Guest guest Posted November 27, 2009 Report Share Posted November 27, 2009 The jerking might be myoclonic jerks. Klonopin(the generic is clonazepam) might help the jerks and also might help him sleep at night. Ask the doctor. Lorraine > > Does anyone have experience with their loved one not sleeping much during the night? Lately we can't seem to keep my father-in-law, Butch, in bed for more than 30 minutes or so at a time. He is a modest man and every time he gets up, he wants to put on pants and belt and does not want to wear sweats or something more simple to put on. A lot of the time lately, he will fall trying to get them on and we hear him through the monitor. When asked what he was doing up he either says that he has to get to work, that the alarm woke him up, someone honked a horn for him on the street or he doesn't remember. > > He was up most of last night and is sleeping in his chair today on and off. But, I notice that he is jerking and jumping a lot. Have any of you experienced that and if so, what do you do for it? He is exhausted but seems to be unable to sleep much at all. > > Thanks for any ideas! > > Alisa, caregiver to FIL Butch, 73, DX LBD 3 years, PD 12 years > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2009 Report Share Posted November 27, 2009 NEVER give these drugs for LBD, it will accelerate their life!  List of Neuroleptics The public identifies most psychiatric drugs by their trade names-the proprietary trademarks under which the companies own and market them. With generic names in parentheses, a list of trade names of neuroleptics in use today includes Haldol (haloperidol), Thorazine (chlorpromazine), Stelazine (trifluoperazine), Vesprin (trifluopromazine), Mellaril (thiorldazine), Prolixin or Permitil (fluphenazine), Navane (thiothixene), Trilafon (perphenazine), Tindal (acetophenazine), Taractan (chlorprothixene), Loxitane or Daxolin (loxapine), Moban or Lidone (molindone), Serenfil (mesoridazine), Orap (pimozide), Quide (piperacetazine), Repoise (butaperazine), Compazine (prochlorperazine), Dartal (thiopropazate), and Clozaril (clozapine).(1) The antidepressant Asendin (amoxapine) turns into a neuroleptic when it is metabolized in the body and should be considered a neuroleptic. Etrafon or Triavil is a combination of a neuroleptic (perphenazine) and an antidepressant (amitriptyline), and it combines the impact and the risks of both.  Jane Subject: Re: Not sleeping very long at night... To: LBDcaregivers Received: Friday, November 27, 2009, 3:31 PM  The jerking might be myoclonic jerks. Klonopin(the generic is clonazepam) might help the jerks and also might help him sleep at night. Ask the doctor. Lorraine > > Does anyone have experience with their loved one not sleeping much during the night? Lately we can't seem to keep my father-in-law, Butch, in bed for more than 30 minutes or so at a time. He is a modest man and every time he gets up, he wants to put on pants and belt and does not want to wear sweats or something more simple to put on. A lot of the time lately, he will fall trying to get them on and we hear him through the monitor. When asked what he was doing up he either says that he has to get to work, that the alarm woke him up, someone honked a horn for him on the street or he doesn't remember. > > He was up most of last night and is sleeping in his chair today on and off. But, I notice that he is jerking and jumping a lot. Have any of you experienced that and if so, what do you do for it? He is exhausted but seems to be unable to sleep much at all. > > Thanks for any ideas! > > Alisa, caregiver to FIL Butch, 73, DX LBD 3 years, PD 12 years > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2009 Report Share Posted November 27, 2009 Hi Alisa, If he is taking any medications that make him drowsy perhaps you can give it to him in the evening? Also, meds for AD like Aricept could be given in the morning to help wake him up and keep him awake so that he'll sleep better at night. Best, Courage Not sleeping very long at night... Does anyone have experience with their loved one not sleeping much during the night? Lately we can't seem to keep my father-in-law, Butch, in bed for more than 30 minutes or so at a time. He is a modest man and every time he gets up, he wants to put on pants and belt and does not want to wear sweats or something more simple to put on. A lot of the time lately, he will fall trying to get them on and we hear him through the monitor. When asked what he was doing up he either says that he has to get to work, that the alarm woke him up, someone honked a horn for him on the street or he doesn't remember. He was up most of last night and is sleeping in his chair today on and off. But, I notice that he is jerking and jumping a lot. Have any of you experienced that and if so, what do you do for it? He is exhausted but seems to be unable to sleep much at all. Thanks for any ideas! Alisa, caregiver to FIL Butch, 73, DX LBD 3 years, PD 12 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2009 Report Share Posted November 27, 2009 Alisa, it sounds like he is hallucinating. Have you tried a low dose of Seroquel at bedtime? It can be upped slowly if a low dose doesn't help. All the best in rectifying this situation. You all need your sleep to continue this journey. > > Hi Alisa, > > If he is taking any medications that make him drowsy perhaps you can give it to him in the evening? Also, meds for AD like Aricept could be given in the morning to help wake him up and keep him awake so that he'll sleep better at night. > Best, > Courage > > Not sleeping very long at night... > > > > Does anyone have experience with their loved one not sleeping much during the night? Lately we can't seem to keep my father-in-law, Butch, in bed for more than 30 minutes or so at a time. He is a modest man and every time he gets up, he wants to put on pants and belt and does not want to wear sweats or something more simple to put on. A lot of the time lately, he will fall trying to get them on and we hear him through the monitor. When asked what he was doing up he either says that he has to get to work, that the alarm woke him up, someone honked a horn for him on the street or he doesn't remember. > > He was up most of last night and is sleeping in his chair today on and off. But, I notice that he is jerking and jumping a lot. Have any of you experienced that and if so, what do you do for it? He is exhausted but seems to be unable to sleep much at all. > > Thanks for any ideas! > > Alisa, caregiver to FIL Butch, 73, DX LBD 3 years, PD 12 years > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2009 Report Share Posted November 27, 2009 My mom does this on occasion. Before she started to take Ashwagandha (natural remedy for insomnia at night that works awesome for my mom) she was up every hour on the hour. We would find her completely dressed with a bag packed with random things. She would think she was going home or that she had to go somewhere. My mother doesn't take the traditional meds. Ashwagandha is similar to Aricept only it doesn't have side effects. She is also on a natural supplement called CogniFactor. I would highly recommend seeing a Naturopath Doctor. My mom was a diabetic for a long time. Now, she has a normal A1C (5.4) It's been consistent for months. She used Fenugreek extract to help fix her insulin receptors. Foods to avoid, especially at bed time are any dairy - like ice cream. Cut out all processed foods, all gluten (wheat, rye, barley, oats and rice.) Replace these with Quinoa and Amaranth - grains that have been around for thousands of years. They are high protein grains. Avoid eggplant - when my mom eats it she hallucinates My basic rule is no bread, no pasta and no preservatives. Currently, my mom takes a 3mg of Melatonin and 5000 iu of Vit D3 as well as her 8 drops of Ashwagandha in a little bit of water. She sleeps through the night, unless of course she's upset about something. The secret is to keep him calm. I've discovered that by working on my own sense of calm, it helps my mom to be calm. I write a lot about natural treatments that we are using with my mom ( http://backdoorlogic.blogspot.com ). She has a lot of good days which is great. Today she is having a fabulous day, I'm truly grateful. I know your pain. I began losing my mind before I found Ashwagandha! Sue Not sleeping very long at night... Does anyone have experience with their loved one not sleeping much during the night? Lately we can't seem to keep my father-in-law, Butch, in bed for more than 30 minutes or so at a time. He is a modest man and every time he gets up, he wants to put on pants and belt and does not want to wear sweats or something more simple to put on. A lot of the time lately, he will fall trying to get them on and we hear him through the monitor. When asked what he was doing up he either says that