couldn't figure out what I wanted. I

finally decided and then she asked what kind of bread would you

like. That only took me a couple of seconds to decide but then, she

asked what cheese. Thats when my brain left the building. She gave

me the choice of three different cheeses. I knew I wanted cheddar

but before I knew it I had her taking on and off each cheese before

got to cheddar. By the time it was done, the people in front of me

were laughing and the people behind me wanted to ring my neck. I was

so embarrassed. Todd (my husband) laughed so hard when I told him

the story. I have had many incidents like that since.

Thanks for the encouragement.

Rikki

Hello Everyone,

>

> I have a couple of questions and I am trying to remember what they

> are...LOL.

>

> 1. Why do hypo patients retain water, is anyone besides me having

> difficulty with this? Is it normal to get terrible headaches from

it?

>

> 2. I took my last RAI ablative dose in pill form. You all are

> talking about the big swallow and I'm wondering if my doctors

didn't

> know what they were doing?

>

> 3. Does anyone have anything that helps brain fog because I am the

> walking village idiot. Thankful I can laugh...usually, but I find

> it very frusterating to try and communicate with people right now.

>

> 4. I am worried about when I had my ablative dose of RAI 6 months

> ago. My doctors didn't even tell me that I should be on a low

iodine

> diet. Does this render my RAI ineffective?

>

> 5. When people have a reoccurance of thyca, how do they know?

>

> Thanks for all you help with these questions.

>

> Rikki

> Dx 1/11/01

> TT 2/5/01

> RAI -- can't remember dose -- 3/13ish/01

>

>

>

>

>

>

[Guest guest]

--- rikkif@b... wrote:

>>>I have a couple of questions and I am trying to remember what they

are...LOL.

Boy, do I know that feeling.

>>>1. Why do hypo patients retain water, is anyone besides me having

difficulty with this? Is it normal to get terrible headaches from it?

Dunno' other than it is a common sx that I think most, if not all of us

get. Perhaps Nick has a repost or one of the doctors could say.

Re: H/A: I do things backwards. Off Levoxyl 11 days now and no H/A, but

while hypo in May, I got a H/A from h--- for a solid week AFTER I

re-started my thyroxine. Go figure. Seroiusly, I think headaches are more

common than not during this time.

>>>2. I took my last RAI ablative dose in pill form. You all are

talking about the big swallow and I'm wondering if my doctors didn't know

what they were doing?

My " gulp " was in 1982. I think it's done with pills more now. My hospital

gets pills, then makes a drink out of the pill(s). That seems more

complicated to me, but I think it has something to do with the safe

transportation of the RAI.

>>>3. Does anyone have anything that helps brain fog because I am the

walking village idiot. Thankful I can laugh...usually, but I find it very

frusterating to try and communicate with people right now.

What brain fog? Am I in denial, or what? I'm finding that exercizing is

helping this time around. But your sense of humoor goes a long way in

getting through the fog. It's also okay to be weepy if that's how you feel

at the moment. I find myself often saying, " Am I making sense? " because I

can't remember what I just said. lol Ppl are understanding. I just let my

friends know from the get-go that I may need their help. They've been

great at understanding.

>>>4. I am worried about when I had my ablative dose of RAI 6 months

ago. My doctors didn't even tell me that I should be on a low iodine

diet. Does this render my RAI ineffective?

As you can see by my closing, I'm still here going on 20 years after my

RAI and I knew absolutely nothing about the LID then. But now that I am

educated thanks to the great folks here, I plan on doing the LID strictly

this time to maximize my scan.

>>>5. When people have a reoccurance of thyca, how do they know?

I had no clue. My endo suspected it when my calcium levels went sky high

and remained that way even though he lowered my calcium meds. First time,

it was found by my gynecologist on routine neck palpation.

>>>Thanks for all you help with these questions.

Rikki

Dx 1/11/01

TT 2/5/01

RAI -- can't remember dose -- 3/13ish/01

Hope this helps,

=====

grammyDx2@...

1965 TT Well diff mixed pap/foll w/mets to lymph nodes

1982 176 mCi RAI for neck & chest mets

Hypoparathyroidism

Off Levoxyl 8/18 for scan in early Sept.

__________________________________________________

[Guest guest]

Hi Everybody -

I just want to say I joined this group about 2-3 weeks ago and have

learned so much just by reading to all your postings. This is a

wonderful group and everyone is so willing to help out with

suggestions and ideas.

I have some questions for you. I had a TT 7/27/01. Follicular.

(Don't have my path report but hope to get a copy later this month

when I see Dr. - Nuclear med at Albany Med. in NY) Was told by

the surgeon I was " cured " but that I needed RAI treatment just as a

precaution. Told my life expectancy hasn't changed. Scheduled to

start hypo right after Thanksgiving with tracer dose on 12/10, scan

on 12/13, RAI treatment on 12/17 followed by another scan on 12/31.

Is it safe to assume that since I was told it hadn't spread, that my

scan on 12/13 will show nothing and that my scan on 12/31 will be

clean as well? Or could the cancer have spread through the blood to

other parts of the body? I'm unclear about this. Can I also assume

that since I was told it hadn't spread - that it would be " unlikely "

that it spread through the blood to somewhere else in my body? One

should never ass-u-me I know. Any thoughts on this would be great.

I do plan on asking Dr. later this month - but would like your

take on it too. Thanks in advance.

