Guest guest Posted June 1, 2007 Report Share Posted June 1, 2007 P. Joyce, I just read Tuesdays with Morrie, which is about a man with ALS. Very very good book. Written by Mitch Albom. I just read all his books and looooved them. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.>> > Lots of us refer to PF as a war. I want to show you an ALS war. My ex> has been fighting this war for close to 10 years--I don't remember the> exact date. He is determined to live even if it means a ventilator,> feeding tube and I don't know what else. None of his voluntary muscles> work. Therefore, he cannot talk or move except for his eyes, one or two> fingers, and some facial expressions.> > He has been my role model since my diagnosis. Our wars have different> names, but some of our battles are similar--breathing, walking, talking,> living...> > Pink Joyce IPF 3/06 Pennsylvania> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2007 Report Share Posted June 1, 2007 Joyce, Thanks for sharing this with us. God doesn't give us more than we can handle, He must know that you and your husband are strong, strong, strong!! How long have you two been married? When did things start up with the ALS. Has it been a slow progression? I admire your husband and I don't even know him. I admire you, too. Take care, LeanneJoyce wrote: Lots of us refer to PF as a war. I want to show you an ALS war. My ex has been fighting this war for close to 10 years--I don't remember the exact date. He is determined to live even if it means a ventilator, feeding tube and I don't know what else. None of his voluntary muscles work. Therefore, he cannot talk or move except for his eyes, one or two fingers, and some facial expressions. He has been my role model since my diagnosis. Our wars have different names, but some of our battles are similar--breathing, walking, talking, living... Pink Joyce IPF 3/06 Pennsylvania Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Yahoo! Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2007 Report Share Posted June 3, 2007 Leanne--he is my ex-husband and the father of my children. He moved out in 1982 and remarried 3-5 years later (I don't remember the exact year). pink joyce Leanne Storch wrote: Joyce, Thanks for sharing this with us. God doesn't give us more than we can handle, He must know that you and your husband are strong, strong, strong!! How long have you two been married? When did things start up with the ALS. Has it been a slow progression? I admire your husband and I don't even know him. I admire you, too. Take care, LeanneJoyce <pinkrockybeach> wrote: Lots of us refer to PF as a war. I want to show you an ALS war. My ex has been fighting this war for close to 10 years--I don't remember the exact date. He is determined to live even if it means a ventilator, feeding tube and I don't know what else. None of his voluntary muscles work. Therefore, he cannot talk or move except for his eyes, one or two fingers, and some facial expressions. He has been my role model since my diagnosis. Our wars have different names, but some of our battles are similar--breathing, walking, talking, living... Pink Joyce IPF 3/06 Pennsylvania Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Yahoo! Games. Pink Joyce IPF 3/06 Pennslvania Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2007 Report Share Posted June 3, 2007 Joyce D--I read Tuesdays with Morrie after I found out about Bruce's diagnosis. There is also a movie (made for TV?). Great book. Tough reading when you know someone with the disease. pink joyce Joyce wrote: P. Joyce, I just read Tuesdays with Morrie, which is about a man with ALS. Very very good book. Written by Mitch Albom. I just read all his books and looooved them. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.>> > Lots of us refer to PF as a war. I want to show you an ALS war. My ex> has been fighting this war for close to 10 years--I don't remember the> exact date. He is determined to live even if it means a ventilator,> feeding tube and I don't know what else. None of his voluntary muscles> work. Therefore, he cannot talk or move except for his eyes, one or two> fingers, and some facial expressions.> > He has been my role model since my diagnosis. Our wars have different> names, but some of our battles are similar--breathing, walking, talking,> living...> > Pink Joyce IPF 3/06 Pennsylvania> Pink Joyce IPF 3/06 Pennslvania Food fight? Enjoy some healthy debatein the Yahoo! Answers Food Drink Q&A. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2007 Report Share Posted June 3, 2007 P. Joyce, I saw the movie and liked it more than the book. Did you read The Five People You Meet in Heaven and For one more Day (my favorite of the three). My husband is reading his books now. I love to read. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > >> > > > Lots of us refer to PF as a war. I want to show you an ALS war. My ex> > has been fighting this war for close to 10 years--I don't remember the> > exact date. He is determined to live even if it means a ventilator,> > feeding tube and I don't know what else. None of his voluntary muscles> > work. Therefore, he cannot talk or move except for his eyes, one or two> > fingers, and some facial expressions.