he has to get to work, that the alarm woke him up, someone honked a horn for him on the street or he doesn't remember. He was up most of last night and is sleeping in his chair today on and off. But, I notice that he is jerking and jumping a lot. Have any of you experienced that and if so, what do you do for it? He is exhausted but seems to be unable to sleep much at all. Thanks for any ideas! Alisa, caregiver to FIL Butch, 73, DX LBD 3 years, PD 12 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2009 Report Share Posted November 27, 2009 One more thing, for hallucinations, she takes 4 pellets of helleborus niger 30 C. under her tongue. It's a homeopathic remedy that works amazingly well. A Naturopath Doctor can help you a lot. I highly recommend seeing one. Not sleeping very long at night... Does anyone have experience with their loved one not sleeping much during the night? Lately we can't seem to keep my father-in-law, Butch, in bed for more than 30 minutes or so at a time. He is a modest man and every time he gets up, he wants to put on pants and belt and does not want to wear sweats or something more simple to put on. A lot of the time lately, he will fall trying to get them on and we hear him through the monitor. When asked what he was doing up he either says that he has to get to work, that the alarm woke him up, someone honked a horn for him on the street or he doesn't remember. He was up most of last night and is sleeping in his chair today on and off. But, I notice that he is jerking and jumping a lot. Have any of you experienced that and if so, what do you do for it? He is exhausted but seems to be unable to sleep much at all. Thanks for any ideas! Alisa, caregiver to FIL Butch, 73, DX LBD 3 years, PD 12 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2009 Report Share Posted November 27, 2009 Thanks everyone. He takes 2 seroquel at bedtime and 1 at 3:00 in the afternoon. He also takes 2 pills twice a day for his parkinsons and I can't think of what they are called off the top of my head. This combination had been working terrifically until about 2 weeks ago and he seems to be more delusional, restless and jerks a lot in his sleep and sometimes when he is awake now. He has really been confused too, not really recognizing family that stops by and seems to have that vacant stare in his eyes more often and not these days. I'm sure its the natural progression for this rollercoaster of a disease, I just want to make it as easy on him as I can and make him comfortable and I need some sleep (ha!). I feel like I have a newborn baby that I'm caring for - he wakes up every hour or so... ________________________________ To: LBDcaregivers Sent: Fri, November 27, 2009 12:56:17 PM Subject: Re: Not sleeping very long at night...  Alisa, it sounds like he is hallucinating. Have you tried a low dose of Seroquel at bedtime? It can be upped slowly if a low dose doesn't help. All the best in rectifying this situation. You all need your sleep to continue this journey. > > Hi Alisa, > > If he is taking any medications that make him drowsy perhaps you can give it to him in the evening? Also, meds for AD like Aricept could be given in the morning to help wake him up and keep him awake so that he'll sleep better at night. > Best, > Courage > > Not sleeping very long at night... > > > > Does anyone have experience with their loved one not sleeping much during the night? Lately we can't seem to keep my father-in-law, Butch, in bed for more than 30 minutes or so at a time. He is a modest man and every time he gets up, he wants to put on pants and belt and does not want to wear sweats or something more simple to put on. A lot of the time lately, he will fall trying to get them on and we hear him through the monitor. When asked what he was doing up he either says that he has to get to work, that the alarm woke him up, someone honked a horn for him on the street or he doesn't remember. > > He was up most of last night and is sleeping in his chair today on and off. But, I notice that he is jerking and jumping a lot. Have any of you experienced that and if so, what do you do for it? He is exhausted but seems to be unable to sleep much at all. > > Thanks for any ideas! > > Alisa, caregiver to FIL Butch, 73, DX LBD 3 years, PD 12 years > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2009 Report Share Posted November 27, 2009 Hi Again Alisa, If this change in behavior has just happened recently you may want to get him checked for a UTI. Best, Courage Not sleeping very long at night... > > > > Does anyone have experience with their loved one not sleeping much during the night? Lately we can't seem to keep my father-in-law, Butch, in bed for more than 30 minutes or so at a time. He is a modest man and every time he gets up, he wants to put on pants and belt and does not want to wear sweats or something more simple to put on. A lot of the time lately, he will fall trying to get them on and we hear him through the monitor. When asked what he was doing up he either says that he has to get to work, that the alarm woke him up, someone honked a horn for him on the street or he doesn't remember. > > He was up most of last night and is sleeping in his chair today on and off. But, I notice that he is jerking and jumping a lot. Have any of you experienced that and if so, what do you do for it? He is exhausted but seems to be unable to sleep much at all. > > Thanks for any ideas! > > Alisa, caregiver to FIL Butch, 73, DX LBD 3 years, PD 12 years > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2009 Report Share Posted November 27, 2009 I see Courage suggested testing for a uti, which I was going to do. The other thought is that perhaps he can't tolerate as much of the Parkinsons meds. I seem to recall they can cause the jerking, along with increased dementia symptoms. Worth looking into if uti is ruled out. > > > > Hi Alisa, > > > > If he is taking any medications that make him drowsy perhaps you can give it to him in the evening? Also, meds for AD like Aricept could be given in the morning to help wake him up and keep him awake so that he'll sleep better at night. > > Best, > > Courage > > > > Not sleeping very long at night... > > > > > > > > Does anyone have experience with their loved one not sleeping much during the night? Lately we can't seem to keep my father-in-law, Butch, in bed for more than 30 minutes or so at a time. He is a modest man and every time he gets up, he wants to put on pants and belt and does not want to wear sweats or something more simple to put on. A lot of the time lately, he will fall trying to get them on and we hear him through the monitor. When asked what he was doing up he either says that he has to get to work, that the alarm woke him up, someone honked a horn for him on the street or he doesn't remember. > > > > He was up most of last night and is sleeping in his chair today on and off. But, I notice that he is jerking and jumping a lot. Have any of you experienced that and if so, what do you do for it? He is exhausted but seems to be unable to sleep much at all. > > > > Thanks for any ideas! > > > > Alisa, caregiver to FIL Butch, 73, DX LBD 3 years, PD 12 years > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2009 Report Share Posted November 28, 2009 Alisa, Bless you for caring for your fil. That's so awesome, however, you all need your sleep. As has been said in other responses, yes, please check for a UTI. It is so common in the LBDers and can certainly cause these behavior changes. Next, can you ask the neurologist about increasing his bedtime Seroquel dosage? We are so thankful for a LBD savvy and very kind neurologist who, early in Mom's treatment, said that, " She needs to sleep and you [he said pointing to me] need to sleep " and, after giving us dosing guidelines, he added, " When you get to the right dose of Seroquel she WILL sleep all night. " Wishing you a good night's sleep, Sheila in IN Daughter of Louise, age 87, dx LBD 7/2007 Seroquel 9AM- 25 mg, 3PM- 62.5 mg, 9PM -100 mg. > > Does anyone have experience with their loved one not sleeping much during the night? Lately we can't seem to keep my father-in-law, Butch, in bed for more than 30 minutes or so at a time. He is a modest man and every time he gets up, he wants to put on pants and belt and does not want to wear sweats or something more simple to put on. A lot of the time lately, he will fall trying to get them on and we hear him through the monitor. When asked what he was doing up he either says that he has to get to work, that the alarm woke him up, someone honked a horn for him on the street or he doesn't remember. > > He was up most of last night and is sleeping in his chair today on and off. But, I notice that he is jerking and jumping a lot. Have any of you experienced that and if so, what do you do for it? He is exhausted but seems to be