Near Albany, NY

[Guest guest]

You can assume that your scan before your RAI WILL show something because it

is almost impossible to remove all the thyroid tissue and this is what will

take up the RAI. I had to have the RAI twice since the first time I did not

do the LID and my Endo figures I was iodine saturated (I was not under his

care at the time). I have my 6 mo follow up with my new endo (my second

one) this Friday to see if my Tg has gone down yet. Your scan (pre-RAI)

will also tell you if it has in fact spread. They really can't tell that

from your surgery - totally. After your RAI you will more than likely have

another scan and this one with " light " up in the thyroid bed if all went

well. The scan where you hope to see nothing is at your 6 mo/1 yr follow

up.

Hope that helps!

in Michigan

Papillary ThyCa - PT 3/1/00, TT 4/12/00

RAI 100 mCi's 5/26/00

2nd RAI 150 mCi's 1/19/01

Synthroid .150 mg

Questions

> Hi Everybody -

>

> I just want to say I joined this group about 2-3 weeks ago and have

> learned so much just by reading to all your postings. This is a

> wonderful group and everyone is so willing to help out with

> suggestions and ideas.

>

> I have some questions for you. I had a TT 7/27/01. Follicular.

> (Don't have my path report but hope to get a copy later this month

> when I see Dr. - Nuclear med at Albany Med. in NY) Was told by

> the surgeon I was " cured " but that I needed RAI treatment just as a

> precaution. Told my life expectancy hasn't changed. Scheduled to

> start hypo right after Thanksgiving with tracer dose on 12/10, scan

> on 12/13, RAI treatment on 12/17 followed by another scan on 12/31.

> Is it safe to assume that since I was told it hadn't spread, that my

> scan on 12/13 will show nothing and that my scan on 12/31 will be

> clean as well? Or could the cancer have spread through the blood to

> other parts of the body? I'm unclear about this. Can I also assume

> that since I was told it hadn't spread - that it would be " unlikely "

> that it spread through the blood to somewhere else in my body? One

> should never ass-u-me I know. Any thoughts on this would be great.

> I do plan on asking Dr. later this month - but would like your

> take on it too. Thanks in advance.

>

>

> Near Albany, NY

>

>

>

> For more information regarding thyroid cancer visit www.thyca.org. If you

do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank

email to thyca-unsubscribe

>

>

>

[Guest guest]

Hi - Yes, that helps. So if I got this right, my 1st scan will most

likely show something because there will still be thyroid tissue

left. The scan after RAI might or might not show anything. If it

shows nothing (that's good), but a follow up in 6 mos. to a yr. could

show somehing. If that scan shows nothing, yippee! If it does show

something, that most likely means it has spread? I'm not paranoid,

I'm just one of those anal people who have to know everything -

what " could " happen and what things mean. Thanks again.

Chris

> You can assume that your scan before your RAI WILL show something

because it

> is almost impossible to remove all the thyroid tissue and this is

what will

> take up the RAI. I had to have the RAI twice since the first time

I did not

> do the LID and my Endo figures I was iodine saturated (I was not

under his

> care at the time). I have my 6 mo follow up with my new endo (my

second

> one) this Friday to see if my Tg has gone down yet. Your scan (pre-

RAI)

> will also tell you if it has in fact spread. They really can't

tell that

> from your surgery - totally. After your RAI you will more than

likely have

> another scan and this one with " light " up in the thyroid bed if all

went

> well. The scan where you hope to see nothing is at your 6 mo/1 yr

follow

> up.

>

> Hope that helps!

>

> in Michigan

> Papillary ThyCa - PT 3/1/00, TT 4/12/00

> RAI 100 mCi's 5/26/00

> 2nd RAI 150 mCi's 1/19/01

> Synthroid .150 mg

>

>

> Questions

>

>

> > Hi Everybody -

> >

> > I just want to say I joined this group about 2-3 weeks ago and

have

> > learned so much just by reading to all your postings. This is a

> > wonderful group and everyone is so willing to help out with

> > suggestions and ideas.

> >

> > I have some questions for you. I had a TT 7/27/01. Follicular.

> > (Don't have my path report but hope to get a copy later this month

> > when I see Dr. - Nuclear med at Albany Med. in NY) Was

told by

> > the surgeon I was " cured " but that I needed RAI treatment just as

a

> > precaution. Told my life expectancy hasn't changed. Scheduled to

> > start hypo right after Thanksgiving with tracer dose on 12/10,

scan

> > on 12/13, RAI treatment on 12/17 followed by another scan on

12/31.

> > Is it safe to assume that since I was told it hadn't spread, that

my

> > scan on 12/13 will show nothing and that my scan on 12/31 will be

> > clean as well? Or could the cancer have spread through the blood

to

> > other parts of the body? I'm unclear about this. Can I also

assume

> > that since I was told it hadn't spread - that it would

be " unlikely "

> > that it spread through the blood to somewhere else in my body?

One

> > should never ass-u-me I know. Any thoughts on this would be

great.

> > I do plan on asking Dr. later this month - but would like

your

> > take on it too. Thanks in advance.

> >

> >

> > Near Albany, NY

> >

> >

> >

> > For more information regarding thyroid cancer visit

www.thyca.org. If you

> do not wish to belong to this group, you may UNSUBSCRIBE by sending

a blank

> email to thyca-unsubscribe@y...

> >

> >

> >

[Guest guest]

thanks . Sorry to hear that Carol is no longer with us. And can't wait

to hear from our jb-BB again.

Darcy

" heather o. " wrote:

LOL I like question # 3

Carol F. is no longer a part of the group.

Our Sweet JB-BB moved a few weeks ago and isn't on-line yet.

Hugs!!

> I still am behind on a few posts (419 to be exact) anyway things I

have questions on.

> 1. Where is Carol?

> 2. Did JB move or is just waiting on a cable guy?

> 3. Why can't I get rid of these 25 lbs I'd like off. (oh I know

that answer)

>

> Darcy

>

> __________________________________________________

>