> > > > He has been my role model since my diagnosis. Our wars have different> > names, but some of our battles are similar--breathing, walking, talking,> > living...> > > > Pink Joyce IPF 3/06 Pennsylvania> >> > > > > > > Pink Joyce IPF 3/06 Pennslvania > > ---------------------------------> Food fight? Enjoy some healthy debate> in the Yahoo! Answers Food & Drink Q & A.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2007 Report Share Posted June 3, 2007 Joyce D--I only read Tuesdays with Morrie pink Joyce wrote: P. Joyce, I saw the movie and liked it more than the book. Did you read The Five People You Meet in Heaven and For one more Day (my favorite of the three). My husband is reading his books now. I love to read. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > >> > > > Lots of us refer to PF as a war. I want to show you an ALS war. My ex> > has been fighting this war for close to 10 years--I don't remember the> > exact date. He is determined to live even if it means a ventilator,> > feeding tube and I don't know what else. None of his voluntary muscles> > work. Therefore, he cannot talk or move except for his eyes, one or two> > fingers, and some facial expressions.> > > > He has been my role model since my diagnosis. Our wars have different> > names, but some of our battles are similar--breathing, walking, talking,> > living...> > > > Pink Joyce IPF 3/06 Pennsylvania> >> > > > > > > Pink Joyce IPF 3/06 Pennslvania > > ---------------------------------> Food fight? Enjoy some healthy debate> in the Yahoo! Answers Food & Drink Q & A.> Pink Joyce IPF 3/06 Pennslvania Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2007 Report Share Posted June 4, 2007 I just loved that movie. I cried. I can't remember if I read the book. Love and Prayers, Peggy 9/04 ipf Florida " Worry looks around, Sorry looks back, Faith looks up " Joyce D--I only read Tuesdays with Morrie pink Joyce wrote: P. Joyce, I saw the movie and liked it more than the book. Did you read The Five People You Meet in Heaven and For one more Day (my favorite of the three). My husband is reading his books now. I love to read. Hugs, Joyce D. PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > > > > > > Lots of us refer to PF as a war. I want to show you an ALS war. My ex > > has been fighting this war for close to 10 years--I don't remember the > > exact date. He is determined to live even if it means a ventilator, > > feeding tube and I don't know what else. None of his voluntary muscles > > work. Therefore, he cannot talk or move except for his eyes, one or two > > fingers, and some facial expressions. > > > > He has been my role model since my diagnosis. Our wars have different > > names, but some of our battles are similar--breathing, walking, talking, > > living... > > > > Pink Joyce IPF 3/06 Pennsylvania > > > > > > > > > Pink Joyce IPF 3/06 Pennslvania > > --------------------------------- > Food fight? Enjoy some healthy debate > in the Yahoo! Answers Food & Drink Q & A. > Pink Joyce IPF 3/06 Pennslvania Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now <http://us.rd.yahoo.com/evt=48223/*http://get.games.yahoo.com/proddesc?gamekey=monopolyherenow> (it's updated for today's economy) at Yahoo! Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2007 Report Share Posted June 7, 2007 Joyce and Re-Joyce! Bud nursed his first wife through 2 years of ALS - that's what makes this damn disease so unfair for him - her breath was the last function to go. He was there for her every minute - HE is actually my inspiration to be there for him. I read Tuesdays with Morrie when it came out and made a commitment to visit with an older family friend once a week - I celebrated my own Thursdays with Mildred, for years. Wouldn't trade that time I spent with her for anything in this world. She died in January (at 97!) and I was fortunate enough to eulogize her at the funeral. I got to know her on such a deep level - I owe a great debt to Mitch Albom and his works. Mildred loved The Five People You Meet in Heaven - she and I had both grown up in an amusement park, so we really related to the book. I'm sure she is in a much bigger and better amusement park now - Love and light, Joanie and Bud who finally fell asleep after our 4:30 a.m. cup o' tea! > > > > > > > > > Lots of us refer to PF as a war. I want to show you an ALS war. My > ex > > > has been fighting this war for close to 10 years--I don't remember > the > > > exact date. He is determined to live even if it means a ventilator, > > > feeding tube and I don't know what else. None of his voluntary > muscles > > > work. Therefore, he cannot talk or move except for his eyes, one or > two > > > fingers, and some facial expressions. > > > > > > He has been my role model since my diagnosis. Our wars have > different > > > names, but some of our battles are similar--breathing, walking, > talking, > > > living... > > > > > > Pink Joyce IPF 3/06 Pennsylvania > > > > > > > > > > > > > > > > > Pink Joyce IPF 3/06 Pennslvania > > > > --------------------------------- > > Food fight? Enjoy some healthy debate > > in the Yahoo! Answers Food & Drink Q & A. > > > > > > > > > > <http://smiley.smileycentral.com/download/index.jhtml? partner=ZSzeb114_Z\ > SXXXXXX37 & utm_id=7922> > Quote Link to comment Share on other sites More sharing options...
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