unable to sleep much at all. > > Thanks for any ideas! > > Alisa, caregiver to FIL Butch, 73, DX LBD 3 years, PD 12 years > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2009 Report Share Posted November 28, 2009 Alisa, I haven't read the responses to your message, so someone may have already suggested this. My dad had the same issue as your father in law. My dad always wandered at night, but when we put him in a board and care home, the owners told us they couldn't accommodate his needs and we were going to have to move him. I called the Mayo Clinic and told them the situation and they suggested a low dose of Klonopin. It worked like a charm. He started sleeping through the night and was able to remain at his board and care home, where he still lives today. We weaned him off the Klonopin about 6 months ago, because he is no longer able to walk and get out of bed on his own. Good Luck....it is a tough road ahead. Rhonda > > Does anyone have experience with their loved one not sleeping much during the night? Lately we can't seem to keep my father-in-law, Butch, in bed for more than 30 minutes or so at a time. He is a modest man and every time he gets up, he wants to put on pants and belt and does not want to wear sweats or something more simple to put on. A lot of the time lately, he will fall trying to get them on and we hear him through the monitor. When asked what he was doing up he either says that he has to get to work, that the alarm woke him up, someone honked a horn for him on the street or he doesn't remember. > > He was up most of last night and is sleeping in his chair today on and off. But, I notice that he is jerking and jumping a lot. Have any of you experienced that and if so, what do you do for it? He is exhausted but seems to be unable to sleep much at all. > > Thanks for any ideas! > > Alisa, caregiver to FIL Butch, 73, DX LBD 3 years, PD 12 years > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2009 Report Share Posted November 28, 2009 Thanks! I appreciate everyone's input.  I will check on the Klonopin and also on an UTI. He slept well last night or maybe I was just exhausted and didn't hear him. I'm not sure which - HA! At any rate, he seems a little more alert today so I think he must have gotten some rest. Happy Holidays to all! Thank you again for all the advice, it is a different kind of job caring for a loved one with this disease. Alisa  ________________________________ To: LBDcaregivers Sent: Sat, November 28, 2009 3:52:55 PM Subject: Re: Not sleeping very long at night...  Alisa, I haven't read the responses to your message, so someone may have already suggested this. My dad had the same issue as your father in law. My dad always wandered at night, but when we put him in a board and care home, the owners told us they couldn't accommodate his needs and we were going to have to move him. I called the Mayo Clinic and told them the situation and they suggested a low dose of Klonopin. It worked like a charm. He started sleeping through the night and was able to remain at his board and care home, where he still lives today. We weaned him off the Klonopin about 6 months ago, because he is no longer able to walk and get out of bed on his own. Good Luck....it is a tough road ahead. Rhonda > > Does anyone have experience with their loved one not sleeping much during the night? Lately we can't seem to keep my father-in-law, Butch, in bed for more than 30 minutes or so at a time. He is a modest man and every time he gets up, he wants to put on pants and belt and does not want to wear sweats or something more simple to put on. A lot of the time lately, he will fall trying to get them on and we hear him through the monitor. When asked what he was doing up he either says that he has to get to work, that the alarm woke him up, someone honked a horn for him on the street or he doesn't remember. > > He was up most of last night and is sleeping in his chair today on and off. But, I notice that he is jerking and jumping a lot. Have any of you experienced that and if so, what do you do for it? He is exhausted but seems to be unable to sleep much at all. > > Thanks for any ideas! > > Alisa, caregiver to FIL Butch, 73, DX LBD 3 years, PD 12 years > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2009 Report Share Posted November 29, 2009 Hi Alisa The doctor and nurses said that my father responded fairly well to melatonin at night. He slept better and was less activity when sleeping. Sounds like the Klonapin might help too. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2009 Report Share Posted November 29, 2009 Dear , I must say something here as a warning to our friends. I know you mean well, and are sincere, and are also a dear friend on this list. Remember that I have been around a long time, as I am older than dirt, so I have had time to have known several people that relied on Naturopath remedies, and they died. They should have consulted with a Medical Doctor, or several Medical Doctors, for other opinions to assess their problem. But no, they tried to medicate themselves with natural remedies and it didn't work. We are not ignorant, yet we do not have the knowledge to decide all treatments for ourselves. That is why Doctors go to school so many years. Yes, they have killed many people because medicines can kill, but so can natural remedies. Just please friends don't try to treat all yours or your LOs illnesses alone with something of which your can't be positive from a medical point of view. I mean this in the deepest respect, but it scares me to see anyone taking the " natural " route. We are not doctors. Love to all, Imogene Love with a smile, Imogene Caregiver for my True Texas Gentleman Husband. Incorrect diagnoses of AD in 2005. A correct diagnosis of LBD 2006. A happy personality is contagious. Infect someone today. Yours Truly In a message dated 11/27/2009 7:11:35 P.M. Central Standard Time, susan_jarmulowicz@... writes: My mom does this on occasion. Before she started to take Ashwagandha (natural remedy for insomnia at night that works awesome for my mom) she was up every hour on the hour. We would find her completely dressed with a bag packed with random things. She would think she was going home or that she had to go somewhere. My mother doesn't take the traditional meds. Ashwagandha is similar to Aricept only it doesn't have side effects. She is also on a natural supplement called CogniFactor. I would highly recommend seeing a Naturopath Doctor. My mom was a diabetic for a long time. Now, she has a normal A1C (5.4) It's been consistent for months. She used Fenugreek extract to help fix her insulin receptors. Foods to avoid, especially at bed time are any dairy - like ice cream. Cut out all processed foods, all gluten (wheat, rye, barley, oats and rice.) Replace these with Quinoa and Amaranth - grains that have been around for thousands of years. They are high protein grains. Avoid eggplant - when my mom eats it she hallucinates My basic rule is no bread, no pasta and no preservatives. Currently, my mom takes a 3mg of Melatonin and 5000 iu of Vit D3 as well as her 8 drops of Ashwagandha in a little bit of water. She sleeps through the night, unless of course she's upset about something. The secret is to keep him calm. I've discovered that by working on my own sense of calm, it helps my mom to be calm. I write a lot about natural treatments that we are using with my mom ( http://backdoorlogic.blogspot.com ). She has a lot of good days which is great. Today she is having a fabulous day, I'm truly grateful. I know your pain. I began losing my mind before I found Ashwagandha! Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2009 Report Share Posted November 30, 2009 For the record, we work with medical doctors in conjunction with our Naturopath Doctor. It's working great for my mom. I am not doing this alone. She is healthier than ever, except for her memory and hallucinations on occassion. The point of my posts is to let people know there are alternatives. Naturopath Doctors WITH MEDICAL DOCTORS helps my mom a lot. The MD diagnosis the trouble and the ND prescribes the natural remedies. My mom does not have trouble with side effects that I read about on these posts. I am amazed at my mom's progress. It works for her very well. I love my mom and I know everyone loves their loved ones too, I want to share what I'm learning about alternative treatments that have been around for thousands of years, tried and true. I still highly recommend a Naturopath Doctor working with an MD. It is helping my mom to have more good days than bad. How is this wrong? If my mom dies having a good day, wouldn't it be better than her having a boat-load of bad days? She doesn't like it when she has bad days, she's 80 and I'm committed to have her laugh every day, even on bad days. People should not be afraid to ask questions and seek alternatives. If you all want me to keep quiet and not share what I've learned, I will stop posting comments. Warmly, Sue Re: Not sleeping very long at night... Dear , I must say something here as a warning to our friends. I know you mean well, and are sincere, and are also a dear friend on this list. Remember that I have been around a long time, as I am older than dirt, so I have had time to have known several people that relied on Naturopath remedies, and they died. They should have consulted with a Medical Doctor, or several Medical Doctors, for other opinions to assess their problem. But no, they tried to medicate themselves with natural remedies and it didn't work. We are not ignorant, yet we do not have the knowledge to decide all treatments for ourselves. That is why Doctors go to school so many years. Yes, they have killed many people because medicines can kill, but so can natural remedies. Just please friends don't try to treat all yours or your LOs illnesses alone with something of which your can't be positive from a medical point of view. I mean this in the deepest respect, but it scares me to see anyone taking the " natural " route. We are not doctors. Love to all, Imogene Love with a smile, Imogene Caregiver for my True Texas Gentleman Husband. Incorrect diagnoses of AD in 2005. A correct diagnosis of LBD 2006. A happy personality is contagious. Infect someone today. Yours Truly In a message dated 11/27/2009 7:11:35 P.M. Central Standard Time, susan_jarmulowicz@... writes: My mom does this on occasion. Before she started to take Ashwagandha (natural remedy for insomnia at night that works awesome for my mom) she was up every hour on the hour. We would find her completely dressed with a bag packed with random things. She would think she was going home or that she had to go somewhere. My mother doesn't take the traditional meds. Ashwagandha is similar to Aricept only it doesn't have side effects. She is also on a natural supplement called CogniFactor. I would highly recommend seeing a Naturopath Doctor. My mom was a diabetic for a long time. Now, she has a normal A1C (5.4) It's been consistent for months. She used Fenugreek extract to help fix her insulin receptors. Foods to avoid, especially at bed time are any dairy - like ice cream. Cut out all processed foods, all gluten (wheat, rye, barley, oats and rice.) Replace these with Quinoa and Amaranth - grains that have been around for thousands of years. They are high protein grains. Avoid eggplant - when my mom eats it she hallucinates My basic rule is no bread, no pasta and no preservatives. Currently, my mom takes a 3mg of Melatonin and 5000 iu of Vit D3 as well as her 8 drops of Ashwagandha in a little bit of water. She sleeps through the night, unless of course she's upset about something. The secret is to keep him calm. I've discovered that by working on my own sense of calm, it helps my mom to be calm. I write a lot about natural treatments that we are using with my mom ( http://backdoorlogic.blogspot.com ). She has a lot of good days which is great. Today she is having a fabulous day, I'm truly grateful. I know your pain. I began losing my mind before I found Ashwagandha! Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2009 Report Share Posted November 30, 2009 I am very sorry . I should have been more precise. I did not know you were working with Doctors. All I know is the experiences I have had with dear friends going the route of alternative medicines, and dying of cancer. They were a lot younger in age than your Mom. I knew of three that I can think of right off hand. I am sorry I spoke up, but some people don't go the route with doctors, and they think the " natural " way is the way to go. It was a warning to those that think this. I am so sorry that I have not read any of your post saying that you were working with Doctors. I have missed many of them. Again please forgive me for giving the warning. I did not mean to walk on your toes in any way. I am really sorry. Love with a smile, Imogene Caregiver for my True Texas Gentleman Husband. Incorrect diagnoses of AD in 2005. A correct diagnosis of LBD 2006. A happy personality is contagious. Infect someone today. Yours Truly In a message dated 11/30/2009 10:40:36 A.M. Central Standard Time, susan_jarmulowicz@... writes: For the record, we work with medical doctors in conjunction with our Naturopath Doctor. It's working great for my mom. I am not doing this alone. She is healthier than ever, except for her memory and hallucinations on occassion. The point of my posts is to let people know there are alternatives. Naturopath Doctors WITH MEDICAL DOCTORS helps my mom a lot. The MD diagnosis the trouble and the ND prescribes the natural remedies. My mom does not have trouble with side effects that I read about on these posts. I am amazed at my mom's progress. It works for her very well. I love my mom and I know everyone loves their loved ones too, I want to share what I'm learning about alternative treatments that have been around for thousands of years, tried and true. I still highly recommend a Naturopath Doctor working with an MD. It is helping my mom to have more good days than bad. How is this wrong? If my mom dies having a good day, wouldn't it be better than her having a boat-load of bad days? She doesn't like it when she has bad days, she's 80 and I'm committed to have her laugh every day, even on bad days. People should not be afraid to ask questions and seek alternatives. If you all want me to keep quiet and not share what I've learned, I will stop posting comments. Warmly, Sue Re: Not sleeping very long at night... Dear , I must say something here as a warning to our friends. I know you mean well, and are sincere, and are also a dear friend on this list. Remember that I have been around a long time, as I am older than dirt, so I have had time to have known several people that relied on Naturopath remedies, and they died. They should have consulted with a Medical Doctor, or several Medical Doctors, for other opinions to assess their problem. But no, they tried to medicate themselves with natural remedies and it didn't work. We are not ignorant, yet we do not have the knowledge to decide all treatments for ourselves. That is why Doctors go to school so many years. Yes, they have killed many people because medicines can kill, but so can natural remedies. Just please friends don't try to treat all yours or your LOs illnesses alone with something of which your can't be positive from a medical point of view. I mean this in the deepest respect, but it scares me to see anyone taking the " natural " route. We are not doctors. Love to all, Imogene Love with a smile, Imogene Caregiver for my True Texas Gentleman Husband. Incorrect diagnoses of AD in 2005. A correct diagnosis of LBD 2006. A happy personality is contagious. Infect someone today. Yours Truly In a message dated 11/27/2009 7:11:35 P.M. Central Standard Time, susan_jarmulowicz@... writes: My mom does this on occasion. Before she started to take Ashwagandha (natural remedy for insomnia at night that works awesome for my mom) she was up every hour on the hour. We would find her completely dressed with a bag packed with random things. She would think she was going home or that she had to go somewhere. My mother doesn't take the traditional meds. Ashwagandha is similar to Aricept only it doesn't have side effects. She is also on a natural supplement called CogniFactor. I would highly recommend seeing a Naturopath Doctor. My mom was a diabetic for a long time. Now, she has a normal A1C (5.4) It's been consistent for months. She used Fenugreek extract to help fix her insulin receptors. Foods to avoid, especially at bed time are any dairy - like ice cream. Cut out all processed foods, all gluten (wheat, rye, barley, oats and rice.) Replace these with Quinoa and Amaranth - grains that have been around for thousands of years. They are high protein grains. Avoid eggplant - when my mom eats it she hallucinates My basic rule is no bread, no pasta and no preservatives. Currently, my mom takes a 3mg of Melatonin and 5000 iu of Vit D3 as well as her 8 drops of Ashwagandha in a little bit of water. She sleeps through the night, unless of course she's upset about something. The secret is to keep him calm. I've discovered that by working on my own sense of calm, it helps my mom to be calm. I write a lot about natural treatments that we are using with my mom ( http://backdoorlogic.blogspot.com ). She has a lot of good days which is great. Today she is having a fabulous day, I'm truly grateful. I know your pain. I began losing my mind before I found Ashwagandha! Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2009 Report Share Posted November 30, 2009 Thank you Sherry. I am sorry I wrote my reply when I did. My apologies if I offended anyone. I should have stopped and taken a breath; waiting to write when I was in a better place. But, I often have trouble keeping my mouth shut, no wonder my sister won't talk to me! I will continue to voice my opinions here, hey, let's spice it up with some different thoughts. I do believe that knowledge is power. The main reason I began posting comments here was to provide the knowledge that my mom is helping me to discover. She wants to help others with her trouble, she often tells me how I MUST get this information out to people. So, I do. After all, she's still my mother, I have to listen to her. (Note: she does remind me of this on those occasions when I've pissed her off somehow.) If we the care givers know all of our options, both benefits and constraints, we are doing a service for those we love who can not make the decisions for themselves. Whoever wrote the note that I replied to, I am sorry if I hurt your feelings. I love you for what you are doing, it's helpful to many. Warmly, Sue Re: Not sleeping very long at night... I just want to say that I have been hurt badly by some in the medical profession and helped by others, and also helped by natural practitioners. Their training is different but no less valuable than an MDs; MDs aren't the only kind of doctors with help to offer even though in this country that is the traditional school of thought. What we consider traditional medicine and what people elsewhere in the world consider traditional medicine may be different, but it all is based on science and knowledge, and it all has great benefit. I think it is great that we have options and choices! If MDs are helping your loved one then by all means that's the way to go! If a naturopath is doing great things, then by all means that's the way to go! And if they can work together, excellent! Each of us has a different path and differing beliefs but that doesn't invalidate anyone else's . I already subscribe to your blog, but would hope that you wouldn't stop sharing your own experiences with us here. We all have our own experiences to share, none are any more or less important than another, even though what works for one might not work for another. Proven science is proven science, and in this fight against such an insipid evil every weapon in our arsenal has value! I would hate to see a difference of opinion deprive the list of your experience . His, Sherry s www.owly.net daughter of , (mis?)diagnosed with AD in 2005, diagnosed with LBD March 2008; in a NH, taking Aricept/Namenda, Seroquel, and Effexor for depression. ----- Original Message ----- From: < susan_jarmulowicz@... > > For the record, we work with medical doctors in conjunction with our > Naturopath Doctor. It's working great for my mom. I am not doing this > alone. She is healthier than ever, except for her memory and > hallucinations on occassion. > > The point of my posts is to let people know there are alternatives. > Naturopath Doctors WITH MEDICAL DOCTORS helps my mom a lot. The MD > diagnosis the trouble and the ND prescribes the natural remedies. > > My mom does not have trouble with side effects that I read about on these > posts. > > I am amazed at my mom's progress. It works for her very well. I love my > mom and I know everyone loves their loved ones too, I want to share what > I'm learning about alternative treatments that have been around for > thousands of years, tried and true. > > I still highly recommend a Naturopath Doctor working with an MD. It is > helping my mom to have more good days than bad. > > How is this wrong? If my mom dies having a good day, wouldn't it be better > than her having a boat-load of bad days? She doesn't like it when she has > bad days, she's 80 and I'm committed to have her laugh every day, even on > bad days. > > People should not be afraid to ask questions and seek alternatives. If you > all want me to keep quiet and not share what I've learned, I will stop > posting comments. > > Warmly, > > Sue > ----- Original Message ----- > From: Iward27663@... > I must say something here as a warning to our friends. I know you mean > well, and are sincere, and are also a dear friend on this list. > > Remember that I have been around a long time, as I am older than dirt, so > I have had time to have known several people that relied on Naturopath > remedies, and they died. They should have consulted with a Medical Doctor, > or > several Medical Doctors, for other opinions to assess their problem. But > no, > they tried to medicate themselves with natural remedies and it didn't > work. > > We are not ignorant, yet we do not have the knowledge to decide all > treatments for ourselves. That is why Doctors go to school so many years. > Yes, > they have killed many people because medicines can kill, but so can > natural > remedies. Just please friends don't try to treat all yours or your LOs > illnesses alone with something of which your can't be positive from a > medical > point of view. > > I mean this in the deepest respect, but it scares me to see anyone taking > the " natural " route. We are not doctors. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2009 Report Share Posted November 30, 2009 Everything that is posted by LOs on this site are their experiences and their opinions. I believe that there are pros and cons and also things that work and don't work based on individuals. The important thing is that if someone posts what seems to be working for them, then it is the duty of other LOs to consider if this is the right path for them and their LOs, and likewise do the necessary research and consultation with their doctors or other care providers to make the final decision. This is a very tough disease and I hope that all can have the strength and insight to do what is best for your LOs during this holiday season. Don't forget about yourselves, either. Make sure that you take a moment here and there to remember yourself and do something to bring extra happiness into your lives. God bless all, Joan > > For the record, we work with medical doctors in conjunction with our Naturopath Doctor. It's working great for my mom. I am not doing this alone. She is healthier than ever, except for her memory and hallucinations on occassion. > > The point of my posts is to let people know there are alternatives. Naturopath Doctors WITH MEDICAL DOCTORS helps my mom a lot. The MD diagnosis the trouble and the ND prescribes the natural remedies. > > My mom does not have trouble with side effects that I read about on these posts. > > I am amazed at my mom's progress. It works for her very well. I love my mom and I know everyone loves their loved ones too, I want to share what I'm learning about alternative treatments that have been around for thousands of years, tried and true. > > I still highly recommend a Naturopath Doctor working with an MD. It is helping my mom to have more good days than bad. > > How is this wrong? If my mom dies having a good day, wouldn't it be better than her having a boat-load of bad days? She doesn't like it when she has bad days, she's 80 and I'm committed to have her laugh every day, even on bad days. > > People should not be afraid to ask questions and seek alternatives. If you all want me to keep quiet and not share what I've learned, I will stop posting comments. > > Warmly, > > Sue > Re: Not sleeping very long at night... > > > > > > > Dear , > > I must say something here as a warning to our friends. I know you mean > well, and are sincere, and are also a dear friend on this list. > > Remember that I have been around a long time, as I am older than dirt, so > I have had time to have known several people that relied on Naturopath > remedies, and they died. They should have consulted with a Medical Doctor, or > several Medical Doctors, for other opinions to assess their problem. But no, > they tried to medicate themselves with natural remedies and it didn't work. > > We are not ignorant, yet we do not have the knowledge to decide all > treatments for ourselves. That is why Doctors go to school so many years. Yes, > they have killed many people because medicines can kill, but so can natural > remedies. Just please friends don't try to treat all yours or your LOs > illnesses alone with something of which your can't be positive from a medical > point of view. > > I mean this in the deepest respect, but it scares me to see anyone taking > the " natural " route. We are not doctors. > > Love to all, > Imogene > > > > Love with a smile, > Imogene > > Caregiver for my True Texas Gentleman Husband. Incorrect diagnoses of AD > in 2005. > A correct diagnosis of LBD 2006. > A happy personality is contagious. Infect someone today. > Yours Truly > > In a message dated 11/27/2009 7:11:35 P.M. Central Standard Time, > susan_jarmulowicz@... writes: > > My mom does this on occasion. > > Before she started to take Ashwagandha (natural remedy for insomnia at > night that works awesome for my mom) she was up every hour on the hour. We > would find her completely dressed with a bag packed with random things. She > would think she was going home or that she had to go somewhere. > > My mother doesn't take the traditional meds. Ashwagandha is similar to > Aricept only it doesn't have side effects. She is also on a natural supplement > called CogniFactor. > > I would highly recommend seeing a Naturopath Doctor. > > My mom was a diabetic for a long time. Now, she has a normal A1C (5.4) > It's been consistent for months. She used Fenugreek extract to help fix her > insulin receptors. > > Foods to avoid, especially at bed time are any dairy - like ice cream. > > Cut out all processed foods, all gluten (wheat, rye, barley, oats and > rice.) Replace these with Quinoa and Amaranth - grains that have been around > for thousands of years. They are high protein grains. > > Avoid eggplant - when my mom eats it she hallucinates > > My basic rule is no bread, no pasta and no preservatives. > > Currently, my mom takes a 3mg of Melatonin and 5000 iu of Vit D3 as well > as her 8 drops of Ashwagandha in a little bit of water. She sleeps through > the night, unless of course she's upset about something. The secret is to > keep him calm. I've discovered that by working on my own sense of calm, it > helps my mom to be calm. > > I write a lot about natural treatments that we are using with my mom ( > http://backdoorlogic.blogspot.com ). She has a lot of good days which is > great. Today she is having a fabulous day, I'm truly grateful. > > I know your pain. I began losing my mind before I found Ashwagandha! > > Sue > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2009 Report Share Posted November 30, 2009 I just want to say that I have been hurt badly by some in the medical profession and helped by others, and also helped by natural practitioners. Their training is different but no less valuable than an MDs; MDs aren't the only kind of doctors with help to offer even though in this country that is the traditional school of thought. What we consider traditional medicine and what people elsewhere in the world consider traditional medicine may be different, but it all is based on science and knowledge, and it all has great benefit. I think it is great that we have options and choices! If MDs are helping your loved one then by all means that's the way to go! If a naturopath is doing great things, then by all means that's the way to go! And if they can work together, excellent! Each of us has a different path and differing beliefs but that doesn't invalidate anyone else's . I already subscribe to your blog, but would hope that you wouldn't stop sharing your own experiences with us here. We all have our own experiences to share, none are any more or less important than another, even though what works for one might not work for another. Proven science is proven science, and in this fight against such an insipid evil every weapon in our arsenal has value! I would hate to see a difference of opinion deprive the list of your experience . His, Sherry s www.owly.net daughter of , (mis?)diagnosed with AD in 2005, diagnosed with LBD March 2008; in a NH, taking Aricept/Namenda, Seroquel, and Effexor for depression. ----- Original Message ----- > For the record, we work with medical doctors in conjunction with our > Naturopath Doctor. It's working great for my mom. I am not doing this > alone. She is healthier than ever, except for her memory and > hallucinations on occassion. > > The point of my posts is to let people know there are alternatives. > Naturopath Doctors WITH MEDICAL DOCTORS helps my mom a lot. The MD > diagnosis the trouble and the ND prescribes the natural remedies. > > My mom does not have trouble with side effects that I read about on these > posts. > > I am amazed at my mom's progress. It works for her very well. I love my > mom and I know everyone loves their loved ones too, I want to share what > I'm learning about alternative treatments that have been around for > thousands of years, tried and true. > > I still highly recommend a Naturopath Doctor working with an MD. It is > helping my mom to have more good days than bad. > > How is this wrong? If my mom dies having a good day, wouldn't it be better > than her having a boat-load of bad days? She doesn't like it when she has > bad days, she's 80 and I'm committed to have her laugh every day, even on > bad days. > > People should not be afraid to ask questions and seek alternatives. If you > all want me to keep quiet and not share what I've learned, I will stop > posting comments. > > Warmly, > > Sue > ----- Original Message ----- > From: Iward27663@... > I must say something here as a warning to our friends. I know you mean > well, and are sincere, and are also a dear friend on this list. > > Remember that I have been around a long time, as I am older than dirt, so > I have had time to have known several people that relied on Naturopath > remedies, and they died. They should have consulted with a Medical Doctor, > or > several Medical Doctors, for other opinions to assess their problem. But > no, > they tried to medicate themselves with natural remedies and it didn't > work. > > We are not ignorant, yet we do not have the knowledge to decide all > treatments for ourselves. That is why Doctors go to school so many years. > Yes, > they have killed many people because medicines can kill, but so can > natural > remedies. Just please friends don't try to treat all yours or your LOs > illnesses alone with something of which your can't be positive from a > medical > point of view. > > I mean this in the deepest respect, but it scares me to see anyone taking > the " natural " route. We are not doctors. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2009 Report Share Posted December 1, 2009 No worries Imogene. Being a Care Giver can make us all edgy at times. Naturopaths, in my opinion are the missing link when it comes to healthcare. ND's and MD's working together can make us all healthier faster, avoiding the pharmaceutical subscription plan. The thing with natural remedies, you are NOT always on them forever. You take it until you are well and YOU DO GET well. I live the miracle of natural remedies every day with my mom (and myself to stay well.) She doesn't need Fenugreek anymore for diabetes. It appears that her insulin receptors are healed. Yes, we changed her diet dramatically which has a lot to do with her diabetes control with a consistent a1c of 5.4, but the fenugreek helped us to get there faster. Now, she can even have flourless chocolate cake (I put the recipe on my blog - http://backdoorlogic.blogspot.com/2009/11/how-to-make-flourless-chocolate-cake-i\ n.html Did you know that prescribed pharmaceutical drugs are one of the leading killers in the US? http://www.foodconsumer.org/newsite/Non-food/Drug/accidental_prescription_drug_d\ eaths_spike_upward_220920090610.html Just because a doctor prescribes a drug as safe, doesn't mean it couldn't hurt you or kill you. You don't have to take what they prescribe, there are alternatives which a Naturopath is educated and experienced in prescribing the homeopathic and natural remedies. Pharma drugs and Natural remedies are medicines, they need to be used with care. Homeopathy is something that is very safe and effective. I plan to write a blog post about homeopathy very soon. Thank you for reading. Sue Re: Not sleeping very long at night... Dear , I must say something here as a warning to our friends. I know you mean well, and are sincere, and are also a dear friend on this list. Remember that I have been around a long time, as I am older than dirt, so I have had time to have known several people that relied on Naturopath remedies, and they died. They should have consulted with a Medical Doctor, or several Medical Doctors, for other opinions to assess their problem. But no, they tried to medicate themselves with natural remedies and it didn't work. We are not ignorant, yet we do not have the knowledge to decide all treatments for ourselves. That is why Doctors go to school so many years. Yes, they have killed many people because medicines can kill, but so can natural remedies. Just please friends don't try to treat all yours or your LOs illnesses alone with something of which your can't be positive from a medical point of view. I mean this in the deepest respect, but it scares me to see anyone taking the " natural " route. We are not doctors. Love to all, Imogene Love with a smile, Imogene Caregiver for my True Texas Gentleman Husband. Incorrect diagnoses of AD in 2005. A correct diagnosis of LBD 2006. A happy personality is contagious. Infect someone today. Yours Truly In a message dated 11/27/2009 7:11:35 P.M. Central Standard Time, susan_jarmulowicz@... writes: My mom does this on occasion. Before she started to take Ashwagandha (natural remedy for insomnia at night that works awesome for my mom) she was up every hour on the hour. We would find her completely dressed with a bag packed with random things. She would think she was going home or that she had to go somewhere. My mother doesn't take the traditional meds. Ashwagandha is similar to Aricept only it doesn't have side effects. She is also on a natural supplement called CogniFactor. I would highly recommend seeing a Naturopath Doctor. My mom was a diabetic for a long time. Now, she has a normal A1C (5.4) It's been consistent for months. She used Fenugreek extract to help fix her insulin receptors. Foods to avoid, especially at bed time are any dairy - like ice cream. Cut out all processed foods, all gluten (wheat, rye, barley, oats and rice.) Replace these with Quinoa and Amaranth - grains that have been around for thousands of years. They are high protein grains. Avoid eggplant - when my mom eats it she hallucinates My basic rule is no bread, no pasta and no preservatives. Currently, my mom takes a 3mg of Melatonin and 5000 iu of Vit D3 as well as her 8 drops of Ashwagandha in a little bit of water. She sleeps through the night, unless of course she's upset about something. The secret is to keep him calm. I've discovered that by working on my own sense of calm, it helps my mom to be calm. I write a lot about natural treatments that we are using with my mom ( http://backdoorlogic.blogspot.com ). She has a lot of good days which is great. Today she is having a fabulous day, I'm truly grateful. I know your pain. I began losing my mind before I found Ashwagandha! Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2009 Report Share Posted December 1, 2009 Alisa, A thought. A mild anti-depressant, given at night (if you think he's depressed) can help him to sleep at night. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2009 Report Share Posted December 1, 2009 Sue, it sure looks like you have found the perfect place to promote your Blog and alternative medicines. LBD patients are dying anyway, and if this makes them stronger, or have less symptoms, then that is wonderful. Will it cure heart disease? The list is endless. Yes, I have said that medicines can and do kill. But, so can alternative medicines. A loved one told me once that it would help me build up my system. What he was trying to give me would have killed me. I was just afraid that some would go only the alternative route and overlook serious health concerns that only a medical doctor can cure. My beloved friend's example of dying with cancer is proof of that. There are many that are trying the alternative route, and are not knowledgeable enough to seek help when it is seriously needed. That was why I gave the warning. I am not totally against help where it can be used properly, but I am afraid for those that try to play doctor on themselves and their loved ones without adequate knowledge to do so. So my warning to them still stands Love with a smile, Imogene Caregiver for my True Texas Gentleman Husband. Incorrect diagnoses of AD in 2005. A correct diagnosis of LBD 2006. A happy personality is contagious. Infect someone today. Yours Truly In a message dated 12/1/2009 6:28:14 A.M. Central Standard Time, susan_jarmulowicz@... writes: No worries Imogene. Being a Care Giver can make us all edgy at times. Naturopaths, in my opinion are the missing link when it comes to healthcare. ND's and MD's working together can make us all healthier faster, avoiding the pharmaceutical subscription plan. The thing with natural remedies, you are NOT always on them forever. You take it until you are well and YOU DO GET well. I live the miracle of natural remedies every day with my mom (and myself to stay well.) She doesn't need Fenugreek anymore for diabetes. It appears that her insulin receptors are healed. Yes, we changed her diet dramatically which has a lot to do with her diabetes control with a consistent a1c of 5.4, but the fenugreek helped us to get there faster. Now, she can even have flourless chocolate cake (I put the recipe on my blog - http://backdoorlogic.blogspot.com/2009/11/how-to-make-flourless-chocolate-cake-i\ n.html Did you know that prescribed pharmaceutical drugs are one of the leading killers in the US? http://www.foodconsumer.org/newsite/Non-food/Drug/accidental_prescription_dr ug_deaths_spike_upward_220920090610.html Just because a doctor prescribes a drug as safe, doesn't mean it couldn't hurt you or kill you. You don't have to take what they prescribe, there are alternatives which a Naturopath is educated and experienced in prescribing the homeopathic and natural remedies. Pharma drugs and Natural remedies are medicines, they need to be used with care. Homeopathy is something that is very safe and effective. I plan to write a blog post about homeopathy very soon. Thank you for reading. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2009 Report Share Posted December 1, 2009 I seem to be having trouble with message going through to the group, so I am forwarding this one. Hugs, Donna R Re: Not sleeping very long at night... For the record, we work with medical doctors in conjunction with our Naturopath Doctor. It's working great for my mom. I am not doing this alone. She is healthier than ever, except for her memory and hallucinations on occassion. The point of my posts is to let people know there are alternatives. Naturopath Doctors WITH MEDICAL DOCTORS helps my mom a lot. The MD diagnosis the trouble and the ND prescribes the natural remedies. My mom does not have trouble with side effects that I read about on these posts. I am amazed at my mom's progress. It works for her very well. I love my mom and I know everyone loves their loved ones too, I want to share what I'm learning about alternative treatments that have been around for thousands of years, tried and true. I still highly recommend a Naturopath Doctor working with an MD. It is helping my mom to have more good days than bad. How is this wrong? If my mom dies having a good day, wouldn't it be better than her having a boat-load of bad days? She doesn't like it when she has bad days, she's 80 and I'm committed to have her laugh every day, even on bad days. People should not be afraid to ask questions and seek alternatives. If you all want me to keep quiet and not share what I've learned, I will stop posting comments. Warmly, Sue Re: Not sleeping very long at night... Dear , I must say something here as a warning to our friends. I know you mean well, and are sincere, and are also a dear friend on this list. Remember that I have been around a long time, as I am older than dirt, so I have had time to have known several people that relied on Naturopath remedies, and they died. They should have consulted with a Medical Doctor, or several Medical Doctors, for other opinions to assess their problem. But no, they tried to medicate themselves with natural remedies and it didn't work. We are not ignorant, yet we do not have the knowledge to decide all treatments for ourselves. That is why Doctors go to school so many years. Yes, they have killed many people because medicines can kill, but so can natural remedies. Just please friends don't try to treat all yours or your LOs illnesses alone with something of which your can't be positive from a medical point of view. I mean this in the deepest respect, but it scares me to see anyone taking the " natural " route. We are not doctors. Love to all, Imogene Love with a smile, Imogene Caregiver for my True Texas Gentleman Husband. Incorrect diagnoses of AD in 2005. A correct diagnosis of LBD 2006. A happy personality is contagious. Infect someone today. Yours Truly In a message dated 11/27/2009 7:11:35 P.M. Central Standard Time, susan_jarmulowicz@... writes: My mom does this on occasion. Before she started to take Ashwagandha (natural remedy for insomnia at night that works awesome for my mom) she was up every hour on the hour. We would find her completely dressed with a bag packed with random things. She would think she was going home or that she had to go somewhere. My mother doesn't take the traditional meds. Ashwagandha is similar to Aricept only it doesn't have side effects. She is also on a natural supplement called CogniFactor. I would highly recommend seeing a Naturopath Doctor. My mom was a diabetic for a long time. Now, she has a normal A1C (5.4) It's been consistent for months. She used Fenugreek extract to help fix her insulin receptors. Foods to avoid, especially at bed time are any dairy - like ice cream. Cut out all processed foods, all gluten (wheat, rye, barley, oats and rice.) Replace these with Quinoa and Amaranth - grains that have been around for thousands of years. They are high protein grains. Avoid eggplant - when my mom eats it she hallucinates My basic rule is no bread, no pasta and no preservatives. Currently, my mom takes a 3mg of Melatonin and 5000 iu of Vit D3 as well as her 8 drops of Ashwagandha in a little bit of water. She sleeps through the night, unless of course she's upset about something. The secret is to keep him calm. I've discovered that by working on my own sense of calm, it helps my mom to be calm. I write a lot about natural treatments that we are using with my mom ( http://backdoorlogic.blogspot.com ). She has a lot of good days which is great. Today she is having a fabulous day, I'm truly grateful. I know your pain. I began losing my mind before I found Ashwagandha! Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2009 Report Share Posted December 1, 2009 I will continue to post. We all need alternatives, especially if our loved ones can't handle the drugs. My mom, she is one who can't handle any drugs. She's on low doses of the natural remedies. I started off without a ND. I helped my mom overcome diabetes. When my mom started to hallucinate, even after not eating gluten, I knew I needed a professional. Her traditional doctors were giving me strange looks like I was causing her harm. Happy ending, our ND is awesome, I don't know what we'd do without him. You can find one in your area by going here: http://www.naturopathic.org/ The website has a place to put your zip code and a list of doctors will be listed. Sue http://backdoorlogic.blogspot.com http://caregiversguidetosanity.blogspot.com Re: Not sleeping very long at night... Dear , I must say something here as a warning to our friends. I know you mean well, and are sincere, and are also a dear friend on this list. Remember that I have been around a long time, as I am older than dirt, so I have had time to have known several people that relied on Naturopath remedies, and they died. They should have consulted with a Medical Doctor, or several Medical Doctors, for other opinions to assess their problem. But no, they tried to medicate themselves with natural remedies and it didn't work. We are not ignorant, yet we do not have the knowledge to decide all treatments for ourselves. That is why Doctors go to school so many years. Yes, they have killed many people because medicines can kill, but so can natural remedies. Just please friends don't try to treat all yours or your LOs illnesses alone with something of which your can't be positive from a medical point of view. I mean this in the deepest respect, but it scares me to see anyone taking the " natural " route. We are not doctors. Love to all, Imogene Love with a smile, Imogene Caregiver for my True Texas Gentleman Husband. Incorrect diagnoses of AD in 2005. A correct diagnosis of LBD 2006. A happy personality is contagious. Infect someone today. Yours Truly In a message dated 11/27/2009 7:11:35 P.M. Central Standard Time, susan_jarmulowicz@... writes: My mom does this on occasion. Before she started to take Ashwagandha (natural remedy for insomnia at night that works awesome for my mom) she was up every hour on the hour. We would find her completely dressed with a bag packed with random things. She would think she was going home or that she had to go somewhere. My mother doesn't take the traditional meds. Ashwagandha is similar to Aricept only it doesn't have side effects. She is also on a natural supplement called CogniFactor. I would highly recommend seeing a Naturopath Doctor. My mom was a diabetic for a long time. Now, she has a normal A1C (5.4) It's been consistent for months. She used Fenugreek extract to help fix her insulin receptors. Foods to avoid, especially at bed time are any dairy - like ice cream. Cut out all processed foods, all gluten (wheat, rye, barley, oats and rice.) Replace these with Quinoa and Amaranth - grains that have been around for thousands of years. They are high protein grains. Avoid eggplant - when my mom eats it she hallucinates My basic rule is no bread, no pasta and no preservatives. Currently, my mom takes a 3mg of Melatonin and 5000 iu of Vit D3 as well as her 8 drops of Ashwagandha in a little bit of water. She sleeps through the night, unless of course she's upset about something. The secret is to keep him calm. I've discovered that by working on my own sense of calm, it helps my mom to be calm. I write a lot about natural treatments that we are using with my mom ( http://backdoorlogic.blogspot.com ). She has a lot of good days which is great. Today she is having a fabulous day, I'm truly grateful. I know your pain. I began losing my mind before I found Ashwagandha! Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2009 Report Share Posted December 1, 2009 Hi Imogene, I want everyone to know what I'm learning. My mom is on herbal remedies for her high blood pressure. I'm amazed at how well they work, Cardio HNT. You need to buy it from a Naturopath Doctor. I've researched a lot of herbal remedies and fungi. Cordyceps is really great but it's strong. It stopped my mom's hallucinations when she was taking it but it lowered her blood sugar too low. Cordyceps lowers blood sugar, lowers cholesterol and lowers blood pressure. Everything can kill us, even the food we eat (especially the food that we eat, it's now genetically altered.) We all need to educate ourselves and not be led blindly by our egos, fear or ignorance. The purpose of my blog and posting here is to share with everyone what I'm discovering about this disease and treatments. I personally believe that we are not dead until we are dead. My mom has shown me how the body can heal itself; the human body is amazingly resilient. Educate yourself, ask questions and have an ND and MD work together to help you maintain good health. Thanks Imogene, you are right, some people do try to self medicate, which is not a good idea... that's why I'm a big supporter of Naturopath Doctors. Sue Re: Not sleeping very long at night... Sue, it sure looks like you have found the perfect place to promote your Blog and alternative medicines. LBD patients are dying anyway, and if this makes them stronger, or have less symptoms, then that is wonderful. Will it cure heart disease? The list is endless. Yes, I have said that medicines can and do kill. But, so can alternative medicines. A loved one told me once that it would help me build up my system. What he was trying to give me would have killed me. I was just afraid that some would go only the alternative route and overlook serious health concerns that only a medical doctor can cure. My beloved friend's example of dying with cancer is proof of that. There are many that are trying the alternative route, and are not knowledgeable enough to seek help when it is seriously needed. That was why I gave the warning. I am not totally against help where it can be used properly, but I am afraid for those that try to play doctor on themselves and their loved ones without adequate knowledge to do so. So my warning to them still stands Love with a smile, Imogene Caregiver for my True Texas Gentleman Husband. Incorrect diagnoses of AD in 2005. A correct diagnosis of LBD 2006. A happy personality is contagious. Infect someone today. Yours Truly In a message dated 12/1/2009 6:28:14 A.M. Central Standard Time, susan_jarmulowicz@... writes: No worries Imogene. Being a Care Giver can make us all edgy at times. Naturopaths, in my opinion are the missing link when it comes to healthcare. ND's and MD's working together can make us all healthier faster, avoiding the pharmaceutical subscription plan. The thing with natural remedies, you are NOT always on them forever. You take it until you are well and YOU DO GET well. I live the miracle of natural remedies every day with my mom (and myself to stay well.) She doesn't need Fenugreek anymore for diabetes. It appears that her insulin receptors are healed. Yes, we changed her diet dramatically which has a lot to do with her diabetes control with a consistent a1c of 5.4, but the fenugreek helped us to get there faster. Now, she can even have flourless chocolate cake (I put the recipe on my blog - http://backdoorlogic.blogspot.com/2009/11/how-to-make-flourless-chocolate-cake-i\ n.html Did you know that prescribed pharmaceutical drugs are one of the leading killers in the US? http://www.foodconsumer.org/newsite/Non-food/Drug/accidental_prescription_dr ug_deaths_spike_upward_220920090610.html Just because a doctor prescribes a drug as safe, doesn't mean it couldn't hurt you or kill you. You don't have to take what they prescribe, there are alternatives which a Naturopath is educated and experienced in prescribing the homeopathic and natural remedies. Pharma drugs and Natural remedies are medicines, they need to be used with care. Homeopathy is something that is very safe and effective. I plan to write a blog post about homeopathy very soon. Thank you for reading. Sue Quote Link to comment Share on other sites More sharing options...
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